Ukucwangcisela ikamva lakho nge-IPF: Amanyathelo oza kuwathatha ngoku

Umxholo

• Lungelelana
• Hlala usebenza
• Yeka ukutshaya
• Fumana okunye malunga ne-IPF
• Nciphisa uxinzelelo lwakho
• Funa inkxaso yeemvakalelo
• Hlala ngaphezulu kunyango lwakho
• Kuphephe ukuqhubela phambili
• Lungisa amaxwebhu akho emali kunye nezicwangciso zokuphela kobomi
• Fumana ukhathalelo lokuphela kobomi
• Yise kude

Ushwankathelo

Ikamva lakho nge-idiopathic pulmonary fibrosis (IPF) linokubonakala lingaqinisekanga, kodwa kubalulekile ukuthatha amanyathelo ngoku azakwenza lula indlela eya phambili.

Amanye amanyathelo abandakanya ukwenza utshintsho kwindlela yokuphila kwangoko, ngelixa amanye efuna ukuba ucinge ngaphambili kwaye uzilungiselele ngokufanelekileyo.

Nazi ezinye izinto ekufuneka uzenzile emva kokuchongwa kwe-IPF.

Lungelelana

Umbutho unokukunceda ukuphatha ngcono i-IPF yakho ngeendlela ezininzi. Kuya kukunceda ulawule isicwangciso sakho sonyango, kubandakanya amayeza, ukuqeshwa ngugqirha, iintlanganiso zamaqela enkxaso, kunye nokunye.

Kuya kufuneka uthathe ingqalelo ngokulungiselela indawo yakho yokuhlala. Unokuba nobunzima bokuhambahamba njengoko i-IPF yakho iqhubeka. Beka izinto zasekhaya kwiindawo ekulula ukufikelela kuzo kwaye uzigcine kwindawo yazo echongiweyo ukuze ungakhangeli ikhaya lakho.

Sebenzisa umcwangcisi ngokuqeshwa, unyango, kunye nezibophelelo zentlalo ukukunceda unamathele kunyango lwakho kwaye ubeke phambili okubalulekileyo. Awunakho ukuzibophelela kwimisebenzi emininzi njengoko wenzayo ngaphambi kokufumanisa isifo, ke sukuvumela ikhalenda yakho ukuba ixakeke kakhulu.

Okokugqibela, cwangcisa ulwazi lwakho lwezonyango ukuze abo ubathandayo okanye abasebenzi bezonyango banokukunceda ulawule i-IPF. Ungadinga uncedo oluthe kratya ekuhambeni kwexesha, kwaye ukubakhona kweenkqubo zombutho kuya kwenza kube lula kubantu ukukunceda.

Hlala usebenza

Kuya kufuneka ukuba ubuye umva kwinani lezinto ozibandakanya ekuqhubekeni kweempawu ze-IPF, kodwa akufuneki urhoxe ebomini ngokupheleleyo. Fumana iindlela zokuhlala ukhuthele kwaye uphume ukonwabele oko unako.

Ukuzilolonga kunokuba luncedo ngenxa yezizathu ezininzi. Inokukunceda:

• phucula amandla akho, ubhetyebhetye, kunye nokuhamba
• ndilale ebusuku
• ukulawula iimvakalelo zokudakumba

Unokuba neengxaki zokugcina umthambo ukuba iimpawu zakho ziba zimbi. Thetha nogqirha wakho okanye iqela lakho lokuvuselela umphunga ngengcebiso malunga nendlela yokuzilolonga ne-IPF.

Kukho ezinye iindlela zokuhlala usebenza ezingabandakanyi umthambo womzimba. Yenza izinto ozithandayo okanye ozonwabisayo nabanye. Ukuba ufuna njalo, sebenzisa isixhobo esihlanganisiweyo ukukunceda uzulazule ngaphandle okanye ejikeleze indlu yakho.

Yeka ukutshaya

Ukutshaya kunye nokutshaya okulandelayo kunokubangela ukuba uphefumle kakubi nge-IPF. Ukuba uyatshaya, thetha nogqirha wakho malunga nendlela yokuyeka emva kokuxilongwa. Banokukunceda ufumane inkqubo okanye iqela lenkxaso elokukunceda uyeke.

Ukuba abahlobo bakho okanye amalungu osapho atshaya, bacele ukuba bangakwenzi kufutshane nawe ukuze uphephe ukubhencwa ngumntu ozibonelayo.

Fumana okunye malunga ne-IPF

Emva kokuchongwa kwesifo, licebo elihle ukufunda kangangoko unakho malunga ne-IPF. Buza ugqirha wakho nayiphi na imibuzo onayo, uphando imeko kwi-intanethi, okanye ufumane amaqela enkxaso ngolwazi oluthe kratya. Qinisekisa ukuba ulwazi oluqokelelweyo luvela kwimithombo ethembekileyo.

Zama ukungagxili kuphela ekuphelisweni kobomi be-IPF. Funda ukuba ungazilawula njani iimpawu kwaye ugcine ubomi bakho busebenza kwaye buzele ixesha elide kangangoko kunokwenzeka.

