Kutheni amawakawaka abaBelana ngeeNgxowa zabo zeOstomy kumajelo eendaba ezentlalo

Umxholo

• Ukuxhatshazwa kwakukubi kangangokuba kwibanga lesibini, ndafaka iziphumo zam ze-scoliosis
• Oku kuyinyani uninzi lwabantwana kunye nolutsha olukhubazekileyo oluhlala nalo
• Ukuba yinxalenye yoluntu ekuqondayo into ohamba kuyo kunokuba lutshintsho olunamandla ngokumangalisayo

Kukuzukiswa kweeBhulorho ezisixhenxe, inkwenkwana eyasweleka ngokuzibulala.

"Uyaxakwa!"

"Yintoni engalunganga ngawe?"

"Awuqhelekanga."

Zonke ezi zizinto abantwana abakhubazekileyo abanokuziva esikolweni nakwibala lokudlala. Ngokophando, abantwana abakhubazekileyo babephindwe kabini okanye kathathu amathuba okuxhatshazwa kunontanga babo.

Xa ndandikwisikolo samabanga aphantsi, ndandixhatshazwa mihla le ngenxa yokuba ndikhubazekile ngokomzimba nangokufunda. Kwakunzima ukuhla ndinyuka izinyuko, ndibamba izinto zokubhala okanye iipensile, kwaye ndineengxaki ezinzima ngokulingana kunye nokulungelelanisa.

Ukuxhatshazwa kwakukubi kangangokuba kwibanga lesibini, ndafaka iziphumo zam ze-scoliosis

Bendingafuni ukunxiba umva ngasemva kwaye ndiphathwe kakubi nangakumbi ngoogxa endifunda nabo, ndiye ndema nkqo kunendlela endime ngayo kwaye andizange ndixelele abazali bam ukuba ugqirha ucebisa ukuba sigcine iso.

Njengam, iibhulorho ezisixhenxe, inkwenkwana eneminyaka elishumi ubudala yaseKentucky, wayengomnye wabantwana abaninzi abaphathwa kakubi ngenxa yokukhubazeka kwakhe. Isixhenxe sasinesifo esinganyangekiyo samathumbu kunye necolostomy. Wayesoloko exhatshazwa. Umama wakhe uthi wagezelwa ebhasini ngenxa yevumba elivela kwimeko yamathumbu.

Ngomhla kaJan 19, abasixhenxe babhubha ngokuzibulala.

Ngokophando olulinganiselweyo olukhoyo ngesihloko, izinga lokuzibulala phakathi kwabantu abaneentlobo ezithile zokukhubazeka liphezulu kakhulu kunabantu abangenakukhubazeka. Abantu abakhubazekileyo abasweleka ngokuzibulala kunokwenzeka ukuba benze njalo ngenxa yemiyalezo yentlalo esiyifumana eluntwini malunga nokukhubazeka.

Kukho unxibelelwano olomeleleyo phakathi kokuxhatshazwa nokuziva uzibulala kunye neminye imiba yezempilo yengqondo.

Kungekudala emva kokubhubha kukaSixhenxe, umsebenzisi we-Instagram ogama linguStephanie (ohamba ngo @lapetitechronie) waqala i-hashtag #bagsoutforSeven. UStephanie unesifo sikaCrohn kunye neileostomy esisigxina, awabelana ngayo ngomfanekiso kwi-Instagram.

I-ostomy kukuvula esiswini, okunokuhlala ngokusisigxina okanye okwethutyana (kwaye kwimeko yesiXhenxe, yayiyeyexeshana). I-ostomy iqhotyoshelwe kwi-stoma, ukuphela kwethumbu elithungelwe kwi-ostomy ukuvumela inkunkuma ukuba ishiye umzimba, kunye nengxowa ebambelela ukuqokelela inkunkuma.

UStephanie wabelana naye kuba wayekhumbula ihlazo kunye noloyiko awayehlala nalo, efumene i-colostomy eneminyaka eyi-14. Ngelo xesha, wayengazi omnye umntu ngeCrohn's okanye i-ostomy. Wayesoyika ukuba abanye abantu bazokufumanisa kwaye bamngcungcuthekise okanye bamkhethe ngokungafaniyo.

Oku kuyinyani uninzi lwabantwana kunye nolutsha olukhubazekileyo oluhlala nalo

Sibonwa njengabantu bangaphandle size sihlekise ngokungapheziyo kwaye sahlukaniswa ngoontanga bethu. NjengoStephanie, ndandingazi mntu ngaphandle kosapho lwam okhubazekileyo de ndakwibanga lesithathu, xa ndafakwa kwiklasi yemfundo ekhethekileyo.

Ngelo xesha, andikhange ndisebenzise noncedo lokuhambisa, kwaye ndinokucinga ukuba ndingaziva ndedwa ngakumbi ukuba ndisebenzisa induku xa ndandisemncinci, njengokuba ndisenza ngoku. Kwakungekho mntu wasebenzisa uncedo lokuhambisa imeko esisigxina kumabanga aphantsi, aphakathi, okanye aphezulu.

Ukusukela oko uStephanie waqala i-hashtag, abanye abantu abane-ostomies babelana ngezabo iifoto. Kwaye njengomntu okhubazekileyo, ukubona abameli bevuleka kwaye bekhokela indlela yolutsha kundinika ithemba lokuba ulutsha oluninzi olukhubazekileyo lunokuziva luxhaswa- kwaye abantwana abanjengoSixhenxe akufuneki basokole bodwa.

Ukuba yinxalenye yoluntu ekuqondayo into ohamba kuyo kunokuba lutshintsho olunamandla ngokumangalisayo

Kubantu abakhubazekileyo kunye nezigulo ezinganyangekiyo, lutshintsho olushiya iintloni kwaye luye kwikratshi lokukhubazeka.

Kum, yayinguKeah Brown #DisabledAndCute eyanceda ukuhlengahlengisa ukucinga kwam. Ndandidla ngokufihla intonga yam kwimifanekiso; ngoku, Ndinebhongo ngokuqinisekisa ukuba iyabonwa.

Bendi yinxalenye yoluntu olukhubazekileyo phambi kwe hashtag, kodwa kokukhona ndiye ndafunda malunga noluntu olukhubazekileyo, inkcubeko, kunye neqhayiya- kwaye ndabona abantu abakhubazekileyo abavela kuzo zonke iinkalo zobomi besabelana ngamava abo ngovuyo- kokukhona ndiya ' Ndikwazile ukubona isazisi sam esikhubazekileyo njengokufaneleyo ukubhiyozela, njengobuchwephesha besazisi sam.

I-hashtag enje nge #bagsoutforSeven inamandla okufikelela abanye abantwana abanjengeeBhulorho ezisixhenxe kwaye ibabonise ukuba ababodwa, ukuba ubomi babo kufanelekile ukuba buphile, kwaye nokuba nesiphene asiyonto onokuba neentloni ngayo.

Ngapha koko, inokuba ngumthombo wovuyo, ikratshi kunye nonxibelelwano.

UAlaina Leary ungumhleli, umphathi weendaba zosasazo kunye nombhali waseBoston, eMassachusetts. Okwangoku ungumhleli oncedisayo we-Equally Wed Magazine kunye nomhleli weendaba zosasazo ezingenzi-nzuzo Sifuna Iincwadi Ezahlukeneyo.