Nantsi indlela endilulawula ngayo uxinzelelo oluza nesifo esinganyangekiyo

Umxholo

• Ukulwa nesizungu de ube mdala
• 1. Ukuzenza ikheswa
• 2. Ukuphathwa gadalala
• 3. Ukunqongophala kwenkxaso yezonyango
• 4. Imali
• 5. Intlungu

Sibandakanya iimveliso esicinga ukuba ziluncedo kubafundi bethu. Ukuba uthenga amakhonkco kweli phepha, sinokufumana ikhomishini encinci. Nantsi inkqubo yethu.

Uhambo lwam noxinzelelo lwaqala kwangoko. Ndandineminyaka emi-5 ubudala ukuqala kwam ukugula sisifo esinganyangekiyo. Eyona nto ibaluleke kakhulu kwezi, i-systemic juvenile idiopathic arthritis (SJIA), khange ichazwe ngokuchanekileyo kude kube malunga neenyanga ezisibhozo kamva. Okwexeshana, bendichazeke gwenxa ngayo yonke into-i-aleji yokutya, iimvakalelo zamachiza, iimpendulo zamayeza, nokunye okuninzi.

Esona sifo sigqumayo esothusayo safika xa ndanikwa iiveki ezintandathu ukuba ndiphile - babecinga ukuba ndine-leukemia, isifo esingalunganga se-SJIA.

Xa ndandijongene nokufa ndisengumntwana, ndandingoyiki. Ndaziva ndikhuselekile kwinto yokuba ndizamile ukuba ngumntu olungileyo, nangona ndandimncinci kakhulu. Kodwa emva konyaka, ukudakumba kwabetha, kwaye kwabetha kabuhlungu.

Khange ndibekho kulo naluphi na unyango lwe-SJIA yam, ndigcinele ipilisi zesiseko zekhawuntareni ezisisiseko. Isifo sam besisiya sisiba mandundu kwaye bendisoyika ngento ezakwenzeka emva koko. Kwaye ngenxa yokuphathwa gadalala ekhaya, bendingazukubona ugqirha ukusukela xa ndandineminyaka esixhenxe ubudala ndade ndaneminyaka engama-21. Ndaye ndadityaniswa namakhaya, ukusuka kwinxalenye yebanga lokuqala ukuya kwibanga lesixhenxe, oko kwakuthetha ukuba Ngokwenene unonxibelelwano nabantu abangaphandle kosapho lwethu olongeziweyo, gcina ubumelwane kunye nokunakekelwa kwabantwana.

Ukulwa nesizungu de ube mdala

Njengomntu omdala, ndaqhubeka ndisokola. Abahlobo basweleka, babangela isixa esikhulu sosizi. Abanye bacoca kancinci, kuba babengayithandi into yokuba kuye kufuneke ndirhoxise izicwangciso rhoqo.

Xa ndayeka umsebenzi wam kulawulo lwabantwana eyunivesithi, ndaphulukana nezibonelelo ezininzi, njengokuhlawulwa okuzinzileyo kunye neinshurensi yezempilo. Kwakungekho lula ukwenza eso sigqibo sokuba ngumphathi wam, ndisazi konke endilahlekelwa kuko. Kodwa nangona isenokungabikho imali eninzi ekhayeni lethu kwezi ntsuku, ngoku ndenza bhetele, ngokwasemzimbeni nangokweemvakalelo.

Ibali lam alikho yodwa-uxinzelelo kunye nezifo ezingapheliyo zidlala kunye rhoqo. Ngapha koko, ukuba sele unesifo esinganyangekiyo, unokuba nakho ukulwa nokudakumba, nawe.

Nazi ezinye zeendlela ezininzi ezinokubonakalisa ukudakumba xa unesifo esinganyangekiyo, kunye nento onokuyenza ukulawula umonakalo weemvakalelo onokubangela.

