Moebius syndrome: yintoni na, iimpawu kunye nonyango

Umxholo

• Iimpawu eziphambili kunye neempawu
• Indlela yokuqinisekisa ukuxilongwa
• Unyango lwenziwa njani

I-Moebius syndrome sisifo esinqabileyo apho umntu azalwe enobuthathaka okanye ukukhubazeka kweminye imithambo-luvo ye-cranial, ngakumbi kwizibini ze-VI kunye ne-VII, ezenza kube nzima, okanye ukungakwazi, ukuhambisa izihlunu zobuso namehlo ngokuchanekileyo. Kunzima ukwenza imbonakalo yobuso.

Olu hlobo lwesiphazamiso alunaso isizathu esithile kwaye lubonakala ngathi luvela kuguquko ngexesha lokukhulelwa, olubangela ukuba umntwana azalwe enobunzima. Ukongeza, ayisosifo esiqhubela phambili, oko kuthetha ukuba asibi mandundu ngokuhamba kwexesha. Ke, kuyinto eqhelekileyo ukuba umntwana afunde ukujongana nokukhubazeka kwakhe esemncinci, kwaye anokukhokelela kubomi obuqhelekileyo ngokupheleleyo.

Nangona kungekho lunyango kwesi sifo, imiqondiso kunye neengxaki zinokunyangwa ngeqela elinamacandelo ahlukeneyo ukuze lincede umntwana aqhelane neengxaki, de abe uzimele geqe.

Iimpawu eziphambili kunye neempawu

Iimpawu kunye neempawu zesifo seMoebius zinokwahluka ukusuka emntwaneni kuye emntwaneni, kuxhomekeka ekubeni zeziphi na iintlungu zemithambo-luvo ezichaphazelekayo. Nangona kunjalo, kwiimeko ezininzi, kuqhelekile:

• Kunzima ukuncuma, ukufinga iintshiya okanye ukuphakamisa amashiya;
• Iintshukumo zamehlo ezingaqhelekanga;
• Kunzima ukuginya, ukuhlafuna, ukuncanca okanye ukwenza izandi;
• Ukungakwazi ukuvelisa kwakhona imbonakalo yobuso;
• Ukungalungi komlomo, njengokucandeka komlomo okanye inkalakahla ecandekileyo.

Ukongeza, abantwana abazelwe benesi sifo banokuba nezinto ezithile zobuso ezinje ngokuba nencini encinci kunesilevu eqhelekileyo, umlomo omncinci, ulwimi olufutshane kunye namazinyo angalunganga.

Ngamanye amaxesha, ukongeza kubuso, iMoebius syndrome inokuchaphazela izihlunu zesifuba okanye iingalo.

Indlela yokuqinisekisa ukuxilongwa

Akukho zimvavanyo okanye iimviwo ezinakho ukuqinisekisa isifo se-Moebius, nangona kunjalo, ugqirha wabantwana unokufika kwesi sifo ngoonobumba neempawu ezivezwe ngumntwana.

Okwangoku, olunye uvavanyo lunokwenziwa, kodwa kukucofa kuphela ezinye izifo ezinokuba neempawu ezifanayo, njengokukhubazeka ebusweni.

Unyango lwenziwa njani

Unyango lwe-Moebius syndrome kufuneka luhlale luhlengahlengiswa kwiimpawu ezithile kunye notshintsho lomntwana ngamnye, ke ngoko, kuqhelekile ukuba kubalulekile ukusebenza neqela elinamacandelo ahlukeneyo aquka iingcali ezinje ngoochwephesha bezonyango, iingcali zonyango, oogqirha, oochwephesha bengcali, abanyangi nkqu nezazi zokutya., ukuze zikwazi ukuphendula kuzo zonke iimfuno zomntwana.

Umzekelo, ukuba kukho ubunzima obukhulu bokuhambisa izihlunu zobuso, kunokucetyiswa ukuba kwenziwe utyando ukuze kwenziwe ukufakelwa kwemithambo-luvo kwelinye ilungu lomzimba, lifuna ugqirha wotyando. Ukunceda umntwana ukuba oyise ukukhubazeka kwakhe, ugqirha osebenza emsebenzini ubaluleke kakhulu.