Ukunyamekela Umntwana one-CF? Iingcebiso ezi-7 ezinokukunceda

Umxholo

• Yenza umkhwa kunyango lonyango olusemthethweni
• Zikhusele iintsholongwane ezosulelayo
• Hlala ngaphezulu kokuhlolwa kwezempilo
• Gcina isitokhwe ngokulula okulula
• Sebenza nesikolo somntwana wakho
• Bandakanya umntwana wakho kubo
• Zibonise uthando
• Ukuthatha

Ngaba unomntwana one-cystic fibrosis (CF)? Ukulawula imeko entsonkothileyo yezempilo njenge-CF kunokuba ngumceli mngeni. Kukho amanyathelo asebenzayo onokuwathatha ukukhusela impilo yomntwana wakho. Kwangelo xesha, kubalulekile ukuba uyikhathalele impilo yakho.

Makhe sihlolisise iindlela ezisixhenxe ezinokuba luncedo.

Yenza umkhwa kunyango lonyango olusemthethweni

Ukunceda ukucoca imiphunga yomntwana wakho, ugqirha unokukufundisa indlela yokwenza unyango lokucoca umoya. Banokukukhuthaza ukuba wenze ubuncinci iseshoni enye yonyango ngemini.

Ukwenza ukuba kube lula kancinci kumntwana wakho, kunokunceda:

• cwangcisa iseshoni yakho yonyango ukuba ihambelane nomboniso weTV oyithandayo, ukuze bakwazi ukuwubukela ngelixa befumana unyango
• yongeza into kukhuphiswano lokukhanya kwiseshoni yakho yonyango- umzekelo, ngokubona ukuba ngubani onokukhohlela esona sikhwehlela sinzulu
• phuhlisa isithethe apho ufunda khona incwadi oyithandayo, udlale umdlalo owuthandayo, okanye wonwabele olunye unyango olukhethekileyo emva kweseshoni nganye

Inokukunceda ukucwangcisa iiseshoni zakho zonyango ngaxeshanye yonke imihla, ukuze wena nomntwana wakho nibe nomkhwa wokubeka phambili.

Zikhusele iintsholongwane ezosulelayo

Abantwana abane-CF basemngciphekweni wokosulelwa yimiphunga. Ukunceda ukugcina umntwana wakho ekhuselekile, thatha amanyathelo afana nalawa adweliswe ngezantsi ukunciphisa umngcipheko wosulelo ekhayeni lakho:

• Gcina umntwana wakho kunye namanye amalungu endlu esazi ngokugonywa, kubandakanya nomkhuhlane.
• Khuthaza umntwana wakho kunye namanye amalungu endlu ukuba ahlambe izandla ngesepha namanzi ngaphambi kokutya nasemva kokukhohlela, ukuthimla, okanye ukuvuthela impumlo.
• Fundisa umntwana wakho kunye namanye amalungu endlu ukuba aphephe ukwabelana ngezinto zabo, njengeebhotile zamanzi.
• Ukuba elinye ilungu lekhaya lakho ligula, bacele ukuba bahlale kude nomntwana wakho one-CF.

Ezi ndlela zokuthintela zilula zingenza umahluko omkhulu kwimpilo yomntwana wakho.

Hlala ngaphezulu kokuhlolwa kwezempilo

Ugqirha womntwana wakho kunye nabanye abaqeqeshi bezempilo banokunika ulwazi olufunekayo kunye nenkxaso. Banokumisela unyango lokulawula iimpawu zomntwana wakho kunye nokubeka iliso kwiimpawu zeengxaki.

Ukuhlala ngaphezulu kweemfuno zempilo yomntwana wakho, kubalulekile ukucwangcisa uvavanyo lwempilo rhoqo nogqirha wabo kwaye ulandele isicwangciso sabo sonyango esinconyelwayo. Ukwenza ixesha lokuqeshwa kwezonyango akusoloko kulula okanye kufanelekile, kodwa kunokukugcina wena kunye nentlungu yomntwana wakho ekuhambeni kwexesha.

Buza ugqirha wabo ukuba kufuneka ubatyelele kangaphi. Ukuba uphoswa lidinga, lucwangcise ngokukhawuleza.

