Uvavanyo lweSweat lweCystic Fibrosis

Umxholo

• Yintoni uvavanyo lokubila?
• Isetyenziselwa ntoni?
• Kutheni ndifuna uvavanyo lokubila?
• Kwenzeka ntoni kuvavanyo lokubila?
• Ngaba kuya kufuneka ndenze nantoni na ukulungiselela uvavanyo?
• Ngaba bukhona ubungozi kuvavanyo?
• Zithetha ntoni iziphumo?
• Ngaba ikhona enye into endifuna ukuyazi malunga nokuvavanywa kokubila?
• Izalathiso

Yintoni uvavanyo lokubila?

Uvavanyo lokubila lilinganisela inani le-chloride, inxenye yetyuwa, kwi-Sweat. Isetyenziselwa ukufumanisa i-cystic fibrosis (CF). Abantu abane-CF banezinga eliphezulu le-chloride ekubileni kwabo.

I-CF sisifo esibangela ukwakheka kwemiphunga emiphungeni nakwamanye amalungu.Yonakalisa imiphunga kwaye yenza kubenzima ukuphefumla. Inokukhokelela kukosuleleka rhoqo kunye nokungondleki. I-CF sisifo esizuzwe njengelifa, oko kuthetha ukuba sidluliselwa sivela kubazali bakho, ngemfuza.

Imfuza ngamalungu e-DNA athwala ulwazi oluchaza iimpawu zakho ezizodwa, ezinjengokuphakama nombala wamehlo. Imfuza ikwanoxanduva lweengxaki ezithile zempilo. Ukuze ube ne-cystic fibrosis, kufuneka ube ne-CF gene evela kunyoko nakuyihlo. Ukuba mnye kuphela umzali onofuzo, awuzukufumana sifo.

Amanye amagama: uvavanyo lwe-chloride ye-sweat, uvavanyo lwe-cystic fibrosis sweat, i-sweat electrolytes

Isetyenziselwa ntoni?

Uvavanyo lokubila lusetyenziselwa ukufumanisa i-cystic fibrosis.

Kutheni ndifuna uvavanyo lokubila?

Uvavanyo lokubila lunokufumanisa i-cystic fibrosis (CF) kubantu bayo yonke iminyaka, kodwa ihlala isenziwa kwiintsana. Usana lwakho lunokufuna uvavanyo lokubila ukuba luye lwavavanyelwa intsholongwane ye-CF kuvavanyo lwegazi olusandul 'ukuzalwa. E-United States, abantwana abatsha bahlala bevavanywa kwiimeko ezahlukeneyo kubandakanya neCF. Uninzi lweemvavanyo ze-sweat lwenziwa xa iintsana zineeveki ezi-2 ukuya kwezi-4 ubudala.

Umntwana okhulileyo okanye umntu omdala ongazange avavanyelwe i-CF unokufuna uvavanyo lwe-cystic fibrosis sweat ukuba umntu osapho unesi sifo kunye / okanye uneempawu ze-CF. Oku kubandakanya:

• Ulusu olunencasa enetyiwa
• Ukukhohlela rhoqo
• Izifo ezenziwa rhoqo kwimiphunga, ezinje nge-pneumonia kunye ne-bronchitis
• Ingxaki yokuphefumla
• Ukusilela ukutyeba, nokuba unomdla wokutya
• Ukuthambisa, ilindle elinamandla
• Kwiintsana ezisandul 'ukuzalwa, akukho zihlalo ezenziwe emva kokuzalwa

Kwenzeka ntoni kuvavanyo lokubila?

