Ndifunde njani ukukhupha ihlazo kwaye ndamkele inkululeko yenkululeko yabantu abadala kwi-IBD

Umxholo

• Kwikholeji, ulcerative colitis wabuguqula ubomi bam babuguqula
• Ukugqabhuka kwamva nje kundishiyile ndikhangela isisombululo
• Iintloni zazingafani nantoni na endakha ndaziva ngaphambili
• Inkxaso kunye nokuhleka kundinike amandla am kwakhona
• Ukwamkelwa kundinceda ndiphile ubomi obugcweleyo, obuhle

Ndinombulelo ongazenzisiyo ngesixhobo esindinike inkululeko kunye nobomi.

Umzekeliso kaMaya Chastain

“Kuya kufuneka ubeke i-diap diap!” Nditsho kumyeni wam njengokuba silungiselela ukuhambahamba ebumelwaneni.

Hayi, andinaye umntwana, okanye umntwana nokuba ngowuphi ubudala ngenxa yalonto. Ke, xa ndithetha ngamanabukeni, ziindidi zabantu abadala kwaye zisetyenziswa ndim kuphela, uHolly Fowler - uneminyaka engama-31.

Ewe, siyababiza "zii-diap diap" ekhayeni lam kuba kubonakala ngathi ziyonwabisa ngaloo ndlela.

Ngaphambi kokuba ndingene ekubeni kutheni ndinxibe i-diaper-30-into, ndifuna ukukubuyisela ekuqaleni.

Kwikholeji, ulcerative colitis wabuguqula ubomi bam babuguqula

Ndafunyaniswa ndine-ulcerative colitis, isifo sokukrala kwamathumbu (IBD), ngo-2008 ndineminyaka eli-19 ubudala. ayenzi ukuthanda ukufefa izibhedlele kumava abo ekholejini?)

Ukuba ndinyanisekile, bendikhanyela ngokupheleleyo ukuxilongwa kwam kwaye ndichithe iminyaka yam yasekholejini ndisenza ngathi ibingekho de kufike isibhedlele sam esilandelayo.

Kwakungekho nto emhlabeni, izifo ezizimeleyo zibandakanya, eziza kundenza ndihluke kunontanga bam okanye ndigcine ekwenzeni oko ndifuna ukukwenza.

Ukuya ethekweni, ukutya amacephe eNutella, ukuhlala ubusuku bonke utsala iiprakhtikhi zekhampasi, ufunda phesheya eSpain, kwaye usebenza enkampini rhoqo ehlotyeni: Ubeka amava ekholejini, mhlawumbi ndiyenzile.

Ngalo lonke elixesha ukwaphula umzimba wam kwinkqubo.

Kunyaka emva komnyaka odinisayo wokuzama nzima ukuze ndingene kwaye ndibengumntu "oqhelekileyo," ndaye ekugqibeleni ndafunda ukuba ngamanye amaxesha kuye kufuneke ndiphume ndibengumntu "odlayo ongaqhelekanga" etafileni ukukhusela impilo yam noko ndikwaziyo ukuba kungcono ukwenzela mna.

Kwaye ndafunda ukuba kulungile!

Ukugqabhuka kwamva nje kundishiyile ndikhangela isisombululo

Kolu hlaselo lwam lwakutsha nje oluqale kwi-2019, bendinengxaki yokuphuthuma kwelindle kwaye ndineengozi phantse yonke imihla. Ngamanye amaxesha bekusenzeka ngelixa ndizama ukuthatha inja yam ijikeleze ibhloko. Ngamanye amaxesha kuya kwenzeka xa usiya kwindawo yokutyela iibhloko ezintathu kude.

Iingozi zazingalindelwanga kangangokuba ndandiza kuba noxinzelelo xa ndicinga nje ngokushiya indlu, ndize emva koko ndibenexhala elipheleleyo xa ndingafumani igumbi lokuhlambela ngexesha.

(Sikelela abantu endibabongozile, ngamehlo agcwele iinyembezi, ukuba basebenzise igumbi labo lokulala kumaziko ahlukeneyo kwindawo yaseLos Angeles. Kukho indawo ekhethekileyo entliziyweni yam kuni nonke.)

Ngobuninzi be-flare-ups njengoko bendinayo ebomini bam, umbono wabadlali abadala njengokhetho awuzange uphinde ufike kum. Ndijonge ii-diapers zabantu abadala njengenye into onokuyithenga utata wakho njengesipho se-gag ngomhla wakhe wokuzalwa wama-50, hayi njengento oyithandayo ngokwenene Thenga ukusetyenziswa kakubi kwi-30s yakho.

Kodwa emva kokuphanda kunye nokuqonda ukuba kukho iindlela zobulumko ngaphandle apho ezinokwenza ubomi bam bube lula, ndenza isigqibo.

Ndingayalela ii-diapers zabantu abadala-kweyona ndawo isikiweyo kunye nombala ofumanekayo, ewe- kwaye ndiza kubuya ndibulawule ubomi bam.

Iintloni zazingafani nantoni na endakha ndaziva ngaphambili

Bendihlala ndicinga uku-odola ubisi lwe-nondairy ikofu yam kwiivenkile zokutyela kwiindawo apho kungaqhelekanga kwakuhlazisa.

Kodwa ukujonga inqwelo yam yeAmazon ngepakethi ephindwe kabini yoxhomekeko lelinye inqanaba lokuthotywa endingazange ndalifumana ngaphambili.

