Ukuphinda ubuye kwi-MS: Izinto ezi-6 ekufuneka uzenzile ngexesha lokuhlaselwa

Umxholo

• 1. Zilungiselele
• 2. Jonga iimpawu zakho
• 3. Nxibelelana nogqirha wakho
• 4. Phonononga ukhetho lwakho lonyango
• 5. Yazisa abantu
• 6. Lawula iimvakalelo zakho
• Ukuthatha

I-Multiple sclerosis (MS) ayinakulinganiswa. Phantse iipesenti ezingama-85 zabantu abane-MS bafumanisa ukuba bane-MS (RRMS) ephindayo, ebonakaliswa kukuhlaselwa okungahleliwe kweempawu ezintsha okanye eziphakamileyo. Olu hlaselo lungahlala naphina ukusukela kwiintsuku ezimbalwa ukuya kwiinyanga ezininzi kwaye, kuxhomekeke kubukhali babo, kunokuba nokuphazamisa kubomi bakho bemihla ngemihla.

Ngaphandle kokunamathela kwisicwangciso sakho sonyango njengoko kumiselweyo, akukho ndlela eqinisekisiweyo yokuthintela uhlaselo lwe-MS. Kodwa oko akuthethi ukuba awukwazi ukuthatha inyathelo. Ezi ndlela zintandathu zinokukunceda ukulawula iimpawu zakho kunye nokunciphisa amanqanaba oxinzelelo ngexesha lokuphinda ubuye.

1. Zilungiselele

Isinyathelo sokuqala sokujamelana nokuhlaselwa kufuneka sikulungele ukuba enye ingenzeka. Indawo elungileyo onokuqala kuyo kukwenza uluhlu lweenkcukacha ezibalulekileyo ezinjengeenombolo zonxibelelwano ezingxamisekileyo, iinkcukacha zembali yezonyango, kunye namayeza akhoyo ngoku. Gcina uluhlu lwakho kwindawo efikeleleka lula ekhayeni lakho.

Kuba uhlaselo lwe-MS lunokuchaphazela ukuhamba kwakho, cinga ngokwenza amalungiselelo ezothutho kunye nabahlobo abathembekileyo okanye amalungu osapho kwimeko apho ungakwazi ukuqhuba ngenxa yobukrakra beempawu.

Iinkqubo ezininzi zothutho loluntu zibonelela ngeenkonzo zokuthwala kunye nokuyeka abantu abanokuhamba okunciphileyo. Kufanelekile ukunxibelelana nenkonzo yokuhamba yendawo malunga nenkqubo yokubhukisha ukukhwela.

2. Jonga iimpawu zakho

Ukuba ucinga ukuba uziva uhlaselwa yi-MS ukuqala, khathalela ukubeka esweni iimpawu zakho ngokusondeleyo ngaphezulu kweeyure ezingama-24. Kuyanceda ukuqinisekisa ukuba le nto uhlangabezana nayo eneneni ibuyela umva, kwaye ayisiyiyo yokutshintsha okufihlakeleyo.

Izinto zangaphandle ezinje ngeqondo lobushushu, uxinzelelo, ukungalali, okanye usulelo ngamanye amaxesha kunokwandisa iimpawu ngendlela evakalelwa ngokufana nohlaselo lwe-MS. Zama ukuhlala ukhumbula nakuphi na ukutshintsha kwemihla ngemihla okhe wahlangabezana nako kwezo ndawo.

Nangona iimpawu zokuhlaselwa kwe-MS ziyahluka ukusuka komnye umntu ukuya komnye, ezinye zezona zixhaphakileyo zibandakanya:

• ukudinwa
• imiba yokuhamba
• isiyezi
• ingxaki yokujonga
• iingxaki zesinyi
• ukungaboni kakuhle

Ukuba enye okanye ezingaphezulu kwezi mpawu zikhona ngaphezulu kweeyure ezingama-24, unokuphinda ubuye.

Ngamanye amaxesha ukubuyela umva kuneempawu ezinzima. Ngamanye amaxesha, unokufuna ukuya esibhedlele. Funa ukhathalelo olungxamisekileyo ukuba ufumana iimpawu ezinje ngeentlungu, ukulahleka kombono, okanye ukunciphisa ukuhamba kakhulu.

Nangona kunjalo, ayizizo zonke izinto ezibuyela umva ezifuna utyelelo esibhedlele okanye unyango. Utshintsho oluncinci lweemvakalelo okanye ukwanda kokudinwa kunokuba ziimpawu zokubuyela umva, kodwa iimpawu zihlala zilawulwa ekhaya.

3. Nxibelelana nogqirha wakho

Ukuba uyakholelwa ukuba ubuyela umva, nxibelelana nogqirha ngokukhawuleza. Nangona iimpawu zakho zibonakala zilawuleka kwaye ungaziva ngathi ufuna unyango, ugqirha wakho kufuneka azi malunga nokuphindaphinda kwakhona ukujonga ngokuchanekileyo nayiphi na imisebenzi ye-MS kunye nokuqhubela phambili.

Kuyanceda ukukwazi ukuphendula imibuzo ephambili malunga neempawu zakho, kubandakanya ukuba ziqale nini, ngawaphi amalungu omzimba wakho achaphazelekayo, kunye nendlela iimpawu ezibuchaphazela ngayo ubomi bakho bemihla ngemihla.

