UJack Osbourne akafuni ukuba i-MS ibe nguMdlalo wokuQikelela

Umxholo

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• Isidingo sokunxibelelana nokuxhobisa
• Ukuphila ubomi obukhulu nge-MS

Khawufane ucinge ngale nto: iinkwenkwezi eziyinyani uJack Osbourne kunye nodadewabo, uKelly, bezama ukubaleka kwinqanawa eyazitshabalalisayo. Ukwenza oko, kuya kufuneka baphendule ngokuchanekileyo imibuzo malunga ne-multiple sclerosis.

"Kulula ukuxelela ukuba umntu une-MS," ufunda umbuzo omnye. Nyani okanye UBUXOKI? “Bubuxoki,” uphendula watsho uJack, kwaye esi sibini siyaqhubeka.

"Bangaphi abantu abane-MS ehlabathini?" ifunda enye. "Izigidi ezi-2.3," uphendula ngokuchanekileyo uKelly.

Kodwa kutheni usapho lakwa-Osbourne luzama ukubaleka kwisiphekepheke, umntu unokuzibuza?

Hayi, khange babanjwe ngabaphambukeli. UJack ubambisene negumbi lokubaleka eLos Angeles ukwenza i-webhuphu yamva nje yephulo lakhe awumazi uJack Malunga ne-MS (YDKJ). Yenziwe ngokubambisana neTeva Pharmaceuticals kwiminyaka emine eyadlulayo, eli phulo lijolise ekunikezeleni ngolwazi kwabo basandula ukufumanisa ukuba banesifo okanye bahlala neMS.

"Besifuna ukwenza eli phulo lifundise kwaye sonwabe kwaye singakhathali," utshilo uJack. "Hayi intshabalalo kunye nesigayegaye, isiphelo sikufuphi uhlobo lwezinto."

"Sigcina le vibe ilungile kwaye iphakamisa kwaye sifefa kwimfundo ngokuzonwabisa."

Isidingo sokunxibelelana nokuxhobisa

U-Osbourne wafunyaniswa enesifo sokuphinda-phinda esikhupha isifo sokuqaqamba kwamalungu omzimba (i-RRMS) ngo-2012 emva kokubona ugqirha kwi-optic neuritis, okanye kwi-optic nermic inflamed. Ngaphambi kokuba iimpawu zamehlo zenzeke, wayenengxaki yokuxinwa kunye nokubhabha emlenzeni wakhe iinyanga ezintathu zilungile.

UJack uthi: “Andikhathalelanga ukucukucezwa emlenzeni wam kuba bendicinga ukuba nditswebele nje imithambo-luvo. "Nditsho ukufunyanwa kwam, bendicinga," Ngaba andimncinci kakhulu ukuba ndingayifumana le nto? ’Ngoku, ndiyazi ukuba umndilili wobudala besi sifo buphakathi kwama-20 nama-40.”

U-Osbourne uthi unqwenela ukuba angazi ngakumbi nge-MS ngaphambi kokuba afunyaniswe. "Xa oogqirha bathi kum," Ndicinga ukuba unayo i-MS ", ndaye ndaziva ndikhululekile ndaza ndacinga: 'Umdlalo uphelile.' Kodwa inokuba kunjalo kwiminyaka engama-20 eyadlulayo. Akusekho njalo. ”

Kungekudala emva kokufunda ukuba une-MS, u-Osbourne wazama ukunxibelelana naye nabani na amaziyo ngesifo ukuze azibonele, iiakhawunti zakhe zokuphila ne-MS. Ufikelele kumhlobo osondeleyo wosapho lwakhe uNancy Davis, owasungula ubuhlanga ukuba acime i-MS, kunye noMontel Williams.

"Inye into yokufunda [malunga ne-MS] kwi-intanethi, kodwa enye ukufikelela kuyo nokuyiva komnye umntu obehlala nesifo okwethutyana ukuze aqonde kakuhle ukuba injani imihla ngemihla," utshilo u-Osbourne . Yeyona nto ibiluncedo kakhulu. "

Ukuyihlawula phambili, u-Osbourne wayefuna ukuba ngulo mntu kunye nendawo yabanye abantu abaphila ne-MS.

Kwi-YDKJ, uJack uthumela uluhlu lweewebhu-ngamanye amaxesha ezibonisa ukubonakala kubazali bakhe, u-Ozzy noSharon-kunye nezithuba zebhlog kunye nokunxibelelana nezixhobo ze-MS. Uthi injongo yakhe kukuba ibe sisixhobo sokuya kubantu abasandula ukufumanisa ukuba bane-MS, okanye bafuna ukwazi nje ngale meko.

"Xa ndafunyaniswa, ndachitha ixesha elininzi kwi-intanethi ndisiya kwiiwebhusayithi kunye neeblogi kwaye ndafumanisa ukuba akukho venkile ekhawulezayo yokumisa kwi-MS," uyakhumbula. "Ndifuna ukwenza iqonga lokuba abantu baye kulo kwaye bafunde nge-MS."

Ukuphila ubomi obukhulu nge-MS

UJack ukhumbula ixesha apho umhlobo-naye ene-MS-waxelelwa ngugqirha ukuba athathe u-Advil, alale, kwaye aqale ukubukela imiboniso yeentsuku zasemini, kuba yayikukuphela kobomi bakhe.

Ayisiyonyani leyo. Inyaniso yokuba zininzi kakhulu inkqubela phambili emangalisayo kunye nolwazi malunga nesi sifo, [abantu kufuneka bazi] ukuba bangaqhubeka [nokuba banemiqobo] ngakumbi ukuba bakwinkqubo efanelekileyo yonyango, "ucacisa uJack. Ngaphandle kwemiceli mngeni yokwenyani yeMS, ithi ifuna ukukhuthaza kwaye inike ithemba lokuba "ungaphila ubomi obukhulu nge-MS."

Oko akutsho ukuba akukho miceli mngeni yemihla ngemihla, kwaye akazikhathazi ngekamva. Ewe, isifo sikaJack safika nje kwiiveki ezintathu ngaphambi kokuzalwa kwentombi yakhe yokuqala, uPearl.

Uthi: "Inkxalabo yendalo yokungakwazi ukusebenza emzimbeni okanye ukubakho ngokupheleleyo kuyo yonke into ebomini babantwana bam iyothusa," utshilo. "Ndizilolonga rhoqo kwaye ndibukele indlela enditya ngayo, kwaye ndizamile ukunciphisa uxinzelelo-kodwa ayenzeki loo nto xa unabantwana nomsebenzi."

“Okwangoku, andikaziva ndinqongophele ukusukela oko ndafunyaniswa. Abanye abantu baziva ukuba ndibekelwe umda, kodwa olo luluvo lwabo. ”

Ngokuqinisekileyo uJack akakhawulelwanga ekwabelaneni ngebali lakhe kunye nokuphila ubomi ngokuzeleyo. Ukusukela oko waxilongwa, uthathe inxaxheba "Ukudanisa ngeeNkwenkwezi," wandise usapho, kwaye wasebenzisa udumo lwakhe ukusasaza ulwazi, ukwabelana ngolwazi, nokunxibelelana nabanye abaphila ne-MS.

"Ndifumana imiyalezo kumajelo onxibelelwano, kwaye abantu esitratweni beza kum ngalo lonke ixesha, nokuba bane-MS okanye ilungu losapho okanye umhlobo unalo. Ngokuqinisekileyo i-MS indidibanisile nabantu endingazange ndicinge ukuba ndingabenza. Kupholile, eneneni. "