Amabali eMpumelelo eMS

Umxholo

• Awuyiyo i-MS yakho
• Imimmiselo nemiqathango
• Imigaqo yoKhuphiswano kunye neMimiselo
• Ukufaneleka:
• Ukhetho loMninimzi
• Ibhaso
• Ixesha lokungenisa
• Ukungena
• Ilayisensi kunye nokuNgqinelwa

Awuyiyo i-MS yakho

Ungumama? Umbhali wenoveli? Imbaleki? Sifuna ukukukhumbuza ukuba kuninzi kuwe okungaphaya kokuqinelwa yimithambo— {textend} kwaye sifuna ukuba ukhumbuze abanye ngokwenza ingxelo. Kwaye uxelele umhlaba ukuba une-MS, KODWA ...

Ibali likaJulia, ndiye ndasifumana isifo endafunyaniswa ndinaso kwiminyaka engama-23 eyadlulayo. Nokuba ndineminyaka engaphezu kwe-58 ndiyazi ukuba ndizokulwa le mihla le kwaye ungaze unikezele! Ndiyayiva kubantu abaninzi, Awubonakali ngathi uyagula! Ewe abandiboni ngezo ntsuku zimbi. Njengoko iTag yam ifundwa kwibhayisekile yam-Yishukumise! Ukulwa ne-MS ... Yile nto ndiyenzayo nje. Ndigqibile i-MS WALK neQela lam kunye nenja encinci yenkonzo, (mascot yethu) Boo. Awusoze unikezele! Sonke siyayazi intetho ...

Ibali likaNicole, ndisenentliziyo entliziyweni.

Ibali likaTresa, i-MS ayinayo.

Ibali likaCathy Chester, igama lam ndinguCathy Chester kwaye kuye kwafunyaniswa ukuba ndine-MS ukusukela ngo-1987. Ubomi bam bunikezelwe kwizinto ezimbini: ukubhala nokuhlawula phambili kubantu abane-MS. Ibhlog yam, Umoya Onikwe Amandla, izinikele ekubeni ibe nkulu ngaphezulu kweminyaka yobudala engama-50. Ndibhalela iiwebhusayithi ezininzi zempilo, kwaye ndiyibhlog ye-Huffington Post. Ndiphila ngenkolelo eqinileyo yokuba ubomi bunencasa, kwaye kufuneka sithathe usuku ngalunye ngokwenza konke okusemandleni ethu ngobuchule esinabo.

Ibali lika-Amy, ndine-MS iminyaka engama-25 okoko ndandineminyaka engama-20 ubudala. Ukuba nesi sifo- esi sihlala sitshintsha, singenakuqikelelwa, sisifo esahlukileyo esibumbe ukuba ndingubani namhlanje. Ngenxa yoko ubomi bam buthathe intsingiselo ngeyingenakuba- andikhange ndibunjwe nge-MS. Abanye abantu bathi, ndine-MS kodwa ayinayo. Ndithi, ndine-MS kwaye ndim. Kwaye nge-MS ndingaphezulu kunokuba bendinokuba ngenye indlela. (jonga mssoftserve.org!)

Ibali likaKit, ndisengumfazi, umfazi, umama kunye nomhlobo. Ndazisa iqela lenkxaso labucala elikwi-intanethi kubantu abanesifo esinganyangekiyo. Ndiyaqhubeka nokusebenzisa ubuchule bam bokubhala nokuphanda yonke imihla ndenza uphando ngemicimbi yezonyango kunye neyamntu kumalungu angama-800 aPhila ngokuNyanga. Ndisebenza kancinci, kwaye ndihlala ndiphazamiseka ziimfuno ze-MS, kodwa ndisafaka isandla kwihlabathi elingcono, yiyo ke le into endichazayo!

Ibali likaJ, bendihlala neMMS kangangeminyaka eli-19. Ndafunyaniswa ndineminyaka eli-18. Andizange ndivumele i-MS ukuba ilawule ubomi bam! Ukuvela ngokuqinisekileyo kwaye "Andiyi kuyeka!" Isimo sengqondo siyimfuneko. Baninzi kakhulu abantu abakujonga oku njengesigwebo sentambo ngelixa ndithathe i-MS yam kwaye ndayivumela ukuba indincede ndikhule njengomntu. Ndithatha izinto ngenye imini kwaye andithathi kwanto okanye nabani na. I-MS ayichazi ukuba ndingubani .... ndiyayenza loo nto! I-MS ayindichazi!

