Buza iNgcali: Ungazikhusela njani nge-Endometriosis

Umxholo

• 1. Kutheni kubalulekile ukuba uzithethelele ngokwakho ukuba uhlala ne-endometriosis?
• 2. Ngawaphi amanye amaxesha onokuthi ufune ukuzimela? Ngaba unokunika imizekelo?
• 3. Zeziphi izakhono ezingundoqo eziluncedo okanye ubuchule bokuzimela nokuzimela kwakho kwaye ndingaziphuhlisa njani?
• 4. Yiyiphi indima edlalwa luphando kwimeko yokuzimela? Zeziphi ezinye zezixhobo zakho ozithandayo zophando nge-endometriosis?
• 5. Xa kufikwa kumba wokuhlala ne-endometriosis kunye nokuzimela, ukhe wajamelana nini neyona mingeni mikhulu?
• 6. Ngaba ukuba nenkqubo eyomeleleyo yenkxaso kuyanceda ekuzithetheleleni ngokwakho? Ndingawathatha njani amanyathelo okukhulisa inkqubo yam yenkxaso?
• 7. Kukhe kwafuneka ukuba uzithethelele ngokwakho kwiimeko ezichaphazela usapho lwakho, abahlobo, okanye abanye abantu obathandayo, kunye nezigqibo ofuna ukuzenza malunga nokulawula imeko yakho?
• 8. Ukuba ndizama ukuzimela kodwa ndiziva ngathi andingeni ndawo, ndingenza ntoni? Athini amanyathelo am alandelayo?

1. Kutheni kubalulekile ukuba uzithethelele ngokwakho ukuba uhlala ne-endometriosis?

Ukuzithethela ukuba uhlala ne-endometriosis ayisiyonyani- ubomi bakho buxhomekeke kuyo. Ngokuka-EndoWhat, umbutho wokukhuthaza abantu abaphila ne-endometriosis kunye nabanikezeli bezempilo, esi sifo sichaphazela abafazi abayi-176 yezigidi kwihlabathi liphela, kodwa kungathatha iminyaka eli-10 ukufumana uxilongo olusemthethweni.

Kutheni kunjalo? Ngenxa yokuba isifo asiphandwanga kakhulu kwaye, ngokoluvo lwam, oogqirha abaninzi khange baluhlaziye ulwazi lwabo malunga nalo. Amaziko kaZwelonke wezeMpilo (NIH) atyala imali ngakumbi kuphando lwezonyango kwiimeko ezahlukeneyo-kodwa kwi-2018, i-endometriosis ifumene kuphela i-7 yezigidi zeedola.

Kwandithatha iminyaka emine ukufumana ukuxilongwa, kwaye ndithathwa njengomnye wabanethamsanqa. Ukukhangela okulula kuGoogle kwi-endometriosis kuya kuthi kuvelise amanqaku amaninzi kunye nolwazi oludlulileyo okanye oluchanekileyo.

Amaziko amaninzi akafumani nkcazo yesifo ngokuchanekileyo. Ukucaca, i-endometriosis yenzeka xa izicwili ezifanayo nomngxunya wesibeleko zivela kwiindawo zomzimba ngaphandle kwesibeleko. Ayifani ncam nezicubu ezifanayo, okuyimpazamo endiyibonileyo amaziko amaninzi ayenzayo. Ke, singathemba njani ukuba naluphi na ulwazi asinika lona amaziko alungile?

Impendulo emfutshane yile: akufuneki. Kufuneka sifundiswe. Ngokombono wam, ubomi bethu bonke buxhomekeke kuyo.

2. Ngawaphi amanye amaxesha onokuthi ufune ukuzimela? Ngaba unokunika imizekelo?

Ukufumana uxilongo ngokulula kufuna ukuzimela. Uninzi lwabasetyhini luyagxothwa ngenxa yokuba iintlungu zexesha zithathwa njengeziqhelekileyo. Ke, bashiyekile ukuba bakholelwe ukuba bayasebenza kakhulu okanye yonke loo nto isentloko.

