Omnye uMdaniso woMtshato waphefumlela ilizwe ukuba lilwe nxamnye ne-MS

Ngomhla womtshato kaStephen noCassie Winn ngo-2016, uStephen nonina u-Amy babelana ngomdaniso womama / unyana ngokwesiko labo lokwamkela. Kodwa akufika kunina, kwamhlasela: Eli yayilixesha lokuqala ukuba angqungqe kunye nomama wakhe.

Isizathu? U-Amy Winn ebehlala ne-multiple sclerosis (MS), isifo esizenzekelayo esichaphazela inkqubo ye-nervous system, kwaye ugcinwe kwisitulo esinamavili esingaphezulu kweminyaka eli-17. Ukuqhubela phambili kwe-MS ka-Amy kunciphise amandla akhe okwenza uninzi lwemisebenzi esisiseko efunekayo mihla le.

"Kwakungekho liso lomileyo kwigumbi," utshilo uCassie, umolokazana ka-Amy. Yayinamandla amakhulu. ”

Umtshato wafika ngexesha lenguqu kusapho lakwaWinn, oluquka uAmy kunye nabantwana bakhe abathathu abakhulayo. Umntwana wesibini ka-Amy, uGarrett, wayesandula ukushiya ikhaya labo e-Ohio eNashville, kunye nentombi yakhe uGracie wayegqibezela isikolo samabanga aphakamileyo kwaye elungiselela ikholeji. Abantwana bashiya indlwane kwaye baqala ubomi babo lixesha lokugqibela kubomi babo bonke abazali, kodwa u-Amy ufuna uncedo olusisigxina, yiyo loo nto kwavakala ngathi lixesha elifanelekileyo lokujonga ukhetho.

"U-Amy wayenabahlobo abambalwa abeza kuye ukuze bathethe ngale mpu melelo kunyango lwe-stem cell kwizigulana ze-MS, kwaye kwamenza wanemincili, kuba angathanda ukuhamba kwakhona," utshilo uCassie. Nangona kunjalo, indawo yayiseLos Angeles kwaye akukho namnye kumalungu osapho owayenakho ukuhlawula unyango. Ngeli xesha kuhambo lwakhe, u-Amy wabala emthandazweni kunye "nommangaliso" ukumbonisa indlela.

Lo mmangaliso weza ngendlela yokubuyiselwa kwemali ngabantu abaninzi. Umalokazana ka-Amy uCassie unemvelaphi kwintengiso yedijithali, kwaye waphanda amaqonga ahlukeneyo okubuyisa imali ngaphambi kokufumana i-YouCaring, enikezela ngesibonelelo simahla kwi-Intanethi kwezempilo kunye nezizathu zoluntu.

"Khange ndixelele no-Amy ukuba ndiyayilungisa," uvume uCassie. "Ndiyimisile, ndathi kuye, 'Heyi, sizokunyusela i-24,000 yeedola kwaye uza kuya eCalifornia.' Saxelela oogqirha ukuba zeziphi iintsuku esiza ngazo eCarlifonia ngaphambi kokuba siqokelele imali, kuba sasinokholo oluninzi kuyo. Umdaniso wokuqala ka-Amy noStephen wawulibali elilungileyo, elinethemba, kwaye abantu kufuneka babone ithemba elinje. Andiqinisekanga ukuba uyibonile ividiyo esabelana ngayo yomdaniso kaStephen noAmy kwiphepha lethu lokunyusa imali? ” UCassie ubuzile, ngexesha lodliwanondlebe lwethu.

Ndenze njalo, ndenza njalo nangaphezulu kwama-250,000 abanye.

Emva kokudala iphepha labo le-YouCaring, uCassie wathumela iklip kwiimarike zeendaba zaseOhio, ezazichukunyiswe libali lika-Amy kangangokuba le vidiyo yafumana ingqalelo kwilizwe lonke kwimiboniso kubandakanya i "The Today Show". Oku kuncede iphulo lokunyusa imali yosapho lakwa-Winn ukunyusa i-24,000 yeedola efunekayo kwiiveki ezimbini ezinesiqingatha kuphela.

“Bekusivuyisa ukufumana iimpendulo esizifumeneyo kwaye ukubona nje abantu bexhasa eli bhinqa abangazange badibana nalo,” watsho uCassie. “Abamazi ukuba ungumntu onjani, nokuba usapho lwakhe lunjani, nokuba imeko yezemali injani. Kwaye babekulungele ukunikela ngeedola ezilikhulu. Amashumi amabini eerandi. Amashumi amahlanu eerandi. Nantoni na. Abantu banokuthi, 'Ndine-MS, kwaye le vidiyo indinika ithemba lokuba ndiza kuba nakho ukudanisa nonyana wam okanye intombi yam emtshatweni wabo kwiminyaka eli-10.' Okanye, 'Enkosi kakhulu ngokwabelana ngale nto. Sithandazela wena. Kuyakhuthaza ukuva ukuba lukhona unyango olufumanekayo. '”

Kwisithuba seeveki ezine, usapho lakwaWinn lwabeka iphepha labo lokuKhathalela, lwaphakamisa imali eyimfuneko kwi-intanethi, lwaya eCalifornia, laza lanceda u-Amy njengoko waqalisa irejimeni yeentsuku ezili-10 yonyango lweseli. Kwaye emva kweenyanga nje ezimbalwa zenkqubo, u-Amy kunye nosapho lwakhe bafumana iziphumo.

“Ingathi itsibile i-Amy isiya empilweni. Kwaye ukuba kukho nantoni na, kunqumamisa ukuqhubela phambili kwesi sifo, kwaye sijongeka sisempilweni kakhulu, ”utshilo uCassie.

Ngokudibanisa unyango lwe-stem cell kunye nokutya okunesondlo, okunokulinganisela, u-Amy uyavuya kakhulu kukuphuculwa kwangoko.

"Ndiqaphele ukwanda kokucaca kweengcinga kunye nokuphuculwa kwentetho yam," uAmy wabelane kwiphepha lakhe likaFacebook. "Ndinokunyuka kwamandla kwaye andidinwa!"

Uhambo luka-Amy luza kumthabathela eNashville ukuze aphile kufuphi noStephen, uCassie noGarrett ngelixa beqala unyango oluninzi. Okwangoku, u-Amy "unombulelo kuye wonke umntu ondincedileyo ukusukela oko ndafumana unyango," kwaye ucela bonke abo banegalelo kwi-Intanethi, abahlobo kunye nosapho ukuba "baqhubeke bethandazela ukubuyiselwa kwempilo yam ngokupheleleyo!"

Usapho lwakhe luhleli lunethemba kwaye luzimisele ukudanisa no-Amy kwakhona ngenye imini.

UCassie uthe, "usenokufuna uncedo ngamanye amaxesha, okanye angafuna uncedo lokungena nokuvuka ebhedini, kodwa usengumntu okwaziyo ukusebenza, ancokole, abe nabahlobo, kwaye abe nosapho. , kwaye ubonwabele ubomi bakhe. Sikholelwa ngokupheleleyo ukuba uzakuhamba. ”

UMichael Kasian ngumhleli weempawu kwiHealthline egxile ekwabelaneni ngamabali abanye abaphila nezifo ezingabonakaliyo, njengoko yena ngokwakhe ehlala neCrohn's.