Ibali likaLea, njengoko unokukwazi ukuxelela efotweni-ndinentsalela yamehlo amnyama ama-2 ukusuka kokuwa kwam okokugqibela ngenxa ye-MS-kodwa ndisavuka ndisiya okunye! Ubomi bam bobam! Ndiyayonwabela nokuba ithini! Ndihlala ndinayo, ndihlala ndikhona, nokuba zithini na iiMonSters ebomini bam!

Ibali lika-S, ndine-MS, kodwa ukukhulisa kunye nokufundisa abantwana abantwana abaneemfuno ezizodwa kunye nokubona umntwana wam omdala ephumelela ekholejini kundigcina ndomelele. Bayandifuna. Ndiyazidinga. KUNYE, singoyisa Nantoni na! Sityhubele iinkqwithela ezininzi kunye kwaye sihlala siphuma somelele ngenxa yoko.

Ibali likaKathy, i-MS yinxalenye yendlela endimele ndiphile ngayo, kodwa ayisiyiyo le ndiyikhethayo. Ukwazi ukuba yintoni ebangela ukukhubazeka kwam kungcono kakhulu kunokuphila ngaphandle kolo lwazi-ndiyomelela, ndibhetele, ndonwabile kuba ndiyayazi into ejongene nam. Ngaphandle kwayo ngekhe ndigqibe ukuphulukana ne-100lbs kwaye ndifumanise ukuba zeziphi ezinye izinto endilunge ngazo.

Ibali lika-Ella Forbes, ndafunyaniswa ngo-RRMS ngo-Novemba ngo-2010,, Ubomi bam batshintsha, yonke into endijikelezileyo itshintshile, akukho nto yahlala injalo. Izinto ezenzeka rhoqo yayilusapho lwam kunye nabahlobo bam abatsha abamangalisayo kumgca abandincedayo ukuba ndiqonde ukuba bendisenguye MNA !!. Ndihlala ndifunda kwaye ndiziqhelanisa nehlabathi lam elitsha eliguqukayo, andijongi emva .. Ndihambela phambili nge-MY ms.

Ibali likaNicole Price, ndine-MS iminyaka eli-13 ngoku, kwaye andikwazi ukuyivumela ilawule ubomi bam .. Ndinamakhwenkwe amabini; ndineminyaka eyi-21 kunye ne-15, kwaye kufuneka ndiqhubeke ndibalwela. Babubomi bam, kwaye kufuneka ndiqiniseke ukuba banekamva eliqaqambileyo. Ndineminyaka engama-21 ubudala kunyaka wakhe wesi-3 e-CWU efunda uLawulo lwezeMpilo noKhuseleko, kunye nomntwana wam oneminyaka eli-15 ophumelela kunyaka wakhe wokuqala weSikolo samaBanga aPhakamileyo nakwibhola ekhatywayo, andinaxesha lokuba i-MS indilawule. Ukuhlala ndiqinisekile kwaye ndiphila kubafana bam kundigcina ndihamba yonke imihla.

Ibali likaTonia, kwafunyaniswa ukuba kwiminyaka eli-10 eyadlulayo ndineminyaka engama-33. Iimpawu kwakunzima ukuzisebenzisa ekuqaleni kodwa ndaya ndizifunda ukuzilawula. Usapho lwam luyandixhasa kakhulu kwaye loo nto ithetha ukuba kum lihlabathi. Andifuni ukuvumela i-MS ukuba yayalele ukuba ndingaya phi kunye nento endinokuyenza. Ndiza kuphumelela ngazo zonke iindlela eziyimfuneko !!!

Ibali likaChristie, ndingumntu othwebula iifoto othanda ukukhwela ibhayisekile yam, ngokukhawuleza okukhulu. Ewe, ndihlala ne-MS kwaye ndineentsuku ezintle neentsuku ezimbi. Ndizama ukuzalisa ezo ntsuku zilungileyo ngemisebenzi endiyithandayo: ukuhleka nabahlobo kunye nosapho, ukuthatha imifanekiso, ukuhamba ngebhayisikile, ukulima igadi, ukujonga ukutya okumnandi eSan Diego enelanga, ukubhala, ukuzoba, ukufunda, ukuhamba hamba kwihlabathi. Ufumana umbono. I-MS ayizukungena endleleni yokwenza izinto endizithandayo. Ixesha.

