Iingcebiso ezi-8 zokuHamba kumaXesha obuNzima Endizifundileyo ngokuPhila nesiGulo esiNgapheliyo

Umxholo

• 1. Cela uncedo
• Unokuba nesakhono sokulawula ubomi wedwa, kodwa akufuneki ubambe yonke into uyedwa.
• 2. Yiba nobuhlobo ngokungaqiniseki
• 3. Lawula izixhobo zakho
• Ungafumanisa ukuba iimeko zakho ezicela umngeni zikunika umbono otshintsha xa kufikwa kumba wokuphila ubomi obanelisayo.
• Ziva iimvakalelo zakho
• 5. Thatha ikhefu kuyo yonke loo mvakalelo
• 6. Yenza intsingiselo kwimingeni
• 7. Hleka indlela yakho ngokusebenzisa izinto ezinzima
• 8. Yiba ngumhlobo wakho osenyongweni
• Ngamana ungafumana unxibelelwano olunzulu nesiqu sakho

Ukuhamba imeko yezempilo yenye yeyona mingeni mikhulu uninzi lwethu olunokujongana nayo. Nangona kunjalo kukho ubulumko obungathethekiyo obunokufunyanwa kula mava.

Ukuba ukhe wachitha ixesha nabantu abaphila nesifo esinganyangekiyo, usenokuba uqaphele ukuba sinamandla athile-njengokuhamba ngokungalindelekanga kobomi kunye nokuhlekisa, ukulungisa iimvakalelo ezinkulu, kunye nokuhlala sinxibelelana noluntu lwethu nakwezona zinzima amaxesha.

Ndiyayazi le nto ngenxa yohambo lwam oluhlala ne-multiple sclerosis kule minyaka mi-5 idlulileyo.

Ukuhamba imeko yezempilo yenye yeyona mingeni mikhulu uninzi lwethu olunokujongana nayo. Nangona kunjalo kukho ubulumko obungathethekiyo obunokufunyanwa kula mava-ubulumko obufumaneka ngokufanelekileyo ngexesha lezinye iimeko zobomi ezinobunzima, nazo.

Nokuba uhlala nemeko yezempilo, uhamba bhubhane, uphulukene nomsebenzi okanye ulwalamano, okanye uhlangabezana nawo nawuphi na umngeni ebomini, ndiqokelele ubulumko, imigaqo, kunye ezona ndlela zilungileyo ezinokukunceda ucinge okanye unxibelelane nale miqobo ngendlela entsha.

1. Cela uncedo

Ukuhlala nesifo esinganyangekiyo, esinganyangekiyo kufuna ukuba ndifikelele ebantwini ebomini bam ukuze bandixhase.

Ekuqaleni, ndandiqinisekile ukuba izicelo zam zoncedo olongezelelekileyo- ukucela abahlobo ukuba baye kum kunye nam okanye bathathe ukutya ngexesha lokuvutha kwam - ziya kujongwa njengomthwalo kubo. Endaweni yoko, ndiye ndafumanisa ukuba abahlobo bam balixabisile ithuba lokubonisa inkathalo yabo ngendlela ebonakalayo.

Ukuba nabo kwabenza ubomi bam ukuba bube mnandi kakhulu, kwaye ndiyaqonda ukuba zikhona iindlela ukugula kwam okusincedileyo ukuba sisondelelane.

Unokuba nesakhono sokulawula ubomi wedwa, kodwa akufuneki ubambe yonke into uyedwa.

Ungafumanisa ukuba njengoko uvumela abantu obathandayo ukuba babonakalise kwaye bakuxhase ngexesha elinzima, ubomi bubhetele ngokwenene xa bekufuphi.

Ukuhlala nomhlobo kwigumbi lokulinda kwiindawo zokubonana nonyango, ukutshintshana ngeetekisi ezingenangqondo, okanye ukuba neengxoxo zobusuku ezinzulwini zobusuku kunye kuthetha ukonwaba ngakumbi, uvelwano, ububele, kunye nolwalamano ebomini bakho.

Ukuba uyazivula unxibelelane nabantu abakukhathaleleyo, lo mngeni wobomi unokuzisa uthando ngakumbi kwihlabathi lakho kunangaphambili.

2. Yiba nobuhlobo ngokungaqiniseki

Ngamanye amaxesha ubomi abuhambi ngalendlela ubucebe ngayo. Ukufumanisa ukuba unesifo esinganyangekiyo kuyindlela yengozi kuloo nyaniso.

Xa ndafunyaniswa ndine-MS, ndandisoyika ukuba kuthetha ukuba ubomi bam abuzukuvuya, buzinze, okanye buzalisekise njengoko bendihlala ndicinga njalo.

