Ngaba iMS iya kuba mbi? Indlela yokujongana ne-What-Ifs After Your Diagnosis

Umxholo

• Ngaba i-MS iya isiba mbi?
• Ngaba ndiza kuphulukana namandla am okuhamba?
• Ngaba kuya kufuneka ndiyeke ukusebenza?
• Ngaba ndisazokwazi ukwenza izinto endizonwabelayo?
• Ndingasabelana ngesondo?
• Ithini imbonakalo yeMS?
• Yise kude

Ushwankathelo

I-Multiple sclerosis (MS) sisifo esinganyangekiyo. Yonakalisa i-myelin, into ekhuselekileyo enamafutha esonga iiseli zemithambo-luvo. Xa iiseli zakho zemithambo-luvo, okanye ii-axon, zivelisiwe kumonakalo, unokufumana iimpawu.

Iimpawu eziqhelekileyo ze-MS ziquka:

• ubunzima ngokulingana kunye nokulungelelanisa
• ukungaboni kakuhle
• ukungakwazi ukuthetha
• ukudinwa
• intlungu kunye nokugungqa
• ukuqina kwemisipha

Njengomphumo womonakalo, iimpembelelo zombane zomzimba wakho azinako ukuhamba ngokulula kwimithambo ebonakalayo njengokuba zinokwenzeka ngeemithambo ezikhuselweyo. Iimpawu zakho ze-MS zinokuba mandundu ngokuhamba kwexesha njengoko umonakalo usiba mandundu.

Ukuba usandula ukufumana uxilongo lwe-MS, unokuba nemibuzo malunga nekamva elikuphathele lona kunye nosapho. Ukujonga ukuba uthini ukuba iimeko zobomi nge-MS zinokukunceda ekulungiseleleni izinto ezizayo kwaye ucwangcise utshintsho olunokubakho.

Ngaba i-MS iya isiba mbi?

I-MS sisifo esiqhubela phambili. Uhlobo oluqhelekileyo lwe-MS lubuyela kwakhona kwi-MS. Ngolu hlobo, unokufumana ixesha lokunyuka kweempawu, ezaziwa njengokuphinda ubuye. Emva koko, uya kuba namaxesha okubuyisela okubizwa ngokuba ukuxolelwa.

I-MS ayiqikeleleki, nangona kunjalo. Ireyithi apho i-MS iqhubela phambili okanye iqhubeka khona yahlukile kuye wonke umntu. Zama ukungazithelekisi kunye namava akho komnye umntu. Uluhlu lweempawu ezinokubakho ze-MS lide, kodwa akunakulindeleka ukuba uzive zonke.

Indlela yokuphila esempilweni, kubandakanya ukutya okunesondlo, ukuzilolonga rhoqo, kunye nokuphumla ngokwaneleyo, kunokunceda ukucothisa ukuqhubela phambili kwe-MS. Ukunyamekela umzimba wakho kunokunceda ukwandisa ixesha lokuxolelwa kwaye wenze amaxesha okubuyela kwakhona kube lula ukuwaphatha.

Ngaba ndiza kuphulukana namandla am okuhamba?

Asinguye wonke umntu one-MS oza kuphulukana namandla abo okuhamba. Ngapha koko, isibini kwisithathu sabantu abane-MS basakwazi ukuhamba. Kodwa unokufuna induku, iintonga, okanye ukuhambahamba ukukunceda ugcine ulungelelwano xa ushukuma okanye unika ukuphumla xa udiniwe.

Ngexesha elithile, iimpawu ze-MS zingakhokelela kunye neqela lakho labanikezeli bezempilo ukuba baqwalasele isitulo esinamavili okanye esinye isixhobo soncedo. Ezi zinto zokunceda zinokukunceda ujikeleze ngokukhuselekileyo ngaphandle kokukhathazeka ngokuwa okanye ukuzenzakalisa.

Ngaba kuya kufuneka ndiyeke ukusebenza?

Unokujamelana nemiceli mngeni emitsha emsebenzini ngenxa ye-MS kunye nefuthe elinokuba nalo emzimbeni wakho. Le mingeni inokuba yeyethutyana, njengaxa ubuyela umva. Banokuhlala ngokusisigxina njengoko isifo siqhubeka kwaye ukuba iimpawu zakho azihambi.

Nokuba uya kuba nakho ukuqhubeka usebenza emva koxilongo kuxhomekeke kwizinto ezimbalwa. Oku kubandakanya impilo yakho iyonke, ubukhali beempawu zakho, kwaye luhlobo luni lomsebenzi owenzayo. Kodwa abantu abaninzi abane-MS bayakwazi ukuqhubeka nokusebenza ngaphandle kokutshintsha ikhondo lomsebenzi wabo okanye ukutshintsha imisebenzi.

