Ixabiso lokuPhila ngeHepatitis C: Ibali likaConnie

Umxholo

• Ukulawula iziphumo ebezingalindelekanga zonyango
• Ukulinda unyango olutsha ukuba lubekhona
• Ukuhlawula ukhathalelo
• Iindleko zovavanyo kunye nonyango
• Ukulwa ibala losulelo

Ngo-1992, uConnie Welch wenziwa utyando kwiziko lezonyango eTexas. Kamva wafumanisa ukuba wayifumana intsholongwane i-hepatitis C kwinaliti engcolileyo xa wayelapho.

Phambi kotyando, ingcali yotyando yathatha isirinji kwitreyi yakhe yokubulala iintlungu, yazitofa ngesiyobisi esasikuyo, yaphakamisa isirinji ngesisombululo seetyuwa ngaphambi kokuyibeka phantsi. Lifikile ixesha lokuba uConnie alaliswe, watofelwa inaliti enye.

Kwiminyaka emibini kamva, wafumana ileta evela kwiziko lotyando: Igcisa labanjwa libamba izinto ze-narcotic kwiisirinji. Wayevavanye ukuba usulelekile kwi-hepatitis C.

I-Hepatitis C sisifo esosulelayo esibangela ukudumba kwesibindi kunye nomonakalo. Kwezinye iimeko ze-hepatitis C ebukhali, abantu banokulwa nosulelo ngaphandle konyango. Kodwa kwiimeko ezininzi, baba ne-hepatitis C engapheliyo-isifo esihlala ixesha elide esifuna unyango ngamayeza antiviral.

Kuqikelelwa ukuba i-2.7 ukuya kwi-3.9 yezigidi zabantu eUnited States bane-hepatitis C. engapheliyo C. Abaninzi abanazo iimpawu kwaye abaqondi ukuba bayifumene intsholongwane. UConnie wayengomnye waba bantu.

"Ugqirha wam wanditsalela umnxeba wandibuza ukuba ndisifumene isaziso malunga nento eyenzekileyo, ndatsho ndathi, kodwa bendididekile ngayo," utshilo uConnie kuHealthline. "Ndithe, 'Bendingayi kwazi ukuba ndine-hepatitis?'"

Ugqirha kaConnie wamkhuthaza ukuba ahlolwe. Phantsi kwesikhokelo se-gastroenterologist kunye ne-hepatologist, wavavanywa kathathu kuvavanyo lwegazi. Ngalo lonke ixesha, wayevavanya intsholongwane ye-hepatitis C.

Wayenayo ne-biopsy yesibindi. Kubonakalisile ukuba sele egcinile ukonakala kwesibindi kosuleleko. Usulelo lwe-Hepatitis C lunokubangela umonakalo kunye nokunqandeka okungenakuguqulwa esibindini, esaziwa njenge-cirrhosis.

Kungathatha amashumi amabini eminyaka, imijikelo emithathu yonyango lwe-antiviral, kunye namawaka eedola ahlawulwe epokothweni ukucoca intsholongwane emzimbeni wakhe.

Ukulawula iziphumo ebezingalindelekanga zonyango

Xa uConnie wafumanisa ukuba unesifo, kwabakho unyango olunye kuphela lwentsholongwane kaGawulayo. NgoJanuwari 1995, waqala ukufumana inaliti ye-interferon engena-pegylated.

UConnie waba neziphumo ebezingalindelekanga "ezibukhali kakhulu". Wayesokola nokudinwa kakhulu, izihlunu kunye namalungu adibeneyo, iimpawu zesisu kunye nokulahleka kweenwele.

Ukhumbula ukuba, "ezinye iintsuku zazibhetele kunezinye, kodwa ubukhulu becala zazinzima."

