Indlela Ukutya kunye nokuzilolonga eziziphucule Kakhulu iimpawu zam zeMultiple Sclerosis

Umxholo

• Indlela ende eya ekuchongeni
• Ukufunda ukuhlala ne-MS
• Indlela endabugcina ngayo ubomi bam
• Uphengululo lwe

Kwakusele kudlule iinyanga ezimbalwa ndizele unyana wam xa iimvakalelo zokuba ndindisholo zaqalisa ukunwenwa emzimbeni wam. Ekuqaleni, ndayichitha, ndicinga ukuba ngumphumo wokuba ngumama omtsha. Kodwa emva koko, ubundindisholo babuya. Ngeli xesha ezingalweni nasemilenzeni — kwaye yayihlala ibuya iphindaphindeka kangangeentsuku. Ekugqibeleni yafika kwinqanaba apho umgangatho wobomi wam uchaphazeleka kulapho ndaye ndazi ukuba lixesha lokuba ndibone umntu malunga nalo.

Indlela ende eya ekuchongeni

Ndingene nogqirha wam ngokukhawuleza ukuba ndinakho kwaye ndaxelelwa ukuba iimpawu zam ziyimveliso yoxinzelelo. Phakathi kokubeleka nokubuyela ekholejini ukuya kufumana isidanga, yayininzi ipleyiti yam. Ke ugqirha wam wandibeka kunyango lokulwa noxinzelelo kunye noxinzelelo kwaye wandithumela endleleni yam.

Zaqengqeleka iiveki ndimane ndiziva ndindindisholo. Ndaye ndaqhubeka noxinzelelo kugqirha wam ukuba kukho into engalunganga, wavuma ke ukuba ndibeneMRI ukuze ndibone ukuba kunokubakho enye into enxulumene nesizathu.

Bendindwendwele umama ngelixa bendilinde ukudibana kwam okucwangcisiweyo xa ndisiva ubuso bam kunye nenxalenye yengalo yam iphelelwe ngamandla. Ndaya ngqo kwi-ER apho benza uvavanyo lwe-stroke kunye ne-CT scan-zombini ezabuya zicocekile. Ndicele isibhedlele ukuba ndithumele iziphumo zam kugqirha wam wokhathalelo lokuqala, ogqibe kwelokuba ayirhoxise i-MRI yam kuba iCT scan ibingabonisi nto. (Idibeneyo: 7 Iimpawu ongafanele uzihoye)

Kodwa kwiinyanga ezininzi ezizayo, ndaqhubeka ndisiba nomzimba wonke. Ngenye imini, ndade ndavuka ndafumanisa ukuba icala lobuso bam lijikele ngokungathi ndibethwa sistroke. Kodwa iimvavanyo ezininzi zegazi, iimvavanyo zestroke, kunye nokuskena ngakumbi kwe-CT kamva, oogqirha babengenakufumanisa ukuba yintoni engalunganga ngam. Emva kovavanyo oluninzi kwaye ndingenampendulo, ndaziva ngathi andinandlela yimbi ngaphandle kokuzama ukuqhubeka.

Ngelo xesha, kwakudlula iminyaka emibini okoko ndaqala ndaziva ndindisholo kwaye olona vavanyo ndandingazange ndilwenze yayiyiMRI. Ekubeni ndandiphelelwa yimisebenzi, ugqirha wam wagqiba kwelokuba andithumele kwingcali yemithambo-luvo. Emva kokuva malunga neempawu zam, wandicwangcisela iMRI, ASAP.

Ndigqibele ngokufumana iskeni ezimbini, enye inamajelo eendaba eyahlukileyo, into enekhemikhali ejoyiweyo ukuphucula umgangatho wemifanekiso ye-MRI, kunye nenye ngaphandle kwayo. Ndiyishiyile indibano ndiziva ndicaphuka kakhulu kodwa ndayenza yandenza ndalahlwa ngumahluko. (Eyeleleneyo: Oogqirha bangazihoyi iimpawu zam iminyaka emithathu ngaphambi kokuba ndifunyanwe ngeSigaba sesi-4 seLymphoma)

Ndavuka ngengomso ndiziva ukuba ndinxilile. Ndabona kabini kwaye ndandingakwazi ukuhamba umgca othe ngqo. Kudlule iiyure ezingamashumi amabini anesine, kwaye andiziva ndingcono. Umyeni wam wandiqhuba ndaya kugqirha wam wemithambo-ndaza ndalahleka, ndababongoza ukuba bakhawulezise ngeziphumo zovavanyo kwaye bandixelele ukuba yintoni engalunganga ngam.