Ibali likaRyan Proce, ndineendlela ezininzi kakhulu ekufuneka ndizenzile. Njengokuba ngutata nomyeni. Andinaxesha lokuyeka ukuphila !!! Ndisebenza njengompheki, umlungelelanisi webhasi kwinkampu kunye nosompempe womlo. Ndithatha amayeza am kwaye ndijonga impilo yam, kwaye andizukunikezela kwesi sifo.

Ibali lika-Ann Pietrangelo, igama lam ndingu-Ann Pietrangelo kwaye ndibhale incwadi, “Azisekho iiSecs! Ukuphila, ukuhleka nokuthanda ngaphandle kokufumana isifo sokuqina kwemithambo ”kuba yilento ndiyenza yonke imihla. Ndikwangumntu osindileyo onomhlaza wamabele ophindwe kathathu, ngenxa yoko ndiyasiqonda isidingo sokuqhubeka nokujamelana nemiqobo. Apho ikhokelela khona indlela ayaziwa. Ndiyabulela ukuba sendleleni.

Ibali likaJennifer Duncan, ndinokuba ne-MS kodwa ayinayo kwaye ayisoze. Ndinosapho olukhulu olunceda nge-MS yam. Umyeni wam nabantwana bam balungile kwaye nomama wam unjalo. Ndine-MS unyaka onesiqingatha kwaye ndenza kakuhle kakhulu ukuza kuthi ga ngoku.

Ibali likaBarbara Nuss, Abanye abantu banokucinga ukuba ayinakwenzeka le nto, kodwa ndijonga i-MS yam njengentsikelelo yokuzifihla. I-MS indibonise amandla kunye nesibindi endingazange ndasazi ngaphambili. Indibonisile indlela obuxabiseke ngayo ubomi kwaye ungabhukuqi izinto ezincinci. Andinakukwazi ukwenza izinto endandizenza ngaphambili, ndibenobomi endandihlala ndibenza, ndenza imali endandihlala nayo. Kodwa ndinosapho olunothando kunye nenkqubo yenkxaso enkulu. Ndafunda ukubuxabisa ubomi kwaye naziphi na iingxaki endijongana nazo okwangoku azimbi njengokuba zinokuba njalo. Andizange ndibubone ubomi ngale ndlela ngaphambili, kwaye ndinika ikhredithi kwi-MS yam ngokundibonisa.

Ibali likaDebbie Phillips, ndingu-49, ndingumfazi, umama, umakhulu kwaye ndisenguye. Umyeni wam uneminyaka engama-30 yamagqala omkhosi we-COPD. Wafunyaniswa eyi-2 yrs phambi kokuba ndifunyaniswe ndineRRMS, siyakhathalelana. Andiyi kuyeka kodwa ndiza kufundisa abantu abaninzi njengoko ndinako malunga ne-MS de sifumane unyango!

Ibali likaJill Gebhard, i-MS inokubutshintsha ubomi bam, kodwa ayindinqandi ekwenzeni into endiyithandayo. Ndingacotha kunaye wonke umntu, kodwa ndizimisele ukuphila ubomi bam ngokupheleleyo! I-MS ithathe ubutsha bam, kwaye ndithatha kancinci ukubuya yonke imihla. Kwaye uyazi ntoni? Nawe unokwenjenjalo!

Ibali likaNicole, kwafunyaniswa ukuba ndiphantse ndane-4 yeminyaka ndadlula kwiminyaka engama-29 ubudala. Andizukuxoka ukuba ibiyinto eyoyikisayo, ibisoyikisa kwaye kude kube namhla isenjalo. Umahluko kuphela namhlanje ndixhaswa lusapho kunye nabahlobo abasondeleyo. Ndiyazi nokuba yeyiphi na into endilawulayo ngayo yindlela endiphendula ngayo kwizinto endijongene nazo. Ungaze unikezele kuwe okanye kwiinjongo zakho. Isenokungabi nguwe kanye loo mntu ubungumntu wenyama kodwa ubusenguye kanye loo mphefumlo udalwe nguThixo Masilwe silwe ukuze siphile ubomi esibunikiweyo.

Ibali likaMichelle Loza, ndafunyaniswa ngoNovemba 2009. Iintombi zam zazineminyaka esi-7 ne-9 kuphela ubudala. Ndemka kumama osebenzayo otshatileyo ngoku ndaya kuhlala ndedwa ekhaya supermom. I-MS ayizukundinqanda ekwenzeni izinto kodwa endaweni yoko ndithatha lonke ithuba lokwenza izinto. Isaci sam kukukhumbula onke amathuba esiwafumanayo.