Intlungu etyhafisayo ayiqhelekanga. Ukuba ugqirha wakho - okanye nawuphi na umboneleli wezempilo - uzama ukukuqinisekisa ukuba kuyinto eqhelekileyo, kufuneka uzibuze ukuba ingaba ngabona bantu balungileyo abanokunakekela.

3. Zeziphi izakhono ezingundoqo eziluncedo okanye ubuchule bokuzimela nokuzimela kwakho kwaye ndingaziphuhlisa njani?

Okokuqala, funda ukuzithemba. Okwesibini, yazi ukuba uwazi umzimba wakho ngcono kunaye nawuphi na umntu.

Esinye isakhono esiphambili kukufunda ukusebenzisa ilizwi lakho ukuveza izinto ezikuxhalabisayo nokubuza imibuzo xa izinto zibonakala ngathi azidibani okanye azicacanga. Ukuba uyaphazamiseka okanye uzive usoyika oogqirha, yenza uluhlu lwemibuzo ofuna ukuyibuza kwangaphambili. Oku kukunceda ukuba uphephe ukuphazamiseka okanye ukulibala nantoni na.

Thatha amanqaku ngexesha lokuqeshwa kwakho ukuba awucingi ukuba uya kulukhumbula lonke ulwazi. Yiza nomnye umntu kwindibano yakho ukuze ube nolunye useto lweendlebe kwigumbi.

4. Yiyiphi indima edlalwa luphando kwimeko yokuzimela? Zeziphi ezinye zezixhobo zakho ozithandayo zophando nge-endometriosis?

Uphando lubalulekile, kodwa umthombo ovela kuphando lwakho ubaluleke ngakumbi. Kukho ulwazi oluninzi olungelulo olujikeleza malunga ne-endometriosis. Kungabonakala kunzima ukufumanisa ukuba yintoni echanekileyo nengachanekanga. Nokuba ndingumongikazi onamava ophando olunzulu, ndafumanisa kunzima ukuba ndazi ukuba yeyiphi imithombo endinokuyithemba.

Eyona mithombo yam ndiyithandayo kunye neyona ndiyithembileyo ye-endometriosis yile:

• UNancy's Nook kuFacebook
• Iziko loKhathalelo lwe-Endometriosis
• Ilungisa ntoni?

5. Xa kufikwa kumba wokuhlala ne-endometriosis kunye nokuzimela, ukhe wajamelana nini neyona mingeni mikhulu?

Omnye wemiceli mngeni yam emikhulu weza nokuzama ukuxilongwa. Ndinento ethathelwa ingqalelo njengohlobo olunqabileyo lwe-endometriosis, apho ifunyenwe kwidayaphragm yam, esisisihlunu esikunceda uphefumle. Ndinexesha elinzima kakhulu ukukholisa oogqirha bam ukuba ukuphefumla okufutshane kunye nentlungu yesifuba endiya kuyifumana inento yokwenza nexesha lam. Ndahlala ndixelelwa ukuba "kuyenzeka, kodwa kunqabe kakhulu."

6. Ngaba ukuba nenkqubo eyomeleleyo yenkxaso kuyanceda ekuzithetheleleni ngokwakho? Ndingawathatha njani amanyathelo okukhulisa inkqubo yam yenkxaso?

Ukuba nenkqubo eyomeleleyo yenkxaso yile ke ibalulekile ekuzithetheleni. Ukuba abantu abakwaziyo ngcono bayinciphise intlungu yakho, ukuzithemba ukwabelana ngamava akho noogqirha kuba nzima kakhulu.

Kuyanceda ukuqinisekisa ukuba abantu ebomini bakho bayayiqonda ngokwenene into ohamba kuyo. Oko kuqala ngokuqaqamba kweepesenti ezili-100 kunye nokunyaniseka kubo. Ikwathetha ukuba babelane nabo ngezixhobo ezinokubanceda basiqonde esi sifo.