Ngaloo mini, ngo-Agasti ka-2010, ndade ndayifumana impendulo yam. Ndine Multiple Sclerosis okanye iMS.

Ekuqaleni, ndaziva ndikhululekile. Ukuqala, ekugqibeleni ndafumana ukuxilongwa, kwaye kwinto encinci endiyazi ngayo nge-MS, ndaqonda ukuba kwakungekho isigwebo sokufa. Sekunjalo, ndandinemibuzo esigidi malunga nokuba oku kuthetha ntoni kum, impilo yam kunye nobomi bam. Kodwa ndathi ndakucela inkcazelo engakumbi koogqirha, ndanikwa iDVD eneenkcukacha, kunye nephecana elalinenombolo yokuba ndifowunele kuyo. (Idibeneyo: Oogqirha ababhinqileyo bangcono kunamaxwebhu amaDoda, iMiboniso yoPhando eNtsha)

Ndaphuma kweso sihlandlo ndaya emotweni nomyeni wam yaye ndikhumbula ndisiva yonke into: uloyiko, umsindo, ukudana, ukudideka—kodwa ngaphezu kwako konke, ndandiziva ndililolo. Ndishiyeke ebumnyameni ngokupheleleyo ndinokuxilongwa okuza kutshintsha ubomi bam ngonaphakade, kwaye andikhange ndiyiqonde ncam indlela.

Ukufunda ukuhlala ne-MS

Ngombulelo, bobabini umyeni wam kunye nomama bakwezonyango kwaye bandinika isikhokelo kunye nenkxaso kwezi ntsuku zimbalwa zizayo. Ndithandabuza, ndibukele iDVD endiyinikwe ngugqirha wemithambo-luvo. Kulapho ndabona khona ukuba akukho namnye umntu okule vidiyo owayefana nam.

Ividiyo yayijolise kubantu ababenokuthi bachatshazelwe yi-MS kangangokuba babekhubazekile okanye babeneminyaka engama-60 ubudala nangaphezulu. Kwiminyaka engama-22 ubudala, ukubukela le vidiyo kwandenza ndaziva ndindodwa. Bendingazi nokuba ndiqale ngaphi okanye ukuba ndinganjani kwikamva. Inokuba mbi kangakanani i-MS yam?

Ndichithe iinyanga ezimbini ezizayo ndifunda ngakumbi ngemeko yam ndisebenzisa naziphi na izixhobo endinokuzifumana xa ngequbuliso, bendinenye yezona zinto zibuhlungu kakhulu ebomini bam. Ndaba ngumlwelwe kwicala lasekhohlo lomzimba wam ndaza ndalala esibhedlele. Ndandingakwazi ukuhamba, ndandingakwazi ukutya ukutya okuqinileyo, yaye okona kubi kakhulu, ndandingakwazi ukuthetha. (Idibeneyo: Imiba emi-5 yezeMpilo eFikelela kwabafazi ngokwahlukileyo)

Ukufika kwam ekhaya kwiintsuku ezimbalwa kamva, umyeni wam kwafuneka andincede kuyo yonke into—enoba kukubopha iinwele zam, ukuxukuxa okanye ukundondla. Njengokuba imvakalelo yayiqala ukubuyela kwicala lasekhohlo lomzimba wam, ndaqala ukusebenza nonyango lomzimba ukuqala ukomeleza izihlunu zam. Kwakhona ndaqalisa ukubona ingcali yokuthetha, ekubeni kwakufuneka ndiphinde ndifunde indlela yokuthetha kwakhona. Kuthathe iinyanga ezimbini ngaphambi kokuba ndisebenze kwakhona ndedwa.