Kwakungafani nokuba ndikwivenkile ethengisa ukutya edolophini apho ndazi wonke umntu. Ndandihleli nje esofeni yam ndedwa. Nangona kunjalo andinakukwazi ukushukumisa iimvakalelo ezinzulu zokudana, usizi, kunye nokunqwenela uguqulelo lwam olungakhange lujongane nokudumba okwenziwa sisilonda sikabhobhosi.

Ukufika kwamanabukeni, ndenza isivumelwano kunye nam ukuba le iya kuba kuphela kwempahla endiza kuyithenga. Ngaba awuzithandi izikhokelo esizenzayo nathi?

Andinakulawula ukuba le flare-up iyahamba na okanye xa ndingasayi kufuna enye inkxaso "yengubo." Mhlawumbi indenze ndaziva ndibhetele ngelo xesha, kodwa ndiyakuqinisekisa ukuba sele ndizithengile iipakethi ezininzi njengamajoni avuthayo.

Nangona bendineedabukeni kwindawo yokugcina izinto zam kwaye ndikulungele ukuzisebenzisa, bendisaziva ndineentloni kakhulu ngokubafuna kakhulu njengoko bendisenza. Ndandiyicaphukela into yokuba ndibadinga ukuba baye kwisidlo sangokuhlwa okanye kwithala leencwadi, okanye nokuhamba nenja ujikeleze ibhloko.

Ndandicaphukela yonke into ngabo.

Ndandiyicaphukela nendlela endandiziva ngayo xa ndingenayo i-unsexy. Ndiza kutshintshwa kwigumbi lokuhlambela ndize ndinxibe iimpahla ngendlela ethile ukuze umyeni wam angabinako ukuxela ukuba ndinxibe ilweyile. Bendingafuni ukuba umbono wakhe ngam utshintshe.

Inkxaso kunye nokuhleka kundinike amandla am kwakhona

Ngelixa bendinexhala lokungasaziva ndinqwenelekayo, into endingakhange ndiyithathele ingqalelo yimpembelelo entle enkulu umyeni wam aya kuba nayo kwimbono yam.

Kwikhaya lethu, sinotyekelo lokuhlekisa ngobumnyama, ngokusekwe kwinto yokuba ndinesifo esingazenzisiyo kwaye umyeni wam waphuka umqolo kwaye wabethwa sistroke ngaphambi kweminyaka engama-30.

Idityanisiwe, sidlulile kwezinye izinto ezirhabaxa, ke sinelensi eyahlukileyo ebomini kunabantu abaninzi abakwiminyaka yethu.

Yonke into eyithathileyo yayikukuthetha, ngelona lizwi lakhe lingoyisemkhulu, "Yiya uyokuthatha idayap yakho," kwaye ngesiquphe imeko yakhanyiswa.

Okwesibini sithathe amandla kude nemeko, iintloni zaphakanyiswa.

Ngoku sabelana ngazo zonke iintlobo zeziqhulo zangaphakathi malunga ne-diaper yam, kwaye ngokwenyani yenza kube lula ukujongana nemeko yempilo yam.

Ndifundile ukuba, ngesitayile esifanelekileyo, ndinokukhulula ukunxiba amanabukeni phantsi kweebhlukhwe, ukwenza iibhulukhwe ezimfutshane, ijean, iilokhwe, kwaye, ewe, nditsho nelokhwe yecocktail, ngaphandle komntu owaziyo.

Kude kube luhlobo lokungxama ukwazi ukuba ndinantoni ngaphantsi. Kufana nokunxiba iimpahla zangaphantsi zelacy, ngaphandle kokuveza iimpahla zakho zangaphantsi kuya kukumangalisa kunye noloyiko kubaphulaphuli, endaweni yokuveza isini.

Ngokwenene zizinto ezincinci ezenza esi sifo sithwale.

Ukwamkelwa kundinceda ndiphile ubomi obugcweleyo, obuhle

Oku kuvutha ekugqibeleni kuya kuphela, kwaye andizukuhlala ndifuna ukunxiba la manabukeni. Kodwa ndinombulelo ongazenzisiyo ngokuba nazo njengesixhobo esindinike inkululeko engaka nobomi kwakhona.

Ngoku ndinokuhambahamba nomyeni wam, ndikhangele iindawo ezintsha zesixeko sethu, ndikhwele iibhayisikile elunxwemeni lolwandle, kwaye ndihlala nemida embalwa.

Kuthathe ixesha elide ukuba ndifike kule ndawo yolwamkelo, kwaye ndinqwenela ukuba ngendikhawuleze ndafika apha. Kodwa ndiyazi ukuba lonke ixesha lobomi linenjongo kunye nezifundo zalo.

Iminyaka, iintloni zazindibambezela ekubeni ndiphile ubomi obuzeleyo, obuhle nabantu endibathandayo. Ngoku ndibuyisela ubomi bam kwaye ndenza uninzi lwazo-isifo se-autoimmune, i-diaper, kunye nazo zonke.

UHolly Fowler uhlala eLos Angeles kunye nomyeni wakhe kunye nomntwana wabo onoboya, uKona. Uyakuthanda ukunyuka intaba, ukuchitha ixesha elunxwemeni, ukuzama indawo eshushu engenagluteni edolophini, kunye nokusebenza ngokuvunyelwa sisilonda sikabhobhosi. Xa engafuni i-dessert ye-vegan engenagluten, unokumfumana esebenza ngasemva kwewebhusayithi yakhe kunye ne-Instagram, okanye azisongele esofeni ebamba uxwebhu lwamva nje lolwaphulo-mthetho lokwenene kwiNetflix.