Inkqubo yeSclerosis (Scleroderma)

Umxholo

• Imifanekiso yeSystemic Sclerosis (iScleroderma)
• Iimpawu zeSystemic Sclerosis
• Oonobangela beSystemosis Sclerosis
• Izinto zomngcipheko weScryosis esiCwangcisiweyo
• Ukuchongwa kweSystemic Sclerosis
• Unyango lweSystemic Sclerosis
• Iingxaki ezinokubakho zeSystemic Sclerosis
• Yiyiphi imbonakalo yabantu abaneSystemosis Sclerosis?

Inkqubo yeSclerosis (SS)

I-Systemic sclerosis (SS) sisifo esibuhlungu. Oku kuthetha ukuba yimeko apho amajoni omzimba ahlasela umzimba. Izicubu ezisempilweni ziyatshatyalaliswa ngenxa yokuba amajoni omzimba ngempazamo acinga ukuba yinto yasemzini okanye usulelo. Zininzi iintlobo zokuphazamiseka okuzenzekelayo okunokuchaphazela iinkqubo ezahlukeneyo zomzimba.

I-SS ibonakaliswa lutshintsho kwinkangeleko kunye nokubonakala kolusu. Oku kungenxa yokwanda kwemveliso ye-collagen. ICollagen yinxalenye yezihlunu ezinxibelelanayo.

Kodwa ukungahambi kakuhle akuphelelanga kutshintsho lolusu. Inokuchaphazela eyakho:

• ivazi yegazi
• izihlunu
• Intliziyo
• inkqubo yokwetyisa
• imiphunga
• izintso

Iimpawu ze-systemic sclerosis zinokubonakala kwezinye iingxaki zokuzimela. Xa oku kusenzeka, kubizwa ngokuba sisiphazamiso esixubeneyo.

Esi sifo sibonakala kubantu abaneminyaka engama-30 ukuya kwengama-50 ubudala, kodwa sinokufunyanwa nakweyiphi na iminyaka. Abasetyhini kunokwenzeka ngakumbi kunamadoda ukuba afunyaniswe enale meko. Iimpawu kunye nobukhali bemeko ziyahluka ukusuka komnye umntu ukuya komnye ngokusekwe kwiinkqubo kunye namalungu abandakanyekayo.

I-systemic sclerosis ikwabizwa ngokuba yi-scleroderma, i-systemic sclerosis, okanye i-CREST syndrome. “ISIQHAMO” simele:

• calcinosis
• Into kaRaynaud
• Ukungasebenzi kakuhle kwesisu
• sclerodactyly
• telangiectasia

Isifo seCREST yifom encinci yesifo.

Imifanekiso yeSystemic Sclerosis (iScleroderma)

Iimpawu zeSystemic Sclerosis

I-SS inokuchaphazela kuphela ulusu kumanqanaba okuqala esi sifo. Unokuqaphela ukuqina kolusu lwakho kunye neendawo ezimenyezelayo ezikhulayo zijikeleze umlomo, impumlo, iminwe kunye nezinye iindawo ezinamathambo.

Njengoko imeko iqhubeka, ungaqala ukuqala ukungahambeli ndawo kwiindawo ezichaphazelekayo. Ezinye iimpawu zibandakanya:

• ukulahleka kweenwele
• Iidipozithi zekhalsiyam, okanye amaqhuma amhlophe phantsi kolusu
• amancinci, athambileyo imithambo yegazi phantsi komphezulu wolusu
• intlungu edibeneyo
• ukuqhawukelwa ngumphefumlo
• ukhohlokhohlo olomileyo
• urhudo
• ukuqhina
• kunzima ukugwinya
• Reflux yokuqunjelwa
• isisu esiswini emva kokutya

Unokuqala ukufumana i-spasms yemithambo yegazi kwiminwe yakho nakwiinzwane. Emva koko, iziphelo zakho zinokujika zibe mhlophe ziluhlaza okwesibhakabhaka xa usengqeleni okanye uziva uxinzelelo lweemvakalelo olubi. Oku kubizwa ngokuba yinto kaRaynaud.