Kuya kuba nzima ukubamba umsebenzi osisigxina, utshilo. Wayesebenze iminyaka njengengcali yezonyango engxamisekileyo kunye nonyango lokuphefumla. Kodwa wayeka kungekudala ngaphambi kokuba avavanyelwe i-hepatitis C, ngezicwangciso zokubuyela esikolweni kwaye enze idigri yobunesi-izicwangciso awazigcinayo emva kokufunda ukuba ufumene usulelo.

Kwakunzima ngokwaneleyo ukulawula uxanduva lakhe ekhaya ngelixa ejongene neziphumo zonyango. Kwakukho iintsuku apho kwakunzima ukuphuma ebhedini, ndingasathethi ke ngokugcina abantwana ababini. Abahlobo kunye namalungu osapho bangenele ukunceda ekunyamekeleni abantwana, ukwenza imisebenzi yasekhaya, ukuthumela imiyalezo kunye neminye imisebenzi.

"Ndandingumama ngokusisigxina, kwaye ndizama ukwenza yonke into ekhaya njengesiqhelo ngendlela yesiqhelo, yabantwana bethu, yesikolo, nayo yonke into," ukhumbule, "kodwa ngamanye amaxesha kuye kwafuneka ndibenazo Nceda."

Ngethamsanqa, khange abhatalele uncedo olongezelelekileyo. “Besinabahlobo abaninzi kunye nosapho olungeneleleyo ukunceda, ke ngoko akukho ndleko yezemali yakwenza oko. Ndinombulelo kakhulu ngaloo nto. ”

Ukulinda unyango olutsha ukuba lubekhona

Ekuqaleni, inaliti ye-non-pegylated interferon ibonakala isebenza. Kodwa ekugqibeleni, umjikelo wokuqala wonyango lwe-antiviral khange uphumelele. Isibalo se-virus sikaConnie sanda, isibalo sakhe se-enzyme yesibindi sanda, kwaye iziphumo ebezingalindelekanga zamayeza zaba nzima kakhulu ukuqhubeka.

Ngaphandle kolunye unyango olwalukho, uConnie kwafuneka alinde iminyaka eliqela ngaphambi kokuba azame iyeza elitsha.

Waqala umjikelo wakhe wesibini wonyango lwe-antiviral ngo-2000, ethatha indibaniselwano ye-pegylated interferon kunye ne-ribavirin eyayisandula ukuvunywa kubantu abanesifo se-hepatitis C.

Olu nyango aluphumelelanga.

Kwakhona, kwafuneka alinde iminyaka ngaphambi kokuba afumane unyango olutsha.

Kwiminyaka elishumi elinesibini kamva, ngo-2012, waqala umjikelo wakhe wesithathu nowokugqibela wonyango lwe-antiviral. Ibandakanya ukudityaniswa kwe-pegylated interferon, ribavirin, kunye ne-telaprevir (Incivek).

“Zininzi iindleko ezibandakanyekileyo kuba olo nyango lwalubiza kakhulu kunonyango lokuqala, okanye amayeza amabini okuqala, kodwa kwakufuneka senze into ekufuneka siyenzile. Ndisikeleleke kakhulu kuba unyango luphumelele. ”

Kwiiveki neenyanga ezilandela umjikelo wakhe wesithathu wonyango lwe-antiviral, kuvavanyo lwegazi oluninzi lubonakalisile ukuba uphumelele ukuphendula ngokusesikweni kwintsholongwane (SVR). Le ntsholongwane yayiwele kwinqanaba elingabonakaliyo kwigazi lakhe kwaye yahlala ingabonakali. Wayephilisiwe kwi-hepatitis C.

Ukuhlawula ukhathalelo

Ukusukela oko wayifumana intsholongwane ngo-1992 ukuya kwixesha lokunyangwa kwakhe ngo-2012, uConnie kunye nosapho lwakhe bahlawula amawaka eedola epokothweni ukulawula usulelo lwe-hepatitis C.

