Iiforum ze-8 zeMS apho unokufumana khona inkxaso

Umxholo

• Unxibelelwano lweMS
• MSWorld
• MyMSTeam
• Izigulana Njengam
• Le yiMS
• Amaphepha e-Facebook
• Shift MS
• Yise kude

Ushwankathelo

Emva kwesifo se-multiple sclerosis (MS), unokufumana isiluleko kubantu abahlangabezana namava afanayo nawe. Isibhedlele sakho esikufutshane sinokukwazisa kwiqela lenkxaso. Okanye, mhlawumbi uyazi umhlobo okanye isihlobo esifunyenwe sine-MS.

Ukuba ufuna uluntu ngokubanzi, ungaguqukela kwi-intanethi kunye neendidi zeeforamu kunye namaqela enkxaso afumaneka kwimibutho ye-MS kunye namaqela ezigulana.

Ezi zixhobo zinokuba yindawo elungileyo ukuqala ngemibuzo. Unokufunda amabali kwabanye abane-MS kunye nophando ngayo yonke into yesi sifo, ukusuka ekuchongeni isifo kunye nonyango ukubuyela umva kunye nokuqhubela phambili.

Ukuba ufumanisa ukuba ufuna inkxaso, ezi foram ze-MS zisibhozo yindawo elungileyo ukuqala.

Unxibelelwano lweMS

Ukuba usandula ukufumanisa ukuba une-MS, unokunxibelelana nabantu abaphila nesi sifo kwi-MS Connection. Kulapho, uyakufumana abantu abaqeqeshwe ukuphendula imibuzo yakho. Olu nxibelelwano lwontanga lunokuba sisixhobo esikhulu kungekudala emva kokufumanisa isifo.

Amacandelwana kwi-MS Connection, njengeQela elitsha eliFunyenweyo, ayilelwe ukudibanisa abantu abafuna inkxaso okanye ulwazi malunga nezihloko ezithile ezinxulumene nesifo. Ukuba unomntu othandekayo okuncedayo okanye onika inkathalo, banokufumana iQela lokuXhasa abaNcedisi liluncedo kwaye linolwazi.

Ukufikelela kumaphepha eqela kunye nemisebenzi, kuya kufuneka wenze iakhawunti nge-MS Connection. Iiforamu zabucala kwaye kufuneka ungene ukuze uzibone.

MSWorld

I-MSWorld yaqala ngo-1996 njengeqela labantu abathandathu kwigumbi lokuncokola. Namhlanje, indawo iqhutywa ngamavolontiya kwaye isebenza ngaphezulu kwama-220,000 abantu abane-MS kwihlabathi jikelele.

Ukongeza kumagumbi okuxoxa kunye neebhodi zemiyalezo, i-MSWorld ibonelela ngeziko lempilo kunye neziko lokuyila apho unokwabelana ngezinto ozenzileyo kunye nokufumana iingcebiso zokuhlala kakuhle. Unokusebenzisa uluhlu lwezixhobo ukufuna ulwazi ngezihloko ezivela kunyango ukuya kwizincedisi eziguqukayo.

MyMSTeam

I-MyMSTeam yindawo yenethiwekhi yabantu abane-MS. Ungabuza imibuzo kwicandelo labo le-Q & A, funda izithuba, kwaye ufumane ukuqonda kwabanye abantu abaphila nesi sifo. Unokufumana abanye kufutshane nawe abahlala ne-MS kwaye ubone uhlaziyo lwemihla ngemihla abazithumelayo.

Izigulana Njengam

Indawo yePatientsLikeMe sisixhobo sabantu abaneemeko ezininzi zonyango kunye nemicimbi yezempilo.

Ijelo le-MS lenzelwe ngokukodwa abantu abane-MS ukuba bafunde omnye komnye kwaye baphuhlise izakhono zolawulo olukhulu. Ngaphezulu kwamalungu angama-70,000 ayinxalenye yeli qela. Unokucoca ngokwamaqela anikezelwe kudidi lwe-MS, ubudala, kunye neempawu.

Le yiMS

Ubukhulu becala, iibhodi zeengxoxo ezindala zinikezele ngendlela yenethiwekhi. Nangona kunjalo, ibhodi yeengxoxo Le yi-MS ihlala isebenza kwaye ibandakanyeka kuluntu lwe-MS.

Amacandelo anikezelwe kunyango kunye nobomi akuvumela ukuba ubuze imibuzo kwaye uphendule kwabanye. Ukuba uva unyango olutsha okanye ukuphumelela okunokwenzeka, unokufumana umsonto ngaphakathi kule foram oya kukunceda uqonde iindaba.

Amaphepha e-Facebook

Imibutho emininzi kunye namaqela oluntu abamba amaqela e-MS Facebook ngamanye. Uninzi lutshixiwe okanye luyimfihlo, kwaye kufuneka ucele ukujoyina kwaye ufumane imvume yokubeka izimvo kunye nokubona ezinye izithuba.

Eli qela loluntu, elibanjwe yiMultiple Sclerosis Foundation, lisebenza njengeqonga labantu lokubuza imibuzo nokubalisa amabali kuluntu olunamalungu angama-30,000. Abaphathi beqela banceda ukulinganisa izithuba. Babelana ngeevidiyo, babonelele ngokuqonda okutsha, kunye nezihloko zokuthumela kwingxoxo.

Shift MS

ShiftMS ijolise ekunciphiseni ukwahlulwa kwabantu abaninzi abane-MS bazive. Le ntanethi inomdla ekuhlaleni inceda amalungu ayo afune ulwazi, unyango ngonyango, kwaye enze izigqibo zokulawula imeko ngevidiyo kunye neeforamu.

Ukuba unombuzo, ungaposa ngaphezulu kwamalungu angama-20 000. Unokuskrolela nakwiindidi zezihloko esele kuxoxiwe ngazo. Uninzi luhlaziywa rhoqo ngamalungu oluntu lweShiftMS.

Yise kude

Akuqhelekanga ukuziva uwedwa emva kokufumana ukuxilongwa kwe-MS. Kukho amawaka abantu kwi-Intanethi onokunxibelelana nabo abahlangabezana nezinto ezifanayo nawe kwaye babelana ngamabali abo kunye neengcebiso. Yenza amanqaku encwadi ngala maqonga ukuze ukwazi ukubuyela kuwo xa ufuna inkxaso. Khumbula ukuhlala uxoxa ngayo nantoni na oyifundayo kwi-Intanethi nogqirha ngaphambi kokuba uzame.