Indoda Ebangela umceli mngeni we-ALS Iyatshona kwiBhili zoNyango

Umxholo

• Uphengululo lwe

Owayesakuba ngumdlali webaseball kwiKholeji yaseBoston uPete Frates kwafunyaniswa ukuba une-ALS (amyotrophic lateral sclerosis), ekwabizwa ngokuba sisifo sikaLou Gehrig, ngo-2012. Kwiminyaka emibini kamva, weza necebo lokunyusa imali yokugula ngokwenza umngeni we-ALS kamva yaba yinto yemidiya yoluntu.

Nangona kunjalo namhlanje, njengoko uFrates elele kwinkxaso yobomi ekhaya, usapho lwakhe lufumana kunzima ukuhlawula i-85,000 yeedola okanye iidola ezingama-95,000 ngenyanga ukuze aqhubeke ephila. "Naluphi na usapho luya kuqhekeka ngenxa yoku," utata ka-Frates, uJohn, uxelele i-CNN yeWBZ. "Emva kweminyaka emi-2 enesiqingatha yolu hlobo lweendleko, iye yaba yinto enganyamezelekiyo kuthi. Asikwazi ukuyihlawula."

https://www.facebook.com/plugins/post.php?href=https%3A%2F%2Fwww.facebook.com%2Fpetefrates3%2Fphotos%2Fa.453750851431621.1073741827.453748098098563%

Umxholo womceli mngeni we-ALS wawulula: umntu ulahla ibhakethi lamanzi abandayo enomkhenkce entlokweni yakhe aze athumele yonke loo nto kwimidiya yoluntu. Emva koko, bacela umngeni kubahlobo kunye nosapho ukuba benze okufanayo okanye banikele ngemali kuMbutho we-ALS. (Idibeneyo: Abadumileyo bethu aba-7 ababathandayo abathathe uMceli mngeni we-ALS Ice Bucket)

Ngaphezulu kweeveki ezisibhozo, umbono kaFrates okrelekrele uqokelele ngaphezulu kwe-115 yezigidi zeedola ngenxa yezigidi ezili-17 zabantu abathathe inxaxheba. Kunyaka ophelileyo, uMbutho we-ALS ubhengeze ukuba iminikelo ibancedile ukuba babenolwazi lwesifo esenza ukuba abantu baphulukane nolawulo lokuhamba kwemisipha, ekugqibeleni bathathe amandla abo okutya, ukuthetha, ukuhamba kwaye, ekugqibeleni, baphefumle.

Ayisiyiyo loo nto kuphela kodwa kwangoko kulenyanga i-FDA ibhengeze ukuba ichiza elitsha kungekudala liza kubakho ukunyanga i-ALS-ukhetho lokuqala lonyango olufumanekayo kwisithuba esingaphezulu kwamashumi amabini eminyaka. Ngelishwa, kunzima ukuxela ukuba oku kufunyanisiweyo kuya kunceda iiFrates ngexesha. Omnye umseki-mbambano womceli mngeni, u-Anthony Senerchia, oneminyaka eyi-46, usweleke ngasekupheleni kuka-Novemba 2017 emva kweminyaka eli-14 yokulwa nesi sifo.

Nangona kubiza i- $ 3,000 ngosuku ukumgcina ephila, umfazi ka-Frates, uJulie uyala ukuhambisa umyeni wakhe amse kwiziko, nangona kungabiza kakhulu kusapho. "Sifuna ukumgcina ekhaya kunye nosapho," uxelele iWBZ, echaza ukuba ukuchitha ixesha kunye nentombi yakhe eneminyaka emi-2 yenye yezinto ezimbalwa ezigcina uFrate elwela ubomi bakhe.

https://www.facebook.com/plugins/post.php?href=https%3A%2F%2Fwww.facebook.com%2Fpetefrates3%2Fphotos%2Fa.453750268098346.1073741825.453748098098563%

Ngoku, usapho lukaFrates lufikelela eluntwini kwakhona ngokwenza ingxowa-mali entsha ngoMbutho we-ALS ukunceda iintsapho ezinje ngoPete ukuba zikwazi ukugcina abo zibathandayo ekhaya. Ibizwa ngokuba yi-Home Health Care Initiative, injongo yayo kukufikelela kwi-1 yezigidi zeedola, kwaye i-fundraiser iya kubanjwa ngoJuni 5. Yiya kwi-ALS Association ngolwazi olungakumbi.

Uphengululo lwe