Ukusinda kuhlobo oluNqabileyo loMhlaza kundenze ndaba mbaleki engcono

Umxholo

• Ukulunywa kweBug
• Elona Hlobo linzima
• Ubomi emva koMhlaza
• Uphengululo lwe

NgoJuni 7, 2012, kwiiyure nje ezimbalwa phambi kokuba ndibekwe kwinqanaba lokufumana idiploma yam kwisikolo samabanga aphakamileyo, ugqirha wamathambo wahambisa ezi ndaba: Andiphelelanga nje ekubeni ndinethumba elinomhlaza elinqabileyo emlenzeni wam, kwaye bekuya kufuneka ndenziwe utyando ukuze ndisuse yona, kodwa mna-imbaleki ekhutheleyo ebisandula ukugqiba umdyarho wam wamva nje wesiqingatha seyure ngeeyure ezimbini kunye nemizuzu eli-11-ayisoze ikwazi ukuphinda ibaleke.

Ukulunywa kweBug

Malunga neenyanga ezimbini ezinesiqingatha ngaphambili, ndafumana i-bug bite kumlenze wam osezantsi wasekunene. Indawo engaphantsi kwayo ibonakala idumbile, kodwa ndicinge nje ukuba yayiyindlela yokuluma. Iiveki zihambile kwaye kuhambo oluqhelekileyo lwe-4-mile, ndiye ndabona ukuba ibump ikhule nangaphezulu. Umqeqeshi wam weembaleki kwisikolo samabanga aphakamileyo wandithumela kwiziko lasekuhlaleni lamathambo, apho ndaye ndenziwa khona iMRI ukubona ukuba inokuba yintoni na iqhuma lebhola yentenetya.

Iintsuku ezimbalwa ezizayo yayikukungxamiseka kweefowuni ezingxamisekileyo kunye namagama ayoyikisayo anje ngo "oncologist," "tumor biopsy," kunye "scan density density." NgoMeyi 24, 2012, kwiiveki ezimbini ngaphambi kokuba ndithweswe isidanga, kwafunyaniswa ukuba ndinesifo se-4 alveolar rhabdomyosarcoma, uhlobo olunqabileyo lomhlaza wethishu eyayizisongele ijikeleze amathambo kunye neethambo zomlenze wam wasekunene. Kwaye ewe, inqanaba lesi-4 linesifo sokuxela kwangaphambili. Ndanikwa i-30 yepesenti ithuba lokuphila, nokuba ndiyayilandela na inkqubo yotyando, ichemotherapy, kunye nemitha.

Njengoko ithamsanqa belinokuba nalo, nangona kunjalo, umama wayesebenza nebhinqa elinomntakwabo ingcali ye-oncologist egxile kwi-sarcoma (okanye umhlaza wethishu ethambileyo) kwiZiko loMhlaza lase-And Anderson eHouston. Kwenzeka ukuba wayesedolophini emtshatweni waza wavuma ukudibana ukuze asinike uluvo lwesibini. Ngosuku olulandelayo, mna nosapho lwam sachitha phantse iiyure ezine sithetha noGqr. Emva kokuphonononga okuninzi, wacinga ukuba amathuba am okubetha eli thumba ayefana nokuba ndingalubhaqa utyando, esongeza ukuba i-punch enye-ezimbini ye-chemo ebukhali kunye ne-radiation inokusebenza ngokunjalo. Ngoko sagqiba kwelokuba sihambe ngaloo ndlela.

Elona Hlobo linzima

Kwakuloo nyanga, njengoko bonke abahlobo bam babeqalisa ihlobo labo lokugqibela ekhaya ngaphambi kwekholeji, ndaqala ngowama-54 ukohlwaya iiveki zekhemotherapy.

Ngobusuku obunye, ndasuka kwimbaleki ekutyayo ecocekileyo eyayibaleka iimayile ezili-12 rhoqo ngeempelaveki kwaye ndinqwenele isidlo sakusasa esikhulu kwisigulana esidiniweyo esasinokuhamba iintsuku singenamdla wokutya. Ngenxa yokuba umhlaza wam wawukwinqanaba lesi-4, amachiza am yayingawona aqatha onokuwafumana. Oogqirha bam babendilungiselele ukuba "ndinqunyulwe ezinyaweni zam" ngenxa yesicaphucaphu, ukuhlanza, kunye nokuncipha komzimba. Ngommangaliso, andizange ndiphose nakanye, kwaye ndilahlekile kuphela malunga neepawundi ezili-15, okungcono kakhulu kunokuba bekulindelwe. Bona, kunye nam, sayibeka le nto kwinto yokuba ndandikwimo entle ngaphambi kokuxilongwa. Amandla endiwakhile kwezemidlalo kunye nokutya okunempilo kusebenze njengohlobo lokhuselo ngokuchasene namanye amayeza anamandla kakhulu. (Idibeneyo: Ukuhlala ndikhuthele kundincedile ukuba ndoyise umhlaza wePancreatic)

Kangangethuba elingaphezu konyaka, ndandichitha ubusuku obuhlanu ngeveki kwisibhedlele sabantwana sasekuhlaleni iyeza elinetyhefu lihlala litofelwa kum ngelinge lokubulala iiseli zomhlaza. Utata wam wachitha ubusuku bonke nam-kwaye waba ngumhlobo wam osenyongweni kule nkqubo.

