Unyaka wam wokuqala nge-MS

Umxholo

• UMarie Robidoux
• UJanet Perry
• UDoug Ankerman
• Ukuthatha

Ukufunda ukuba une-multiple sclerosis (MS) kunokubangela iimvakalelo. Ekuqaleni, unokukhululeka ukuba uyazi ukuba yintoni ebangela iimpawu zakho. Kodwa emva koko, iingcinga zokukhubazeka kunye nokusebenzisa isitulo esinamavili zinokubangela ukoyike malunga nento ezayo.

Funda ngendlela abantu abathathu abane-MS abagqibe ngayo unyaka wabo wokuqala kwaye basaqhubeka nobomi obunempilo, obunemveliso.

UMarie Robidoux

U-Marie Robidoux wayeneminyaka eli-17 ubudala xa wafunyaniswa ene-MS, kodwa abazali bakhe kunye nogqirha bayigcina iyimfihlo de kwaba li-18 lokuzalwa kwakhe. Wayenomsindo kwaye ekhathazekile.

Uthi: "Ndakhathazeka xa ekugqibeleni ndafumanisa ukuba ndine-MS." “Kwandithatha iminyaka ukuba ndizive ndikhululekile ngokwaneleyo ukuxelela nabani na ukuba ndine-MS. Kwakungathi libala elinjalo. [Kwakungathi] ndiyiphaya, umntu onokuhlala kude naye, ndimnqande. ”

Njengabanye, unyaka wakhe wokuqala wawunzima.

"Ndichithe iinyanga ndibona kabini, ubukhulu becala ndiphulukene nokusetyenziswa kwemilenze yam, ndinemicimbi yokulinganisa, lonke elixa ndizama ukuya ekholejini," utshilo.

Ngenxa yokuba uRobidoux wayengenakulindelwa sesi sifo, wayecinga ukuba "sisigwebo sentambo." Wayecinga ukuba, ngeyona ndlela iphezulu, uyakuphelela kwindawo yokhathalelo, asebenzise isitulo esinamavili, kwaye axhomekeke ngokupheleleyo kwabanye.

Unqwenela ukuba azi ukuba i-MS ichaphazela wonke umntu ngokwahlukileyo. Namhlanje, unqunyelwe ngandlel 'ithile kukuhamba kwakhe, esebenzisa induku okanye isihlangu esenziwe ngentsinjana ukumnceda ukuba ahambe, kwaye uyaqhubeka nokusebenza ngokusisigxina.

"Ndiye ndakwazi ukulungelelanisa, ngamanye amaxesha ngaphandle kwam, kuzo zonke iibhola ezijikijelwe kum yi-MS," utshilo. Ndiyabonwabela ubomi kwaye ndiyakonwabela oko ndinako xa ndinako. ”

UJanet Perry

"Kubantu abaninzi abane-MS, kukho imiqondiso, ihlala ithathelwa ingqalelo, kodwa imiqondiso kwangaphambili," utshilo uJanet Perry. "Mna, ngenye imini ndandiphilile, emva koko ndandinengxaki, ndisiya ndisiba mandundu, ndisesibhedlele ngeentsuku ezintlanu."

Iimpawu zakhe zokuqala yayiyintloko ebuhlungu, kwalandela isiyezi. Waqala ukugijimela ezindongeni, kwaye wayenombono ophindwe kabini, ukungalingani kakuhle, kunye nokuba ndindisholo kwicala lasekhohlo. Wazifumana sele elila kwaye ekwimeko yokuphazamiseka kungekho sizathu.

Sekunjalo, xa kwafunyaniswa ukuba unesi sifo, uvakalelo lwakhe lokuqala lwaba kukuziva ekhululekile. Oogqirha ngaphambili babecinga ukuba uhlaselo lokuqala lwe-MS yayikukubetha.

Uthi: "Kwakungekho isigwebo sokufa." “Inokunyangwa. Ndingaphila ngaphandle kwesoyikiso phezu kwam. ”

Ewe, indlela eya phambili yayingelula. UPerry kwafuneka afunde kwakhona indlela yokuhamba, indlela yokunyuka ngezinyuko, kunye nendlela yokujika intloko ngaphandle kokuziva engenazintloko.

Uthi: "Ndandidinwe ngaphezu kwayo nayiphi na enye into ngokuzama kwayo konke oku," utshilo. “Awunakho ukungahoyi izinto ezingasebenziyo okanye ezisebenza kuphela ukuba ucinga ngazo. Oku kuyanyanzelisa ukuba uqaphele kwaye ngalo mzuzu. ”

Ufunde ukuba nengqondo ngakumbi, ecinga ngento umzimba wakhe ongayenza ngokwasemzimbeni nangangenako ukuyenza.

"I-MS sisifo se-whimsical kwaye ngenxa yokuba uhlaselo alunakuqikelelwa, kusengqiqweni ukucwangcisa kwangaphambili," utshilo.

UDoug Ankerman

Ingcinga ye-MS yanditya, utshilo uDoug Ankerman. "Kum, i-MS yayimbi entlokweni yam kunasemzimbeni wam."

Ugqirha ophambili ka-Ankerman warhanela i-MS emva kokukhalaza ngokuba ndindisholo esandleni sakhe sasekhohlo nokuqina emlenzeni wasekunene. Ngokubanzi, ezi mpawu zihlala zihambelana kakuhle kunyaka wakhe wokuqala, ezamvumela ukuba azimele kwesi sifo.

Uthi: "Andizange ndibaxelele abazali bam malunga neenyanga ezintandathu," utsho. “Xa ndibatyelele, ndandisiya kungena kwigumbi lokuhlambela ukuze ndenze umfanekiso wam kanye ngeveki. Ndibonakala ndiphilile, kutheni ke ngoko sabelana ngeendaba? ”

Xa ndijonga ngasemva, u-Ankerman uyaqonda ukuba ukuphika ukuxilongwa kwakhe, kwaye "ukutyhalela nzulu egumbini," ibiyimpazamo.

"Ndiva ngathi ndiphulukene neminyaka emihlanu okanye emithandathu yobomi bam ndidlala umdlalo wokwala," utshilo.

Kule minyaka ili-18 idlulileyo, imeko yakhe iye yehla ngokuthe ngcembe. Usebenzisa izixhobo ezininzi zokuhamba, kubandakanya imisimelelo, ulawulo lwezandla, isitulo esinamavili ukuze ujikeleze. Kodwa akavumeli ezi hangout zimcothise.

"Ngoku ndikwi-MS yam eyandoyikisayo xa ndafunyaniswa okokuqala, kwaye ndiyaqonda ukuba ayimbi kangako, utshilo. "Ndingcono kakhulu kunabaninzi abane-MS kwaye ndinombulelo."

Ukuthatha

Ngelixa i-MS ichaphazela wonke umntu ngokwahlukileyo, uninzi luye lwafumana ubunzima kunye noloyiko kunyaka wokuqala emva kokuxilongwa. Kunokuba nzima ukuza ngokwemiqathango yokuxilongwa kwakho kwaye ufunde indlela onokuhlengahlengisa ngayo ebomini nge-MS. Kodwa aba bantu bathathu bayangqina ukuba ungasusa ngaphaya kokungaqiniseki kokuqala kunye nexhala, kwaye ugqithe kulindelo lwakho kwikamva.