I-Endometriosis: Ukufuna iimpendulo

Umxholo

• Ukuphelisa iingcamango eziphosakeleyo
• Indlela enamatye yokufumanisa isifo
• Ubomi ngaphaya kokuxilongwa
• Ukukhuthaza ukhathalelo olungcono

Ngosuku lokuthweswa kwakhe isidanga ekholejini kwiminyaka eli-17 eyadlulayo, uMelissa Kovach McGaughey wayehleli phakathi koontanga bakhe belindele ukuba kubizwe igama lakhe. Kodwa endaweni yokonwabela isihlandlo esibalulekileyo, ukhumbula into engamkelekanga kwaphela: iintlungu.

Inenkxalabo yokuba amayeza awayewathathe kwangoko azakuphela ngexesha lomsitho, wacwangcisa kwangaphambili. "Ndandinxiba isipaji phantsi kwengubo yam yokuthweswa isidanga - kunye nebhotile encinci yamanzi kunye nebhotile yepilisi- ukuze ndikwazi ukuthatha idosi yam elandelayo yeyeza lentlungu ngaphandle kokuvuka," uyakhumbula.

Eli yayingeloxesha lokuqala okanye lokugqibela kuya kufuneka ukuba akhathazeke malunga ne-herndometriosis ethatha inqanaba leziko. Imeko ye-gynecological, ebangela ukuba izicubu ezivela kwisibeleko se-uterine zikhule kwamanye amalungu-zibonakaliswa ikakhulu, kwaye ngokucacileyo, ziintlungu.

UMcGaughey, owayesakuba lilungu lebhodi esembindini eseWisconsin yoMbutho we-Endometriosis, uchithe amashumi eminyaka elawula iimpawu zakhe ezibuhlungu. Unokwazi ukulandelela eyakhe emva apho yaqala khona kwinqanaba lokufikisa.

"Ndandiqala ukukrokrela ukuba kukho into engalunganga xa ndandineminyaka eli-14 ubudala xa ndandibonakala ndisiba sexesheni kakhulu kunabahlobo bam," uxelela uHealthline.

Emva kweminyaka eliqela engakhange afumane isiqabu nge-ibuprofen, nangona kunjalo, oogqirha awayebabona ukuba babeke izinto zokucwangcisa zehomoni ukuthomalalisa iintlungu zakhe. Kodwa iipilisi azizange zenze into enjalo. "Qho emva kweenyanga ezintathu, ndandibekwa kolunye uhlobo," ukhumbula oko uMcGaughey, oneminyaka engama-38 ubudala, othi abanye bade banikezele nokudakumba nokudakumba.

Emva kweenyanga ezininzi engafumani sisombululo, oogqirha bakhe bamnika into ebonakala ngathi kukugqibela: Usenokuqhubeka nokukhathazwa ziintlungu ezingapheliyo engazi nokuba kutheni okanye aye phantsi kwemela ukufumanisa ukuba yintoni engalunganga.

Ngelixa inkqubo ye-laparoscopic ibiya kuba yinto encinci yokuhlasela, "umbono wokuhlinzwa ukuze kufunyaniswe ukuba kunzima ukuwuginya njengomntu oneminyaka eli-16 ubudala," uyakhumbula.

Ukushiya ngeendlela ezimbalwa, uMcGaughey ekugqibeleni wakhetha ukungahambeli phambili ngotyando. Isigqibo, uthi, uya kuthi kamva azisole, njengoko oko kuthetha ukuba uya kuhlala iminyaka eliqela engcungcutheka ziintlungu.

Kwakungekho emva kokuba ephumelele ikholeji eneminyaka engama-21 apho waziva ekulungele ngengqondo ukwenza inkqubo kwaye ekugqibeleni afumane isifo.

"Ugqirha wafumanisa i-endometriosis kwaye wasusa konke okusemandleni," utshilo. Kodwa inkqubo yayingeyiyo inyango-konke awayenethemba lokukufumana. "Amanqanaba am entlungu ehla kakhulu emva, kodwa unyaka nonyaka zibuya iintlungu njengoko i-endo ikhulayo."

