Yintoni ongayilindela xa umntwana wakho eqala unyango lwe-MS

Umxholo

• Uqwalaselo lonyango
• Ukuphuculwa okunokubakho
• Iziphumo ebezingalindelekanga ezinokubakho
• Ukwamkeleka, ukunceda, kunye neendleko
• Uvavanyo lokulandelela
• Ukuthatha

Xa umntwana wakho eqala unyango olutsha lwe-multiple sclerosis (MS), kubalulekile ukugcina amehlo akho ejonge iimpawu zotshintsho kwimeko yabo.

Emva kokuqala unyango olutsha, umntwana wakho unokufumana ukuphuculwa kwempilo yomzimba okanye yengqondo. Banokuvelisa iziphumo ebezingalindelekanga kunyango.

Thatha umzuzwana ufunde ukuba ukuqala kwonyango olutsha kunokuluchaphazela njani umntwana wakho.

Uqwalaselo lonyango

Unyango oluninzi lokuguqula izifo (i-DMTs) luye lwenziwa ukunciphisa inkqubela phambili ye-MS.

Ukuza kuthi ga ngoku, uLawulo lwezoKutya kunye noLawulo lweziyobisi (i-FDA) luvumile kuphela olunye lonyango ukuba lusetyenziswe kubantwana abaneminyaka eli-10 nangaphezulu- kwaye ayamkelwanga ukuba isetyenziswe kubantwana abangaphantsi kwe-10.

Nangona kunjalo, oogqirha banokumisela i-DMTs kubantwana abancinci abane-MS. Lo mkhuba waziwa ngokuba "kukusetyenziswa kwelebheli".

Ababoneleli ngezempilo bomntwana wakho banokumisela ezinye iindlela zonyango lwe-MS, kubandakanya enye okanye ezingaphezulu kwezi zilandelayo:

• amanye amayeza okukhulula iimpawu ezibonakalayo ze-MS
• unyango lokubuyisela kwimeko yesiqhelo ukuxhasa ukusebenza komzimba okanye kwengqondo yomntwana wakho
• ukusebenzisa izixhobo zokuhamba okanye ezinye izixhobo zokunceda umntwana wakho enze imisebenzi yesiqhelo
• iinkqubo zokukhuthaza imithambo-luvo okanye uqhaqho ukunyanga iingxaki zesinyi
• iingcebiso ngokwengqondo ukuxhasa impilo yengqondo yomntwana wakho
• utshintsho kwindlela yokuphila

Ukuba imeko yomntwana wakho iyatshintsha nangayiphi na indlela, yazisa amalungu eqela labo lezempilo.

Ukulawula iimpawu ezintsha okanye ezimbi, ababoneleli babo bezempilo banokucebisa utshintsho kwisicwangciso sabo sonyango. Iqela labo lezempilo lisenokucebisa ngotshintsho ukuba unyango olutsha luyafumaneka, okanye uphando olutsha lushicilelwe kukhuseleko okanye ekusebenzeni konyango esele lukhona.

Ukuphuculwa okunokubakho

Emva kokuqala unyango olutsha lwe-MS, umntwana wakho unokufumana ukuphuculwa kwempilo yomzimba okanye yengqondo nokusebenza.

Izibonelelo ezinokubakho ziyahluka kuhlobo olunye lonyango luye kolunye.

Kuxhomekeke kunyango oluthile olufunyanwa ngumntwana wakho:

• Banokuba namava amancinci okanye amancinci amabi, ukunyuka, okanye ukubuyela umva.
• Banokufumana iintlungu ezimbalwa, ukudinwa, isiyezi, ukudumba kwezihlunu, okanye ukuqina kwemisipha.
• Ukuhamba kwabo, ukulungelelanisa, ukulinganisela, ukuguquguquka, okanye amandla kunokuphucula.
• Banokuba neengxaki ezimbalwa ngesinyi okanye ukusebenza kwamathumbu.
• Banokukufumanisa kulula ukugxila okanye ukukhumbula izinto.
• Ukukwazi kwabo ukunxibelelana kunokuphucula.
• Umbono wabo okanye ukuva kunokuba ngcono.
• Banokuziva bengcono ngokweemvakalelo.

Ababoneleli ngononophelo lwempilo yomntwana wakho banokuqaphela iziphumo ezikhuthazayo kuvavanyo okanye kuvavanyo abalwenzayo emva kokuba umntwana wakho eqale unyango olutsha.

Umzekelo, banokwenza iskeni seMRI kwaye bangaboni zimpawu zesifo esitsha.

Kwelinye icala, kunokwenzeka ukuba imeko yomntwana wakho ayinakuphawuleka okanye yenze ngcono ngokwaneleyo emva kokuba beqale unyango olutsha. Ngamanye amaxesha, ukuhlolwa kwe-MRI okanye ezinye iimvavanyo zingabonisa ukuba imeko yabo ayiphuculanga okanye iya isiba mandundu.

