Amava aKhathazayo aBasetyhini abakhulelweyo aqaqambisa ukungafani kukhathalelo lwezeMpilo kwabafazi abaMnyama

Umxholo

• Ukufumana Unyango oluLungileyo
• Ukuthethelela Impilo Yakhe
• Indlela onokuthi uzithethelele ngayo
• Uphengululo lwe

UKrystian Mitryk wayeneeveki ezintlanu ezinesiqingatha ekhulelwe xa waqalisa ukuba nesicaphucaphu, ukugabha, ukuphelelwa ngamanzi emzimbeni nokudinwa kakhulu. Ukusuka ekuhambeni, wayezazi ukuba iimpawu zakhe zibangelwa yi-hyperemesis gravidarum (HG), uhlobo olugqithisileyo lokugula kwasekuseni oluchaphazela ngaphantsi kweepesenti ezimbini zabasetyhini. Wayeyazi kuba wayekhe wakufumana oku ngaphambili.

"Ndandinayo i-HG ngexa lokukhulelwa kwam okokuqala, ke ndaziva ngathi kunokwenzeka ngeli xesha," utshilo uMitryk Ubume. (FYI: Iqhelekile ukuba i-HG iphinde ivele ekukhuleni kwabantu abaninzi.)

Ngapha koko, ngaphambi kokuba iimpawu zikaMitryk zingene, uthi uzamile ukuya phambili kulo mbandela ngokufikelela koogqirha kwindawo yakhe yokubelekisa kwaye ebuza ukuba ngaba akukho naziphi na izinto anokuzenza ukuzikhusela. Kodwa ngenxa yokuba wayengenazo naziphi na iimpawu okwangoku, bamxelele ukuba athathe lula, ahlale enamanzi, kwaye azikhumbule izabelo zakhe zokutya, utshilo uMitryk. (Nazi ezinye iingxaki zempilo ezinokuthi zivele ngexesha lokukhulelwa.)

Kodwa uMitryk wayewazi umzimba wakhe ngcono kunaye nabani na, kwaye ithuku lakhe lamathumbu lalibonakala; waba neempawu ze-HG kwiintsuku nje ezimbalwa emva kokufikelela kwiingcebiso zokuqala. Ukususela ngelo xesha, uMitryk uthi wayesazi ukuba indlela engaphambili yayiza kuba nzima.

Ukufumana Unyango oluLungileyo

Emva kweentsuku ezimbalwa "egabha rhoqo," uMitryk uthi wabiza umsebenzi wakhe wokubelekisa kwaye wamiselwa iyeza lomlomo lesicaphucaphu. “Ndibaxelele ukuba andicingi ukuba amayeza omlomo angasebenza kuba andikwazi ukugcina nto,” uyachaza. "Kodwa banyanzelisa ukuba ndizame."

Kwiintsuku ezimbini kamva, uMitryk wayesaphosa phezulu, engakwazi ukubamba nakuphi na ukutya okanye amanzi (makungabikho iipilisi zokulwa isicaphucaphu). Emva kokufikelela kolu qeqesho kwakhona, waxelelwa ukuba atyelele icandelo labo lokubeleka kunye nelovavanyo. "Ndafika apho kwaye bandixhomekeka kumayeza afakwa ngaphakathi (IV) kunye nesicaphucaphu," utshilo. "Ndakuba ndizinzile, bandithumela ekhaya."

Olu thotho lweziganeko lwenzekile amatyeli amane ngaphezulu kwisithuba senyanga, utsho uMitryk. “Ndandingena, bandidibanise nolwelo kunye namayeza esicaphucaphu, kwaye xa ndiziva ndingcono, bandithumele ekhaya,” uyachaza. Kodwa ngalo mzuzu ulwelo luphuma kwinkqubo yakhe, iimpawu zakhe ziya kubuya, zimnyanzele ukuba aye kulo mkhuba ngokuphindaphindiweyo, utshilo.

Emva kweeveki zonyango olungazange luncede, uMitryk uthi waqinisekisa oogqirha bakhe ukuba bambeke kwimpompo yeZofran. I-Zofran sisiyobisi esomeleleyo sokuchasana nesicaphucaphu esisoloko sinikwa abaguli be-chemo kodwa sinokusebenza nakwabasetyhini abane-HG. Impompo iqhotyoshelwe esiswini kusetyenziswa i-catheter encinci kwaye ilawula ukuhla rhoqo kweyeza lokunyanga isicaphucaphu kwinkqubo, ngokwe-HER Foundation.