Umboneleli wakho wokhathalelo lwempilo uyakufuna ukuqokelela isampulu yokubila ukuze kuvavanywe. Yonke le nkqubo iya kuthatha iyure kwaye iya kubandakanya la manyathelo alandelayo:

• Umboneleli wezempilo uza kubeka i-pilocarpine, iyeza elibangela ukubila, kwindawo encinci yengalo.
• Umboneleli wakho uya kubeka i-electrode kule ndawo.
• Okwangoku buthathaka kuya kuthunyelwa nge-electrode. Le yangoku yenza ukuba iyeza lingene eluswini. Oku kunokubangela ukurhawuzelela okuncinci okanye ukufudumala.
• Emva kokususa i-electrode, umboneleli wakho uya kuthepha isiqwenga sephepha lokucoca ulwelo okanye igeyisi engalweni ukuqokelela ukubila.
• Ukubila kuya kuqokelelwa imizuzu engama-30.
• Ukubila okuqokelelweyo kuya kuthunyelwa elebhu ukuvavanywa.

Ngaba kuya kufuneka ndenze nantoni na ukulungiselela uvavanyo?

Awudingi naluphi na ulungiselelo olukhethekileyo lovavanyo lokubila, kodwa kuya kufuneka uphephe ukusebenzisa naziphi na iikhrim okanye into yokuthambisa kulusu iiyure ezingama-24 ngaphambi kwenkqubo.

Ngaba bukhona ubungozi kuvavanyo?

Akukho bungozi baziwayo kuvavanyo lokubila. Umntwana wakho unokuba nokutswina okanye ukukrakra kumbane wombane, kodwa akufuneki eve zintlungu.

Zithetha ntoni iziphumo?

Ukuba iziphumo zibonisa inqanaba eliphezulu le-chloride, kukho ithuba elihle lokuba umntwana wakho ane-cystic fibrosis. Umboneleli wakho wokhathalelo lwempilo uya kuyalela olunye uvavanyo lwesweatshi kunye / okanye nolunye uvavanyo ukuze aqinisekise okanye akhuphe isifo. Ukuba unemibuzo malunga neziphumo zomntwana wakho, thetha nomboneleli wakho wezempilo.

Funda ngakumbi malunga novavanyo lwelabhoratri, uluhlu lweereferensi, kunye neziphumo zokuqonda.

Ngaba ikhona enye into endifuna ukuyazi malunga nokuvavanywa kokubila?

Ngelixa lungekho unyango lwe-cystic fibrosis (CF), lukhona unyango olukhoyo olunceda ukunciphisa iimpawu kunye nokuphucula umgangatho wobomi. Ukuba umntwana wakho wafunyanwa ene-CF, thetha nomboneleli wakho wezempilo malunga neendlela kunye nonyango lokunceda ukulawula isifo.