1. Ukuzenza ikheswa

Ukuzahlula kuqhelekile kuninzi lwethu olunengxaki yempilo. Xa nditshayisa, umzekelo, andinakuphuma endlwini iveki. Ukuba ndiye kwenye indawo, kukufumana ukutya okanye imigqaliselo. Ukuqeshwa kukaGqirha kunye nothumelo nje akufani nokunxibelelana nabahlobo.

Nokuba asibekelwe bucala emzimbeni, sinokususwa ngokweemvakalelo kwabanye abangakwaziyo ukuqonda ukuba kunjani kuthi xa sigula. Abantu abaninzi abakhubazekileyo abasiqondi isizathu sokuba kungafuneka sitshintshe okanye sirhoxise izicwangciso ngenxa yokugula kwethu. Kwakhona kunzima ngokumangalisayo ukuqonda iintlungu zomzimba nezingokweemvakalelo esizifumanayo.

Ingcebiso: Fumana abanye kwi-intanethi abasokolayo sisigulo esinganyangekiyo - akufuneki ukuba sifane nesakho. Indlela entle yokufumana abanye kukusebenzisa i-Twitter usebenzisa ii-hashtag, ezinje nge #spoonie okanye #spooniechat. Ukuba ufuna ukunceda abantu obathandayo baqonde ngakumbi ukugula, "The Spoon Theory" nguChristine Miserandino inokuba sisixhobo esiluncedo. Nokuba ubacacisele indlela isicatshulwa esilula esinokuwuphakamisa ngayo umoya wakho unokwenza wonke umahluko kubudlelwane bakho nakwimo yengqondo. Yazi ukuba ayinguye wonke umntu oya kuyiqonda, nangona kunjalo, kwaye kulungile ukukhetha ukuba ungachaza imeko yakho kubani, kwaye ungubani.

2. Ukuphathwa gadalala

Ukujongana nokuphathwa gadalala ingayinto enkulu kuthi kuthi esele siphila nesifo esinganyangekiyo okanye ukukhubazeka. Siphantse ukujongana nokuphathwa gadalala ngokweemvakalelo, ngokwasengqondweni, ngokwesondo, okanye ngokwasemzimbeni.Ukuthembela kwabanye kusibhenca kubantu abasoloko benomdla kuthi. Sisoloko sisengozini ngakumbi kwaye asikwazi ukulwa nokuzikhusela.

Ukuphathwa gadalala akufuneki nokuba kujoliswe kuwe ukuze kuchaphazele impilo yakho yexesha elide. Imiba yezempilo efana ne-fibromyalgia, ixhala, kunye noxinzelelo lwasemva koxinzelelo ziye zanxulunyaniswa nokuvezwa kokuphathwa gadalala, nokuba ulixhoba okanye ulingqina.

Ngaba ukhathazekile okanye awuqinisekanga ukuba usenokuba ujongene nokuphathwa gadalala ngokweemvakalelo? Ezinye izikhombisi eziphambili zihlazo, zihlazisa, zibeka ityala, nokuba zikude okanye zisondele kakhulu.

Ingcebiso: Ukuba unako, zama ukuhlala kude nabantu abahlukumezayo. Kwandithatha iminyaka engama-26 ukuqonda ngokupheleleyo kunye nokusika unxibelelwano nomxhaphazi kusapho lwam. Kuba ndiyenzile loo nto, nangona kunjalo, impilo yam yengqondo, yeemvakalelo kunye neyasemzimbeni iphuculwe kakhulu.

3. Ukunqongophala kwenkxaso yezonyango

Zininzi iindlela esinokuthi sifumane ukungabikho kwenkxaso evela koogqirha nakwabanye ababoneleli ngezempilo - kwabo bangakholelwa ukuba iimeko ezithile ziyinyani, kwabo basibiza ngokuba zii-hypochondriacs, kwabo bangamameliyo kwaphela. Ndisebenzile noogqirha kwaye ndiyazi ukuba imisebenzi yabo ayilulanga- kodwa nobomi bethu abukho lula.