“Impompo yahamba nam kuyo yonke indawo, kuquka neshawari,” utshilo uMitryk. Ubusuku ngabunye, unkosikazi kaMitryk wayeyikhupha inaliti ayiphinde ayimilisele kusasa. "Nangona inaliti encinci ayifanele ibe buhlungu, ndandilahlekelwe ngamafutha amaninzi emzimbeni ngenxa yokuphosa ukuba ipompo yandishiya ndibomvu kwaye ndibuhlungu," izabelo zikaMitryk. "Ngaphezu koko, ndandingakwazi ukuhamba ngenxa yokudinwa, kwaye ndandigabha kakhulu. Kodwa ndandizimisele ukwenza oko. nantoni na ukuze ndiyeke ukukhupha amathumbu am."

Kwadlula iveki kwaye iimpawu zikaMitryk azizange zibengcono. Wafika kwakhona kwiyunithi yovavanyo lokubeleka nokubeleka, efuna uncedo, uyacacisa. Kuba kwakungekho nonyango lwalusebenza, uMitryk wazama ukuzithethelela kwaye wacela ukuba abambeke kumgca wecatheter (PICC) efakwe ecaleni, utshilo. Umgca we-PICC ngumbhobho omde, omncinci, oguquguqukayo ofakwe kwi-vein engalweni ukuze udlulise iyeza le-IV lexesha elide ukuya kwiimvini ezinkulu ezikufutshane nentliziyo, ngokutsho kweKliniki yaseMayo. Ndacela ulayini we-PICC kuba yeyona nto yandincedayo iimpawu zam ze-HG [ngexesha lokukhulelwa kwam okokuqala], utshilo uMitryk.

Kodwa nangona u-Mitryk evakalise ukuba umgca we-PICC ubusebenza ekunyangeni iimpawu ze-HG kwixesha elidlulileyo, uthi i-ob-gyn kwindawo yakhe yokubelekisa yakubona kungeyomfuneko. Ngeli xesha, uMitryk uthi waqala ukuziva ngathi ukugxothwa kweempawu zakhe kunento yokwenza nobuhlanga - kwaye incoko eqhubekayo kunye nogqirha wakhe yaqinisekisa ukukrokra kwakhe, uyachaza. "Emva kokundixelela ukuba andinakufumana unyango endilifunayo, lo gqirha wandibuza ukuba ingaba ukukhulelwa kwam bekucwangcisiwe na," utsho uMitryk. “Ndandicaphuka ngalo mbuzo kuba ndandivakalelwa kukuba kucingelwa ukuba ndakhulelwa ndingacwangciswanga ngenxa yokuba ndiNtsundu.

Ngapha koko, uMitryk uthi itshathi yakhe yezonyango ichaze ngokucacileyo ukuba wayekwintlobano yesini esifanayo kwaye wayekhulelwe nge-intrauterine Insemination (IUI), unyango lokuchuma olubandakanya ukubeka isidoda ngaphakathi kwesibeleko ukulungiselela ukuchumisa. "Kwakungathi akazange azikhathaze ngokufunda itshathi yam kuba, emehlweni akhe, andikhange ndibukeke njengomntu onokuceba usapho," wabelana ngoMystrik. (Related: Iindlela ezili-11 zabasetyhini abaMnyama abanokukhusela impilo yabo yengqondo ngexesha lokukhulelwa kunye nokubeleka)

Kwakucacile ukuba mna nosana lwam alubalulekanga ngokwaneleyo ukuba angafuna olunye unyango oluza kundinceda.

Kristian Mitryk

Okwangoku, uMitryk uthi wamgcina epholile kwaye waqinisekisa ukuba ukukhulelwa kwakhe bekucwangcisiwe ngenene. Kodwa endaweni yokutshintsha ithoni, ugqirha waqala wathetha noMitryk ngezinye iindlela zakhe. "Undixelele ukuba andizukuhamba nokukhulelwa kwam ukuba andifuni," utsho uMitryk. Wothukile, uMitryk uthi ucele ugqirha ukuba aphindaphinde into ayithethileyo, ukuba angayiva kakuhle. "Ngokungakhathali kakhulu, wandixelela ukuba oomama abaninzi bakhetha ukuphelisa ukukhulelwa ukuba abakwazi ukusingatha iingxaki ze-HG," utsho. "Ke [u-ob-gyn wathi] ndingayenza loo nto ukuba ndiziva ndomelele." (Idibeneyo: Ngaba unokukhawuleza njani ekukhulelweni * Ngokwenyani * Ukhuphe isisu?)

