Kutheni Ndenza Ubuxoki Ukuba 'Oqhelekileyo' - kunye Nabanye Abasetyhini abane-Autism Yenza, Nako
Umxholo
- I-neurodivergence yam yinxalenye yokuba ndingubani-ayingobakhubazekileyo
- Ndiyifihla njani i-autism yam ukuze ndingene
- Iindleko zokuzenzisa esidlangalaleni
Nanku umbono ngaphakathi kwe-neurodivergent yam - engakhubazekanga - ingqondo.
Andifundanga kakhulu nge-autism. Hayi kwakhona.
Ukuqala kwam ukuva ukuba ndine-Asperger's syndrome kwaye "ndikwi-spectrum," njengoko abantu bethanda ukutsho, ndafunda nantoni na endinokuyifumana. Ndade ndajoyina iqela "lenkxaso" elikwi-intanethi kubantu abane-autism.
Ngelixa ndibonayo ezinye zeempawu kunye nemiba echazwe kumanqaku, iijenali, kunye neforum yeqela lenkxaso, andinakuze ndizibone ngokupheleleyo kuyo nayiphi na.
Khange ndikwazi ukujonga zonke iibhokisi eziza kusongela ubuntu bam zibe yipakethe ecocekileyo enelebhile yesilumkiso efundeka ngolu hlobo, "Fragile, handle with care." Ngokokwazi kwam oko ndikufundayo, ndandingafani kwaphela nabanye abantu abanengqondo kwihlabathi.
Bendingangeni ndawo. Okanye ndicinge njalo.
I-neurodivergence yam yinxalenye yokuba ndingubani-ayingobakhubazekileyo
Abantu bahlala befuna ukubiza i-autism ngengxaki, ukukhubazeka, okanye nokuba sisifo.
Ndafunda into kanye nge-anti-vaxxer, ndisithi izitofu zokugonya zinokubangela i-autism (ayiyonyani), yona, enokuthintela umntwana wakho ekubeni abe yiyo yonke into anokuba yiyo.
Inguquko enomdla yebinzana, konke abanokuba kuko. Njengokuba ukuba ngu-autistic kukuthintela ekubeni uphelele-okanye ngokwakho.I-Neurodivergence, okanye i-autism, ayisiyonto eyahlukileyo kule nto ndiyiyo. Yenye nje yezinto ezenza ukuba ndinguye.
Ndiphelele kwaye ndigqibile- kubandakanya ne-neurodivergence yam- ngaphandle kwayo. Ngokwenyani ndicinga ukuba ngaphandle kwayo, ngekhe ndibenguye ngokupheleleyo.Ngokwesiqhelo, abantu abacingi ukuba ndikwi-spectrum konke, ikakhulu kuba akusoloko kujongeka ngendlela abacinga ukuba kufanele ngayo.
Kwaye ndilungile ekutshintsheni indlela endiziphethe ngayo ndilinganisa iindlela eziqhelekileyo zokuziphatha - nokuba ziziva zingaqhelekanga kum okanye zichasene nento endiyenzayo ndifuna ukwenza okanye ukuthetha. Abantu abaninzi abane-autistic banjalo.
Ngokuhle ngokunjalo yonke into endiyenzayo xa esidlangalaleni kungekho mntu ucinga ukuba ndiyothusa. Ndiza kuhlala ndiyitshintsha indlela endiziphethe ngayo, kuba kulula ngokuhamba kwexesha. Kuba ukuba bendingenjalo, ngekhe ndibenomsebenzi okanye ubomi endinabo ngoku.
Uphononongo luka-2016 lufumanise ukuba ababhinqileyo babonakala benobuchule ngakumbi koku. Esi inokuba sesinye sezizathu zokufumana isifo se-autism okanye ufumane ukuxilongwa kamva ebomini.
Andizange ndicinge ngokukodwa ukuba ezinye zezinto endizenzayo xa phakathi kwabanye abantu zinokuthathwa njengokuzifihla. Kodwa, ngelixa ndifunda eso sifundo ngokuzifihla, ndiye ndaqonda ukuba ikhankanye izinto ezincinci endizenzayo esidlangalaleni ukuze zivele njengaye wonke umntu.
Ndiyifihla njani i-autism yam ukuze ndingene
Thina bantu be-neurodivergent sihlala sinexesha elinzima lokudibana kwamehlo. Indlela entle yokufihla oku-kwaye into endiyenza rhoqo-kukujonga phakathi amehlo omnye umntu. Ngokwesiqhelo, abaluphawuli olu tshintsho lincinci kwimbonakalo. Yonke into ibonakala "iqhelekile" kubo.
Xa ndingonwabanga kwimeko yentlalo ngenxa yengxolo eninzi kunye nezinye izinto ezikhuthazayo, umnqweno wam kukubaleka okanye ukubuyela umva ngokukhawuleza (kwaye, njengoko kujongwa ngabanye, kukrwada) kwikona ekhuselekileyo nezolileyo.
Kodwa ukunqanda ukwenza oku, ndibambe izandla zam ngokuqinileyo phambi kwam - ngokuqinileyo. Ndiyicola iminwe yesinye isandla ngesinye, ukuya kuthi ga kubuhlungu. Emva koko ndiyakwazi ukugxila kwintlungu kwaye ndicinezele umnqweno wokubaleka, ukuze ndibonwe njengokrwada.