Kuqikelelwa1 kwabasetyhini abali-10 ubudala bokuzala eMelika abachaphazeleka yile meko, lo mdlalo wekati kunye nempuku uqhelekile. Kodwa ngokungafaniyo nezinye izigulo ezinempendulo ecace gca, akukho lunyango lonyango lwe-endometriosis.

Yintoni uninzi lwaba bafazi edibana nayo, nangona kunjalo, kukudideka.

Xa umsunguli kunye ne-CEO ye-Flutter Health, u-Kristy Curry, wayeneminyaka engama-20, wayesazi ukuba kukho into engalunganga emva kokuba ephantse ukuphuma eshawa ziintlungu zokuya exesheni.

Nangona wayengaqhelananga namaxesha amade kwaye abuhlungu kakhulu, ngeli xesha lahlukile. "Bendingakwazi ukuya emsebenzini okanye esikolweni iintsuku ezimbalwa kwaye bendilele," ukhumbula umhlali waseBrooklyn. "Bendicinga ukuba yinto eqhelekileyo leyo ngoba ngekhe 'uthelekise' iintlungu zomntu kunye nomnye umntu."

Konke oku kutshintshile kungekudala, nangona kunjalo, xa wazifumana sele esiya kwigumbi likaxakeka.

"Izifo zokuzala zabasetyhini zibonakala ngathi ziyadibana neminye imicimbi ekuhlaleni," utshilo uCurry, oza kuqhubeka nokuba neminyaka eliqela yokundwendwela i-ER ngenxa yeentlungu zangasese ezazingachazwanga kakuhle njenge-IBS okanye eminye imiba enxulumene ne-GI.

Kuba i-endometriosis ibangela ukuba izicubu ezibanjiweyo zikhule kwaye zisasazeke ngaphandle kommandla we-pelvic, amalungu achaphazelekayo anje ngee-ovari kunye namava wamathumbu otshintsho lwehomoni ngexesha labasetyhini, ebangela ukudumba okubuhlungu.

Kwaye ukuba iimpawu zakho zinzima kwaye zihlala kwiindawo zomzimba wakho ngaphandle kwenkqubo yakho yokuzala, uCurry uthi, ngoku uya kujongana neengcali ezingakumbi.

Ukuphelisa iingcamango eziphosakeleyo

Izizathu ezichanekileyo ze-endometriosis azikacaci. Kodwa enye yeengcamango zokuqala ibonisa ukuba kwehla kwinto eyaziwa ngokuba kukuya exesheni kwakhona - inkqubo ebandakanya igazi lokuya exesheni elibuyela emva kwiityhubhu ze-fallopian ziye kwisisu se-pelvic endaweni yokuba lishiye kwilungu lobufazi.

Nangona imeko inokulawulwa, enye yeyona miceli mngeni kwasekuqaleni kwesi sifo ayifumani ukuxilongwa okanye unyango. Kukho ukungaqiniseki kunye noloyiko lokungaze ufumane isiqabu.

Ngokophononongo lwamva nje oluqhutywa yi-HealthyWomen yabafazi abangaphezulu kwe-1 000 kunye nabaqeqeshi bezempilo abangama-352 (ii-HCPs), iintlungu ngexesha naphakathi kwamaxesha zezona mpawu zibangele ukuba uninzi lwabaphenduliyo bandwendwele i-HCP yabo ukufumana isifo. Isizathu sesibini nesesithathu zibandakanya imiba yesisu, iintlungu ngexesha lokwabelana ngesondo, okanye intshukumo ebuhlungu yamathumbu.