Oonobangela beSystemosis Sclerosis

I-SS yenzeka xa umzimba wakho uqala ukuvelisa ngaphezulu kwe-collagen kwaye iqokelela kwizicwili zakho. ICollagen yeyona proteni iphambili yokwakha eyenza zonke izicwili zakho.

Oogqirha abaqinisekanga ukuba yintoni ebangela ukuba umzimba uvelise i-collagen eninzi. Oyena nobangela we-SS awaziwa.

Izinto zomngcipheko weScryosis esiCwangcisiweyo

Izinto ezinobungozi ezinokunyusa amathuba akho okuphuhlisa imeko zibandakanya:

• ukuba ngumthonyama waseMelika
• ukuba ngumAfrika-waseMelika
• ukuba ngumfazi
• ukusebenzisa amayeza athile e-chemotherapy afana neBleomycin
• Ukuvezwa kuthuli lwesilika kunye nokunyibilikiswa kwezinto eziphilayo

Ayikho indlela eyaziwayo yokuthintela i-SS ngaphandle kokunciphisa umngcipheko onokuwulawula.

Ukuchongwa kweSystemic Sclerosis

Ngexesha lovavanyo lomzimba, ugqirha wakho unokuchonga utshintsho lolusu olubonisa uphawu lwe-SS.

Uxinzelelo lwegazi oluphezulu lunokubangelwa kukutshintsha kwezintso kwi-sclerosis. Ugqirha wakho unoku-odola uvavanyo lwegazi njengokuvavanywa kwe-antibody, i-rheumatoid factor, kunye nenqanaba lentlenga.

Olunye uvavanyo lokuqonda isifo lunokubandakanya:

• iX-reyi yesifuba
• Uvavanyo lokuchama
• iCT scan yemiphunga
• biopsies zolusu

Unyango lweSystemic Sclerosis

Unyango alunakunyanga imeko, kodwa lunokunceda ukunciphisa iimpawu kunye nokuhamba kancinci kwezifo. Unyango ngokuqhelekileyo lusekelwe kwiimpawu zomntu kunye nesidingo sokuthintela iingxaki.

Unyango lweempawu eziqhelekileyo zinokubandakanya:

• icorticosteroids
• ii-immunosuppressants, ezinje nge-methotrexate okanye iCytoxan
• iziyobisi ezichasayo ezingasebenziyo

Ngokuxhomekeke kwiimpawu zakho, unyango lunokubandakanya:

• uxinzelelo lwegazi amayeza
• amayeza anceda ukuphefumla
• ulungiso lwenyama
• unyango olukhanyayo, njenge-ultraviolet A1 phototherapy
• I-nitroglycerin mafutha okunyanga indawo ezixineneyo zolusu

Unokwenza utshintsho kwindlela yokuphila ukuze uhlale usempilweni nge-scleroderma, njengokuphepha ukutshaya icuba, ukuhlala usebenza, kunye nokuthintela ukutya okubangela ukutsha.

Iingxaki ezinokubakho zeSystemic Sclerosis

Abanye abantu abane-SS bafumana ukuqhubela phambili kweempawu zabo. Iingxaki zinokubandakanya:

• ukumelwa yintliziyo
• umhlaza
• ukusilela kwezintso
• igazi elonyukayo

Yiyiphi imbonakalo yabantu abaneSystemosis Sclerosis?

Unyango lwe-SS luphuculwe kakhulu kule minyaka ingama-30 idlulileyo. Nangona lungekho unyango lwe-SS, zininzi iindlela zonyango ezinokukunceda ukulawula iimpawu zakho. Thetha nogqirha wakho ukuba naziphi na iimpawu zakho zisendleleni yobomi bakho bemihla ngemihla. Bangasebenza nawe ukulungisa isicwangciso sonyango lwakho.

Kuya kufuneka ubuze ugqirha wakho akuncede ufumane amaqela enkxaso yendawo ye-SS. Ukuthetha nabanye abantu abanamava afanayo njengoko unokwenza kube lula ukujongana nemeko engapheliyo.