Zama ukuba neenkcukacha kangangoko kunokwenzeka. Qinisekisa ukukhankanya naluphi na utshintsho olukhulu kwindlela ophila ngayo, ukutya, okanye amayeza ugqirha wakho angakwaziyo ngawo.

4. Phonononga ukhetho lwakho lonyango

Ukuba amandla ohlaselo lwe-MS andile ukusukela oko wafumanisa isifo okokuqala, kunokuba luncedo ukuthetha nodokotela wakho malunga nonyango olutsha.

Ukuphinda ubuye kakhulu ngamanye amaxesha kunyangwa ngedosi ephezulu yecorticosteroids, ethathwe ngaphakathi ngaphakathi kwisithuba seentsuku ezintathu ukuya kwezintlanu. Olu nyango lwe-steroid luqhutywa esibhedlele okanye kwiziko lokumiliselwa. Ngamanye amaxesha bangasiwa ekhaya.

Ngelixa i-corticosteroids inokunciphisa ubunzima kunye nexesha lokuhlaselwa, khange ziboniswe ukuba zenza umahluko ekuqhubekeni kwexesha elide kwe-MS.

Ukubuyisela kwisimo sangaphambili kwakhona lolunye ukhetho olufumanekayo nokuba ulandela unyango lwe-steroid okanye hayi. Iinkqubo zokubuyisela kwimeko yesiqhelo zijolise ekuncedeni ukuba ubuyisele imisebenzi ebalulekileyo kubomi bemihla ngemihla, njengokuhamba, ukomelela, ukusebenza komsebenzi, kunye nokhathalelo lomntu. Amalungu eqela lakho lokuvuselela angabandakanya i-physiotherapists, i-intetho ye-pathologists, i-therapists, okanye iingcali zokulungisa iingqondo, kuxhomekeke kwiimpawu zakho.

Ukuba unomdla wokuzama inkqubo yokubuyisela kwimeko yesiqhelo, ugqirha wakho angakuthumela kwabanye abaqeqeshi bezempilo kwiimfuno zakho ezithile.

5. Yazisa abantu

Nje ukuba unxibelelane nogqirha wakho, cinga ngokwazisa abahlobo bakho kunye nosapho ukuba unengxaki yokubuyela umva. Iimpawu zakho zinokuthetha ukuba kufuneka utshintshe ezinye zezicwangciso zakho zentlalo. Ukwenza abantu bayazi imeko yakho kunokunceda ukunciphisa uxinzelelo lokurhoxisa ukuzibandakanya kwangaphambili.

Ukuba ufuna uncedo ngayo nayiphi na imisebenzi yasekhaya okanye indawo yokuhlala, musa ukoyika ukubuza. Ngamanye amaxesha abantu baneentloni ngokucela uncedo, kodwa abo ubathandayo baya kufuna ukukuxhasa nangayiphi na indlela abanokuyenza.

Kwakhona kunokuba luncedo ukwazisa umqeshi wakho ukuba ufumana ukubuyela umva, ngakumbi ukuba ukusebenza kwakho emsebenzini kunokuchaphazeleka. Ukuthatha ikhefu, usebenza ekhaya, okanye uhlengahlengiso lwamaxesha akho okuphumla kunokukunceda ulungelelanise uxanduva lwakho lomsebenzi kunye nempilo yakho.

6. Lawula iimvakalelo zakho

Ukuhlaselwa kwe-MS kunokuba ngumthombo woxinzelelo kunye neemvakalelo ezinzima. Abantu ngamanye amaxesha baziva benomsindo malunga nale meko, boyika ikamva, okanye bekhathazekile malunga nokuba imeko ichaphazela njani ubudlelwane nabanye. Ukuba ufumana enye yezi mpendulo, zikhumbuze ukuba iimvakalelo ziya kudlula ngokuhamba kwexesha.

Ukuzivocavoca kwengqondo njengokuphefumla okunzulu kunye nokucamngca kunokuba ziindlela ezifanelekileyo zokulawula uxinzelelo kunye noxinzelelo. Amaziko oluntu asekuhlaleni kunye nezitudiyo zeyoga zihlala zibonelela ngeeklasi, okanye ungazama amayeza akhokelwayo ngokusebenzisa iipodcast okanye iiapps ze-smartphone. Nokuba uthatha imizuzu embalwa ukuba uhlale ngokuzolileyo kwaye ujonge ukuphefumla kunokunceda.

Ugqirha wakho unokukukhokelela kwiinkonzo zokucebisa ukuba uqala ukuziva ukoyiswa ziimvakalelo zakho. Ukuthetha ngeemvakalelo zakho nomntu ongakhethi buso kunokubonelela ngombono omtsha kwizinto.

Ukuthatha

Nangona ungeke uqikelele uhlaselo lwe-MS, ungathatha amanyathelo okulungela utshintsho kwimeko yakho. Khumbula ukuba awuwedwa. Nenjongo yokwakha ubudlelwane bokuthembela nogqirha wakho ukuze uzive ukhululekile ukuxoxa ngalo naluphi na utshintsho kwimeko yakho kwangoko.