Ibali likaBonny Hanan, i-MS yinxalenye yobomi bam, hayi ubomi bam bonke. Ndafunyaniswa ukuba ndingu-Matshi ka-2012 emva kweminyaka emi-2 yokuba lusana mhlawumbi. Ukusukela ngoko ndiye ndalandela ibhendi yam endiyithandayo ejikeleze i-United States esemazantsi. Ndenze abahlobo abatsha abaliqela, ndaza ndafunda nokuzazisa. Okona kubaluleke kakhulu, ndichithe ixesha elisemgangathweni kunye nosapho lwam kwaye ndakhe ubudlelwane obomelele ngakumbi nabo. Ingakumbi intombi yam eneminyaka eli-13 ubudala ethi ngaphandle kwesi sifo indixelele ngalo lonke ixesha ukuba ndingoyena mama ungcono!

Ibali likaDan noJen, i-MS ayisichazi, kodwa ngumlinganiswa omkhulu kwibali lethu. Ngokuqinisekileyo ibali lethu libali lothando, kunye ne-MS edlala indima yomlingisi. Ngaphandle kwesi sifo, ngekhe sidibane kwinkqubo ye-MS kwiminyaka eli-11 eyadlulayo. Rhoqo, ngumntu ongalunganga kwibali lethu. Kodwa ngamagorha awongamileyo kwesi sigulo. Ayisichazi. Ukuphila neMultiple Sclerosis kwenza ukuba ibali lethu libe nomdla ngakumbi.

Ikhava likaCheri, andiyiyo nje i-MS yam kuba kukho okungakumbi ebomini kune-MS. Ndinosapho nabahlobo abandikhathaleleyo kwaye ndibakhathalele. Andikwazi ukuhlala phantsi kwaye ndihlale kwimeko yam yonke imini kwaye ndilahlekelwe ebomini. Sikunye siza kusibetha esi silo sikhulu!

Joyina uLuntu lwethu kuFacebook kwiMS

Joyina uluntu oluxhasayo kwaye ufunde ngakumbi nge-MS. Ukusuka kwiziseko, kunyango lokulawula iimpawu zakho.

Ngenisa ividiyo ethi "Unayo le"

"Unayo le" ixhasa uluntu lwaseMS. Jonga iividiyo ezivela kwabanye abahlala ne-MS kwaye ufunde ukuba awuwedwa kumlo wakho. Fumana inkuthazo kunye neengcebiso kubantu abafana nawe, kwaye uzive unamandla okuba wabelane ngebali lakho.

I-Multiple Sclerosis Prognosis kunye nokuLindelwa koBomi

Iinyani ze-7 zeMS kufuneka uzi

Iimpawu eziqhelekileyo ze-MS kwabaseTyhini

Iindlela ezili-12 ze-MS zokuSebenza kuMzimba

Ezona Zibonelelo zibalaseleyo zeMS kwiWebhu yonke

Unyango oluNtsha oluTshintsha i-MS

Abasetyhini banomngcipheko ophezulu kakhulu wokuphuhlisa i-MS kunamadoda, kwaye esi sifo sinokuchaphazela abantu basetyhini ngokwahlukileyo.

I-MS Ukusuka Phezulu kuye ezantsi, Fumana umbono wokuba i-MS iwuchaphazela njani umzimba uphela ngale mephu yokusebenzisana.

Kufuneka ubenolwazi nge-MS yeNyaniso, ukusukela kwiimpawu ukuya kumanyathelo alandelayo, fumana ukuba yintoni ekufuneka uyazi.

Imimmiselo nemiqathango

I-Healthline iya kuqokelela ulwazi kubasebenzisi ngokusebenzisa usetyenziso lwe-Facebook kuphela ngenjongo yokudala amava omsebenzisi angcono kwisicelo. I-Healthline iya kuqokelela kuphela ulwazi oluyimfuneko olufunekayo ekusebenziseni esi sicelo. Akukho lwazi luqokelelweyo kwiiakhawunti ze-Facebook zomsebenzisi oluya kusetyenziselwa iinjongo ezingaphandle kwesicelo. I-Healthline ayinawo amalungelo kule datha.

Ukufaneleka:

Ukungeniswa kuvulelekile kubo bonke abahlali baseMelika, ngaphandle kwabasebenzi beHealthline Networks, iintengiso zayo kunye neearhente zentengiso, abo banxulumene nabo kunye nabo, kunye namalungu osapho kwangoko. Ingeniso enye kuphela yomntu ngamnye evunyelweyo.