Izalathiso

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2. ICystic Fibrosis Foundation [i-Intanethi]. IBethesda (MD): Isiseko seCystic Fibrosis; Malunga neCystic Fibrosis [icatshulwe ngo-2018 kuMatshi 18]; [malunga nezikrini ezi-2]. Ifumaneka kwi: https://www.cff.org/What-is-CF/About-Cystic-Fibrosis
3. ICystic Fibrosis Foundation [i-Intanethi]. IBethesda (MD): Isiseko seCystic Fibrosis; Uvavanyo lweSweat [lukhankanywe nge-2018 kaMatshi 18]; [malunga nezikrini ezi-3]. Ifumaneka kwi: https://www.cff.org/What-is-CF/Testing/Sweat-Test
4. UHinkle J, uCheever K. Brunner kunye neSuddarth's Handbook yeLebhu kunye noVavanyo lokuChonga. 2nd Ed, Kindle. IPhiladelphia: Impilo yeWolters Kluwer, uLippincott Williams kunye noWilkins; Ngowama-2014. Uvavanyo lweSweat; iphe. 473-74.
5. Amayeza kaJohn Hopkins [kwi-Intanethi]. IBaltimore: IYunivesithi yaseJohn Hopkins; ILayibrari yezeMpilo: ICystic Fibrosis [icatshulwe ngo-2018 nge-18 kaMatshi]; [malunga nezikrini ezi-3]. Ifumaneka kwi: https://www.hopkinsmedicine.org/healthlibrary/conditions/adult/respiratory_disorders/cystic_fibrosis_85,p01306
6. Uvavanyo lweLebhu kwi-Intanethi [kwi-Intanethi]. IWashington DC: Umbutho waseMelika weKlinikhi yeKhemistry; c2001–2018. ICystic Fibrosis [ihlaziyiwe ngo-2017 Okt 10; icatshulwe ngo-2018 nge-18 kaMatshi]; [malunga nezikrini ezi-2]. Ifumaneka kwi: https://labtestsonline.org/conditions/cystic-fibrosis
7. Uvavanyo lweLebhu kwi-Intanethi [kwi-Intanethi]. IWashington DC: Umbutho waseMelika weKlinikhi yeKhemistry; c2001–2018. Uvavanyo olusandul 'ukuzalwa [luhlaziywe ngo-2018 nge-18 kaMatshi; icatshulwe ngo-2018 nge-18 kaMatshi]; [malunga nezikrini ezi-2]. Ifumaneka kwi: https://labtestsonline.org/screenings/newborns
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9. Umdibaniso wencwadi yomsebenzisi yenguqulo [ye-Intanethi]. I-Kenilworth (NJ): iMerck kunye ne-Co Inc. .; c2018. ICystic Fibrosis (CF) [icatshulwe ngo-2018 nge-18 kaMatshi]; [malunga nezikrini ezi-2]. Ifumaneka kwi: https://www.merckmanuals.com/home/children-s-health-issues/cystic-fibrosis-cf/cystic-fibrosis-cf
10. Intliziyo kaZwelonke, iMiphunga, kunye neZiko leGazi [kwi-Intanethi]. I-Bethesda (MD): Isebe lezeMpilo laseMelika kunye neeNkonzo zoLuntu; ICystic Fibrosis [icatshulwe ngo-2018 nge-18 kaMatshi]; [malunga nezikrini ezi-3]. Ifumaneka kwi: https://www.nhlbi.nih.gov/health-topics/cystic-fibrosis
11. IYunivesithi yaseRochester Medical Centre [i-Intanethi]. URochester (NY): KwiYunivesithi yaseRochester Medical Centre; c2018. Health Encyclopedia: Uvavanyo lweCystic Fibrosis Sweat [icatshulwe ngo-2018 nge-18 kaMatshi]; [malunga nezikrini ezi-2]. Ifumaneka kwi: https://www.urmc.rochester.edu/encyclopedia/content.aspx?contenttypeid=167&contentid;=cystic_fibrosis_sweat
12. Ezempilo ze-UW [kwi-Intanethi]. Madison (WI): Izibhedlele zeYunivesithi yaseWisconsin kunye neGunya leKlinikhi; c2018. Ulwazi lwezeMpilo: Amanqaku ezempilo Kuwe: Uvavanyo lweSweat Test [luhlaziywe ngo-2017 ngoMeyi 11; icatshulwe ngo-2018 nge-18 kaMatshi]; [malunga nezikrini ezi-3]. Ifumaneka kwi: https://www.uwhealth.org/healthfacts/parenting/5634.html
13. Impilo ye-UW: Isibhedlele saBantwana baseMelika saseMelika [i-Intanethi]. Madison (WI): Izibhedlele zeYunivesithi yaseWisconsin kunye neGunya leKlinikhi; c2018. Impilo yaBantwana: ICystic Fibrosis [icatshulwe ngo-2018 nge-18 kaMatshi]; [malunga nezikrini ezi-5]. Ifumaneka kwi: https://www.uwhealthkids.org/kidshealth/kids/kids-health-problems/heart-lungs/cystic-fibrosis/22267.html
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Ulwazi olukule ndawo akufuneki lusetyenziswe endaweni yonyango okanye iingcebiso. Nxibelelana nomboneleli wezempilo ukuba unemibuzo malunga nempilo yakho.