I-EndoWhat ine-documentary emangalisayo yokunceda kule nto. Ndithumele ikopi kubo bonke abahlobo bam kunye nosapho kuba ukuzama ukuchaza ngokwaneleyo ukonakala kwesi sifo kunokuba nzima kakhulu ukukubeka ngamazwi.

7. Kukhe kwafuneka ukuba uzithethelele ngokwakho kwiimeko ezichaphazela usapho lwakho, abahlobo, okanye abanye abantu obathandayo, kunye nezigqibo ofuna ukuzenza malunga nokulawula imeko yakho?

Ingabonakala imangalisa, kodwa hayi. Xa kwakufuneka ndihambe ndisuka eCalifornia ndiye eAtlanta ukuze ndenziwe unyango ukunyanga i-endometriosis, usapho kunye nabahlobo bam basithemba isigqibo sam sokuba le yeyona nto ilungileyo kum.

Kwelinye icala, bendisoloko ndiziva ngathi kufuneka ndizithethelele ngeentlungu endikuzo. Ndandihlala ndisiva, "bendisazi njalo ke ngubani one-endometriosis kwaye bayaphila." I-Endometriosis ayisosifo esilinganayo.

8. Ukuba ndizama ukuzimela kodwa ndiziva ngathi andingeni ndawo, ndingenza ntoni? Athini amanyathelo am alandelayo?

Xa kuziwa koogqirha bakho, ukuba uziva ngathi awumanyelwa okanye unikwe unyango okanye izisombululo eziluncedo, fumana uluvo lwesibini.

Ukuba isicwangciso sakho sangoku sonyango asisebenzi, yabelana nolu gqirha ngokukhawuleza ukuba uyakuqonda oku. Ukuba abakulungelanga ukumamela iinkxalabo zakho, yiflegi ebomvu leyo ekufuneka uyiqwalasele ekufumaneni ugqirha omtsha.

Kubalulekile ukuba uhlale uziva njengeqabane ekunyamekeleni kwakho, kodwa unokuba liqabane elilinganayo kuphela xa usenza umsebenzi wakho wesikolo kwaye unolwazi. Kunokubakho inqanaba lokuthembana elingachazwanga phakathi kwakho nogqirha wakho, kodwa ungavumeli ukuthembana kukwenze umntu othabathayo inxaxheba kukhathalelo lwakho. Obu bubomi bakho. Akukho mntu uza kuyilwela kanzima ngokuthanda kwakho.

Joyina uluntu kunye neenethiwekhi zabanye abantu basetyhini abane-endometriosis. Kuba kukho inani eliqingqiweyo leengcali ze-endometriosis yokwenene, ukwabelana ngamava kunye nezixhobo lilitye lembombo lokufumana ukhathalelo olulungileyo.

UJenneh Bockari, 32, ngoku uhlala eLos Angeles. Ube ngumongikazi iminyaka eli-10 esebenza kwizinto ezahlukeneyo ezizodwa. Okwangoku ukwisemester yakhe yokugqibela yesikolo esiphumeleleyo, esenza iMasters kwi-Nursing Education. Ukufumana "umhlaba we-endometriosis" kunzima ukuhamba, uJenneh wathatha ku-Instagram ukwabelana ngamava akhe kunye nokufumana izixhobo. Uhambo lwakhe luyafumaneka @lungelo_lungelo. Ukubona ukunqongophala kolwazi olukhoyo, uthando lukaJenneh lokukhuthaza kunye nemfundo lwamkhokelela ekufumaneni Umdibaniso we-Endometriosis kunye noNatalie Archer. Umsebenzi we I-Endo Co kukonyusa ulwazi, ukukhuthaza imfundo ethembekileyo, kunye nokonyusa inkxaso-mali yophando ye-endometriosis.