"Ukusukela ngo-1992 ukuya ku-2012, yayisisithuba seminyaka engama-20, kwaye oko kwakubandakanya umsebenzi omninzi wegazi, ii-biopsies zesibindi, unyango olungaphumelelanga, ukutyelelwa ngugqirha," utshilo, "ngoko ke zininzi iindleko ezichaphazelekayo."

Ukuqala kwakhe ukuva ukuba usenokuba unesifo se-hepatitis C, uConnie waba nethamsanqa lokuba ne-inshurensi yezempilo. Intsapho yakhe ithenge i-inshurensi exhaswa ngumqeshi ngomsebenzi womyeni wakhe. Nangona kunjalo, iindleko zokuphuma epokothweni "ziqale ukuqokelela" ngokukhawuleza.

Baye bahlawula malunga ne-350 yeedola ngenyanga kwiipremiyamu ze-inshurensi kwaye babedla ngokutsalwa i- $ 500 ngonyaka, ekwakufuneka behlangane nayo ngaphambi kokuba umboneleli wabo weinshurensi ancede ukuhlawula iindleko zokhathalelo lwakhe.

Emva kokubetha i-deductible yonyaka, uqhubeke nokujongana ne- $ 35 yecollay kutyelelo ngalunye kwingcali. Kwiintsuku zokuqala zokuchongwa kunye nokunyangwa kwakhe, wadibana nogqirha wamazinyo okanye i-hepatologist rhoqo kanye ngeveki.

Ngaxa lithile, usapho lwatshintsha izicwangciso zeinshurensi, kodwa kwafumanisa ukuba i-gastroenterologist yawa ngaphandle kwenethiwekhi yeinshurensi.

"Saxelelwa ukuba i-gastroenterologist yam yangoku yayiza kuba kwisicwangciso esitsha, kwaye kuvela ukuba wayengekho. Kwaye oko bekuphazamisa kakhulu ngoba kuye kwafuneka ndifumane ugqirha omtsha ngelo xesha, kwaye nogqirha omtsha, kuya kufuneka uphinde uqale phantsi. ”

UConnie waqala ukubona ugqirha omtsha wesisu, kodwa wayengonelisekanga kukhathalelo alunikezelayo. Ke wabuyela kwingcali yakhe yangaphambili. Kwakufuneka ahlawule epokothweni ukuze amndwendwele, de usapho lwakhe lutshintshe izicwangciso zeinshurensi zokumbuyisela kwinethiwekhi yabo yokugubungela.

"Wayesazi ukuba sikwixesha le-inshurensi eliza kumgubungela," watsho, "ke wasinika isaphulelo."

"Ndifuna ukuthi ngelinye ixesha akazange andihlawulise nangokutyelelwa yiofisi enye," uqhubeke watsho, "emva koko wandula ke wandibiza imali endiqhele ukuyibhatala nge-copay."

Iindleko zovavanyo kunye nonyango

Ukongeza kwintlawulo ekhutshelweyo kutyelelo logqirha, uConnie kunye nosapho kuye kwafuneka bahlawule iipesenti ezili-15 zetyala kuzo zonke iimvavanyo zonyango azifumeneyo.

Kwakufuneka ahlolwe igazi ngaphambi, ngexesha nasemva kokuba ejikeleze unyango. Uye waqhubeka esenza umsebenzi wegazi ubuncinci kube kanye ngonyaka iminyaka emihlanu emva kokuphumelela kwe-SVR. Kuxhomekeke kuvavanyo oluchaphazelekayo, uhlawule malunga ne- $ 35 ukuya kwi-100 leedola kumjikelo ngamnye wegazi.

UConnie uphinde wafumana ii-biopsies zesibindi, kunye novavanyo lwe-ultrasound yesibindi sakhe. Uhlawule malunga ne- $ 150 okanye nangaphezulu kuvavanyo ngalunye lwe-ultrasound. Ngexesha lezoviwo, ugqirha wakhe ujonga iimpawu zesifo sokuqina kwesibindi kunye nezinye iingxaki ezinokubakho. Kwanangoku ukuba uphilisiwe kusulelo lwe-hepatitis C, usesichengeni sokuba nomhlaza wesibindi.