"Andizange ndiyikholelwe le ndiyivayo," uqhubeka watsho uMitryk. "Ungacinga ukuba ugqirha - umntu omthembileyo ngobomi bakho - angalusebenzisa lonke ukhetho ngaphambi kokucebisa ngokuqhomfa. Kwakucacile ukuba mna nosana lwam alubalulekanga ngokwaneleyo ukuba angafuna olunye unyango ukuze andincede."

Ukulandela intsebenziswano engathandekiyo, uMitryk uthi uthunyelwe ekhaya kwaye waxelelwa ukuba alinde abone ukuba iZofran izosebenza na. Njengoko uMitryk wayelindele, akuzange kwenzeke.

Ukuthethelela Impilo Yakhe

Emva kokuchitha olunye usuku egalela iasidi kunye nenyongo kwisingxobo sokugabha esilahlwayo, uMitryk waphinda wavala umsebenzi wakhe wokubelekisa, utshilo. "Ngeli xesha, nabongikazi babesazi ukuba ndingubani," ucacisa. Njengoko imeko kaMitryk ngokwasemzimbeni yayisiya isiba mandundu, kwaba lucelomngeni ngakumbi kuye ukuba atyelele oogqirha abaninzi kangaka nonyana oneminyaka emi-2 ekhaya aze umfazi wakhe aqalise umsebenzi omtsha.

Ke kwabakho umba we-COVID-19. “Ndandisoyika ukubhencwa, kwaye ndandifuna ukwenza nantoni na ukuze ndinciphise utyelelo lwam,” utsho uMitryk. (Idibeneyo: Yintoni onokuyilindela kwi-Ob-Gyn yokutyunjwa kwakho okulandelayo phakathi-nasemva koko-iCoronavirus Pandemic)

Emamele iinkxalabo zikaMitryk kunye nokubona imeko yakhe enxungupheleyo, umongikazi ngoko nangoko wapeyinta ugqirha owayefowunelwa—kwaloo gqirha wayenyange uMitryk ngaphambili. Ndiyazi ukuba olu luphawu olubi kuba lo gqirha wayenembali yokungandimameli, utshilo. "Ngalo lonke ixesha ndimbona, wakhupha intloko yakhe, waxelela abahlengikazi ukuba bandidibanise kwi-IV fluids, bandithumele ekhaya. Akazange nakanye andibuze ngeempawu zam okanye indlela endiziva ngayo."

Ngelishwa, ugqirha wenze kanye le nto wayeyilindele uMitryk, uyachaza. "Ndandikhathazekile kwaye ekugqibeleni," utsho. "Ndabaxelela abongikazi ukuba andifuni ukuba kukhathalelo lukagqirha kwaye ndiza kubona nabani na ongomnye ozimisele ukuyithathela ingqalelo imeko yam."

Abongikazi bacebisa ukuba uMitryk aye esibhedlele ahambelana nomsebenzi wabo kwaye afumane uluvo lwesibini kwii-ob-gyns zabo. Abongikazi bakwazisa i-on-call doc kwindawo yokubelekisa ukuba uMitryk akasafuni ukuba sisigulana sakhe. (Eyeleleneyo: Oogqirha bangazihoyi iimpawu zam iminyaka emithathu ngaphambi kokuba ndifunyanwe ngeSigaba sesi-4 seLymphoma)

Kwimizuzwana emva kokufika kwakhe esibhedlele, uMitryk wangeniswa kwangoko ngenxa yokuwohloka kwempilo yakhe, uyakhumbula. Ngobusuku bokuqala bokuhlala kwakhe, uyachaza, i-ob-gyn yavuma ukuba ukubeka umgca we-PICC yeyona ndlela yonyango ilungileyo. Ngosuku olulandelayo, omnye u-ob-gyn wasisekela eso sigqibo, utsho uMitryk. Ngosuku lwesithathu, isibhedlele safikelela kuqeqesho lukaMitryk lokubelekisa, sibabuza ukuba bangaqhubela phambili na ngonyango lwabo olucetyiswayo lomgca we-PICC. Kodwa umsebenzi wokubelekisa wakhaba isicelo sesibhedlele, utshilo uMitryk. Akunjalo kuphela, kodwa umkhuba wagxotha uMitryk njengesigulane ngelixa Wayesesibhedlele esidityanelweyo-kwaye ukusukela oko kwaqala phantsi kwesambulela sesibhedlele, isibhedlele saphulukana negunya laso lokumnika unyango aludingayo, uyachaza uMitryk.

