Ubume oboyikekayo be-Alzheimer's: Ukubandezeleka Komntu Ophilayo

Umxholo

• Ndidibene notata wam kwade kwasekupheleni
• Kancinci ukuphulukana nomama njengoko ephulukana nenkumbulo yakhe
• Ukungaqondakali kokulahlekelwa ngumntu kwi-Alzheimer's

Ndichukumisekile ngumahluko phakathi kokuphulukana notata ngenxa yomhlaza kunye nomama-osaphilayo- ukuya kwi-Alzheimer's.

Elinye icala lentlungu luthotho malunga namandla atshintsha ubomi alahleko. La mabali abantu abanamandla baphonononga izizathu ezininzi kunye neendlela esizifumana ngayo usizi kwaye sihamba ngendlela entsha.

UTata wayeneminyaka engama-63 xa waxelelwa ukuba wayenomhlaza wesifo semiphunga esingeyiyo esincinci. Akukho mntu wayibona isiza.

Wayelungile kwaye esempilweni, i-rat yovavanyo yase-Marine yaselwandle eyayingumda wokutya inyama. Ndichithe iveki ndingakholelwa, ndicenga indalo iphela ukuba imsindise.

Umama akafumaniswanga ngokusesikweni ukuba unesifo se-Alzheimer, kodwa iimpawu zibonise kwiminyaka yakhe yokuqala yama-60. Sonke sayibona isiza. Umama wakhe wayeqale i-Alzheimer's kwaye wayehlala nayo phantse iminyaka eyi-10 ngaphambi kokuba asweleke.

Ayikho indlela elula yokuphulukana nomzali, kodwa ndibethwa ngumahluko phakathi kokusweleka kukatata kunye nomama.

Ukungacaci kwesigulo sikaMama, ukungalindeleki kweempawu zakhe kunye neemood, kunye nenyaniso yokuba umzimba wakhe ulungile kodwa ulahlekile kakhulu okanye inkumbulo yakhe ibuhlungu ngokukodwa.

Ndidibene notata wam kwade kwasekupheleni

Ndihleli notata esibhedlele emva kokuba enziwe utyando lokususa amalungu emiphunga yakhe egcwele iiseli ezinomhlaza. Iityhubhu zokuhambisa amanzi kunye nezitishi zentsimbi zenzakele ukusuka esifubeni kuye emqolo. Wayediniwe kodwa enethemba. Ngokuqinisekileyo indlela yakhe yokuphila esempilweni iya kuthetha ukuba uchacha ngokukhawuleza, wayenethemba.

Ndifuna ukuthatha eyona nto ilungileyo, kodwa andizange ndimbone uTata enje - ephaphathekile kwaye ethambile. Ndihlala ndimazi ukuba uyahamba, uyenza, unenjongo. Ndinqwenela ukuba le ibe sisiqendu esinye esoyikisayo esinokukhumbula ngombulelo kwiminyaka ezayo.

Ndemka edolophini ngaphambi kokuba iziphumo ze-biopsy zibuye, kodwa xa wayefowuna esithi ufuna i-chemo kunye ne-radiation, wayevakala enethemba. Ndaziva ndikhutshiwe, ndisoyika ndingcangcazela.

Kwiinyanga ezili-12 ezalandelayo, uTata waphila kwi-chemo nakwimitha yaye emva koko watshintsha. IX-reyi kunye nee-MRIs ziqinisekisile okona kubi: Umhlaza wawusasazeke waya emathanjeni akhe nasengqondweni.

Unditsalele umnxeba kanye ngeveki ngemibono emitsha yonyango. Mhlawumbi “usiba” olujolise kwizilonda ngaphandle kokubulala izicwili ezijikelezileyo lunokumsebenzela. Okanye iziko lonyango lokulinga eMexico elisebenzisa iinkozo zeapilkosi kunye neememas zingazigxotha iiseli ezibulalayo. Sobabini besisazi ukuba esi sisiqalo sesiphelo.

Utata kunye nam safunda incwadi malunga nosizi kunye, sathumela i-imeyile okanye sathetha yonke imihla, sikhumbula kwaye sicela uxolo ngenxa yeentlungu zangaphambili.

Ndakhala kakhulu ngezo veki kwaye andizange ndilale kakhulu. Ndandingekabikho kwa-40. Andinakuphulukana noTata wam. Besifanele ukuba sineminyaka emininzi kangaka sishiye kunye.