Imeko yam sisifo esinokuqhubela phambili esinokuthi sichaphazele ukuhamba kwam, umbono wam, kunye nezinye izinto ezinokubakho emzimbeni. Ngokwenene andazi ukuba ikamva lindiphathele ntoni.

Emva kweminyaka embalwa ndichithe ndihlala ne-MS, ndikwazile ukwenza utshintsho olukhulu kwindlela endihlala ngayo kunye nokungaqiniseki. Ndifundile ukuba ukuthatha inkohliso "yekamva elithile" kususwe kuthetha ukufumana ithuba lokutshintsha ukusuka kuvuyo oluxhomekeke kwimeko uye kuvuyo olungenamiqathango.

Oko kukuhlala kwinqanaba elilandelayo, ukuba uyandibuza.

Esinye sezithembiso endazenzayo kum kwangoko kuhambo lwam lwezempilo yayikukuba nantoni na eyenzekayo, ndiphethe indlela endiphendula ngayo kuyo, kwaye ndingathanda ukuthatha indlela elungileyo kangangoko ndinakho.

Ndizimisele naku hayiUkuncama uvuyo.

Ukuba ujikeleza uloyiko malunga nekamva elingaqinisekanga, ndiyakumema ukuba udlale umdlalo wobuchule bokuqiqa ukunceda uhlengahlengise iingcinga zakho. Ndiyibiza ngokuba ngumdlalo "weyona meko imbi kakhulu". Nantsi indlela yokudlala:

1. Yamkela uloyiko oludlala engqondweni yakho."Ndizakuphuhlisa ukungahambi kakuhle okundigcina ekubeni ndingakwazi ukuhamba intaba nabahlobo bam."
2. Khawufane ucinge enye okanye ezingaphezulu iindlela onokuphendula ngayo kuloo meko yoyikekayo. Ezi ziimpendulo zakho "ezona zilungileyo"."Ndizakufumana okanye ndisekele iqela langaphandle elifikelelekayo okanye iklabhu.""Ndiza kuba ngumhlobo onobubele noxhasayo kum ngazo zonke iimvakalelo ezinokuvela."
3. Khawufane ucinge ngeziphumo ezilungileyo kwinyathelo 2."Ndiza kudibana nabahlobo abatsha abanokwazi ukuhlala nemiceli mngeni yokuhamba.""Ndizokwazi ukuziva ndinamandla ngakumbi kunakuqala kuba olunye loloyiko lwam lwenzekile kwaye ndafumanisa ukuba ndilungile."

Lo msebenzi ungakushukumisela ekubeni uzive ubambekile okanye ungenamandla ekuhlebeni malunga nomqobo ngokwawo, endaweni yoko ujolise ingqalelo kwimpendulo yakho. Ngaphakathi kwempendulo yakho kukho amandla akho.

3. Lawula izixhobo zakho

Ukuba namandla omzimba omncinci ngenxa yeempawu zam kwakuthetha ukuba ngexesha lokuqaqanjelwa ziimpawu ndandingasenaxesha lokubeka amandla am kwinto engenantsingiselo kum.

Kungcono okanye kubi, oku kundikhokelele ekubeni ndithathe eyona nto ibaluleke kakhulu kum - kwaye ndizimisele ukuyenza ngakumbi.

Olu tshintsho lwembono luye lwandivumela ukuba ndinciphise izinto ezingafezekisi kangako ezazidla ngokuxinanisa ubomi bam.

Ungafumanisa ukuba iimeko zakho ezicela umngeni zikunika umbono otshintsha xa kufikwa kumba wokuphila ubomi obanelisayo.

Zinike ixesha kunye nendawo yokubhala, ucamngce, okanye uthethe nomntu omthembileyo malunga noko ukufundayo.

Kukho ulwazi olubalulekileyo olunokutyhilwa kuthi ngamaxesha eentlungu. Ungazisebenzisa kakuhle ezi zifundo ngokungafaki ubomi bakho ngaphezulu kweyona nto uyixabise ngokwenene.

Ziva iimvakalelo zakho

Ekuqaleni, kwakunzima ukuvumela inyaniso yoxilongo lwam lwe-MS entliziyweni yam. Ndandisoyika ukuba ukuba ndenze njalo, ndingaziva ndinomsindo, ndibuhlungu, kwaye ndingenakuzinceda ukuba ndingonganyelwa okanye ndikhukuliswe ziimvakalelo zam.

Kancinci kancinci, ndifundile ukuba KULUNGILE ukuziva ngokunzulu xa ndikulungele, kwaye iimvakalelo ekugqibeleni ziyaphela.