Abaphandi bafumanise ukuba ngelixa ama-4 kwabafazi aba-5 abangafumaneki ukuba bachongiwe sele bevile nge-endometriosis ngaphambili, uninzi lunolwazi olulinganiselweyo lokuba ezi mpawu zibonakala njani. Uninzi lukholelwa ukuba iimpawu zibandakanya iintlungu phakathi kwamaxesha kunye nexesha lokwabelana ngesondo. Bambalwa baqhelene nezinye iimpawu, ezinjengokudinwa, imiba yamathumbu, ukuchama okubuhlungu, kunye nokuhamba kwamathumbu kabuhlungu.

Okukhanyisa ngakumbi, okwangoku, yinto yokuba phantse isiqingatha sabasetyhini ngaphandle kokuxilongwa abazi ukuba akukho nyango.

Ezi ziphumo zophando zibonisa ingxaki enkulu ngokubhekisele kule meko. Ngelixa i-endometriosis yaziwa ngokubanzi kunangaphambili, isoloko ingaqondwa kakuhle, nkqu nangabafazi bane-diagnostic.

Indlela enamatye yokufumanisa isifo

Olunye uphononongo olwenziwe liqela labaphandi e-UK lubonisa ukuba nangona izinto zinokudlala indima, "esona sizathu sibalulekileyo sesi sifo sinokulibaziseka ekufumaniseni isifo."

Nangona kunzima ukufumanisa ukuba oku kungenxa yophando olwaneleyo lwezonyango, njengoko iimpawu zihlala zilinganisa ezinye iimeko ezinje ngee-ovarian cysts kunye nesifo sokudumba kwentloko, enye into icacile: Ukufumana isifo akukho nto incinci.

UPhilippa Bridge-Cook, PhD, usosayensi waseToronto osebenza kwibhodi yabalawuli ye-The Endometriosis Network Canada, ukhumbula exelelwa ngugqirha wosapho olukwiminyaka ye-20 ukuba akukho sizathu sokwenza loxilongo kuba kwakungekho nto inokwenziwa nge-endometriosis nakanjani. "Yeyiphi engeyonyani kunjalo, kodwa bendingazi ukuba ngelo xesha," ucacisa uBridge-Cook.

Olu lwazi lungelulo oluchanekileyo lunokubangela ukuba kutheni phantse isiqingatha sabasetyhini abangafumaniswanga kuvavanyo lwe-HealthyWomen bebengaqhelananga nendlela yokuqonda isifo.

Emva kwexesha, emva kokuba u-Bridge-Cook efumene ukuphuphuma kwesisu, uthi ii-OB-GYNs ezine zaxelela ukuba ngekhe abenako ukugula, kuba ukuba wayenokwenza njalo, uyakuba nokungachumi. Kude kube lelo xesha, u-Bridge-Cook wayekhulelwe ngaphandle kobunzima.

Nangona kuyinyani ukuba imiba yokuzala yenye yeengxaki ezinzima ezinxulunyaniswa ne-endo, ukungaqondi okuqinisekileyo kukuba kuya kuthintela abasetyhini ekukhulelweni nasekuthwaleni usana kude kube lixesha.

Amava kaBridge-Cook atyhila kungekuphela nje ukungabikho kolwazi egameni lee-HCPs ezithile, kodwa kunye nokungakhathali malunga nemeko.

Ukuthathela ingqalelo ukuba kubaphenduli abangama-850, kuphela ngama-37 eepesenti abazichonge njengofumene isifo se-endometriosis, umbuzo uhleli: Kutheni le nto ukufumana isifo kuyindlela enzima kwabasetyhini?

Impendulo inokuhlala nje kwisini sabo.

Ngaphandle kwento yokuba omnye kwabasetyhini kwaba-4 kuvavanyo wathi i-endometriosis ihlala iphazamisa ubomi babo bemihla ngemihla-kunye no-1 kwaba-5 esithi ihlala isenza-abo baxele iimpawu zabo kwii-HCP bahlala bexoshwa. Uphando lwafumanisa ukuba iipesenti ezili-15 zabasetyhini baxelelwa ukuba "Konke kusentloko yakho," ngelixa umntu omnye kwabathathu exelelwa ukuba "Yinto eqhelekileyo." Ngapha koko, omnye kwi-3 baxelelwa ukuba "Yinxalenye yokuba ngumfazi," kwaye i-1 kwabafazi aba-5 kuye kwafuneka babone ii-HCPs ezine ukuya kwezintlanu ngaphambi kokufumana isifo.

