Ndandinomdla Wokuzama izixhobo zokuHamba- kwaye ndatyhila isiQinisekiso sam seNkqubo

Umxholo

• Ke, ndizinika imvume yokuvavanya izixhobo zokuhamba ngaphandle kwesi sigwebo sam - {textend} endenza ukuba ndingakhathali nangomnye umntu, nokuba.
• Ndakhwela kwiAlinker, eyayinkulu kakhulu kum, ke ndanxiba ezinye iidges ndaza ndayibetha indlela - {textend} emva koko ndathandana nebhayisekile ehamba ngeenyawo eyi- $ 2,000.
• Kwisitulo esinamavili, ndaziva ingathi ndiza kukhulisa “ukukhubazeka” kwam ehlabathini, ndibeke ukuba wonke umntu abone kwaye agwebe.

“Uzakuphela kwisitulo esinamavili?”

Ukuba bendinedola ngalo lonke ixesha ndisiva umntu esithi ukusukela oko kwafunyanwa isifo sam esiyi-multiple sclerosis (MS) kwiminyaka eli-13 eyadlulayo, bendiya kuba nemali eyoneleyo yokuthenga i-Alinker. Okungakumbi kamva.

Ngaphandle kweminyaka eli-13 yobungqina be-anecdotal yokwazi abantu abaninzi abaphila ne-MS abangazisebenzisi izitulo ezinamavili, uluntu ngokubanzi luhlala lucinga ukuba kulapho lonke olu hambo lwe-MS lukhokelela khona.

Kwaye igama elithi "ukuphela" kwisitulo esinamavili lingaphantsi kokuthandekayo, akunjalo? Njengale ndlela inye "uphela ngayo" ukwenza imisebenzi yasemva kwemini ngeCawa, okanye "uphele njani" ngetayara eligqabhukileyo emva kokubetha umngxuma.

Yikes, ndoda. Akumangalisi ukuba abantu abane-MS, njengam, baphila ubomi bethu ngolu loyiko lusongelwe kukudelela okuthe kratya ngomgwebo xa kuziwa kumbono wokufuna isixhobo sokuhamba.

Kodwa nditsho ujije lonto.

Okwangoku andifuni sixhobo sokuhamba. Imilenze yam isebenza kakuhle kwaye yomelele, kodwa ndiye ndafumanisa ukuba, ukuba ndiyayisebenzisa, inefuthe elikhulu ekubeni ndingaya phi okanye ndenze ixesha elingakanani ukwenza nantoni na endiyenzayo.

Yenziwe ukuba ndiqale ukucinga ngezixhobo zokuhamba, nangona iziva icky - {textend} Eli ligama lenzululwazi ngento eyifundiswe luluntu ukuba woyike kwaye ube neentloni ngayo.

"Ick" yinto endiziva ngayo xa ndicinga ngendlela ukuzixabisa kwam okunokuchaphazeleka ngayo xa ndiqala ukusebenzisa isixhobo sokuhamba. Emva koko iyakhuliswa kwityala endinalo lokucinga ngokucinga ngolu hlobo.

Kuyihlazo ukuba nokuba ndililungelo lamalungelo okukhubazeka, andinakusoloko ndibubaleka obu bundilele bendeleyo kubantu abakhubazekileyo.

Ke, ndizinika imvume yokuvavanya izixhobo zokuhamba ngaphandle kwesi sigwebo sam - {textend} endenza ukuba ndingakhathali nangomnye umntu, nokuba.

Luhlobo lwala mava amangalisayo apho uthabatheka yinto onokuyifuna kwixesha elizayo, ukuze ubone indlela evakalelwa ngayo ngelixa usenokhetho.

Oku kuzisa iAlinker. Ukuba ubugcina iindaba ze-MS, uyazi ngoku ukuba uSelma Blair une-MS kwaye ubeboppin 'ejikeleze idolophu kwiAlinker, ibhayisekile yokuhamba eza kusetyenziswa endaweni yesihlalo esinamavili okanye isihambahamba kwabo basenayo ukusetyenziswa ngokupheleleyo kwemilenze yabo.

Yinguqu ngokupheleleyo xa kuziwa kuncedo lokuhamba. Ikubeka kwinqanaba lemehlo kwaye inika inkxaso ukugcina ubunzima bakho kwiinyawo zakho nasemilenzeni. Ndifuna ngokwenene ukuzama enye, kodwa ezi ntsana azithengiswa ezivenkileni. Ndiye ndanxibelelana no-Alinker ndaza ndabuza ukuba ndingayivavanya njani.

Kwaye ubungazi, bekukho inenekazi elihlala kude nemizuzu eli-10 kude nam ebendivumela ukuba ndiboleke iiveki ezimbini. Enkosi, iphela, ngokwenza ngokuchanekileyo le nto bendiyifuna yenzekile, yenzekile.

Ndakhwela kwiAlinker, eyayinkulu kakhulu kum, ke ndanxiba ezinye iidges ndaza ndayibetha indlela - {textend} emva koko ndathandana nebhayisekile ehamba ngeenyawo eyi- $ 2,000.