Ukuba awonelisekanga ziziphumo zonyango olutsha, yazisa iqela lezempilo lomntwana wakho. Banokukunceda uqonde izibonelelo ezinokubakho kunye nomngcipheko wokuyeka okanye wokuqhubeka nokunyanga. Banokukunceda ufunde ngezinye iindlela zonyango ezinokufumaneka.

Iziphumo ebezingalindelekanga ezinokubakho

Unyango lwe-MS lunokubangela iziphumo ebezingalindelekanga, ezinokuba mncinci okanye zibenzima.

Iziphumo ezichaseneyo ziyahluka kuhlobo olunye lonyango ukuya kolunye.

Umzekelo, iziphumo ebezingalindelekanga eziqhelekileyo kwii-DMTs ezininzi zibandakanya:

• irhashalala
• ukudinwa
• isicaphucaphu
• urhudo
• intloko ebuhlungu
• iintlungu zemisipha
• iintlungu kunye nobomvu kwindawo yenaliti, yee-DMT ezinokufakwa inaliti

Ukuze ufunde okungakumbi malunga neziphumo ebezingalindelekanga zonyango olumiselweyo lomntwana wakho, thetha neqela labo lezempilo. Banokukunceda ufunde ngendlela yokuqonda kunye nokulawula iziphumo ezinokubakho.

Ukuba ucinga ukuba umntwana wakho unokuba neziphumo ebezingalindelekanga kunyango, yazisa iqela labo lezempilo. Ngamanye amaxesha, banokucebisa utshintsho kwisicwangciso sonyango somntwana wakho.

Ukuba umntwana wakho unengxaki yokuphefumla okanye bangaphenduli okanye bangabikho zingqondweni, fumana unyango olukhawulezileyo. Tsalela umnxeba kwi-911 kwangoko. Basenokufumana iimpendulo ezinzima kumayeza.

Phinda ufune unyango kwangoko ukuba umntwana wakho uvela kwiimpawu zesifo esibi, njengomkhuhlane ohamba kunye:

• ukukhohlela
• ukugabha
• urhudo
• irhashalala

Olunye unyango lunokuphakamisa umngcipheko womntwana wakho kusulelo.

Ukwamkeleka, ukunceda, kunye neendleko

Olunye unyango lunokwamkeleka okanye lulungele wena nomntwana wakho kunezinye iindlela.

Umzekelo, umntwana wakho unokukhululeka kwaye uzimisele ukuthatha amayeza omlomo kunamayeza atofwayo. Okanye usapho lwakho lunokufumanisa ukuba elinye iziko lonyango linendawo efanelekileyo okanye iiyure ezininzi kunenye.

Olunye unyango kunokuba lula ukuba usapho lwakho lubenakho ukuluhlawulela kunolunye. Ukuba unayo i-inshurensi yezempilo, inokugubungela unyango okanye ababoneleli ngenkathalo kodwa hayi abanye.

Ukuba wena okanye umntwana wakho ukufumanisa kunzima ukunamathela kwisicwangciso sonyango esihlaziyiweyo, yazisa iqela labo lezempilo. Banokwabelana ngeengcebiso zokwenza ukuba isicwangciso sonyango silula ukulandela, okanye banokucebisa utshintsho kwisicwangciso sonyango somntwana wakho.

Uvavanyo lokulandelela

Ukujonga iimpembelelo zonyango, ababoneleli bezempilo bomntwana wakho banokuyalela uvavanyo olunye okanye nangaphezulu. Umzekelo, banoku-odola:

• Ukuskena iMRI
• iimvavanyo zegazi
• iimvavanyo zomchamo
• Ukujonga ukubetha kwentliziyo

Kuxhomekeke kunyango oluthile olufunyanwa ngumntwana wakho, iqela labo lezempilo lisenokufuna uku-odola uvavanyo rhoqo kwaye ngokuqhubekayo.

Iqela lezempilo lomntwana wakho lisenokukubuza kunye nomntwana wakho imibuzo malunga neempawu zakhe, ukusebenza komzimba kunye nokuqonda, kunye neziphumo ebezingalindelekanga zonyango.

Olu vavanyo lulandelayo kunye nokuvavanywa kunokunceda iqela lezempilo lomntwana wakho ukuba lifunde ukuba isicwangciso sonyango sangoku sisebenza njani.

Ukuthatha

Emva kokuba umntwana wakho eqale unyango olutsha, kungathatha ixesha ukuba uqaphele naziphi na iziphumo.

Ukuba ucinga ukuba isicwangciso sonyango sangoku somntwana wakho asisebenzi okanye sibenza bazive bebi kakhulu, yazisa iqela labo lezempilo.

Ngamanye amaxesha, banokucebisa utshintsho kwisicwangciso sonyango somntwana wakho. Banokuba neengcebiso zokulawula iziphumo ebezingalindelekanga okanye iindleko zonyango.