Emva kweso siganeko, ugqirha wam wemithambo-luvo wayalela uthotho lwezinye iimvavanyo eziquka impompo yomqolo kunye nenye iMRI. Ndaye emva koko ndachongwa ngokuchanekileyo nge-Relapsing-Remitting MS-uhlobo lwe-MS apho une-flare-ups kwaye unokuphinda ubuye kodwa ekugqibeleni ubuyela esiqhelweni, okanye usondele kuyo, nokuba kuthatha iiveki okanye iinyanga. (Eyeleleneyo: USelma Blair Wenza iNkangeleko yeemvakalelo kwii-Oscars Emva kokuxilongwa kwe-MS)

Ukulawula ukuphindaphinda kwezi zihlandlo, ndanikwa amayeza angaphezu kweshumi elinambini. Oko kuze nolunye uthotho lweziphumo ebezingalindelekanga ezenze ubomi bam, ukuba ngumama nokwenza izinto endizithandayo kwaba nzima kakhulu.

Kwakusele kudlule iminyaka emithathu ukususela oko ndaqalisa ukuba neempawu, yaye ngoku ekugqibeleni ndandiyazi eyona nto yayindiphethe kakuhle. Ukanti, ndandingekasifumani isiqabu; ikakhulu kuba kwakungekho zixhobo zininzi phaya zixelela indlela yokuphila ubomi bakho kwesi sigulo singanyangekiyo. Yiloo nto indenze ndanexhala kakhulu kwaye ndanovalo.

Kwiminyaka emva koko, bendisoyika ukuba nabani na andishiye ndedwa nabantwana bam. Bendingazi ukuba i-flare-up ingenzeka nini kwaye ndingafuni ukuyibeka kwimeko apho kuya kufuneka babize uncedo. Ndaziva ngathi andinakuba ngumama okanye abazali endihlala ndiphupha ngokuba-kwaye oko kwaphula intliziyo yam.

Ndandizimisele ukukuphepha ukuvutha nangayiphi na indleko kangangokuba ndandisoyika ukubeka naluphi na uhlobo loxinzelelo emzimbeni wam konke konke. Oku kuthetha ukuba ndizabalaza ukuba ndisebenze-nokuba oko kuthetha ukusebenza okanye ukudlala nabantwana bam. Nangona ndandicinga ukuba ndimamele umzimba wam, ndaye ndaziva ndibuthathaka kwaye ndoyikeka ngakumbi kunangaphambili.

Indlela endabugcina ngayo ubomi bam

I-Intanethi ibe sisixhobo esikhulu kum emva kokuba ndifunyaniswe nguxilongo. Ndaqala ukwabelana ngeempawu zam, iimvakalelo, kunye namava am kunye ne-MS ku-Facebook kwaye ndaqala neblogi ye-MS yam. Ngokuthe chu kodwa ngokuqinisekileyo, ndaqalisa ukuzifundisa ukuba kuthetha ukuthini ngokwenene ukuphila nesi sifo. Okukhona ndisiya ndifunda, kokukhona ndandizithemba ngakumbi.

Ngapha koko, yile nto indikhuthazayo ukuba ndibambisane nephulo le-MS Mindshift, inyathelo elifundisa abantu ngento abanokuyenza ukunceda ukugcina ubuchopho babo busempilweni kangangoko, ixesha elide. Ngawam amava okufunda nge-MS, ndiye ndabona ukuba kubaluleke kangakanani ukuba nezixhobo zemfundo zifumaneke lula ukuze ungaziva ulahlekile kwaye unesithukuthezi, kwaye i-MS Mindshift yenza kanye loo nto.

Ngelixa bendingenaso isibonelelo esifana ne-MS Mindshift kuyo yonke loo minyaka idlulileyo, bekungokuhlala kuluntu kwi-Intanethi nakuphando lwam (hayi iDVD kunye nephamflethi) endiyifundileyo ukuba zininzi kangakanani izinto ezinje ngokutya kunye nokuzilolonga xa kusiziwa ekulawuleni i-MS. Kwiminyaka eliqela elandelayo, ndazama ukusebenza ngeendlela ezahlukeneyo kunye nezicwangciso zokutya ngaphambi kokufumana into endiyisebenzeleyo. (Inxulumene: Ukuqina kulondoloze uBomi bam: Ukusuka kwi-MS Patient ukuya kwi-Elite Triathlete)

Ukudinwa lolona phawu luphambili lweMS, ndiye ndaqonda ngokukhawuleza ukuba andinakwenza umthambo onzima. Kwafuneka ndifumane indlela yokuhlala ndipholile ngelixa ndisebenza ngaphandle kuba ubushushu bunokubangela ukuba ubushushu bube lula. Ekugqibeleni ndafumanisa ukuba ukuqubha kwakuyeyona ndlela ilungileyo yokuba ndikwazi ukuzilolonga, ndisepholile, kwaye ndisenamandla okwenza ezinye izinto.