Kancinci ukuphulukana nomama njengoko ephulukana nenkumbulo yakhe

Xa uMama eqala ukutyibilika, ngoko nangoko ndacinga ukuba ndiyayazi into eyenzekayo. Ubuncinci ngaphezu kokwazi kwam noTata.

Eli bhinqa lithembekileyo, elijolise kwiinkcukacha lalilahlekelwa ngamazwi, liziphinda, kwaye lingaqinisekanga ixesha elininzi.

Ndityhale indoda yakhe ukuba ndiyise kwagqirha. Wayecinga ukuba uphilile- udiniwe nje. Wafunga ukuba yayingeyiyo i-Alzheimer's.

Andimsoli. Akukho namnye kubo owayefuna ukucinga ukuba le nto yayisenzeka kuMama. Bobabini babebonile umzali ethe chu ngokuthe ngcembe emka. Bayayazi indlela embi ngayo.

Kule minyaka isixhenxe idlulileyo, uMama uye watyibilika waya phambili kakhulu ngaphakathi kuye njengesihlangu esandeni sentlabathi. Okanye, endaweni yoko, isanti ecothayo.

Ngamanye amaxesha, utshintsho luyacotha kwaye alubonakali, kodwa kuba ndihlala kwelinye ilizwe kwaye ndimbona qho kwiinyanga ezimbalwa, zilungile kum.

Kwiminyaka emine eyadlulayo, wawushiya umsebenzi wakhe wokuthengisa izindlu nomhlaba emva kokusokola ukugcina iinkcukacha zeentengiselwano okanye imigaqo ethile ithe tye.

Ndandinomsindo wokuba angayi kuvavanywa, ecaphuka xa esenza ngathi akaqapheli ukuba utyibilika kangakanani. Kodwa ubukhulu becala, ndaziva ndingenakuzinceda.

Kwakungekho nto ndinokuyenza ngaphandle kokumfowunela yonke imihla sincokole ndimkhuthaze ukuba aphume enze izinto nabahlobo. Ndandinxibelelana naye njengoko ndandinjalo noTata, ngaphandle kokuba sasingathembeki malunga nento eyenzekayo.

Kungekudala, ndaqala ukuzibuza ukuba ingaba uyandazi na ukuba ndingubani xa ndimfowunela. Wayenomdla wokuthetha, kodwa wayengasoloko elandela umsonto. Wayebubhideka xa ndichaza incoko namagama eentombi zam. Babengoobani kwaye kwakutheni ukuze ndimxelele ngabo?

Kutyelelo lwam olulandelayo izinto zazimbi kakhulu. Ebelahlekile edolophini ebesazi ngathi ngumva wesandla sakhe. Ukuba kwindawo yokutyela kwakuphazamisa uloyiko. Undazise ebantwini njengo sisi wakhe okanye umama wakhe.

Iyothusa indlela ebeziva engenanto ngayo ukuba akasandazi njengentombi yakhe. Bendisazi ukuba oku kuyeza, kodwa kwandibetha kakhulu. Kwenzeka njani ukuba ulibale owakho umntwana?

Ukungaqondakali kokulahlekelwa ngumntu kwi-Alzheimer's

Nangona kwakubuhlungu ukubukela utata wam emosha, ndandiyazi into awayechasene nayo.

Kwakukho izikena, iifilimu esasinokuthi sizibambe ekukhanyeni, iimpawu zegazi. Ndayazi ukuba i-chemo kunye ne-radiation ziyakwenza ntoni-ukuba wayejongeka njani kwaye azive njani. Ndibuze apho kubuhlungu khona, ndingenza ntoni ukuyenza ngcono. Ndithambise into yokuthambisa ezingalweni zakhe xa ulusu lutshile kwimitha, ndathambisa amathole akhe xa ebebuhlungu.

Ukufika kwesiphelo, ndahlala ecaleni kwakhe njengoko wayelele kwisibhedlele esibhedlele kwigumbi losapho. Wayengakwazi ukuthetha ngenxa yethumba elikhulu elibambe umqala wakhe, ngenxa yoko wazikhama izandla zam nzima xa ilixesha le-morphine engakumbi.

Sasihlala kunye, imbali yethu ekwabelwana ngayo phakathi kwethu, kwaye xa wayengasakwazi ukuqhubeka, ndoyama, ndathambisa intloko yakhe ezandleni zam, ndisebeza, "Kulungile, Pop. Ungahamba ngoku. Siza kuphila. Akuyomfuneko ukuba wenzakalise kwakhona. ” Ujike intloko yakhe wandijonga wanqwala, uthathe ixesha elide okokugqibela, erhawuzelela umphefumlo, wahamba emile.

