Unyaka wam weChemo: Ukusuka ekulahlekelweni ziinwele zam ukuya ekubethweni komhlaza

Umxholo

• Idayari yeCheyann chemo
• Nge-3 ka-Agasti ka-2016
• Nge-23 ka-Agasti ka-2016
• NgoSeptemba 22, 2016
• NgoNovemba 5, 2016
• NgoJanuwari 12, 2017
• Ngomhla wamashumi amabini anesibini ku-Matshi 2017
• NgoNovemba 3, 2017
• Epreli 5, 2018

Ndabelana ngedayari yam ye-chemo yobuqu ukuze ndincede abantu bafumane unyango. Ndithetha ngeempembelelo ze-Doxil kunye ne-Avastin, ibhegi yam ye-ileostomy, ukulahleka kweenwele kunye nokudinwa.

Impilo kunye nokuphila kakuhle kuchaphazela ngamnye wethu ngokwahlukileyo. Eli libali lomntu omnye.

“Unomhlaza.” Akukho mntu wakhe wafuna ukuva loo mazwi. Ngokukodwa xa uneminyaka engama-23.

Kodwa yiloo nto ugqirha wam andixelele yona xa ndafumana isifo somhlaza kwinqanaba lesithathu le-ovari. Kuya kufuneka ndiqale unyango lwe-chemotherapy ngoko nangoko kwaye ndifumane unyango kanye ngeveki, veki nganye.

Andizange ndiyazi nantoni na malunga ne-chemo xa ndifumene ukuxilongwa.

Njengoko ndandisondela kumjikelo wam wokuqala we-chemo - malunga neeveki ezimbini emva kokuba ndifumene isifo - ndaqala ukuva amabali othusayo ngabantu abagula kakhulu kunyango lwabo. Kuqala ukuseta kuloo chemo kunokuba nzima ngokwenene emzimbeni wakho.

Ukuthi bendisoyika kungayinto encinci. Ndicinga malunga nayo yonke imvakalelo endibethileyo kwiveki yokujikeleza kwam kokuqala kwe-chemo.

Ndikhumbula ndingena kwiziko lokungeniswa kunyango lwam lokuqala kwaye ndiziva ndixhalabile kakhulu. Ndothuswa kukuba ngequbuliso ndizive ndinxunguphele, kuba kuyo yonke imoto xa ndikhwela ukuya e chemo, ndaziva ndithembekile kwaye ndomelele. Kodwa ngomzuzu iinyawo zam zibetha i-pavement, olo loyiko kunye noxinzelelo lwahlamba kum.

Ngexesha lokujikeleza kwam kwe-chemo, ndagcina ijenali yokujonga indlela endiziva ngayo kunye nendlela umzimba wam ophatha ngayo yonke into.

Nangona wonke umntu efumana i-chemo ngokwahlukileyo, ndiyathemba ukuba oku kungenayo kukunceda uzive uxhaswa njengoko usilwa nomhlaza.

Idayari yeCheyann chemo

Nge-3 ka-Agasti ka-2016

Ndafunyaniswa ndinomhlaza wesibeleko se-3. Andiyikholelwa le nto! Ndinomhlaza njani emhlabeni? Ndiphilile kwaye ndinama-23 kuphela!

Ndiyoyika, kodwa ndiyazi ukuba ndiza kuphila. Ndavakalelwa kukuba olu xolo lundihlamba xa i-OB-GYN yam indixelela iindaba. Ndiyoyika, kodwa ndiyazi ukuba ndiza kuyigqitha le nto, kuba lolona khetho ndinalo.

Nge-23 ka-Agasti ka-2016

Namhlanje ibingumjikelo wam wokuqala we chemo. Kwakuyimini ende kakhulu, ngoko ndidiniwe. Umzimba wam udiniwe ngokwasemzimbeni, kodwa ingqondo yam iphaphile. Umongikazi uthe kungenxa ye-steroid abandinika yona ngaphambi kwe-chemo… Ndiyaqonda ukuba ndingavuka iiyure ezingama-72. Oku kufanele ukuba kunomdla.

