Isikhokelo sezigulana ezinomhlaza webele esisezantsi: Ukufumana inkxaso kunye nokufumana izixhobo
Umxholo
Kukho itoni yolwazi kunye nenkxaso kubantu abanomhlaza webele. Kodwa njengomntu ophila nomhlaza webele we-metastatic, iimfuno zakho zinokwahluka ngandlela ithile kunaleyo inqanaba lesifo somhlaza webele.
Owona mthombo wakho wolwazi lonyango liqela lakho le-oncology. Banokubonelela ngezixhobo zemfundo ezithile zomhlaza wamabele ohambele phambili. Amathuba okuba uyafuna ulwazi malunga nezinye izinto ezahlukeneyo zobomi ngomhlaza webele we-metastatic, nawo.
Imibutho emininzi ibonelela ngezinto eziluncedo ngokukodwa kubantu abanomhlaza webele osele uhambile. Nazi ezinye iindawo ezilungileyo ukuqala:
- Uluntu oluphambili lomhlaza webele
- Umbutho woMhlaza waseMelika
- BreastCancer.org
- Inethiwekhi yoMhlaza wamabele weMastastatic
Inkxaso yeemvakalelo nezentlalo
Ukuphila nomhlaza wamabele ohambele phambili, ngokungathandabuzekiyo unokuninzi engqondweni yakho. Ngazo zonke izigqibo zonyango, utshintsho lomzimba, kunye neziphumo ebezingalindelekanga, ngekhe ibe yinto engaqhelekanga kwaphela ukuba uziva ukhathazekile ngamanye amaxesha.
Enoba uziva njani, aziphosakalanga. Akunyanzelekanga ukuba uphile ngokuvisisana nolindelo lomnye umntu malunga nendlela oziva ngayo okanye into ekufuneka uyenzile. Kodwa ungafuna umntu oza kuthetha naye.
Unokuba okanye awunalo iqabane, usapho, okanye abahlobo abanokubonelela ngenkxaso yeemvakalelo nezentlalo. Nokuba uyakwenza oko, usenokuxhamla ngokunxibelelana nabanye abaphila nomhlaza wemastastatic. Eli liqela labantu abaya "kulifumana."
Nokuba kukwi-intanethi okanye kubuntu, amaqela enkxaso abonelela ngethuba elikhethekileyo lokwabelana ngamava aqhelekileyo. Unokufumana kwaye unike inkxaso ngexesha elinye. Amalungu amaqela enkxaso ahlala esenza ubudlelwane obomeleleyo bobuhlobo.
Unokufumana amaqela enkxaso kwindawo yakho ngeofisi yakho ye-oncologist, isibhedlele sendawo, okanye indlu yonqulo.
Unokuzijonga kwakhona ezi forum:
- Iqonga leBreastCancer.org: Inqanaba IV kunye noMhlaza webele leMastast KUPHELA
- ICancerCare Metastatic Breast Cancer Patient Support Group
- Kuvaliwe iMetastatic (Advanced) Iqela leNkxaso yoMhlaza webele (kwi-Facebook)
- Inspire.com Uluntu loMhlaza weSifuba esiPhambili
- I-TNBC (umhlaza wamabele ophindwe kathathu) I-Metastasis / iBhodi yeNgxoxo ePhindayo
Oncology Oonontlalontle bayafowunelwa kuphela. Ziyafumaneka ukukunceda ujongane nemiceli mngeni kunye neemeko ezibonakalayo zomhlaza wamabele.
Iinkonzo zempilo kunye nekhaya
Imibuzo emininzi ivela xa uhlala nomhlaza webele ohambele phambili. Ngubani oza kunceda xa ungakwazi ukuziqhubela kunyango? Ungazithenga phi iimveliso zonyango? Ungalufumana njani uncedo lwasekhaya oludingayo?