Njengomntu oNtsundu, umfazi othandana namanye eMelika, andiqhelekanga ukuziva ndingaphantsi kunoko. Kodwa yayilelinye lamaxesha apho kwakucacile ukuba abo gqirha nabongikazi babengenakukhathalela ngam okanye usana lwam.

Kristian Mitryk

"Ndamkelwe iintsuku ezintathu, ndindedwa ngenxa ye-COVID, kwaye ndigula ndingakholwanga," wabelana. "Ngoku ndandixelelwa ukuba ndavinjwa unyango endandilufuna ukuze ndizive bhetele? Njengowesifazane oMnyama, olilala eMelika, andiyazi ukuba ndiziva ndingaphantsi. Kodwa yayilelinye lala maxesha xa kwacaca ukuba abo gqirha nabongikazi [kwindawo yokubelekisa] abanakukhathalela mna okanye usana lwam.” (Eyeleleneyo: Inqanaba lokufa okuNxulumene nokuKhulelwa e-U.S. Liphezulu ngendlela eyothusayo)

"Khange ndikwazi ukuzibamba ndicinga ngawo onke amabhinqa aMnyama azive enje," utsho uMitryk. "Okanye bangaphi kubo abaye bafumana iingxaki zempilo ezingenakulungiseka okanye baphulukana nobomi babo ngenxa yolu hlobo lokuziphatha ngokungakhathali."

Kamva, uMitryk wafumanisa ukuba uye wagxothwa kulo mkhuba kuphela ngenxa yokuba “wayenongquzulwano lobuqu” nogqirha owayengazithatheli ngqalelo iimpawu zakhe, utsho. “Xa ndafowunela isebe lolawulo lomngcipheko, landixelela ukuba ugqirha ‘uziva ebuhlungu,’ kungoko wagqiba kwelokuba andikhulule,” ucacise watsho uMitryk. "Ugqirha uphinde wacinga ukuba ndizokuya kukhathalela kwenye indawo. Nokuba bekunjalo, ukundikhanyela unyango endiludingayo, xa bendigula ndisengozini yokusongela ubomi, wangqina ngokucacileyo ukuba kwakungekho nkathalo ngempilo yam. nokuba sempilweni. "

Kuthathe iintsuku ezintandathu ukuba uMitryk afikelele kwisimo esizinzileyo ukuba akhululwe esibhedlele, utshilo. Nangona kunjalo, wongezelela, yena nangoku wayengekho sikweni, yaye wayengekasifumani isicombululo sexesha elide ekubandezelekeni kwakhe. "Ndiphume apho, [nangoku] ndiphosa ibhegi," uyakhumbula. "Ndaziva ndingenathemba kwaye ndisoyika ukuba akukho mntu uza kundinceda."

Kwiintsuku ezimbalwa kamva, uMitryk wakwazi ukungena kolunye uqeqesho lokubelekisa apho amava akhe (ngethamsanqa) ahluke kakhulu. "Ndangena, bandivuma ngokukhawuleza, baxhamla, babonisana, benza njengoogqirha bokwenene, bandibeka kumgca wePICC," kuchaza uMitryk.

Unyango lusebenze, kwaye emva kweentsuku ezimbini, uMitryk wakhululwa. "Khange ndiphose okanye ndibenaso isicaphucaphu ukusukela oko," wabelana.

Indlela onokuthi uzithethelele ngayo

Ngelixa uMitryk ekugqibeleni alufumanayo uncedo aludingayo, inyani kukuba abafazi abamnyama bahlala behluleka yinkqubo yezempilo yaseMelika. Izifundo ezininzi zibonisa ukuba ucalucalulo ngokobuhlanga lunokuchaphazela indlela oogqirha abavavanya ngayo nokunyanga iintlungu. Ngokwe-avareji, malunga nowasetyhini omnye kwabahlanu abaMnyama baxela ucalucalulo xa besiya kwagqirha okanye ekliniki, ngokutsho kweNtsebenziswano yeSizwe yabaseTyhini kunye neeNtsapho.

"Ibali likaKrystian kunye namava afanayo ngelishwa aqhelekile," utshilo uRobyn Jones, MD, ibhodi eqinisekisiweyo ye-ob-gyn kunye nomphathi omkhulu kwezonyango kwezempilo yabasetyhini eJohnson & Johnson. "Abafazi abaNtsundu abanakukwazi ukuphulaphulwa ngabasebenzi bezonyango ngenxa yokuzikhethela kunye nokungazi, ucalucalulo lobuhlanga kunye nokungalingani kwenkqubo. Oku kukhokelela ekungathembeni phakathi kwabasetyhini abaMnyama kunye noogqirha, ngakumbi ukudibanisa ukungabikho kokufikelela kukhathalelo olusemgangathweni. " (Eso sesinye sezizathu ezininzi ezenza ukuba i-US ifune ngamandla oogqirha ababhinqileyo abaMnyama.)