Lo mkhwa awothusi unikezwe ukuba iintlungu zamakhosikazi zihlala zingahoywa okanye zingakhathalelwanga ngokucacileyo kwishishini lezonyango. Olunye uphononongo lufumanise ukuba, “Ngokubanzi, abasetyhini baxela amanqanaba obuhlungu, iintlungu, kunye nentlungu yexesha elide kunamadoda, kodwa kunyangwa iintlungu kancinci.”

Kwaye ngokufuthi kungenxa yale ntlungu yokuba uninzi lwabasetyhini aluyi kufuna uncedo de iimpawu zabo zifikelele kwinqanaba elinganyamezelekiyo. Uninzi lwabaphenduli bophando belinde iminyaka emibini ukuya kwemihlanu ngaphambi kokubona iimpawu ze-HCP, ngelixa umntu omnye kwaba-5 elinde iminyaka emine ukuya kwemithandathu.

"Ndiva malunga nezigulana ezininzi ze-endo ezingamiselwanga kunyango lwentlungu," ucacisa uMcGaughey, othi uyaqonda ukuba oogqirha abafuni ukuba umntu axhomekeke kwiiopioid okanye amoshe isibindi okanye isisu sakhe ngee-anti-inflammatories. "Kodwa oku kushiye uninzi lwabasetyhini kunye namantombazana besezintlungwini ezigqithisileyo," utshilo. "Unzima kakhulu awukwazi ukuhamba, [abaninzi] becinga ukuba kufuneka bathathe i-Advil ezimbini."

Uphando luyamxhasa koku - njengoko omnye waxela ukuba abasetyhini abanamathuba okuba banikwe iipilisi zeentlungu kwi-ER, ngaphandle kwentlungu esiswini.

Inxalenye yengxaki yehla ngokukholelwa kwabasetyhini kunye namantombazana, uMcGaughey wongeza. Uyakhumbula exelela omnye ugqirha ukuba wayenentlungu ebuhlungu ngamaxesha, kodwa oko akuzange kubhalise. Kuphela kuxa wayechaza ukuba oko kwakumbangela ukuba aphoswe ziintsuku ezininzi zokusebenza inyanga nenyanga awathi ugqirha wamamela kwaye waqaphela.

"Ukusukela ngelo xesha ukuya phambili, ndiyilinganisile intlungu yam kubaqeqeshi ngeentsuku zomsebenzi ophosiweyo," utshilo. "Oko kubaluleke ngaphezu kokukholelwa nje kwiingxelo zam zeentsuku zokubandezeleka."

Izizathu zokugxotha iintlungu zamakhosikazi zigutyungelwe ngokwesiko lenkcubeko, kodwa kwakhona, njengoko uphando lubonisa, "ukusilela ngokubanzi kokubekwa phambili kwe-endometriosis njengomba obalulekileyo wezempilo yabasetyhini."

Ubomi ngaphaya kokuxilongwa

Kudala emva kokuthweswa kwakhe isidanga ekholejini, uMcGaughey uthi uchithe ixesha elininzi engalindelanga kwintlungu yakhe. "Iyazihlukanisa kwaye iyadandatheka kwaye iyadika."

Ucinga ukuba ubomi bakhe buya kuba njani ukuba ebengenaso isigulo. "Ndinethamsanqa ukuba nentombi yam, kodwa ndiyazibuza ukuba ndingavuma na ukuzama umntwana wesibini ukuba andinayo i-endometriosis," uyacacisa, nto leyo eyalibazisa ukukhulelwa kwiminyaka yokungachumi kwaye yafikelela kuqhaqho . "[Le meko] iyaqhubeka nokonakalisa amandla am ngendlela eyenza ukuba umntwana wesibini abonakale engenakufikeleleka."