Unokufuna ukuqaphela ukusebenza kunye nonyango olusebenzayo njengoko ubuyela emsebenzini. Ezi ngcali zinokukunceda ufunde izicwangciso zokujongana neempawu okanye iingxaki ngenxa yomsebenzi wakho. Banokuqinisekisa ukuba usenakho ukwenza imisebenzi yomsebenzi wakho.

Ngaba ndisazokwazi ukwenza izinto endizonwabelayo?

Ukuxilongwa kwe-MS akuthethi ukuba kufuneka uphile ubomi bokuhlala phantsi. Oogqirha abaninzi bakhuthaza izigulana zabo ukuba zihlale zikhuthele. Ngapha koko, ezinye izifundo zibonise ukuba abantu abane-MS abalandela inkqubo yokuzilolonga banokuphucula umgangatho wabo wobomi kunye nokukwazi ukusebenza.

Kusenokufuneka wenze uhlengahlengiso kwimisebenzi yakho. Oku kuyinyani ngakumbi ngexesha lokuphinda ubuye. Isixhobo soncedo, esifana nentonga okanye iintonga, kunokuba yimfuneko ukukunceda ugcine ulungelelwano.

Musa ukunikezela kwizinto ozithandayo. Ukuhlala usebenza kunokukunceda ugcine umbono oqinisekileyo kwaye uphephe uxinzelelo olungaphaya, unxunguphalo, okanye uxinzelelo.

Ndingasabelana ngesondo?

Ukwabelana ngesondo kunokuba kude nengqondo yakho emva kokuxilongwa kwe-MS. Kodwa ngaxa lithile, unokuzibuza ukuba esi sifo sichaphazela njani ukukwazi kwakho ukusondelelana neqabane.

I-MS inokuchaphazela impendulo yakho yesondo kunye nokuqhuba ngokwesondo ngeendlela ezininzi. Unokufumana i-libido esezantsi. Abasetyhini banokuthi banciphise ukuthambisa komzimba kwilungu lobufazi kwaye bangabinakho ukufikelela kwi-orgasm. Amadoda anokuba nomzabalazo wokufezekisa ulwakhiwo okanye afumane ukunyuka kunzima okanye kungenzeki. Ezinye iimpawu ze-MS, kubandakanya notshintsho lweemvakalelo, zinokwenza ukuba isini singakhululeki okanye singathandeki.

Nangona kunjalo, usenakho ukunxibelelana nomntu omthandayo ngeendlela ezinentsingiselo- nokuba kungonxibelelwano ngokwasemzimbeni nangokweemvakalelo.

Ithini imbonakalo yeMS?

Iziphumo ze-MS ziyahluka kakhulu kumntu kumntu. Into ohlangabezana nayo inokwahluka kunaleyo yomnye umntu amava, ke ikamva lakho nge-MS alinakuba nakho ukuqikelela.

Ngexesha elingaphezulu, kunokwenzeka ukuba isifo sakho esithile se-MS sinokukhokelela ekwehleni ngokuthe ngcembe kokusebenza. Kodwa akukho ndlela icacileyo ukuba uya kufika nini okanye nini.

Ngelixa lungekho unyango lwe-MS, ugqirha wakho uya kuthi akunike amayeza ukunciphisa iimpawu zakho kunye nokulibazisa ukuqhubela phambili. Zininzi iindlela zonyango ezitsha kwiminyaka yakutshanje ezivelisa iziphumo ezithembisayo. Ukuqala unyango kwangoko kunokunceda ukuthintela ukonakala kwemithambo-luvo, okunokucothisa ukukhula kweempawu ezintsha.

Unokukunceda ukunciphisa isantya sokukhubazeka ngokugcina indlela yokuphila esempilweni. Yenza umthambo rhoqo kwaye utye ukutya okusempilweni ukukhathalela umzimba wakho. Kulumkele ukutshaya nokusela utywala. Ukunyamekela umzimba wakho ngokusemandleni akho kunokukunceda uhlale usebenza kwaye unciphise iimpawu zakho ngokude kunokwenzeka.

Yise kude

Ukulandela ukuxilongwa kwe-MS, unokuba nemibuzo emininzi malunga nekamva lakho. Ngelixa ikhosi ye-MS kunokuba nzima ukuyichaza, ungathatha amanyathelo ngoku ukunciphisa iimpawu zakho kunye nokuhamba kancinci kwesi sifo. Ukufunda okuninzi malunga nokuxilongwa, ukufumana unyango kwangoko, kunye nokwenza utshintsho kwindlela yokuphila kunokukunceda ulawule i-MS yakho ngokufanelekileyo.