I-Myelofibrosis: Ukuxela kwangaphambili kunye nokuLindelwa koBomi

Umxholo

• Ukulawula iintlungu ezihamba noM
• Iziphumo ebezingalindelekanga zonyango lwe-MF
• Ukuxela kwangaphambili kweMF
• Iindlela zokulwa

Yintoni i-myelofibrosis?

I-Myelofibrosis (MF) luhlobo lomhlaza womongo wethambo. Le meko ichaphazela indlela umzimba wakho ovelisa ngayo iiseli zegazi. I-MF sisifo esiqhubela phambili esichaphazela umntu ngamnye ngokwahlukileyo. Abanye abantu baya kuba neempawu ezinzima ezihamba ngokukhawuleza. Abanye banokuhlala iminyaka bengabonisi zimpawu.

Funda ukuze ufumane okungakumbi malunga neMF, kubandakanya umbono wesifo.

Ukulawula iintlungu ezihamba noM

Esinye seempawu eziqhelekileyo kunye neengxaki ze-MF zintlungu. Izizathu ziyahluka, kwaye zinokubandakanya:

• igawuthi, enokukhokelela kwithambo kunye nentlungu edibeneyo
• i-anemia, ekwabangela ukudinwa
• iziphumo ebezingalindelekanga zonyango

Ukuba unentlungu eninzi, thetha nogqirha wakho malunga namayeza okanye ezinye iindlela zokuzigcina ziphantsi kolawulo. Ukuzivocavoca ukukhanya, ukuzolula, kunye nokuphumla ngokwaneleyo kunokunceda ukulawula iintlungu.

Iziphumo ebezingalindelekanga zonyango lwe-MF

Iziphumo zonyango zixhomekeke kwizinto ezininzi ezahlukeneyo. Asinguye wonke umntu oya kuba neziphumo ebezingalindelekanga ezifanayo. Impendulo ixhomekeke kwizinto eziguqukayo njengobudala bakho, unyango, kunye nethamo lonyango. Iziphumo zakho ebezingalindelekanga zinokunxulumana nezinye iimeko zempilo onazo okanye obukhe wanazo ngaphambili.

Ezinye zeziphumo ebezingalindelekanga zonyango zibandakanya:

• isicaphucaphu
• isiyezi
• intlungu okanye ukurhawuzelela izandla neenyawo
• ukudinwa
• ukuqhawukelwa ngumphefumlo
• ifiva
• ukulahleka kweenwele okwexeshana

Iziphumo ebezingalindelekanga zihlala zihamba emva kokuba unyango lwakho lugqityiwe. Ukuba unenkxalabo malunga nemiphumo emibi okanye unenkathazo yokuyilawula, thetha nogqirha wakho ngezinye iindlela.

Ukuxela kwangaphambili kweMF

Ukuqikelela imbonakalo ye-MF kunzima kwaye kuxhomekeke kwizinto ezininzi.

Nangona inkqubo yokulinganisa isetyenziselwa ukulinganisa ubungqongqo bezinye iintlobo zomhlaza, akukho nkqubo ye-MF.

Nangona kunjalo, oogqirha nabaphandi bafumanise ezinye zezinto ezinokunceda ukuqikelela imbonakalo yomntu. Ezi zinto zisetyenziswa kwinto ebizwa ngokuba yi-IPSS) ukunceda oogqirha ukuba baqikelele iminyaka yokuphila.

Ukudibana nenye yezinto ezingezantsi kuthetha ukuba umndilili wokusinda yiminyaka esibhozo. Ukudibana kathathu okanye nangaphezulu kunokuhlisa izinga lokusinda elilindelekileyo kwiminyaka emibini. Ezi zinto zibandakanya:

• ungaphezulu kweminyaka engama-65
• ukufumana iimpawu ezichaphazela umzimba wakho uphela, njengomkhuhlane, ukudinwa, kunye nokwehla kobunzima
• ukuba neanemia, okanye ubalo lweeseli ezibomvu ezisezantsi
• ukuba nenani eliphezulu leeseli ezimhlophe zegazi ngokungaqhelekanga
• ukujikeleza kwegazi (iiseli ezimhlophe ezimhlophe) ezingaphezulu kwe-1%

Ugqirha wakho unokujonga kwakhona ukungaqheleki kofuzo kwiiseli zegazi ukukunceda ukujonga indlela ojonga ngayo.

Abantu abangahlangabezani nayo nayiphi na kwezi ndlela zingasentla, ngaphandle kweminyaka, baqwalaselwa kudidi olunomngcipheko omncinci kwaye basinda phakathi kweminyaka eli-10.

Iindlela zokulwa

MF sisifo esingapheliyo, esiguqula ubomi. Ukujamelana nokuxilongwa kunye nonyango kunokuba nzima, kodwa ugqirha wakho kunye neqela lokhathalelo lwempilo lunokunceda. Kubalulekile ukunxibelelana nabo ngokuphandle. Oku kunokukunceda uzive ukhululekile ngenkathalo oyifumanayo. Ukuba unemibuzo okanye izinto ezikuxhalabisayo, zibhale phantsi njengoko ucinga ngazo ukuze ukwazi ukuzixoxa noogqirha nabongikazi bakho.

Ukufumanisa ukuba unesifo esiqhubela phambili njenge-MF kunokubangela uxinzelelo olongezelelekileyo engqondweni nasemzimbeni wakho. Qiniseka ukuba uyazikhathalela. Ukutya ngokulungileyo kunye nokwenza umthambo omnene njengokuhamba, ukuqubha, okanye iyoga kuya kukunceda kukunike amandla. Inokukunceda ukuthatha ingqondo yakho kuxinzelelo olubandakanyekayo ekubeni ne-MF.

Khumbula ukuba kulungile ukufuna inkxaso ngexesha lohambo lwakho. Ukuthetha nosapho kunye nabahlobo bakho kunokukunceda uzive ungahlali wedwa kwaye uxhaswe ngakumbi. Iya kunceda nabahlobo bakho kunye nosapho bafunde indlela yokukuxhasa. Ukuba ufuna uncedo lwabo kwimisebenzi yemihla ngemihla efana nomsebenzi wasekhaya, ukupheka, okanye uthutho- okanye ukumamela nje kuwe - kulungile ukubuza.

Ngamanye amaxesha usenokungafuni ukwabelana ngayo yonke into nabahlobo bakho okanye usapho, kwaye kulungile. Amaqela amaninzi asekuhlaleni nakwi-intanethi anokunceda ukunxibelelana nabanye abantu abaphila neMF okanye iimeko ezifanayo. Aba bantu banokunxulumana nento ohamba kuyo kwaye banike iingcebiso kunye nenkuthazo.

Ukuba uqala ukuziva ukoyikwa sisifo, cinga ukuthetha nengcali yezempilo yengqondo efana nomcebisi okanye ugqirha wengqondo. Banokukunceda uqonde kwaye ujongane nokuchongwa kwe-MF kwinqanaba elinzulu.