Ezinye iindlela zokuhlala zikhuthele ezazindisebenzela: ukudlala noonyana bam eyadini ngasemva lakuba ilanga litshonile okanye besolula kunye nezikhewu ezimfutshane zoqeqesho lwebhendi yokuxhathisa ngaphakathi ekhayeni lam. (Eyeleleneyo: Ndingumqeshwa omncinci, oFit Spin-kwaye ndiphantse ndasweleka ngenxa yokuhlaselwa yintliziyo)

Ukutya kwadlala indima enkulu ekwandiseni umgangatho wobomi bam. Ndikhubeke kukutya kwe-ketogenic ngo-Okthobha ka-2017 kanye njengokuba yaqala ukuduma, kwaye ndatsaleleka kuyo kuba kucingelwa ukunciphisa ukudumba. Iimpawu ze-MS ziqhagamshelwe ngokuthe ngqo ekudumbeni emzimbeni, ezinokuphazamisa ukuhanjiswa kwemithambo-luvo kunye nokonakalisa iiseli zengqondo. I-Ketosis, ilizwe apho umzimba utshisa i-fat for fuel, inceda ukunciphisa ukuvuvukala, endifumene ukuba luncedo ekugcineni ezinye zeempawu ze-MS.

Kwisithuba nje seeveki ekutyeni, ndaziva ndibhetele kunangaphambili. Amanqanaba wam amandla akhuphuka, ndaye ndancipha kwaye ndaziva ngathi ndim. (Idibeneyo: (Jonga iziphumo lo mfazi wayenazo emva kokulandela ukutya kweKeto.)

Ngoku, phantse kwiminyaka emibini kamva, ndingatsho ngebhongo ukuba andizange ndiphinde ndibuyele emva okanye ndiphinde ndivuke.

Inokuthatha iminyaka esithoba, kodwa ekugqibeleni ndakwazi ukufumana indibaniselwano yeendlela zokuphila ezindincedayo ukulawula i-MS yam. Ndisawathatha amayeza kodwa kuphela njengoko kufuneka. Yeyam yobuqu MS cocktail. Emva kwayo yonke loo nto, yile kuphela kubonakala ngathi kuyandisebenzela. Wonke umntu one-MS kunye namava kunye nonyango luya kwaye kufuneka lwahluke.

Kwaye, nangona bendisempilweni nje okwethutyana ngoku, bendisenawo umzabalazo wam. Kukho iintsuku apho ndide ndidinwe kangangokuba ndingakwazi nokuzihlamba. Ndikhe ndanemiba yokuqonda apha naphaya kwaye ndinengxaki nombono wam. Kodwa xa kuthelekiswa nendlela endaziva ngayo xa ndafunyaniswa okokuqala, ndenza ngcono kakhulu.

Kule minyaka esithoba idlulileyo, bendinamahla ndinyuka kwesi sifo sidodobalisayo. Ukuba indifundise nantoni na, kukumamela kwaye ikwatolika oko umzimba wam uzama ukundixelela kona. Ngoku ndiyazi xa ndifuna ikhefu kwaye xa ndinokuthi ndityhale kancinci ukuba ndiqiniseke ukuba ndomelele ngokwaneleyo ukubakhona ebantwaneni bam-ngokwasemzimbeni nasengqondweni. Ngaphezu kwako konke, ndiye ndafunda ukuyeka ukuhlala kuloyiko. Ndikhe ndahamba ngesitulo esinamavili ngaphambili, kwaye ndiyazi ukuba kunokwenzeka ukuba ndiphelele apho. Kodwa, eyona nto ibalulekileyo: Akukho nanye kwezi eya kundithintela ukuba ndingahlali.

Uphengululo lwe