Xa abantu bemisela unyango kunye nokusikhathalela bengakholelwa kuthi okanye bengakhathali malunga nento esijamelana nayo, loo ntlungu yanele ukuzisa zombini uxinzelelo kunye noxinzelelo kubomi bethu.

Ingcebiso: Khumbula-nguwe olawulayo, ubuncinci ukuya kuthi ga kwinqanaba. Uvumelekile ukugxotha ugqirha ukuba abancedi, okanye banike ingxelo. Unokwenza oku ngokungaziwa ngokungaziwa ngokusebenzisa inkqubo yeklinikhi okanye yesibhedlele oyindwendwelayo.

4. Imali

Imiba yezemali yokugula kwethu kuhlala kunzima ukujongana nayo. Unyango, iklinikhi okanye utyelelo esibhedlele, amayeza, iimfuno zekhawuntareni, kunye nezixhobo zofikeleleko azibizi ngewuphi na umlinganiselo. I-inshurensi inokunceda, okanye ingangancedi. Oku kuhamba kabini kwabo bethu bahlala neengxaki ezinqabileyo okanye ezinzima.

Ingcebiso: Ngalo lonke ixesha jonga iinkqubo zoncedo lwesigulana kunyango. Buza izibhedlele kunye neeklinikhi ukuba ngaba banezikali ezityibilikayo, izicwangciso zentlawulo, okanye ukuba bayaxolela na ngamatyala ezonyango.

5. Intlungu

Sibuhlungu ngenxa yokoyikeka xa sijongana nokugula- ukuba ubomi bethu bunokuba yintoni ngaphandle kwako, ukusikelwa umda kwethu, ukuba mandundu okanye ukuwohloka kweempawu, nokunye okuninzi.

Ukugula ndisengumntwana, kwakunganyanzelekanga ukuba ndizive ngathi kuninzi ekufuneka ndikwenzile. Ndinexesha lokukhula ndilinganiselwe kwaye ndibone ezimbalwa zomsebenzi. Namhlanje, ndineemeko ezingapheliyo. Ngenxa yoko, ukusikelwa umda kutshintsha rhoqo. Kunzima ukubeka ngamagama ukuba oko kungonakalisa njani.

Okwexeshana emva kwekholeji, ndabaleka. Andizange ndibalekele isikolo okanye ubuhlanga, kodwa ndenzela mna. Ndonwabile ukuba ndingabaleka tu, kwanaxa ibiyimitha yeshumi ngexesha. Xa, ngequbuliso, andisakwazi ukubaleka kwakhona kuba ndaxelelwa ukuba ichaphazela amalungu amaninzi kakhulu, ndaphazamiseka. Ndiyazi ukubaleka akulunganga kwimpilo yam ngoku. Kodwa ndiyazi ukuba ukungabinako ukubaleka kwakhona kubuhlungu.

Ingcebiso: Ukuzama unyango kunokuba yindlela efanelekileyo yokujongana nale mvakalelo. Ayifikeleleki kuye wonke umntu, ndiyazi, kodwa yabutshintsha ubomi bam. Iinkonzo ezinje ngeTalkspace kunye neenombolo zomnxeba weengxaki zibaluleke kakhulu xa sisokola.

Indlela yokwamkela yindlela ejijekileyo. Akukho xesha lide lokuba buhlungu ngobomi esasinokuba nabo. Uninzi lweentsuku, ndiyaphila. Ndingaphila ngaphandle kokubaleka. Kodwa ngezinye iintsuku, umngxunya obaleka kanye wawuzalisa undikhumbuza ngobomi endandikade ndibunabo kwiminyaka embalwa edlulileyo.

Khumbula ukuba nokuba uziva ngathi isigulo esinganyangekiyo sithatha indawo, usalawula kwaye uyakwazi ukwenza utshintsho ekufuneka ulwenzile ukuze uphile obona bomi bakho.