Isikhokelo sabaQalayo sokuSebenzisa iKhadi laseGumbini lokulala xa unesifo sikaCrohn

Umxholo

• Uyintoni uMthetho wokuFikelela kwigumbi langasese?
• Ingaba isebenza kanjani
• Sebenzisa ikhadi lakho
• Ungathini xa ujikisiwe?

Ukuba unesifo sikaCrohn, usenokuba uqhelene neemvakalelo zoxinzelelo lokuba nokuqaqamba kwindawo kawonke-wonke. Umnqweno ngequbuliso nangokugqithileyo wokusebenzisa indlu yangasese xa ungekho ekhaya unokuba neentloni kwaye ungathandeki, ngakumbi ukuba ukwindawo ethile ngaphandle kwendlu yangasese kawonke-wonke.

Ngethamsanqa, enkosi kumthetho opasiswe kumazwe amaninzi, kukho amanyathelo onokuwathatha ukufikelela kwigumbi lokuphumla labasebenzi ngaphandle kokuchaza imeko yakho kumntu ongamaziyo. Funda ukuze ufumanise malunga nokufumana ikhadi lokugcina igumbi lokutshintsha kunokuba ngumtshintshi womdlalo xa kufikwa kumba wokuhlala neCrohn's.

Uyintoni uMthetho wokuFikelela kwigumbi langasese?

Umthetho wokuFikelela kwigumbi langasese, okwabizwa ngokuba nguMthetho ka-Ally, ufuna indawo yokuthengisa ukuze unike abathengi iCrohn's kunye nezinye iimeko zonyango ukufikelela kumagumbi abo okuphumla.

Imvelaphi yoMthetho ka-Ally ivela kwisiganeko apho umfana okwishumi elivisayo ogama lingu-Ally Bain enqatshelwe ukufikelela kwigumbi langasese kwivenkile enkulu yokuthengisa. Ngenxa yoko, wafumana ingozi esidlangalaleni. U-Bain uqhakamshele ummeli wakhe wasekhaya. Ngokudibeneyo bayile umthetho oyilwayo oxela ukuba izindlu zangasese zabasebenzi kuphela mazenziwe zifikeleleke nakubani na onengxaki yezonyango.

Umbuso waseIllinois wawupasisa ngazwinye lo mthetho usayilwayo ngo-2005. Ukusukela ngoko, ziyi-16 ezinye iindawo ezamkeleyo umthetho wazo. Amazwe anemithetho yokufikelela kwigumbi langasese ngoku ibandakanya:

• IColorado
• Unxibelelwano
• Delaware
• I-Illinois
• EKentucky
• Maine
• EMaryland
• EMassachusetts
• EMichigan
• IMinnesota
• Inew York
• IOhio
• Oregon
• ETennessee
• ETexas
• EWashington
• IWisconsin

Ingaba isebenza kanjani

Ukuthatha ithuba lomthetho ka-Ally's, kufuneka ubonise ifomu esayinwe ngumboneleli wezempilo okanye ikhadi lokuchonga elikhutshwe ngumbutho ongajonganga kwenza nzuzo. Abanye bathi-njengeWashington- benze iifom zokufikelela kwigumbi lokuphumla zifumaneke kwi-Intanethi. Ukuba awukwazi ukufumana ingxelo eprintiweyo yale fomu, ungacela ugqirha wakho ukuba akunike.

ICrohn's & Colitis Foundation ibonelela ngekhadi "kwigumbi lokuhlala" xa ulilungu. Ixabiso lobulungu lixabisa i-30 yedola kwinqanaba lesiseko. Ukuba lilungu kunezibonelelo ezongezelelweyo, njengeebhulethini zeendaba eziqhelekileyo kunye neenkonzo zenkxaso yendawo.

I-Bladder kunye ne-Bowel Community kutsha nje ikhuphe i-app yasimahla yeselfowuni ye-iOS esebenza ngendlela efanayo nekhadi lokuhlala. Ebizwa ngokuba yicwecwe elithi "Just Can't Wait", ikwabandakanya imephu enokukunceda ufumane igumbi lokuhlambela elikufutshane. Izicwangciso zokwenza uguqulelo lwe-Android okwangoku ziyasebenza.

Sebenzisa ikhadi lakho

Nje ukuba ufumane ikhadi lakho lokuhlala okanye ifomu esayiniweyo, licebo elilungileyo ukuyigcina ngaphakathi kwesipaji sakho okanye kwityala lefowuni ukuze uhlale unawe.

Ukuba ukwindawo ethile engenagumbi langasese xa kusiza i-flare-up, cela umoya ozolileyo ukuba ubone umphathi kwaye ubonise ikhadi lakho. Uninzi lwamakhadi ezindlu zangasese anolwazi oluphambili malunga neCrohn ebhaliweyo kuwo, ke akufuneki uchaze ukuba kutheni ufuna ukusebenzisa igumbi langasese.

Ukuba umntu obonisa ikhadi lakho uyakwala ukufikelela kwigumbi langasese, hlala uzolile. Uxinzelelo lokuba yinto engxamisekileyo. Ukuba abasavumi, bakhumbuze ngentlonelo ukuba banakho ukuhlawuliswa okanye bathathwe amanyathelo omthetho ukuba abathobeli.

Ungathini xa ujikisiwe?

Ukuba uhlala kwelinye lamazwe ali-17 agqunywe nguMthetho ka-Ally kwaye uyajikwa emva kokuveza ikhadi lakho lendlu yangasese, unokufaka ingxelo yokungathobeli iarhente yakho yonyanzeliso lomthetho. Isohlwayo sokungathobeli siyahluka ukusuka kurhulumente ukuya kurhulumente, kodwa isusela kwiidola ezili-100 izohlwaya iileta zokulumkisa kunye nolwaphulo mthetho.

Ukuba uhlala kwisimo ngaphandle koMthetho ka-Ally, isenokuba luncedo ukuphatha ikhadi lokugcina igumbi lakho ngawo onke amaxesha. Nangona la mashishini kungafuneki ngokusemthethweni ukuba akuvumele usebenzise igumbi langasese, ukubonisa ikhadi kunokunceda abasebenzi baqonde ukungxamiseka kwemeko yakho. Inokubakhuthaza ukuba bakunike ukufikelela kwigumbi lokuhlambela labasebenzi.

Kukwafanelekile ukunxibelelana nommeli wombuso wakho ukubuza malunga nayiphi na inkqubela phambili abayenzayo ekudluliseni umthetho oyilwayo ofana noMthetho ka-Ally. Kancinci kodwa ngokuqinisekileyo, abezomthetho kwinqanaba likarhulumente baqala ukuqaphela ukuba lingakanani ikhadi elilula elinokuphucula umgangatho wobomi kubantu abanesifo sikaCrohn.