Uninzi lwabantu lwe-neurodivergent nabo banamakhalane amancinci, amanyathelo amancinci abawenzayo kaninzi. Xa ndinovalo, ndijijisa iinwele zam, njalo ngesandla sam sasekunene phakathi komnwe wam wesibini nowesithathu. Ndihlala ndinayo. Kakhulu ndinxiba iinwele zam kwi-ponytail ende, ke ndijikeleza i-hunk yonke.
Ukuba ujikelezo luqala ukuphuma esandleni (abantu bajonge), ndizisongela iinwele zam ngebhanti ngesandla kwaye ndiyibambe apho, ndibambelele ngokwaneleyo ukuze ibe buhlungu kancinci.
Ukuphucula ekuphenduleni ngendlela abantu abayilindeleyo, ndiziqhelanisa nokuthetha ekhaya. Ndizilungiselela ukuhleka ndinqwala kwaye ndithetha izinto ezinje, "Owu nkosi yam, nyani ?!" "Hayi, khange ayenze!"Ndihlala ndiziva ndingaqhelekanga xa kufuneka ndikhuphele umtya omde weendlela zokulwa, enye emva kwenye. Ndiva olu luvo lungaqhelekanga lokuba ndingaphandle kwam kwaye ndizibukele ndizenza. Ndifuna ukusebeza endlebeni yam, ndizixelele ukuba mandithini xa ndiphendula umntu, kodwa andinakuze ndisondele ngokwaneleyo.
Iindleko zokuzenzisa esidlangalaleni
Abaphandi kolu phononongo luka-2016 bafumanise ukuba konke ukuzifihla rhoqo kuhlala kuza neendleko, njengokudinwa, ukunyuka koxinzelelo, ukunyibilika ngenxa yokugcwala ngokwasentlalweni, uxinzelelo, uxinzelelo, kunye "nefuthe elibi kuphuhliso lobuntu."
Ndifumana indawo yokugqibela inomdla. Ndicinga ukuba zonke ezinye “iindleko” zifundeka ngokufanayo nezi zilumkiso zidweliswe kumayeza amatsha nalawo angummangaliso owabona epapashwa kumabonakude (thabatha isini esincitshisiweyo).
Andicingi ukuba konke ukuzifihla kwam kube nefuthe elibi kuphuhliso lwam lwesazisi, kodwa ndiyazi ukuba uninzi lwejenali yam yokufikisa yayinento ethi, "Yonke into endandiyifuna yayikukuba yinyani."
Andizange ndicinge ukuba kutheni ndisebenzisa eli binzana rhoqo. Kodwa xa ndijonga emva, ndicinga ukuba yayiyindlela yam yokuza kwinto yokuba andifani nabahlobo bam. Ixesha elide, bendicinga ukuba bayinyani, bayinyani ngakumbi kunam.
Izazinzulu ngoku ziyazi ukuba abanye abantu abane-autistic baziva Kaninzi iimvakalelo kunabantu abaqhelekileyo. Sikho, ngeendlela ezininzi, ngakumbi ngokuthobela ama-nuances kunye namahla ndinyuka eziengqondo zalabo basingqongileyo.
Ndicinga ukuba yinyani leyo. Esinye sezakhono zam besisoloko sikwazi ukubona izinto kwiindlela ezininzi. Ndiyakwazi ukuphuma kum kwaye ndibone apho kuvela omnye umntu. Kwaye ndiyayiva indlela abavakalelwa ngayo.
Ke, ewe, ndilungile ngokutshintsha indlela endiziphethe ngayo ukuze bangabi mnandi. Ukuba bonwabile, nam ndiyayiva loo nto, emva koko bobabini sikhululekile.
Kuya kufuneka ndilumke, nangona kunjalo, kuba yonke le mvakalelo ngamanye amaxesha inokuba nzima.Kodwa ndiyazi indlela yokuyilawula. Ukuzifihla kunokudina ngamanye amaxesha kodwa, njengesingeniso, ukuhlala nje nabanye abantu ixesha elide ngaphandle kwekhefu kunokuba nzima.
Andohlukanisi nokuzifihla kwam ekuhlaleni kwam. Yinto yephakeji ethi, kum, i-neurodivergent introvert, ifuna amaxesha akwaneleyo okuba wedwa ukuze uphinde uphinde uphinde emva koko.
Oko akuthethi ukuba kukho into engalunganga ngam.
Igama endilithiye kakhulu xa lidityaniswa ne-autism "lonakele."
Andiqondi ukuba abantu abane-autistic bonakele. Ndicinga nje ukuba babona umhlaba ngokwahlukileyo kunabantu abangenayo i-autistic. Ukuba yi-atypical akuthethi ukuba sinesiphene.
Kwelo nqaku, enye yezinto ezipholileyo malunga nokuba yi-neurodivergent kukuba ndinokuhlala ndibona omnye umntu one-neurodivergent-nokuba ngumntu ozifihlayo ngokunjalo nangoburhalarhume njengam.
Andiqinisekanga ukuba yintoni le icebisa mna okanye ndibashenxisile: mhlawumbi ukuphinda-phinda into ethile, ukuxuba, ukubamba ngesandla okucacileyo. Kodwa xa kusenzeka, kuhlala kukho lo mzuzu mhle xa ndiqonda ukuba bayandazi, kwaye ndiyababona. Kwaye sijongana emehlweni (ewe, ngokwenene) kwaye sicinge, "Ewe ewe. Ndiyakubona."
UVanessa ngumbhali kunye nomkhweli webhayisikile okwiSixeko saseNew York. Ngexesha lakhe lokuzimela, usebenza njengomthungi kunye nomenzi wepateni kwifilimu nakumabonwakude.