Ndiya kuvuma ukuba ndandiyingozi ngaphambi kwe-chemo. Andizange ndiyazi into endiyilindeleyo. Kuyo yonke into endiyaziyo, bendiya kuhlala kwindawo ekhangeleka ngathi sisiphekepheke kwaye ndiza kukhutshwa ndiphume ndihlaziyeke. Bendicinga ukuba izokwenzakalisa okanye itshise.

Xa ndahlala phantsi kwisitulo se-chemo (esasingesosiphekepheke), ngoko nangoko ndaqala ukukhala. Ndandisoyika kakhulu, ndandisoyika, ndinomsindo, kwaye ndandingayeki ukungcangcazela.

Umongikazi wam waqinisekisa ukuba ndilungile emva koko ndaphuma ndaya kulungiselela uKaleb, umyeni wam. Sasingenalo nofifi lokuba angaba kunye nam ngexesha lokufakwa. Nje ukuba abuyele apho kunye nam, ndandilungile.

Ndiyakholelwa ukuba unyango luhlale malunga neeyure ezisixhenxe. Bathe kuyakuba kuphela kube kanye ngenyanga, xa ndifumana amayeza e-chemo aphindwe kabini.

Ngokubanzi, usuku lwam lokuqala lwe-chemo lwalunendlela eyoyikisayo kunokuba bendicinga. Andikabinazo naziphi na iziphumo ebezingalindelekanga ngaphandle kokuba ndidiniwe, kodwa kuyacaca ukuba ndiza kuqala ukubona iziphumo ebezingalunganga ezivela kumachiza malunga neeveki ezimbini nangaphezulu.

NgoSeptemba 22, 2016

NdiseSeattle ngoku kwaye ndiza kuhlala apha de lo mhlaza uphele. Usapho lwam lwalucinga ukuba kungangcono ukuba ndiza apha ukufumana umbono wesibini kunye nokunceda mna noKaleb ngelixa sihamba ngale nto.

Ndidibene nogqirha wam omtsha namhlanje, kwaye ndiyamthanda kakhulu! Akandenzi ndizive ngathi sesinye isigulana, kodwa njengelungu losapho. Ndiyaqala ukukhohlisa apha, kodwa saxelelwa ukuba uhlobo lomhlaza endilwelayo lusezingeni eliphantsi le-serous ovarian, enqabileyo kubudala bam. Ngelishwa, iyamelana ne-chemo.

Akazange athi ayinyangeki, kodwa kunokuba nzima kakhulu.

Sele ndiphulukene nokubala kwenani lonyango lwe-chemo endilifumeneyo, kodwa ngethamsanqa ukuphela kwempembelelo endinayo kukulahleka kweenwele.

Ndacheba intloko yam kwiiveki ezimbalwa ezidlulileyo, kwaye eneneni luhlobo oluhle lokuba nenkqayi. Ngoku akufuneki ndenze iinwele zam ngalo lonke ixesha!

Ndisaziva ngathi ndim, nangona ndilahla ubunzima be-chemo, obusondayo. Kodwa kunokuba kubi kakhulu, kwaye ndiyabulela ukuba iinwele kunye nokwehla kobunzima ziziphumo ebezingalindelekanga endizifumanayo ukuza kuthi ga ngoku.

NgoNovemba 5, 2016

Zimalunga neentsuku ezintlanu emva kotyando olukhulu lokulungisa umhlaza ebendinalo ngeHalloween. Ndibuhlungu kakhulu.

Kubuhlungu ukukhohlela, kubuhlungu nokuhamba, kubuhlungu nokuphefumla ngamanye amaxesha.

Ugqirha bekufuneka luhlale iiyure ezintlanu, kodwa ndiyakholelwa ukuba luphele iiyure ezi-6 1/2. Ndafakwa isisu ngokupheleleyo, ndathanjiswa, ndathanjiswa, ndaza ndasuswa amathumba amahlanu. Ithumba elinye lalilingana nebhola yaselwandle kunye nobunzima beepawundi ezi-5.

Inxalenye yekholon yam yayisuswe, eyabangela ukuba kubekwe ibhegi yeleostomy yethutyana.

