Ngaba uxolelo lunokwenzeka ngeNkqubela yeSekondari yokuqhubela phambili? Ukuthetha nogqirha wakho

Umxholo

• Ngaba uxolelo lunokwenzeka nge-SPMS?
• Zeziphi iimpawu ezinokubakho ze-SPMS?
• Ndingazilawula njani iimpawu ze-SPMS?
• Ngaba ndiza kuphulukana namandla am okuhamba ne-SPMS?
• Ndimele ndimndwendwele kangaphi ugqirha wam xa eyokuvavanywa?
• Ukuthatha

Ushwankathelo

Uninzi lwabantu abane-MS baqala ukufumanisa ukuba bane-MS ebuyisela kwakhona (RRMS). Kule hlobo lwe-MS, amaxesha emisebenzi yesifo alandelwa ngamaxesha okuphulukana ngokwenxalenye okanye okupheleleyo. La maxesha okuchacha ekwabizwa ngokuba luxolelo.

Ekugqibeleni, uninzi lwabantu abane-RRMS bayaqhubeka nokuphuhlisa i-MS (SPMS) yesibini. Kwi-SPMS, ukonakala kwethambo kunye nokukhubazeka kudla ngokuqhubela phambili ekuhambeni kwexesha.

Ukuba unayo i-SPMS, ukufumana unyango kunokunceda ukunciphisa imeko, ukunciphisa umda weempawu kunye nokulibaziseka kokukhubazeka. Oku kunokukunceda uhlale ukhuthele kwaye usempilweni njengoko ixesha lihamba.

Nantsi eminye imibuzo oza kuyibuza ugqirha wakho ngobomi be-SPMS.

Ngaba uxolelo lunokwenzeka nge-SPMS?

Ukuba unayo i-SPMS, ngekhe uye kumaxesha oxolelo olupheleleyo xa zonke iimpawu zihamba. Kodwa unokuhamba ngamaxesha apho esi sifo sisebenza ngakumbi okanye singasebenzi.

Xa i-SPMS isebenza ngakumbi ngokuqhubela phambili, iimpawu ziya zisiba mbi kwaye ukwanda kokukhubazeka.

Xa i-SPMS ingasebenzi kangako ngaphandle kokuqhubela phambili, iimpawu zinokuthi ziqaqambe kangangexesha elithile.

Ukunciphisa umsebenzi kunye nokuqhubela phambili kwe-SPMS, ugqirha wakho unokumisela unyango oluguqula isifo (i-DMT). Olu hlobo lonyango lunokunceda ukucotha okanye ukuthintela ukukhula kokukhubazeka.

Ukufunda malunga nezibonelelo ezinokubakho kunye nomngcipheko wokuthatha i-DMT, thetha nogqirha wakho. Banokukunceda uqonde kwaye ulinganise ukhetho lwakho lonyango.

Zeziphi iimpawu ezinokubakho ze-SPMS?

I-SPMS inokubangela iintlobo ngeentlobo zeempawu, ezahluka kumntu kumntu. Njengoko imeko iqhubeka, iimpawu ezintsha zinokukhula okanye iimpawu ezikhoyo zisenokuba mandundu.

Iimpawu ezinokubakho zibandakanya:

• ukudinwa
• isiyezi
• intlungu
• ukurhawuzelela
• ukuba ndindisholo
• ukurhawuzelela
• ubuthathaka bemisipha
• Ukuxhamla kwemisipha
• iingxaki ezibonakalayo
• iingxaki zokulinganisela
• iingxaki zokuhamba
• iingxaki zesinyi
• iingxaki zamathumbu
• ukungasebenzi kakuhle ngokwesondo
• utshintsho lokuqonda
• utshintsho lweemvakalelo

Ukuba uhlakulela iimpawu ezintsha okanye ezibalulekileyo, makazise ugqirha wakho. Babuze ukuba kukho naluphi na utshintsho olunokwenziwa kwisicwangciso sakho sonyango ukunceda ukunciphisa okanye ukunciphisa iimpawu.

Ndingazilawula njani iimpawu ze-SPMS?

Ukunceda ukulawula iimpawu ze-SPMS, ugqirha wakho unokumisela iyeza elinye okanye nangaphezulu.

Banokucebisa notshintsho lwendlela yokuphila kunye neendlela zokubuyisela kwimeko yesiqhelo ukunceda ukugcina ukusebenza komzimba kunye nokuqonda, umgangatho wobomi kunye nokuzimela.

Umzekelo, unokufumana izibonelelo:

• ulungiso lwenyama
• unyango lomsebenzi
• Unyango lolwimi lokuthetha
• ukuvuselelwa kwengqondo
• ukusetyenziswa kwesixhobo sokuncedisa, njengenduku yokuhamba okanye isihambahamba

Ukuba unengxaki yokujamelana nezentlalo okanye iimvakalelo ze-SPMS, kubalulekile ukuba ufune inkxaso. Ugqirha wakho angakuthumela kwiqela lenkxaso okanye ingcali yezempilo yengqondo ngengcebiso.

Ngaba ndiza kuphulukana namandla am okuhamba ne-SPMS?

Ngokwe-National Multiple Sclerosis Society (NMSS), ngaphezulu kwesibini kwisithathu sabantu abane-SPMS bagcina amandla okuhamba. Abanye babo bakufumanisa kuluncedo ukusebenzisa induku, isihambahamba, okanye esinye isixhobo esincedisayo.

Ukuba awusenako ukuhamba imigama emifutshane okanye emide, ugqirha wakho uya kukukhuthaza ukuba usebenzise isithuthuthu esinenjini okanye isitulo esinamavili ukuze ujikeleze. Ezi zixhobo zinokukunceda ugcine ukuhamba kwakho nokuzimela.

Yazisa ugqirha wakho ukuba ukufumanisa kunzima ukuhamba okanye ukugqibezela eminye imisebenzi yemihla ngemihla njengoko ixesha lihamba. Banokuyalela amayeza, unyango lokubuyisela kwimeko yesiqhelo, okanye izixhobo zokunceda ukunceda ukulawula imeko.

Ndimele ndimndwendwele kangaphi ugqirha wam xa eyokuvavanywa?

Ukuze ufunde indlela imeko yakho eqhubeka ngayo, kuya kufuneka wenze uvavanyo lwe-neurologic ubuncinci kube kanye ngonyaka, ngokwe-NMSS. Ugqirha wakho kwaye unokuthatha isigqibo sokuba uza kuyenza kangaphi imidwebo yokujonga umfanekiso ngemagneti.

Kwakhona kubalulekile ukuba ugqirha wakho azi ukuba iimpawu zakho ziba nzima okanye unenkathazo yokugqiba imisebenzi ekhaya okanye emsebenzini. Ngokufanayo, kuya kufuneka uxelele ugqirha wakho ukuba ukufumanisa kunzima ukulandela isicwangciso sakho sonyango. Ngamanye amaxesha, banokucebisa utshintsho kunyango lwakho.

Ukuthatha

Nangona okwangoku lungekho unyango lwe-SPMS, unyango lunokunceda ukucothisa ukukhula kwale meko kunye nokunciphisa iziphumo zayo ebomini bakho.

Ukukunceda ukulawula iimpawu kunye neziphumo ze-SPMS, ugqirha wakho unokumisela iyeza elinye okanye nangaphezulu. Utshintsho kwindlela yokuphila, unyango lokubuyisela kwimeko yesiqhelo, okanye ezinye iindlela ezinokukunceda ugcine umgangatho wobomi bakho.