Intsapho yakhe ikwagubungele iipesenti ezili-15 zeendleko zemijikelo emithathu yonyango ayifumeneyo. Unyango ngalunye lonyango lubiza amashumi amawaka eedola zizonke, kubandakanya nesahlulo esihlawulwe kumboneleli wabo weinshurensi.

Wathi: “Iipesenti ezilishumi elinesihlanu zama-500 zisenokungabi mbi kangako, kodwa iipesenti ezili-15 zamawaka amaninzi zinokudibanisa.”

UConnie nosapho lwakhe bajongane namatyala amayeza amiselweyo okulawula iziphumo ebezingalindelekanga zonyango lwakhe. Oku kubandakanya amayeza okulwa noxinzelelo kunye neenaliti zokunyusa ukubala kweeseli ebomvu. Baye bahlawula irhasi kunye nokupaka ukuya kwiindawo ezininzi zonyango. Kwaye babhatalela ukutya kwangaphambi kwexesha xa wayegula kakhulu okanye exakekile kukuqeshwa ngugqirha ukupheka.

Ufumene iindleko zeemvakalelo, naye.

“IHepatitis C ifana nesiqhu edamini, kuba ichaphazela yonke indawo yobomi bakho, hayi imali kuphela. Kukuchaphazela ngokwasengqondweni nangokweemvakalelo nangokwasemzimbeni. ”

Ukulwa ibala losulelo

Abantu abaninzi banezimvo ezingezizo malunga ne-hepatitis C, enegalelo ekubekweni ibala elinxulumene nayo.

Umzekelo, abantu abaninzi abaqondi ukuba ekuphela kwendlela umntu anokudlulisela ngayo intsholongwane kukudibana kwegazi negazi. Kwaye abaninzi bayoyika ukuchukumisa okanye ukuchitha ixesha nomntu onentsholongwane. Olo loyiko lunokukhokelela kwizigwebo ezingalunganga okanye ucalucalulo kubantu abahlala nalo.

Ukujamelana nezi ngxaki, uConnie ukufumanise kuluncedo ukufundisa abanye.

"Iimvakalelo zam zonzakaliswe ngamanye amaxesha ngabanye," utshilo, "kodwa, ndiyithathile njengethuba lokuphendula imibuzo abanye abantu abanayo ngentsholongwane kunye nokuphelisa ezinye iintsomi malunga nokuba inentsholongwane njani kwaye ayiyiyo njani . ”

Ngoku usebenza njengommeli wesigulana kunye nomqeqeshi wobomi oqinisekisiweyo, enceda abantu ukulawula imiceli mngeni yesifo sesibindi kunye nosulelo lwe-hepatitis C. Ukwabhalela upapasho oluninzi, kubandakanya newebhusayithi esekwe kwinkolo ayigcinayo, Ubomi ngaphaya kweHep C.

Ngelixa abantu abaninzi bejongana nemiceli mngeni kwindlela yabo yokufumana isifo kunye nonyango, uConnie ukholelwa ukuba sikhona isizathu sethemba.

“Likho ithemba ngoku lokudlula kwihep hep C kunanini na ngaphambili. Emva phaya ekufumanekeni kwam, lwalunye kuphela unyango. Ngoku namhlanje sineendlela ezisixhenxe zokunyanga ihepatitis C kuzo zontandathu ezo genotypes. ”

"Likhona ithemba kwizigulana ezinesifo sokuqina kwesibindi," uqhubeke watsho. “Kukho uvavanyo oluphezulu lobuchwephesha ngoku ukuze bakwazi ukunceda abaguli ukuba bafumane ukuxilongwa kwangethuba benomonakalo wesibindi. Kuninzi kakhulu ngoku okufumanekayo kwizigulana kunangaphambili. ”