Kusenzima ukujonga le nto. Ingxowa ibamba ukuvulwa esiswini sam, esibizwa ngokuba yi-stoma, leyo yindlela endiza kuphinda ndibethe okwethutyana ngayo. Oku kuyaphambana kwaye kupholile ngaxeshanye. Umzimba womntu yinto yasendle!

Ndizokhe ndishiye chemo malunga neenyanga ezimbini ukuze umzimba wam uphinde uphinde uphile kunyango.

Ugqirha wam ulahle iindaba ezoyikisayo. Wayekwazi ukuwukhupha wonke umhlaza awubonayo ngexesha lotyando, kodwa ii-lymph node kunye ne-spleen yam zazinomhlaza kuzo, kwaye akaqinisekanga nokuba ziya kunyanga na.

Ndithathwa njengenqanaba lesi-4 ngoku. Kwakunzima ukuva.

Kodwa loo mvakalelo ifudumeleyo ihlanjiwe phezu kwam kwakhona, kwaye into elandelayo bendiyazi, ndiyancuma kugqirha wam ndathi kuye "ndiza kuphila, jonga nje."

Ewe ndiyoyika, kodwa andizukuvumela ukuba ukungakhathali kugcwalise ingqondo yam. Lo mhlaza unokubethwa kwaye uya kubethwa!

NgoJanuwari 12, 2017

Andikholelwa ukuba sele ingu-2017! Ndiqale idosi entsha ye-chemo namhlanje, eyi-Doxil-Avastin. I-Doxil kuyacaca ukuba yaziwa ngokuba "ngumtyholi obomvu" kwaye inzima kakhulu.

Le Doxil ayisiqhuli! Andikwazi ukuzilolonga iintsuku ezintlanu, kufuneka ndithathe iishawari ezidikidiki, ndisebenzise amanzi adikidiki kuyo yonke into, ndinxibe iimpahla ezikulungeleyo, kwaye ndingenako ukuba shushu kakhulu, ngapha koko ndinokufumana isifo sesandla neenyawo, apho izandla zakho iinyawo ziqala ukuba blister kunye nexolo. Ngokuqinisekileyo yinto endiya kuzama ukuyiphepha!

Uhlaziyo: Kungo-1 kusasa kusasa. Ndiphaphile ngenxa ye-steroid, kodwa ukuza kuthi ga ngoku akukho nto iziva yahlukile kwimijikelo yokugqibela ye-chemo.

Ndiqaphele ukuba ukusela iti eluhlaza eshushu phambi kokulala kuyandinceda ndilale… iiyure ezimbalwa. Ndingafumana mhlawumbi iiyure ezine zokulala ngaphambi kokuba ndivuke kwakhona, okungcono kunokungalali, njengangaphambili. Iti eluhlaza eshushu yokuphumelela!

Ngomhla wamashumi amabini anesibini ku-Matshi 2017

Ndisuse nje ibhegi yam ye-ileostomy! Andikholelwa ukuba ekugqibeleni ihambile. Bekulungile ukuba uphinde ukhuphe i-chemo kwakhona.

Ngaphambi kotyando ngalunye, ugqirha wam undisusa kwi-chemo malunga nenyanga ngaphambi koko andigcine kwi-chemo malunga neenyanga ezimbini emva koko.

I-Doxil kuphela kwendlela ye-chemo endibe nefuthe layo ngaphandle kwelahleko leenwele eziqhelekileyo, ukwehla kobunzima, kunye nokudinwa. Andizukufumana i-blisters ezandleni okanye ezinyaweni, kodwa ndiza kufumana i-blisters ngolwimi lwam! Ngokukodwa ukuba ndatya ukutya okuneasidi eninzi kubo, njengeziqhamo. Amadyungudyungu ayembi kakhulu okokuqala ukuba andinakukwazi ukutya okanye ukuthetha kangangeentsuku ezintlanu.

Amazinyo am angawatshisa amadyungudyungu ukuba angawachukumisa. Kwakubuhlungu. Ugqirha wam wandinika umlingo wokuhlamba umlomo owawugqabaza umlomo wam wonke kwaye wanceda kakhulu.