Ndenza indawo yokuziva iimvakalelo zam ngokuthetha ngokunyaniseka nabantu endibathandayo, ukushicilela, ukwenza unyango, ukumamela iingoma ezithi zivuselele iimvakalelo ezinzulu, nokunxibelelana nabanye abantu kwindawo engaguliyo abaqonda imiceli mngeni eyodwa yokuphila impilo imeko.

Qho xa ndivumela ezo mvakalelo zihambe ngam, ndiye ndizive ndihlaziyekile kwaye ndinyanisekile ngokwam. Ngoku, ndiyathanda ukucinga ngokukhala “njengenyanga yespa yomphefumlo.”

Unokoyika ukuba uzivumele uzive ucelomngeni olunzima ngexesha esele linzima kuthetha ukuba awusoze uphume kuloo ntlungu, usizi, okanye uloyiko.

Khawukhumbule nje ukuba akukho mvakalelo ehlala ngonaphakade.

Ngapha koko, ukuvumela ezi mvakalelo ukuba zikuchukumise ngokunzulu kunokutshintsha.

Ngokuzisa ulwazi lwakho lothando kwiimvakalelo ezivelayo kwaye uziyeke zibe yile nto ziyiyo ngaphandle kokuzama ukuzitshintsha, utshintshelwa ekubeni ngcono. Unokuba somelele ngakumbi, kwaye unyaniseke ngakumbi wena​.

Kukho into enamandla ngokuzivumela ukuba uchatshazelwe ziindawo eziphakamileyo kunye nezantsi zobomi. Inxalenye yento ekwenza ukuba ube ngumntu.

Kwaye njengoko usenza ezi mvakalelo zilukhuni, kuya kuvela into entsha. Unokuziva womelele kwaye womelele ngakumbi kunangaphambili.

5. Thatha ikhefu kuyo yonke loo mvakalelo

Njengokuba ndithanda ukuziva iimvakalelo zam, ndiye ndabona ukuba inxenye yento endincedayo ndizive ndilungile "ngokuya nzulu" kukuba ndihlala ndinokhetho lokushiya kude.

Rhoqo ndiya kuchitha usuku lonke ndilila, ndinomsindo, okanye ndivakalisa uloyiko (nangona oko kuya kulunga, nako). Endaweni yoko, ndingabeka bucala iyure okanye imizuzu nje embalwa ukuba ndizive… ndize emva koko nditshintshele kwimisebenzi elula yokunceda ukulungelelanisa bonke ubungqongqo.

Kum, oku kujongeka njengokujonga imiboniso ehlekisayo, ukuhambahamba, ukupheka, ukupeyinta, ukudlala umdlalo, okanye ukuncokola nomhlobo ngento engahambelani kwaphela neMS yam.

Ukucwangcisa iimvakalelo ezinkulu kunye nemiceli mngeni emikhulu kuthatha ixesha. Ndiyakholelwa ukuba kungathatha ixesha lokuphila lonke ukwenza ukuba kunjani ukuhlala emzimbeni one-multiple sclerosis, ikamva elingaqinisekanga, kunye noluhlu lweempawu ezinokuvela kwaye ziwe nangaliphi na ixesha. Andingxami.

6. Yenza intsingiselo kwimingeni

Ndithathe isigqibo sokukhetha ibali lam elinentsingiselo malunga nendima endifuna ukuyenza kwi-sclerosis ebomini bam. I-MS sisimemo sokomeleza ubudlelwane bam nam.

Ndiye ndasamkela eso simemo, ngenxa yoko ubomi bam buye batyeba kwaye baba nentsingiselo engakumbi kunangaphambili.

Ndihlala ndinika i-MS ikhredithi, kodwa ngokwenene ndim owenze lo msebenzi wotshintsho.

Njengoko ufunda ukuqonda imiceli mngeni yakho, unokufumana amandla ezakho izakhono zokwenza intsingiselo. Mhlawumbi uyakujonga oku njengethuba lokuqonda ukuba kusekho uthando nakwezona zihlandlo zinzima.

Ungafumanisa ukuba lo mngeni ulapha ukubonisa indlela omelele kwaye unamandla ngayo, okanye ukuthambisa intliziyo yakho kubuhle behlabathi.

Umbono kukuzama kwaye wamkele nayiphi na into ekukhuthazayo okanye ekukhuthazayo ngoku.

7. Hleka indlela yakho ngokusebenzisa izinto ezinzima

Kukho amaxesha apho ubunzima bokugula kwam buhlasela mna, njengaxa ndifuna ukuthatha ikhefu kumnyhadala wentlalontle ukuze ndikwazi ukulala ngokungenammiselo kwelinye igumbi, xa ndijamelene nokukhetha phakathi kweziphumo ebezingalunganga zeyeza elinye ngaphezulu kwenye, okanye xa ndihleli noxinzelelo ngaphambi nje kwenkqubo yonyango eyoyikisayo.

