Imibuzo esi-7 yokuyibuza xa ucinga ngonyango lwe-IPF

Umxholo

• 1. Ndiyazi njani ukuba i-IPF yam iya isiba mandundu?
• 2. Ngawaphi amayeza anyanga i-IPF?
• 3. Ngaba unyango lweoksijini lungandinceda ndiphefumle ngcono?
• 4. Ngaba zikhona iinkqubo zokubuyisela kwimeko yesiqhelo ezikhoyo?
• 5. Ingaba ndizakufuna ukufakelwa imiphunga?
• 6. Ngaba lukhona olunye unyango olufumanekayo?
• 7. Zeziphi izinto ezintle nezimbi ngokunyanga i-IPF?

Idiopathic pulmonary fibrosis (IPF) luhlobo lwe-pulmonary fibrosis enezizathu ezingaziwayo. Nangona inkqubela phambili iyacotha, inokubangela ukwanda ngesiquphe kweempawu xa zisiba mandundu.

Ngenxa yezi zibakala zibini, usenokuzibuza ukuba ngaba unyango lunokwenzeka na ukuba ugqirha wakho akayazi ukuba yintoni ebangele ukuba i-IPF yakho iqale. Unokuzibuza ukuba unyango lubaluleke na.

Gcina le mibuzo ilandelayo yonyango ukuba uxoxe ngayo ngexesha lakho lokuqeshwa nogqirha.

1. Ndiyazi njani ukuba i-IPF yam iya isiba mandundu?

Olona phawu luxhaphakileyo lwe-IPF kukuphefumla kancinci, okwabizwa ngokuba yi-dyspnea. Ukuphefumla kancinci kunokubonakala ngathi akuphumi ndawo kwaye kuhlala kuphosakele enye imeko yemiphunga. Unokuyifumana kumaxesha omsebenzi, nangaphezulu kwexesha, ngexesha lokuphumla. Isikhohlela esomileyo sinokuhamba nokuphefumla kancinci.

I-IPF yakho inokubangela ezinye iimpawu, ezinje ngokulahleka kwesisindo, iintlungu zemisipha kunye nokudinwa. Usenokude uqaphele ukuba iminwe yakho kunye neenzwane ziqala ukujikeleza kwiingcebiso, uphawu olwaziwa ngokuba yiklabhu.

Iimpawu ze-IPF ziyahluka ukusuka komnye umntu ukuya komnye. Ukuba uqaphela ubunzima bokuphefumla obuqhubeka nokuba mandundu, kunye nokuqala kweempawu ezongezelelekileyo, oku kunokuba luphawu lokuba imeko yakho iya isiba mandundu. Xoxa ngonyango olukhethayo.

2. Ngawaphi amayeza anyanga i-IPF?

Ngelishwa, akukho naliphi na iyeza lokunyanga i-IPF. Endaweni yoko, amayeza asetyenziselwa ukunciphisa inkqubela phambili yeempawu ze-IPF. Kananjalo, unokufumana umgangatho wobomi obungcono.

Zimbini iziyobisi ezivunyiweyo yiU.S.Ukutya noLawulo lweeDrug (FDA) kunyango lwe-IPF: nintedanib (Ofev) kunye nepirfenidone (Esbriet). Eyaziwa ngokuba yi-antifibrotic agents, la mayeza anciphisa izinga lokunqongophala kwimiphunga yakho. Oku kunokunceda ukunciphisa ukuqhubela phambili kwe-IPF kunye nokuphucula iimpawu zakho.

Ukongeza, ugqirha wakho unokukunika iyeza elinye okanye nangaphezulu:

• amayeza e-acid reflux, ngakumbi ukuba unesifo se-reflux sesifo se-gastroesophageal (GERD)
• antibiotics ukuthintela usulelo
• iziyobisi ezichasayo, ezinje nge-prednisone
• Isithinteli sokukhohlela, njenge-benzonatate, i-hydrocodone kunye ne-thalidomide

3. Ngaba unyango lweoksijini lungandinceda ndiphefumle ngcono?

Unyango lweoksijini lukhetho olufanelekileyo kubantu abaninzi abane-IPF. Inokukunceda uphefumle ngcono xa uhamba, uyokuthenga, okanye usenza ezinye izinto. Njengoko i-IPF iqhubeka, unokufuna unyango lweoksijini ngexesha lokulala ukukunceda uphefumle ngcono.

