Ukulandela umkhondo nge-IPF yakho: Kutheni kubalulekile ukugcina uphawu lweMpawu

Umxholo

• Ukuphefumla okufutshane kunye nokuqhubela phambili
• Ukuchonga ezinye iimpawu eziqhelekileyo ze-IPF
• Ukulandelela kunika amandla
• Iimpawu zakho zinokutshintsha isicwangciso sakho sonyango
• Ukulandelela kunokunceda ukukhusela iingxaki
• Uzijonga njani iimpawu zakho
• Ukuthatha

Iimpawu ze-idiopathic pulmonary fibrosis (IPF) ayichaphazeli imiphunga yakho kuphela, kodwa namanye amalungu omzimba wakho. Ezo mpawu zinokwahluka kubukhali phakathi kwabantu abane-IFP. Ngamanye amaxesha usenokude ufumane isiqendu esibukhali, apho iimpawu ziba mandundu ngakumbi kwaye zihlala iintsuku ukuya kwiiveki.

Ukujonga iipateni kwiimpawu zakho kunokunceda ugqirha wakho abone unyango olungcono kwimeko yakho. Kwaye oku kuyakuvumela ukuba uphathe IPF yakho ngcono.

Ukuphefumla okufutshane kunye nokuqhubela phambili

Ukuphefumla okufutshane (okwaziwa ngokuba yi-dyspnea) kuhlala kuyimpawu yokuqala echaziweyo ye-IPF, ngokwe. Ekuqaleni, unokuyibona isenzeka ngamanye amaxesha, ngakumbi ngamaxesha omsebenzi, njengaxa uzilolonga. Kodwa njengoko i-IPF yakho iqhubeka, uya kuba namava okuphefumla okufuthi rhoqo ngalo lonke usuku-nokuba ulele okanye uphumla.

Ukugcina umkhondo wobukhali kunye nokuqhubela phambili kokuphefumla kwakho sisalathiso esibalulekileyo senani lemiphunga elibangela ukuba i-IPF yakho ibangele. Inokunika ugqirha wakho ukuqonda malunga nempilo yakho yokuphefumla.

Xa ulandela umkhondo weempawu zokuphefumla okufutshane, qiniseka ukubonisa ukuba iimpawu ziqala nini kwaye ziphela nini. Kwakhona, qaphela inqanaba lomsebenzi wakho kunye nento obuyenza ngelixa unee mpawu.

Ukuchonga ezinye iimpawu eziqhelekileyo ze-IPF

Ngelixa ukuphefumla okufutshane kuyeyona mpawu ixhaphakileyo ye-IPF, unokufumana ezinye iimpawu, kubandakanya:

• ukukhohlela owomileyo
• ukwehla kobunzima ngokuthe ngcembe ekuphulukaneni nomdla wokutya
• intlungu kwimisipha yakho kunye namalungu
• iminwe kunye neenzwane
• ukudinwa kakhulu

Kanye njengokuphefumla okufutshane, uya kufuna ukwenza inqaku lomxholo ojikeleze amava akho ngezi ezinye zeempawu ze-IPF. Landa umkhondo xa uziva phi kwaye phi, kwaye wenza ntoni xa beqala.

Ukulandelela kunika amandla

Ukulandela umkhondo weempawu zakho nako kubeka wena kulawulo lolawulo lwakho lwe-IPF. Oku kunokuba kukuxhobisa, ngakumbi xa ujongene nesifo esingenaso nesinye isizathu esichazayo kwaye, ngelishwa, akukho unyango.

Xa usiya kwi-aphoyintimenti ugqirha wakho olandelayo, qiniseka ukuthatha iphephabhuku lakho lesifo kwaye uthathe amanqaku xa kufuneka. Ukwenza njalo kuya kukunceda uzive uqinisekile ngelixa utshintshisa ulwazi nogqirha wakho.