Mna nomyeni wam sithanda ukuthatha uhambo ebusuku, kodwa kuxhomekeke kumhla endikhe ndaba nawo, ngamanye amaxesha ukuhamba kwethu kufutshane kakhulu kunokuba ndingathanda ukuba babe njalo. Xa ndandineAlinker, imilenze yam ediniweyo yayingasekho imesis, kwaye ndandinokuhamba ngesantya naye ixesha elide sifuna ukuhamba.

Uvavanyo lwam lweAlinker lwandenza ndacinga: Yeyiphi enye indawo ebomini bam endinokusebenzisa kuyo uncedo lokuhamba oluya kundenza ukuba ndenze izinto ngcono, nangona ndingakwazi ukusebenzisa imilenze yam rhoqo?

Njengomntu okwangoku onqamleza umgca phakathi kwabomeleleyo nabakhubazekileyo, ndichitha ixesha elininzi ndicinga malunga nexesha endinokufuna ngalo inkxaso yomzimba - {textend} kunye noqhankqalazo olucalucalulayo olulandelayo alusekho mva kakhulu. Ingxelo endiyaziyo ukuba kufuneka ndicelomngeni, kodwa akukho lula kuluntu esele lunokuba nobutshaba kubantu abakhubazekileyo.

Ke, ndaye ndagqiba kwelokuba ndisebenze ukuze ndiyamkele ngaphambili oku kuba yinxalenye esisigxina yobomi bam. Oko kuthetha ukuba ukulungele ukungonwabi njengoko ndivavanya izinto zoncedo lokuhamba, ngelixa ndiqonda nelungelo endinalo kule meko.

Indawo elandelayo endandizame kuyo yayikwisikhululo seenqwelomoya. Ndazinika imvume yokusebenzisa isithuthi sabakhubazekile ukuya esangweni lam, elalikuphela komhlaba, elilelona sango likude kwezokhuseleko. Kutshanje ndibone umhlobo esenza oku, kwaye yinto engazange iwele engqondweni yam.

Nangona kunjalo, uhambo olude olu lude luhlala lundingenanto xa ndifika esangweni lam, emva koko kufuneka ndihambe ndiphinde kwakhona kwiintsuku ezimbalwa ukubuyela ekhaya. Ukuhamba kuyadinisa njengokuba kunjalo, ukuba ukusebenzisa isitulo esinamavili kunganceda, kutheni ungazami nje?

Ndenze njalo ke. Kwaye yanceda. Kodwa ndiphantse ndazithetha ngokwam endleleni eya kwisikhululo seenqwelomoya kwaye ngelixa ndilinde ukuba bandilande.

Kwisitulo esinamavili, ndaziva ingathi ndiza kukhulisa “ukukhubazeka” kwam ehlabathini, ndibeke ukuba wonke umntu abone kwaye agwebe.

Uhlobo olunjengokuba xa upaka kwindawo enabantu abakhubazekileyo kwaye okwesibini uphuma emotweni yakho, uziva ngathi kufuneka uqalise ukukrala okanye into yokubonisa ukuba uyinyani yenza uyayidinga loo ndawo.

Endaweni yokuba ndinqwenelele umlenze owaphukileyo kum, ndikhumbule ukuba bendikuvavanya oku. Olu yayilukhetho lwam. Kwaye kwangoko ndisiva isigwebo endisibonisileyo entlokweni yam ukuqala ukuphakamisa.

Kulula ukucinga ngokusebenzisa isixhobo sokushukuma njengokunikezela, okanye nokuyeka. Kungenxa yokuba sifundisiwe ukuba nantoni na ngaphandle kweenyawo zakho "ingaphantsi", ayilunganga. Kwaye ukuba ngalo mzuzu ufuna inkxaso, ukwabonisa ubuthathaka.

Ke, masiyibuyisele umva. Masibambelele kwizixhobo zokuhamba, nokuba asizidingi yonke imihla.

Ndiseneminyaka eliqela phambi kwam ngaphambi kokuba ndinyanzele ukuba ndiqwalasele rhoqo ndisebenzisa isixhobo sokuhamba. Kodwa emva kokuvavanya ezimbalwa, ndiye ndabona ukuba awudingi kuphulukana nolawulo olupheleleyo lwemilenze yakho ukuze uyifumane iluncedo. Kwaye oko kwakunamandla kum.

UJackie Zimmerman ngumcebisi wentengiso yedijithali ojolise kwimibutho engenzi nzuzo kunye nemibutho enxulumene nezempilo. Ngomsebenzi kwiwebhusayithi yakhe, unethemba lokunxibelelana nemibutho emikhulu kunye nokukhuthaza abaguli. Waqala ukubhala malunga nokuhlala ne-multiple sclerosis kunye nesifo samathumbu esibuhlungu kwakamsinya emva kokuchongwa kwakhe njengendlela yokunxibelelana nabanye. UJackie usebenze iminyaka eyi-12 kwaye ubenelungelo lokumela uluntu lwe-MS kunye ne-IBD kwiinkomfa ezahlukeneyo, iintetho eziphambili kunye neengxoxo zephaneli.