Nciphisa uxinzelelo lwakho

Uxinzelelo okanye uxinzelelo lweemvakalelo emva kokuba isifo sakho se-IPF siqhelekile. Unokuxhamla kwiindlela zokuphumla zokunciphisa uxinzelelo kunye nokwenza lula ingqondo yakho.

Enye indlela yokunciphisa uxinzelelo kukuziqhelanisa nengqondo. Olu luhlobo lokucamngca olufuna ukuba ugxile kulo ngoku. Inokukunceda uthintele iimvakalelo ezingalunganga kwaye uphinde uyenze imeko yakho yengqondo.

Isiphakamiso sokuba iinkqubo zengqondo zinokuchaphazela ngokuqinisekileyo imood kunye noxinzelelo kubantu abaneemeko zemiphunga njenge-IPF.

Unokufumana ezinye iindlela zokucamngca, ukuphefumla, okanye i-yoga eluncedo ekunciphiseni uxinzelelo ngokunjalo.

Funa inkxaso yeemvakalelo

Ukongeza koxinzelelo, i-IPF inokukhokelela kwiimeko zempilo yengqondo ezinje ngoxinzelelo kunye noxinzelelo. Ukuthetha nogqirha, umcebisi, umntu omthandayo, okanye iqela lenkxaso kunokunceda imeko yakho yeemvakalelo.

Ukunyanga ngokuziphatha kwengqondo kunye nengcali yezempilo yengqondo kunokukunceda usebenze ngeemvakalelo zakho malunga nemeko. Kwezinye iimeko, ugqirha wakho unokuncoma amayeza ukujongana neemeko ezithile zempilo yengqondo.

Hlala ngaphezulu kunyango lwakho

Ungavumeli imbonakalo ye-IPF iphazamise isicwangciso sakho sonyango. Unyango lunokunceda ukuphucula iimpawu zakho kunye nokucothisa ukuqhubela phambili kwe-IPF.

Isicwangciso sakho sonyango sinokubandakanya:

• ukuqeshwa rhoqo nogqirha wakho
• amayeza
• Unyango lweoksijini
• ukuvuselelwa kwenkqubo yemiphunga
• ukufakelwa kwemiphunga
• uhlengahlengiso kwindlela yokuphila njengotshintsho kwindlela otya ngayo

Kuphephe ukuqhubela phambili

Kubalulekile ukuba uqaphele indawo ekungqongileyo ukuze uphephe iimeko ezonyusa ubungqongqo beempawu zakho.

Nciphisa umngcipheko wokugula ngokuhlamba izandla rhoqo, uphephe ukunxibelelana nabo banomkhuhlane okanye umkhuhlane, kwaye ugonyo rhoqo umkhuhlane kunye nenyumoniya.

Hlala kude neendawo ezinomsi okanye ezinye izinto ezingcolisayo zomoya. Ukuphakama okuphezulu kunokubangela nobunzima bokuphefumla.

Lungisa amaxwebhu akho emali kunye nezicwangciso zokuphela kobomi

Zama ukubeka amaxwebhu akho emali kunye nezicwangciso zokuphela kobomi ngokulandelelana emva kokuchongwa kwe-IPF. Ngelixa ungafuni ukuhlala kwisiphumo sale meko, ukukhathalela ezi zinto kunokukunika uxolo lwengqondo, uqondise unyango lwakho, kwaye uncede abantu obathandayo.

Hlanganisa iirekhodi zakho zezemali kwaye unxibelelane ngolwazi kumntu oza kulawula imicimbi yakho.

Qiniseka ukuba unamandla egqwetha, umyolelo kunye nomyalelo wangaphambili. Amandla akho egqwetha asebenza njengomenzi wesigqibo kunyango lwakho nakwezemali ukuba awukwazi ukwenza njalo. Isikhokelo sangaphambili siya kubonisa iminqweno yakho yongenelelo ngononophelo kunye nokhathalelo.

Fumana ukhathalelo lokuphela kobomi

Kubalulekile ukuba ufunde malunga neenkonzo zonyango kunye nezinye iinkonzo onokuzifuna kwixa elizayo. Oku kuya kunceda ukubonelela wena kunye nabathandekayo bakho ngenkxaso njengoko umsebenzi wakho wemiphunga uncipha.

Unonophelo lokunyamekela lujolise ekulawuleni iintlungu, kwaye kungekuphela nje kobomi. Unonophelo lokunyamekela abagulela ukufa luyafumaneka kwabo banokuphila iinyanga ezintandathu okanye ngaphantsi. Unokufumana zombini ezi ntlobo zononophelo ekhayeni lakho okanye kwindawo yezonyango.

Yise kude

Zininzi iindlela onokulawula ngayo umgangatho wobomi kwaye ulungiselele imiceli mingeni elandelayo yokuchongwa kwe-IPF.

Ukuzixhobisa ngolwazi oluncedo, ukuhlala ubandakanyekile kwaye usebenza, ukulandela isicwangciso sakho sonyango, kunye nokulungiselela imicimbi yakho yokuphela kobomi zezinye zeendlela onokuya ngazo phambili.

Qiniseka ukuba ubuza ugqirha wakho okanye iqela lezonyango malunga nayiphi na imibuzo onayo njengoko uhamba ngobomi be-IPF.