Ukhetho loMninimzi

Ungeniso ngezona zabelo zininzi nge-11: 59 PM ngoJuni 30, 2013 ziya kuvotelwa njengeliphumeleleyo. Kwimeko yetayi, ibhaso liya kwahlulwa phakathi kwabaphumeleleyo. Amagama abaphumeleleyo aya kuthunyelwa kwiphepha le-Healthline Multiple Sclerosis kuFacebook.

Ibhaso

Ikhadi lesipho elinye leedola ezingama-50 liya kunikezelwa kwindawo yokuqala. Abaphumeleleyo kuya kuqhagamshelwana nabo nge-akhawunti ye-imeyile okanye kwifom yebhlog yabo ngoJulayi, nge-10 ka-2013. igama, idilesi ye-imeyile, kunye nendawo. Amabhaso aya kunikezelwa ngoJulayi 31, 2013. Ukusilela ukuphendula ngokwale migqaliselo kuya kuthetha ukuba ophumeleleyo uphulukana nomvuzo.

Ixesha lokungenisa

Ukungeniswa kuqala ngo-Epreli 26, 2013. Amangenelo kufuneka afunyanwe nge-11: 59 PM PST ngoJuni 30, 2013.

Ukungena

Onke amangenelo makabhalwe ngesiNgesi.

Abangeneleli abanakho ukungena kwiiakhawunti ezininzi ze-imeyile okanye izazisi ezininzi.

Ukungeniswa okuphula okanye ukwaphula amalungelo omnye umntu, kubandakanya kodwa kungasikelwanga mthethweni, akuvumelekanga.

Ilayisensi kunye nokuNgqinelwa

Ekungeniseni umfanekiso we-MS placard, uyavuma oku kulandelayo: Ngokwenjenje ndinika iinethiwekhi zeHealthline Networks ilayisensi engenasimahla, engapheliyo yokusebenzisa umfanekiso ongeniswe apha ("Umsebenzi") kuyo nayiphi na injongo. Ukusetyenziswa kunokubandakanya, kodwa kungaphelelanga apho, ukukhuthazwa kweeNethiwekhi zeHealthline kunye neeprojekthi zazo nangayiphi na indlela, kubandakanya iwebhu, kupapasho olushicilelweyo, njengoko zisasazwa kwimithombo yeendaba, nakwiimveliso zorhwebo. IiNethiwekhi zeHealthline zinelungelo lokusebenzisa / ukungasebenzisi nawuphi na umsebenzi njengoko kubonwa kufanelekile ziiNethiwekhi zeHealthline ngokokubona kwazo. Akukho Msebenzi uya kubuyiselwa wakuba ungenisiwe.

Ndiyaqonda ukuba xa ndingenisa umfanekiso we-MS placard, ndiyavuma ukuba iNethiwekhi yezeMpilo ayisayi kuthwala xanduva nangayiphi na indlela ekukhuseleni umsebenzi wam ngokuchasene nelungelo lokushicilela lomnye umntu okanye amanye amalungelo epropathi enomgangatho ophezulu wokuqonda okanye amanye amalungelo endinokuwagcina kulo msebenzi, nakwi Akukho ndlela iyakuba noxanduva ngayo nayiphi na ilahleko endinokuyifumana ngenxa yolwaphulo-mthetho olunjalo; Kwaye ke ndimela kwaye ndiyaqinisekisa ukuba uMsebenzi wam awuchaphazi amalungelo omnye umntu okanye iqumrhu. Ukutshintshiselana nokuqwalaselwa okuxabisekileyo, ngokwenjenje ndikhulula ngaphandle kwemeko, ndibambe ingozi, kwaye ndibeka ityala kwiHealthline Networks, abalawuli babo, amagosa, kunye nabasebenzi kuwo onke amabango, amatyala, kunye nelahleko evela okanye enxulumene nokuthatha inxaxheba kwam kwigalari yokungenisa, okanye Inethiwekhi yeHealthline Ukusetyenziswa koMsebenzi wam. Olu khululo kunye noxolelwaniso luya kubopha kum, kunye neendlalifa zam, abalawuli, abalawuli, kwaye babela.

IiNethiwekhi zeHealthline azinaxanduva ngayo nayiphi na ilahleko evela okanye enxulumene nayo okanye ngenxa yayo nayiphi na umnxeba wokungeniswa okukhuthazwe ziiNethiwekhi zeHealthline.

Ixhaswe ziiNethiwekhi zeHealthline, Inc. 660 Isitalato sesithathu, iSan Francisco, CA, 94609