Iofisi yakho ye-oncology ifumana le mibuzo ngalo lonke ixesha. Banokubonelela ngoluhlu lweenkonzo kunye nabanikezeli kwindawo yakho. Nazi izixhobo ezimbalwa ezilungileyo zokuzama:
- Iinkonzo zeAmerican Cancer Society zibonelela ngolwazi ngeenkonzo ezahlukeneyo kunye neemveliso, kubandakanya:
- izibonelelo zemali
- ukulahleka kweenwele, iimveliso zeMastectomy, kunye nezinye iimveliso zonyango
- oomatiloshe bezigulana basekuhlaleni
- ukulala ngelixa usifumana unyango
- ukhwele kunyango
- ukujongana neziphumo ebezingalindelekanga ezinxulumene nembonakalo
- uluntu online
- CancerCare Uncedo lwezeMali unika uncedo ngo:
- iindleko ezinxulumene nonyango ezifana nokuhamba, ukhathalelo lwasekhaya, kunye nokhathalelo lwabantwana
- Uncedo lwe-inshurensi yokuhlawula iindleko ze-chemotherapy kunye nonyango ekujoliswe kulo
- Ukucoca Isizathu kubonelela ngeenkonzo zasimahla zokucoca izindlu kwabasetyhini kunyango lomhlaza wamabele, ofumaneka kulo lonke elaseMelika nase Canada
Ukuba ufumanisa ukuba ufuna ukhathalelo lwasekhaya okanye ukhathalelo lwe-hospice, nazi iinkcukacha zolwazi ezinokukhangelwa ukukunceda ufumane ezi nkonzo:
- Umbutho weSizwe weNkathalo yaseKhaya yeArhente yeNkonzo yeNdawo
- Isibhedlele sikaZwelonke kunye noMbutho woKhathalelo oluDala-Fumana iHospice
Iofisi kagqirha wakho unokukuthumela kwiinkonzo kwindawo yakho. Ngumbono olungileyo ukuphanda oku ngaphambi kokuba kuvele isidingo, ke uzilungiselele.
Uvavanyo lwezonyango
Uvavanyo lwezonyango luyinxalenye ebalulekileyo yophando ngomhlaza. Bakunika ithuba lokuzama unyango olutsha olungafumanekiyo kuwe. Ezi zilingo zihlala zinemilinganiselo engqongqo yokubandakanywa.
Ukuba unomdla wokuthatha inxaxheba kuvavanyo lweklinikhi, qala ngokuthetha nogqirha wakho. Banokukwazi ukufumana ityala elilingana nemeko yakho. Unokuzijonga ezi ndawo zifunekayo:
- Unyango lwezeMpilo.gov
- Ukuvavanywa kovavanyo lokuvavanywa komhlaza webele lweMastast
- Umnxibelelanisi wovavanyo lweeKlinikhi zoMhlaza weSifuba seMastast
Inkxaso yomongi
Abantu abakhathalela abantwana banokuphelelwa ngamandla. Kwinkqubo yokukhathalela umntu abamthandayo, bahlala betyeshela impilo-ntle yabo. Bakhuthaze ukuba bacele uncedo.
Nazi iindlela ezimbalwa zokunceda ukukhanyisa umthwalo:
- Inethiwekhi yokuNakekela abaNakekeli: ulwazi kunye nezixhobo ukuze uzilungiselele
- Caring.com -Ukuba liQela leNkxaso yoMkhathaleli: iingcebiso kunye neengcebiso malunga nokukhathalela umnonopheli
- Umdibaniso woNonophelo loSapho: ulwazi, iingcebiso kunye nenkxaso yomkhathaleli
- I-Lotsa Ukunceda izandla: izixhobo "zokwenza indawo yoKhathalelo yoLuntu" ukuququzelela uncedo kwimisebenzi yokhathalelo njengokulungiselela ukutya
Ngaphandle kwemisebenzi yabo yokukhathalela, aba bantu banokuthatha uxanduva lokugcina wonke umntu esazi. Kodwa zininzi kakhulu iiyure ngosuku.
Kulapho imibutho efana neCaringBridge kunye neParePages ingena khona. Bayakuvumela ukuba wenze ngokukhawuleza iphepha lakho lewebhu. Emva koko unokuhlaziya ngokulula izihlobo kunye nosapho ngaphandle kokuziphinda okanye wenze iifowuni ezininzi. Unokulawula ukuba ngubani onokufikelela kuhlaziyo lwakho, kwaye amalungu anokongeza izimvo ezizezakho onokuzifunda ngexesha lakho lokuzonwabisa.
Ezi ndawo zinezixhobo zokwenza ishedyuli yoncedo. Amavolontiya angabhalisela ukwenza imisebenzi ethile ngosuku kunye nexesha elithile ukuze ucwangcise ukuthatha ikhefu.
Kulula ukulahleka ekunyamekeleni. Kodwa abanonopheli benza umsebenzi ongcono xa bezikhathalela.
Ithandwa
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