Ugqirha wam kwaye ndafumana isicwangciso somdlalo omtsha kunye. Ndizakufumana i-scan kwiinyanga ezimbalwa ukuze ndibone ukuba unyango lwe-Doxil-Avastin luyasebenza na.

NgoNovemba 3, 2017

Ndifumene umnxeba nje. NdinePET scan ngenye imini, kwaye ugqirha wam wandibiza nje ngeziphumo. Akukho bungqina besifo!

Akukho kwanto ikhanyise kwiskena, nditsho nkqu ii-lymph node zam! Ndibe novalo kwiintsuku ezimbalwa ezidlulileyo ndilinde le fowuni, kunye neentsuku ezikhokelela kwiskeni sam, bendiyingxaki yovalo!

Ugqirha wam ufuna ukundigcina e-Avastin, eluhlobo lwe-chemo yesondlo, kwaye andisuse ku-Doxil, kuba akacingi ukuba iDoxil indenzela nantoni na. Elona candelo lililo kukuba unyango lwe-Avastin luhlala kuphela kwimizuzu engama-30 rhoqo kwiiveki ezintathu.

Ndithatha i-letrozole, eyifom yomlomo ye-chemo, kwaye ugqirha wam undifuna kuloo nto ubomi bam bonke.

Epreli 5, 2018

Ndilahlekile ukubala ukuba zingaphi imijikelo ye-chemo endiyifumeneyo. Ivakala ngathi ijikeleze i-500, kodwa inokuba iyabaxa.

Ndineendaba ezintle namhlanje. Ndacinga ukuba ndiza kuba seAvastin ubomi bam bonke, kodwa kujongeka ngathi nge-27 ka-Epreli 2018 iya kuba ngumjikelo wam wokugqibela we-chemo !! Andizange ndicinge ukuba olu suku luza kufika!

Ndonganyelwe ziimvakalelo ezininzi ezimangalisayo. Andikwazi ukuyeka ukukhala - iinyembezi ezivuyayo, kunjalo. Ndivakalelwa kukuba umthwalo omkhulu ususwe emagxeni am. I-27 ka-Epreli ayinakufika ngokukhawuleza ngokwaneleyo!

Ukujonga emva kwaye ndizibone ndihleli kweso sihlalo se-chemo okokuqala kwi-2016 kwaye ndicinga ngokuhlala kweso sihlalo se-chemo okokugqibela nge-27 kubuyisa iimvakalelo ezininzi kunye neenyembezi ezininzi.

Andizange ndibazi ukuba bomelele kangakanani de umzimba wam watyhalelwa kwimida yawo. Andizange ndiyazi indlela endomelele ngayo ngengqondo, de ingqondo yam yatyhalelwa phambili kunokuba bendicinga ukuba inokutyhalwa.

Ndifundile ukuba usuku ngalunye alusoloko luza kuba lolona suku lwakho lubalaseleyo, kodwa ungasoloko uguqula olona suku lwakho lubi lube lusuku oluhle ngokuguqula nje isimo sakho sengqondo.

Ndiyakholelwa ukuba isimo sam sengqondo esihle, hayi kuphela ngexesha lomhlaza, kodwa ngexesha lonyango lwam lwe-chemo, lindincedile ukuphatha ubomi bemihla ngemihla, nokuba zinzima kangakanani izinto.

Isekwe eSeattle, eWashington, uCheyann yimpembelelo kwimidiya yoluntu kunye nomyili weakhawunti eyaziwayo ye-Instagram @iamfanlalisa kunye nejelo le-YouTube UCheyann Shaw. Kwiminyaka engama-23, wafunyaniswa enesifo somhlaza webakala esisezantsi kwinqanaba lesi-4, kwaye waguqula amaziko akhe eendaba ezentlalo aba ngumjelo wamandla, ukuxhotyiswa kunye nokuzithanda. UCheyann ngoku uneminyaka engama-25, kwaye abukho ubungqina besifo. UCheyann ubonise umhlaba ukuba nokuba ujongene nasiphi na isaqhwithi, unako kwaye uza kudlula kuso.