Yayingowona mzuzu unzima kwaye ubumnandi ebomini bam, ndisazi ukuba uyandithemba ukuba ndimbambe njengokuba esifa. Kwiminyaka esixhenxe kamva, ndisafumana iqhuma emqaleni wam xa ndicinga ngalo.

Ngokwahlukileyo, umsebenzi wegazi likaMama ulungile. Akukho nto kwisikena sakhe sobuchopho esichaza ukudideka kwakhe okanye into eyenza ukuba amagama akhe aphume ngendlela engalunganga okanye anamathele emqaleni wakhe. Andazi ukuba ndiza kudibana nantoni xa ndimtyelele.

Ulahlekile iziqwenga ezininzi ngeli xesha kunzima ukuba wazi into ekhoyo. Akakwazi ukusebenza okanye ukuqhuba okanye ukuthetha emnxebeni. Akakwazi ukuqonda isiqwenga senoveli okanye uhlobo kwikhompyuter okanye ukudlala ipiyano. Ulala iiyure ezingama-20 ngosuku kwaye lonke ixesha ulichitha ekrobe ngefestile.

Xa ndindwendwela unobubele, kodwa akandazi kwaphela. Ngaba ukhona? Ndinguye? Ukulibala ngumama wam yeyona nto inesithukuthezi endakha ndadibana nayo.

Ndandisazi ukuba ndiza kuphulukana noTata ngenxa yomhlaza. Ndingaxela kwangaphambili ngokuchanekileyo ukuba kuya kwenzeka nini kwaye nini. Ndinexesha lokulilela ilahleko eza ngokulandelelana ngokukhawuleza. Kodwa okona kubaluleke kakhulu, wayezazi ukuba ndingubani kude kube yimillisecond yokugqibela. Sasinembali ekwabelwana ngayo kwaye indawo yam kuyo yayiqinile ezingqondweni zethu zozibini. Ulwalamano lwalukho nje ngokuba wayenjalo.

Ukuphulukana noMama kuye kwaba yinto engaqhelekanga, kwaye kunokuhlala iminyaka emininzi ezayo.

Umzimba kamama uphilile kwaye womelele. Asazi ukuba yintoni eza kumbulala ekugqibeleni okanye nini. Xa ndindwendwela, ndiye ndaziqonda izandla zakhe, uncumo lwakhe, ukumila kwakhe.

Kodwa kufana nokuthanda umntu ngokusebenzisa isipili sendlela ezimbini. Ndiyambona kodwa akandiboni ncam. Iminyaka, ndinguye kuphela umgcini wembali yolwalamano lwam noMama.

Xa utata wayesifa, sasithuthuzelana kwaye siyivuma intlungu esikuyo. Njengoko kwakubuhlungu njengoko yayinjalo, sasikuyo kunye kwaye kukho intuthuzelo kuloo nto.

Mna nomama sivaleleke kwilizwe lethu ngaphandle kwento yokuvala iyantlukwano. Ndingalila kanjani ngokuswelekelwa ngumntu osenyameni apha?

Ngamanye amaxesha ndicinga ukuba kuya kubakho umzuzu omnye oqaqambileyo xa ejonga emehlweni am kwaye azi kakuhle ukuba ndingubani, apho ahlala khona okwesibini ukuba nguMama wam, kanye njengoTata kulo mzuzwana wokugqibela sabelana ngawo.

Njengoko ndibuhlungu iminyaka yokunxibelelana noMama elahlekileyo ngenxa ye-Alzheimer's, lixesha kuphela eliza kuxela ukuba siyawufumana okanye hayi loo mzuzu wokugqibela wokwamkelwa kunye.

Ngaba wena okanye uyazi umntu okhathalele umntu one-Alzheimer's? Fumana ulwazi oluluncedo kuMbutho weAlzheimer Apha.

Ngaba ufuna ukufunda ngakumbi amabali kubantu abahamba ngeendlela ezinzima, ezingalindelekanga, kwaye ngamanye amaxesha amaxesha osizi? Jonga uthotho olupheleleyo Apha.

U-Kari O'Driscoll ngumbhali kwaye ngumama wababini ogama umsebenzi wakhe uvele kwiindawo ezinje ngeNks Magazine, uMama, iGrocNation, kunye neFeminist Wire. Uye wabhala i-anthologies kumalungelo okuzala, ukuba ngumzali, kunye nomhlaza kwaye kutshanje ugqibe imemo. Uhlala ePacific Northwest kunye neentombi ezimbini, iinjana ezimbini, kunye nekati enomdla.