Iimpawu zakho zinokutshintsha isicwangciso sakho sonyango

Iimpawu ezinobumnene zinokulawulwa ngamayeza anciphisa ukudumba kunye nokuqhambuka. Unokufuna kwakhona unyango lweoksijini ukunceda ukuphucula ukuphefumla okufutshane ngexesha lomsebenzi wemihla ngemihla.

Ukuba ubona iimpawu zakho ziba zibi, ugqirha wakho unokufuna ukuguqula isicwangciso sakho sonyango. Oku kunokubandakanya unyango lweoksijini ngamaxesha okuphumla ukuphucula ukusebenza kwemiphunga yakho. Ugqirha wakho unokucebisa kwakhona ukulungiswa kwemiphunga.

Ukuba ufumana impumlo okanye umkhuhlane, jonga ugqirha wakho kwangoko. Nge-IPF, nkqu nezifo ezibonakala zingenabungozi zinokukhokelela kwimicimbi ngemiphunga yakho. Oku kubandakanya ukubanda okuqhelekileyo kunye nomkhuhlane wexesha elithile. Ugqirha wakho uya kuncoma ukuba uthathe unonophelo olongezelelweyo ekuhlaleni kude nabanye abagulayo. Uyakufuna kwakhona umkhuhlane wonyaka.

Ezona meko ze-IPF zinokufuna ukufakelwa kwemiphunga. Ngelixa oku kungazukuyinyanga ngokupheleleyo imeko yakho, kunokunceda ukusombulula iimpawu zakho kunye nokwandisa isifo sakho.

Ukulandelela kunokunceda ukukhusela iingxaki

Kuba okwangoku akukho nyango lwe-IPF, eyona nto kugxilwe kuyo kunyango kukuthintela iingxaki. Oku kubandakanya:

• ukusilela ekuphefumuleni
• ukukrala kwemiphunga
• Uxinzelelo lwegazi kwimiphunga
• umhlaza wemiphunga
• Ukunyanzelwa kwemiphunga
• ukumelwa yintliziyo

Ezi ngxaki zinzima, kwaye uninzi lunokusongela ubomi. Ukuthintela, kuya kufuneka uhlale ngaphezulu kweempawu zakho kunye nesiseko sokuchukumisa nogqirha wakho ukuba ucinga ukuba imeko yakho iya isiba mandundu. Ugqirha wakho uya kuba nakho ukuphumeza iindlela ezingxamisekileyo zokuyeka ukunqanda ukonakala kwemiphunga yakho kunye nokuphela kweoksijini elandelayo.

Uzijonga njani iimpawu zakho

Ngelixa unokukuqonda ukubaluleka kokulandela umkhondo weempawu zakho ze-IPF, usenokuzibuza ngeyona ndlela yokwenza oku.

Ukuba ukhetha iigodo ezibhalwe ngesandla, uya kuba nempumelelo ngakumbi ekulandeleleni i-IPF yakho kwincwadi yemveli. Ukuchwetheza amanqaku akho kunokukunceda ukuba ube nakho ukugcina ulwazi lusebenzayo.

Ukuba ukhetha iimpawu zokungena kwi-smartphone yakho, jonga usetyenziso olulula lokulandela umkhondo njengeMyTherapy.

Ukuthatha

Ukulandela umkhondo weempawu zakho ze-IPF kunokunceda ukubonelela ngemeko kwimeko yakho nobabini kwaye ugqirha wakho. Ityala lomntu wonke lahlukile, ngenxa yoko akukho siphumo sinye okanye isicwangciso sonyango kule meko. Esinye isizathu sokuba ukulandelela iimpawu zakho kunyanzelekile kukuba i-IPF ayinaso isizathu esichazayo xa kuthelekiswa nezinye iintlobo ze-pulmonary fibrosis.

Chukumisa isiseko kunye nogqirha wakho rhoqo ukuya ngaphaya kwamanqaku akho. Ngale ndlela, wena kunye nogqirha wakho ninakho ukucwangcisa isicwangciso sonyango njengoko kufuneka.