Unyango lweoksijini alunakho ukunqanda ukuqhubela phambili kwe-IPF, kodwa inako:

• yenza kube lula ukwenza umthambo
• kukunceda ulale kwaye ulale
• lawula uxinzelelo lwegazi

4. Ngaba zikhona iinkqubo zokubuyisela kwimeko yesiqhelo ezikhoyo?

Ewe. Kwi-IPF, unokuthunyelwa kwinkqubo yokubuyisela imeko kwimeko yesiqhelo. Ungayicinga le nto njengonyango lomsebenzi okanye unyango lwasemzimbeni, ngaphandle kokuba kugxilwe kwimiphunga yakho.

Ngokulungiswa kwemiphunga, ugqirha wakho uya kukunceda:

• iindlela zokuphefumla
• inkxaso yemvakalelo
• umthambo kunye nokunyamezela
• isondlo

5. Ingaba ndizakufuna ukufakelwa imiphunga?

Ukuba unamanani amaninzi emiphunga, unokufumana inzuzo ngokufakelwa kwemiphunga. Ukuba uphumelele, utyando lunokukunceda uphile ixesha elide. Ngokwe-Pulmonary Fibrosis Foundation, i-pulmonary fibrosis akhawunti malunga nesiqingatha sazo zonke izinto ezihamba ngemiphunga eUnited States.

Sekunjalo, kukho umngcipheko omkhulu ohambelana nokufakelwa kwemiphunga, ngoko akusiyo wonke umntu. Eyona nto ixhalabisayo kukhatywa komphunga omtsha. Usulelo kunokwenzeka.

Thetha nogqirha wakho ukuba unomdla wokufumanisa ngakumbi malunga nokufakwa kwemiphunga kwaye ukuba ikulungele na.

6. Ngaba lukhona olunye unyango olufumanekayo?

Olunye unyango alukhange luxhaswe ngokubanzi kulawulo lwe-IPF. Okwangoku, amayeza asekhaya kunye notshintsho kwindlela yokuphila zinokukunceda imeko yakho iyonke.

Thetha nogqirha wakho malunga:

• umthambo
• inkxaso yesondlo
• ukuyeka ukutshaya
• ukuthatha iivithamini, ukuba ziyafuneka
• izitofu

Ugqirha wakho usenokucebisa ngamayeza kunye neyeza ukunyanga iimpawu zakho. Imizekelo ibandakanya ukwehla kokukhohlela, ukucinezela kokukhohlela, kunye nokuphelisa iintlungu. Soloko ujongana nogqirha wakho kuqala ngaphambi kokuba uthathe amayeza e-OTC ukuthintela iziphumo ebezingalindelekanga kunye nokunxibelelana kweziyobisi okunokubakho.

7. Zeziphi izinto ezintle nezimbi ngokunyanga i-IPF?

Kuba akukho lunyango lwe-IPF, ugqirha wakho uya kugxila kulawulo kunye nonyango ukuze wandise ubomi bakho. Oku kuyakunceda ukuphucula umgangatho wobomi bakho kunye nokuthintela iingxaki, ezinje ngezifo.

Ngelixa i-IPF inokuba nzima, kubalulekile ukuba ungayeki. Ukunyanga i-IPF kunokwenza ukuba imisebenzi yakho yemihla ngemihla ibe yeyonwabisayo. Ugqirha wakho usenokucebisa ukuba uthathe inxaxheba kuvavanyo lweklinikhi, olunokuthi lubonise unyango olutsha.

Unyango kunyango lwe-IPF zinokubakho iziphumo ebezingalindelekanga zonyango kunye nokuchaswa okunokubakho kufakelo lwemiphunga.

Xa uqwalasela iingenelo kunye nokunyanga kwonyango, unokubona ukuba izibonelelo zingaphezulu kakhulu kwiingozi. Wena nogqirha wakho ninokuthatha isigqibo sokuba yeyiphi eyona nto ifanelekileyo kwimeko yakho.