Gcina isitokhwe ngokulula okulula

Abantwana abaneCF kufuneka batye iikhalori ezingaphezulu komntwana ophakathi. Ukwenza ubomi bube lula kancinci, gcina amashwamshwam ekulula ukuwabamba kwaye atyebile ngeekhalori, iiprotein, kunye namafutha asempilweni.

Umzekelo, cinga ukugcina okunye koku kutya kulandelayo:

• igranola ngamandongomane
• Umxube wendlela
• ibhotolo yebhotolo
• imivalo protein
• iziselo zokutya

Sebenza nesikolo somntwana wakho

Nxibelelana rhoqo nesikolo somntwana wakho ukuphuhlisa isicwangciso sokulungiselela iimfuno zabo zempilo. Umzekelo, unokucela isikolo sabo ukuba:

• banike ixesha kunye nemfihlo yokwenza unyango olusemthethweni
• mabathathe amayeza
• bahlengahlengisa imigaqo yokuzimasa ukuze babayeke baye kwimihlangano yezonyango
• ukubonelela ngokwandiswa kwaye ubancede bafumane izifundo kunye nezabelo abaziphosayo ngenxa yokuqeshwa ngonyango okanye ukugula

Ukuba isikolo somntwana wakho simathidala ukufumana iimfuno zabo, kunokuba lixesha lokuphonononga ukhetho lwakho lwezomthetho. E-United States, izikolo zaseprayimari nezikolo eziphakamileyo zifunwa ngokusemthethweni ukubonelela ngemfundo efikelelekayo kubantwana abakhubazekileyo.

Bandakanya umntwana wakho kubo

Ukuxhobisa umntwana wakho ngobomi obuzimeleyo, kubalulekile ukubafundisa izakhono zokuzilawula. Njengoko bekhula kwaye bethatha uxanduva ngakumbi ekubanyamekeleni, kunokunceda ekunciphiseni umthwalo wakho.

Ungaqala kwangethuba, ngokufundisa umntwana wakho ulwazi olusisiseko malunga nemeko yabo, indlela yokuthetha nabanye abantu ngayo, kunye nezicwangciso ezilula zokuhlala ukhuselekile, njengokuhlamba izandla. Ngexesha abaneminyaka eli-10 ubudala, abantwana abaninzi banako ukuseta izixhobo zabo zonyango. Ngexesha lokufika kwabo kwisikolo samabanga aphakamileyo, abaninzi sele beqolile ngokwaneleyo ukuba bangathatha uxanduva oluphambili lokugcina, ukuphatha, kunye nokuthatha amayeza, kunye nokubulala iintsholongwane kwizixhobo zabo.

Zibonise uthando

Ukuthintela ukudinwa, kubalulekile ukuziqhelanisa nemikhwa esempilweni kwaye uthathe ixesha lakho ngokwakho. Zama ukulala iiyure ezisixhenxe ukuya kwezisi-9 zokulala ngobusuku ngabunye, yitya ukutya okunezondlo kwaye uzilolonge rhoqo. Cwangcisa ixesha kwikhalenda yakho lokunxulumana nabantu obathandayo kwaye uthathe inxaxheba kwizinto ozithandayo.

Ukunceda ukunciphisa uxinzelelo lokugcina, kunokunceda:

• cela kwaye wamkele uncedo kwabanye
• setha ulindelo olusengqiqweni kuwe kwaye uyihloniphe imida yakho
• Joyina iqela lenkxaso labanonopheli babantu abane-CF
• jonga ezinye iinkonzo zononophelo kwindawo ohlala kuyo

Ukuba ukufumanisa kunzima ukulawula amanqanaba oxinzelelo, yenza idinga nogqirha wakho. Banokukuthumela kwingcali yezempilo yengqondo okanye ezinye iinkonzo zokuxhasa.

Ukuthatha

I-CF ichaphazela iinkalo ezininzi zobomi bomntwana wakho, kunye nemikhwa yosapho lwakho yemihla ngemihla. Nangona kunjalo, ukuhlala usexesheni ngokuhlolwa kwezempilo komntwana wakho kunye nokulandela isicwangciso sabo sonyango esinconywayo kunokunceda ukugcina iimpawu zabo ziphantsi kolawulo. Ukuphuhlisa imikhwa esempilweni ekhaya, ubudlelwane obuhle bokusebenza nesikolo somntwana wakho, kunye nesicwangciso sokuzinakekela esiqinileyo sinokukunceda uhlale ngaphezulu kweemfuno zempilo yomntwana wakho.