Ukucwangcisela usuku lwakho kumhla ngelixa uhlala ne-IPF

Umxholo

• Ukutyelela ugqirha
• Amayeza
• Zilolonge
• Lala
• Imozulu
• Ukutya
• Uncedo
• Ixesha lokuhlala
• Umhla wokuyeka ukutshaya
• Iintlanganiso zeqela lenkxaso

Ukuba uhlala ne-idiopathic pulmonary fibrosis (IPF), uyazi ukuba isifo singenakulinganiswa njani. Iimpawu zakho zinokutshintsha ngokuphawulekayo ukusuka kwinyanga ukuya kwinyanga-okanye kwimihla ngemihla. Kwangoko kwisifo sakho, unokuziva uphile ngokwaneleyo ukuba ungasebenza, uzilolonge, kwaye uphume nabahlobo bakho. Kodwa xa esi sifo siphuphuma, ukukhwehlela kwakho kunye nokuphefumla okufutshane kunokuba nzima kakhulu ukuze ube nengxaki yokushiya ikhaya lakho.

Ubume obungaqondakaliyo beempawu ze-IPF benza ukuba kube nzima ukucwangcisa kwangaphambili. Nangona kunjalo ukucwangciswa okuncinci kunokwenza kube lula ukulawula isifo sakho. Qala ukugcina ikhalenda yemihla ngemihla, yeveki, okanye yenyanga, kwaye uyigcwalise ngale misebenzi kufuneka yenziwe kunye nezikhumbuzo.

Ukutyelela ugqirha

I-IPF sisifo esinganyangekiyo kunye nenkqubela phambili. Iimpawu zakho zinokutshintsha ngokuhamba kwexesha, kwaye unyango oluye lwanceda ukulawula ukuphefumla kwakho kunye nokukhohlela kunokugqibela ukuyeka ukusebenza. Ukulawula iimpawu zakho nokukhusela iingxaki, kuya kufuneka usete ishedyuli yokutyelelwa ngumboneleli wakho wezempilo.

Cwangcisa ukubona ugqirha wakho malunga namaxesha amathathu okanye amane ngonyaka. Rekhoda olu tyelelo kwikhalenda yakho ukuze ungalibali ngazo. Gcina umkhondo wazo naziphi na iindawo ezongezelelweyo onazo nezinye iingcali kuvavanyo kunye nonyango.

Lungiselela utyelelo ngalunye ngaphambi kwexesha ngokubhala uluhlu lwemibuzo kunye neenkxalabo kugqirha wakho.

Amayeza

Ukuhlala uthembekile kunyango lwakho kuya kukunceda ukulawula iimpawu zakho kunye nokulawula ukukhula kwesifo sakho. Amachiza ambalwa avunyelwe ukunyanga i-IPF, kubandakanya i-cyclophosphamide (Cytoxan), N-acetylcysteine ​​(Acetadote), nintedanib (Ofev), kunye ne-pirfenidone (Esbriet, Pirfenex, Pirespa). Uya kulithatha iyeza lakho kube kathathu ngemini. Sebenzisa ikhalenda yakho njengesikhumbuzo ukuze ungalibali idosi.

Zilolonge

Nangona unokuziva uphefumla kakhulu kwaye udiniwe kukuzilolonga, ukuhlala usebenza kunokuziphucula ezi mpawu. Ukomeleza intliziyo yakho kunye nezinye izihlunu kuya kukunceda ufeze imisebenzi yakho yemihla ngemihla ngokulula. Awudingi ukwenza uqeqesho olupheleleyo lweyure ukuze ubone iziphumo. Ukuhamba imizuzu embalwa ngosuku kuyanceda.

Ukuba unengxaki yokusebenzisa, buza ugqirha wakho malunga nokubhalisa kwinkqubo yokubuyisela kwimeko yesiqhelo yemiphunga. Kule nkqubo, uya kusebenza kunye neengcali zokuzilolonga ukuze ufunde indlela yokuzilolonga ngokukhuselekileyo, kwaye kwinqanaba lokukwazi kwakho.

Lala

Ukulala iiyure ezisibhozo busuku ngabunye kubalulekile ukuze uzive ungcono. Ukuba ulele ngokungalunganga, bhala ixesha lokulala kwikhalenda yakho. Zama ukungena esiqhelweni ngokuya kulala nokuvuka ngamaxesha afanayo yonke imihla-nangeempelaveki.

Ukukunceda ulale ngexesha elimiselweyo, yenza into ephumla njengokufunda incwadi, ukuhlamba ngokufudumeleyo, ukuziqhelanisa nokuphefumla nzulu, okanye ukucamngca.

Imozulu

I-IPF inokukwenza ungabunyamezeli ubushushu obugqithisileyo. Ngexesha leenyanga zasehlotyeni, cwangcisa imisebenzi yakho kwasekuseni, xa ilanga nobushushu bungangxami. Ishedyuli ngekhefu lasemva kwemini ekhaya kwimeko yomoya.

Ukutya

Ukutya okukhulu akukhuthazwa xa une-IPF. Ukuziva ugcwele kakhulu kunokwenza kube nzima ukuphefumla. Endaweni yoko, cwangcisa ukutya okuncinci okuncinci kunye nokutya okutyayo imini yonke.

Uncedo

Imisebenzi yemihla ngemihla njengokucoca indlu kunye nokupheka kunokuba nzima ngakumbi xa unengxaki yokuphefumla. Xa abahlobo namalungu osapho bethembisa ukunceda, musa ukuthi ewe. Zicwangcise kwikhalenda yakho. Setha isiqingatha seyure okanye ixesha elide ukuba abantu bakuphekele ukutya, bayokuthengela ukutya, okanye bakuqhubele kugqirha.

Ixesha lokuhlala

Nokuba uziva uphantsi kwemozulu, kubalulekile ukuba uhlale unxibelelana noluntu ukuze ungabi wedwa kwaye ube nesithukuthezi. Ukuba awukwazi ukuphuma endlwini, setha iifowuni okanye iifowuni ze-Skype kunye nabahlobo okanye izalamane, okanye udibanise ngeendaba zoluntu.

Umhla wokuyeka ukutshaya

Ukuba usatshaya, ngoku lixesha lokuba uyeke. Ukuphefumla umsi wecuba kunokuzenza mandundu iimpawu zakho ze-IPF. Cwangcisa umhla kwikhalenda yakho uyeke ukutshaya, kwaye unamathele kuwo.

Ngaphambi komhla wokuyeka, lahla yonke imidiza kunye neetrayi ekhayeni lakho. Dibana nogqirha wakho ukuze ufumane iingcebiso malunga nendlela yokuyeka. Unokuzama amayeza ukunceda ukunciphisa umnqweno wakho wokutshaya, okanye usebenzise iimveliso ezingena endaweni ye-nicotine njengepatch, i-gum, okanye ukutshiza ngeempumlo.

Iintlanganiso zeqela lenkxaso

Ukudibana nabanye abantu abane-IPF kunokukunceda uzive uqhagamshelene ngakumbi. Unokufunda-kwaye uncike- kwamanye amalungu eqela. Zama ukuya kwiintlanganiso rhoqo. Ukuba awukathathi nxaxheba kwiqela lenkxaso, unokufumana enye ngePulmonary Fibrosis Foundation.