Xa abafazi abaMnyama bezifumana bekule meko, ukuthethelelwa yeyona migaqo mihle, utshilo uGqirha Jones. U-Krystian wenze kanye le nto ndikhuthaza oomama abalindele ukuba bayenze: thetha ngokuzolileyo kwindawo yolwazi kunye nolwazelelelo kunxibelelwano lwakho nabasebenzi bezempilo malunga nempilo yakho, impilo entle, kunye nothintelo," uyacacisa. "Nangona ngamanye amaxesha ezi meko zinokuba neemvakalelo kakhulu, yenza konke okusemandleni akho ukulawula loo mvakalelo ukuze ufumane amanqaku akho ngendlela ezolileyo, kodwa eqinile." (Eyeleleneyo: Uphononongo olutsha lubonisa ukuba abasetyhini abaMnyama banokuthi babhubhe nguMhlaza wamabele kunabaseMhlophe)

Kwezinye iimeko (njengaseMitryk's), kunokufika ixesha apho kufuneka udlulisele kwenye inkathalo, uphawula uDkt Jones. Kungakhathaliseki ukuba, kubalulekile ukukhumbula ukuba unelungelo lokufumana unyango olungcono kakhulu, kwaye unalo lonke ilungelo lokufumana lonke ulwazi onalo malunga nemeko yakho, uchaza uGqr Jones.

Sekunjalo, ukuzithethela kungoyikisa, wongeza uGqr. Apha ngezantsi, wabelana ngezikhokelo ezinokukunceda uhambe kwiincoko ezikhohlisayo kunye noogqirha bakho kwaye uqiniseke ukuba ufumana ukhathalelo lwempilo olufaneleyo.

1. Ukufunda nokubhala kwezempilo kubalulekile. Ngamanye amazwi, yazi kwaye uqonde imeko yempilo yakho, kunye nembali yempilo yosapho lwakho, xa uzithethelela kwaye uthetha nababoneleli bezempilo.
2. Ukuba uziva ngathi ukhutshiwe, chaza ngokucacileyo kugqirha wakho ongaziva ngathi uve. Amabinzana afana nokuthi "Ndidinga ukuba undimamele," okanye "Awundiva," anokuqhubeka kunokuba ucinga.
3. Khumbula, uyazi kakuhle umzimba wakho. Ukuba uye wavakalisa inkxalabo yakho kwaye awuziva, cinga ukuba nomhlobo okanye ilungu losapho likumanye ngexesha lezi ncoko ukunceda ukwandisa ilizwi lakho kunye nomyalezo.
4. Cinga ngendlela ebanzi ngakumbi kukhathalelo lwakho. Oko kunokubandakanya inkxaso ye-doula kunye / okanye ukunakekelwa ngumongikazi oqinisekisiweyo. Kwakhona, thembela kumandla e-telemedicine (ngakumbi kweli xesha langoku), elinokudibanisa kumboneleli wokhathalelo naphi na apho ukhoyo.
5. Yenza ixesha lokufunda kunye nokufuna ulwazi kwizixhobo ezithembakeleyo. Izixhobo ezinje ngeMpilo yaBasetyhini abaMnyama, i-Black Mamas Matter Alliance, i-Ofisi yeMpilo encinci, kunye ne-Ofisi yeMpilo yabaseTyhini inokukunceda ukuba uhlale usazi malunga nemiba yezempilo enokuthi ikuchaphazele.

Nokuba uziva ukuba akuyomfuneko ukuba umthethelele ngokwakho, unokunceda abanye abafazi ngokujoyina amanethiwekhi athile kunye namaqela kwinqanaba lendawo kunye / okanye likazwelonke, ucebisa uDkt Jones.

“Khangela amathuba namaqela amakhulu eenkuthazo esizwe afana noMatshi woMama,” utshilo. "Ekuhlaleni, kuyanceda ukudibanisa nabanye abafazi kunye noomama kwindawo yakho ngokusebenzisa i-Facebook okanye ngaphakathi kwendawo yakho ukuze ube nengxoxo evulekileyo malunga nezi zihloko kunye nokwabelana ngamava. Kunye, unokufumana imibutho yendawo egxile kwezi zizathu ezinokudinga. inkxaso eyongezelelweyo."

Uphengululo lwe