Kwangokunjalo, u-Bridge-Cook uthi ukuphoswa lixesha nosapho xa eneentlungu ezibuhlungu zokuvuka ebhedini kuyeyona nto inzima kuye.

Abanye abanjengoCurry bathi owona mzabalazo mkhulu kukudideka kunye nokungaqondi. Okwangoku, uvakalisa uxabiso ngokufunda ngemeko yakhe kwangethuba. “Ndibe nethamsanqa, kwiminyaka yam engamashumi amabini, ukuba i-OB-GYN yam yokuqala ikrokrele i-endometriosis kwaye yenze uqhaqho lwe-laser ablation.” Kodwa, uyongeza, oku bekungafani nomthetho, njengoko uninzi lweempendulo ze-HCP yakhe ibikukungaqondi kakuhle. Ndiyazi ukuba ndibenethamsanqa kwaye uninzi lwabasetyhini abane-endo abanalo ithamsanqa.

Ngelixa uxanduva lokuqinisekisa ukuba abasetyhini bahlala benolwazi ngokwaneleyo malunga nemeko ehlala kwi-HCPs, uMcGaughey ugxininisa kwabasetyhini kufuneka bazenzele uphando kwaye bazithethelele. "Ukuba ugqirha wakho akakholelwa kuwe, fumana ugqirha omtsha," utshilo uMcGaughey.

Ngokufana nesiqingatha esingaphezulu kwesiqingatha sabaphenduli abafunyaniswe yi-OB-GYN, uhambo lweCurry's endo lwalukude ukuphela. Nokuba sele efumene isifo kwaye ehlinzwa, uye wachitha iminyaka engamashumi amabini ezayo ekhangela iimpendulo noncedo.

"Uninzi lwee-gynecologists aluyiphathi kakuhle i-endometriosis," utshilo u-Bridge-Cook, owalinda iminyaka eyi-10 ukusukela ngexesha aqala ukukrokrela ukuba kukho into engalunganga kwiminyaka ye-20 ngaphambi kokuba afumane isifo. Ucacisile, "Utyando lwe-Ablation lunxulunyaniswa neqondo eliphakamileyo kakhulu lokuphindaphinda," kodwa utyando lokucoca, olungenziwa ngoochwephesha bezonyango, lusebenza ngakumbi ekupheliseni iimpawu zexesha elide.

Kutshanje kuyamxhasa kule nto, njengoko abaphandi bafumanise ukuphucuka okukhulu kwintlungu engapheliyo ye-pelvic ebangelwa yi-endometriosis ngenxa yokuqotywa kwe-laparoscopic xa kuthelekiswa ne-ablation.

Ngokuka-Bridge-Cook, ukubandakanya iindlela ezininzi zonyango kunyango kunika iziphumo ezilungileyo. Usebenzise indibaniselwano yotyando lokucanda, ukutya, ukuzilolonga, kunye nonyango lomzimba lomzimba ukufumana isiqabu. Kodwa wafumanisa ukuba iyoga ibaluleke kakhulu ekulawuleni uxinzelelo olubangelwa kukuhlala nesifo esinganyangekiyo.

Nangona uMcGaughey ephawula ukuba zombini utyando lwakhe lwalunefuthe elibalulekileyo ekwehliseni iintlungu nasekubuyiseleni ubomi bakhe, uyavuma ukuba awekho amava amabini afanayo. Ibali lomntu wonke lahlukile.

Uyacacisa, "Ayinguye wonke umntu onokufumana uqhaqho olusemgangathweni ophezulu ngoochwephesha abaqeqeshelwe ukuqonda nokwandisa i-endometriosis," kwaye abanye abantu bathambekele ekuphuhliseni izicwili ezibomvu kunabanye. Ukunciphisa ixesha lokufumana isifo ngendlela engeyiyo yokuhlinzwa, uyongeza, angenza wonke umahluko.