Kuyo yonke loo nto, bendikhumbula ukuzilolonga kakhulu, kodwa umzimba wam awukwazanga ukuyenza. Noko ke, malunga neenyanga ezintandathu kunyango, ndazama ukubaleka ngaphandle. Injongo yam: imayile enye. Ndacinywa kwasekuqaleni, ngaphandle kokuphefumla kwaye ndingakwazi ukugqiba kungaphantsi kwemizuzu eli-15. Kodwa nangona yayivakala ngathi iza kundiqhekeza, yasebenza njengenkuthazo yengqondo. Emva kokuchitha ixesha elininzi ndilele ebhedini, nditofwa ngamayeza kwaye ndinesibindi sokuqhubeka, ekugqibeleni ndaziva ngathi ndenzela okuthile. mna-kwaye kungekhona nje kwiinzame zokubetha umhlaza. Indikhuthazile ukuba ndiqhubeke ndikhangele phambili kwaye ndibetha umhlaza ekuhambeni kwexesha. (Idibeneyo: 11 Izizathu ezixhaswe yiNzululwazi zokuSebenza ziLungile kuwe)

Ubomi emva koMhlaza

NgoDisemba 2017, ndabhiyozela iminyaka emine enesiqingatha ngaphandle komhlaza. Kutshanje ndiye ndathweswa isidanga kwiDyunivesithi yaseFlorida ngedigri yokuthengisa kwaye ndinomsebenzi omangalisayo wokusebenza kunye neTom Coughlin Jay Fund Foundation, enceda iintsapho ezinabantwana abalwa nomhlaza.

Xa ndingasebenzi ndiyabaleka. Ewe, kunjalo. Ndibuyele esihlalweni kwaye, ndiyazingca ukusitsho, ngokukhawuleza kunakuqala. Ndaqala umva kancinci, ndibhalisela ugqatso lwam lokuqala, i-5K, malunga nonyaka kunye neenyanga ezintathu emva kokugqiba i-chemo. Nangona ndaluphephayo utyando, inxalenye yonyango lwam yayiquka iiveki ezintandathu zemitha yemitha ejoliswe ngqo emlenzeni wam, nto leyo ingcali yam ye- oncologist nengcali ngemitha yemitha yayindilumkisile ukuba iya kwenza ithambo libe buthathaka, nto leyo eyayindenza ndibe sengozini yokwaphuka. “Ungothuki ukuba awukwazi ukudlula iikhilomitha ezi-5 ngaphandle kokuba buhlungu kakhulu,” batsho.

Kodwa ngo-2015, ndandisele ndisebenze indlela yam ebuyela emva ukuya kwimigama emide, ndikhuphisana kugqatso lwesiqingatha somdyarho ngoSuku lokuBonga kwaye ndibetha ixesha lam lokugqibela lesiqingatha somhlaza sesiqingatha semarathon ngemizuzu eyi-18. Loo nto yandinika ukuzithemba kokuzama ukuziqeqeshela umdyarho opheleleyo. Kwaye ngoMeyi ka-2016, ndandigqibe i-marathon ezimbini kwaye ndifanelekele i-Boston Marathon ka-2017, endiyibaleke ngo-3: 28.31. (Idibeneyo: Lo Msindisi woMhlaza uqhuba iHlf Marathon enxibe njengeCinderella yesizathu sokuXhobisa)

Andiyi kulibala ukuxelela i-rockstar oncologist, u-Eric S. Sandler, MD, ukuba ndiza kuzama iBoston. "Uyadlala?!" uthe. "Khange ndikuxelele kube kanye ukuba awusoze uphinde ubaleke?" Uyenzile, ndiqinisekisile, kodwa andimamelanga. "Kulungile, ndiyavuya ukuba ungakhange", utshilo. "Yiyo loo nto uye waba ngulomntu unguye namhlanje."

Ndihlala ndisithi umhlaza ngethemba lokuba yeyona nto imbi endiya kuhamba nayo, kodwa ibiyeyona ibalaseleyo. Yatshintsha indlela endicinga ngayo ngobomi. Yasondeza mna nosapho lwam. Indenze ndaba yimbaleki engcono. Ewe ndinethambo elincinci lezicubu ezifileyo emlenzeni wam, kodwa ngaphandle koko ndinamandla kunakuqala. Nokuba ndibaleka notata wam, igalufa kunye nesithandwa sam, okanye malunga nokumba isitya se-smoothie esityibilike iitshipain chips, iicoconut crumbled macaroons, ibhotolo yealmond nesinamon, ndihlala ndincuma, kuba ndilapha Ndiphilile kwaye, kwi-23, ndikulungele ukuthatha ihlabathi.

Uphengululo lwe