Ndihlala ndifumanisa ukuba kufuneka ndihleke ngendlela ubuqhophololo, ukungahambi kakuhle, okanye ukuthoba ingqondo ngokuzithoba ngala maxesha anokuziva.

Ukuhleka kukhulula ukuxhathisa kwam okwangoku kwaye kuvumela ukuba ndidibanise nam kunye nabantu abandijikelezileyo ngendlela yokudala.

Nokuba kukugigitheka kukungabi nangqondo kwalomzuzu okanye ukuqhekeka kwesiqhulo ukunciphisa imvakalelo yam, ndiye ndafumanisa ukuhleka kuyeyona ndlela inothando yokuvumela ukuba ndiyeke isicwangciso sam kwaye ndibonakalise okwenzekayo ngalo mzuzu.

Ukuthinta uburharha bakho kuthetha ukunxibelelana nenye yamandla akho okuyila ngexesha apho unokuziva ungenamandla. Kwaye ekuhambeni kula mava anzima ahlekisayo kunye nemvakalelo yokuhlekisa epokothweni yakho yangasemva, unokufumana amandla anzulu nangakumbi kunohlobo oziva ngalo xa yonke into ihamba ngokwesicwangciso.

8. Yiba ngumhlobo wakho osenyongweni

Nokuba bangaphi na abahlobo abakhathalayo kunye namalungu osapho andijoyinileyo kuhambo lwam lwe-MS, ndim ndedwa ohlala emzimbeni wam, ocinga iingcinga zam, kwaye uziva iimvakalelo zam. Ukuyazi kwam le nyaniso kuye kuziva ndisoyika kwaye ndinesithukuthezi ngamanye amaxesha.

Ndifumanise ukuba ndiziva ndililolo kakhulu xa ndicinga ukuba ndihlala ndikhatshwa yinto endiyibiza ngokuba "sisilumko" sam. Le yinxalenye yam enokubona yonke imeko njengoko inje- kubandakanya nokubonelela iimvakalelo zam kunye nemisebenzi yam yemihla ngemihla- ukusuka kwindawo yothando olungenamiqathango.

Ndiye ndenza intsingiselo yobudlelwane bam nam ngokwam ngokuthi "bobona buhlobo bungcono." Le mbono indincede ndaziva ndindodwa kwelona xesha linzima.

Ngethuba lamaxesha anzima, isilumko sam sangaphakathi siyandikhumbuza ukuba andikho kuyo ndedwa, ukuba ulapha ngenxa yam kwaye uyandithanda, kwaye uzimisele ngam.

Nanku umthambo wokudibanisa nobulumko bakho:

1. Songa iphepha kwiphepha eliphakathi.
2. Sebenzisa isandla sakho esingalawulekiyo ukubhala ezinye uloyiko lwakho kwicala elihambelana nephepha.
3. Sebenzisa isandla sakho esiphambili ukubhala iimpendulo zothando kolo loyiko.
4. Qhubeka ubuye umva ngokungathi la macandelo mabini enencoko.

Ukuzivocavoca kunceda ukwenza umanyano lwangaphakathi phakathi kwezinto ezimbini ezahlukileyo zobuntu bakho obuninzi, kwaye kunceda ukuba ufumane izibonelelo zezona mpawu zakho zothando.

Ngamana ungafumana unxibelelwano olunzulu nesiqu sakho

Ukuba ufunda le nto kuba uhlangabezana nexesha elinzima ngoku, nceda wazi ukuba ndiyakunceda. Ndibona amandla akho amakhulu.

Akukho mntu unokukunika umgca wexesha okanye akuxelele ngokuthe ngqo indlela ekufuneka uphile ngayo kule nxalenye yobomi bakho, kodwa ndiyathemba ukuba uza kufumana unxibelelwano olunzulu nawe kwinkqubo.

U-Lauren Selfridge ngumtshato onelayisensi kunye nonyango losapho eCarlifonia, osebenza kwi-Intanethi nabantu abaphila nesifo esinganyangekiyo kunye nezibini. Uphethe udliwanondlebe, "Ayisiyiyo le Ndandiyalele ngayo, ”Egxile kwintliziyo epheleleyo yokuphila nesifo esinganyangekiyo kunye nemiceli mngeni yezempilo. U-Lauren uye waphila ngokubuyela kwisimo se-sclerosis ngaphezulu kweminyaka emi-5 kwaye wafumana isabelo sakhe sonwabile kunye nemingeni apha endleleni. Unokufunda ngakumbi ngomsebenzi kaLauren Apha, okanye mlandele naye ipodcast Kwi-Instagram.