Ukukhuthaza ukhathalelo olungcono

Indlela i-HCPs abaphatha ngayo abasetyhini abafumana iintlungu ngokulinganayo, ukuba ayingaphezulu, ibalulekile kwindlela abajongana ngayo nemeko ngokwayo. Ukwazi oku kungakhethiyo ngokwesini linyathelo lokuqala, kodwa elilandelayo libandakanya ukuba nolwazi ngakumbi kunye nokunxibelelana ngovelwano.

Ukuphumelela okubalulekileyo kuhambo lwe-Curry endo kwafika kwakamsinya emva kokudibana nogqirha owayengenalwazi kuphela, kodwa enovelwano. Xa waqala ukumbuza imibuzo engahambelani ne-endometriosis ekungekho namnye ugqirha owayenayo kwiminyaka engama-20, waqala walila. Ndizive ndifumana isiqabu kwangoko kunye nokuqinisekiswa.

Ngelixa uxanduva lokuqinisekisa ukuba abasetyhini bahlala benolwazi ngokwaneleyo malunga nemeko ehlala kwi-HCPs, uMcGaughey ugxininisa kwabasetyhini kufuneka bazenzele uphando kwaye bazithethelele. Ucebisa ngokubonisana nabagqirha abagulayo, ukujoyina imibutho ye-endo, kunye nokufunda iincwadi malunga nesihloko. "Ukuba ugqirha wakho akakholelwa kuwe, fumana ugqirha omtsha," utshilo uMcGaughey.

"Musa ukulinda iminyaka kwiintlungu njengoko ndenze ngenxa yokoyika utyando lwe-laparoscopic." Ukwacebisa ukuba abasetyhini baxhase unyango olubafaneleyo, njenge-Toradol engalunganga.

Kude kukufuna iimpendulo kwamashumi eminyaka, aba bafazi babelana ngomnqweno ofanayo wokuxhobisa abanye. "Thetha ngentlungu yakho kwaye wabelane nazo zonke iinkcukacha ze-nitty-gritty," kubongoza uCurry. "Kufuneka uvelise isisu sakho, isondo elibuhlungu, kunye neengxaki zesinyi."

Wongeza wathi: "Izinto ekungekho mntu ufuna ukuthetha ngazo zinokuba yinto ephambili ekufumaneni isifo kunye nenkathalo."

Inye into eyenziweyo yacaca kuvavanyo lwe-HealthyWomen kukuba itekhnoloji inokuba yeyona nto idibana nabasetyhini xa kusiziwa ekuhlaleni. Iziphumo zibonisa ukuba uninzi lwabasetyhini abangafumaneki ukuba bafuna ukufunda ngakumbi nge-endometriosis nge-imeyile nakwi-intanethi - kwaye oku kuyasebenza nakwabo bafumanekayo kwaye abanamdla kangako ekufundeni ngakumbi.

Kodwa inokusetyenziswa njengesixhobo sokunxibelelana nabanye kuluntu lwe-endo.

Ngaphandle kwayo yonke iminyaka yokukhathazeka kunye nokungaqondani, enye yesilivere eyenzelwe uCurry ibingabafazi adibana nabo abakoluhambo lunye. "Bayayixhasa kwaye wonke umntu ufuna ukuncedana nangayiphi na indlela abanokwazi ngayo."

"Ndicinga ngoku ukuba abantu abaninzi bayazi nge-endometriosis kulula ukuthetha ngayo," utshilo uCurry. "Endaweni yokuthi awuziva mnandi ngenxa 'yeentlungu zamanenekazi' ungathi 'ndine-endometriosis' kwaye abantu bayazi."

USindi Lamothe yintatheli ezizimeleyo eseGuatemala. Ubhala rhoqo malunga nongenelelo phakathi kwempilo, impilo, kunye nesayensi yokuziphatha komntu. Ubhalelwe iAtlantic, iNew York Magazine, iTeen Vogue, iQuartz, iWashington Post, nezinye ezininzi. Mfumane apha bakaocinday.com.