Ukubethwa kwabantwana: Banjani abazali babantwana abakule meko bafuna ukuba wazi

Umxholo

• Kukho imiqondiso, kodwa uninzi lwabantu alwazi ukuba lujonge ntoni
• Ukuhlaselwa sisifo sokubethwa kwabantwana kunesiphumo esihlala sihleli ebantwaneni nakwiintsapho zabo
• Unyango kunye nolunye unyango lunokunceda ekufikeleleni kumanqwanqwa okuqonda kunye nawokwenyama
• Ukuqonda ukuba inkxaso ikhona kubalulekile

UCanzibe yinyanga yokwazisa ngesifo ngokubethwa kwabantwana. Nantsi into ekufuneka uyazi malunga nemeko.

Kwintombi kaMegan uKora, yaqala ngokuthanda isandla.

"Xa ujonga emva kwimifanekiso uyabona ngokulula ukuba intombi yam ithande isandla esinye ngelixa elinye lisoloko lijijekile."

Ukuthandwa sisandla akufuneki kwenzeke ngaphambi kweenyanga ezili-18, kodwa uKora wayebonisa imiqondiso yoku ukusuka kwiminyaka yobudala.

Njengoko kuvela, uKora wafumana into eyaziwa njenge-stroke yabantwana, uhlobo lwesifo esenzeka ebantwaneni, ngelixa uMegan wayesakhulelwe yena nodadewabo. (Kwaye ukuthanda isandla yenye yeempawu-ngakumbi koku kamva).

Zimbini iintlobo zestroke yabantwana:

• Ukuzalwa komntwana Oku kwenzeka ngexesha lokukhulelwa ukuya kuthi ga xa umntwana enenyanga eyi-1 ubudala kwaye lolona hlobo luqhelekileyo lwesifo sabantwana.
• Ubuntwana. Oku kwenzeka kumntwana oneminyaka eli-1 ukuya kwiminyaka eli-18.

Nangona ukubetha kwabantwana kungangabi yinto abantu abaninzi abayaziyo, ngokuqinisekileyo uKora akayedwa kumava akhe. Ngapha koko, ukubethwa sisifo sabantwana kwenzeka malunga ne-1 kwi-4,000 yeentsana kunye ne-misdiagnosis okanye ukulibaziseka ekufumaneni isifo kuqhelekile.

Nangona kukho ulwazi oluninzi malunga nemivimbo yabantu abadala, oku akunjalo kwimeko yokubetha kwabantwana.

Kukho imiqondiso, kodwa uninzi lwabantu alwazi ukuba lujonge ntoni

Ugqirha wosapho, uTerri, wayenentombi yakhe uKasey xa wayeneminyaka engama-34. Umhlali waseKansas ucacisa ukuba wayenomsebenzi othatha ixesha elide, ngamanye amaxesha obangelwa kukuthamba komlomo wesibeleko kancinci. Ukholelwa ukuba ngelo xesha uKasey wabethwa sistroke. UKasey waqala ukuxhuzula kwiiyure ezili-12 zokuzalwa.

Ukanti nanjengoko wayengugqirha wosapho, uTerri akazange aqeqeshwe kwisifo sokubethwa kwabantwana- kubandakanya nokuba yeyiphi imiqondiso ekufuneka eyijongile. "Asizange siyigubungele loo nto kwisikolo sezonyango," utshilo.

Iimpawu zokulumkisa ukubetha komntu wonke zihlala zikhunjulwa ngokulula ngegama FAST. Kubantwana kunye neentsana ezifumana ukubetha, nangona kunjalo, kunokubakho ezinye iimpawu ezongezelelweyo okanye ezahlukeneyo. Oku kubandakanya:

• ukuxhuzula
• ukulala kakhulu
• utyekelo lokuthanda icala elinye lomzimba wabo

UMegan wayenomngcipheko ophezulu wokukhulelwa kwamawele. Wayeneminyaka engama-35, etyebe kakhulu, kwaye ethwele ukuphindaphindwa kangangokuba abantwana bakhe babesemngciphekweni omkhulu wokukhula kweemeko ezithile. Oogqirha babesazi ukuba uKora wayengakhuli ngokukhawuleza njengodadewabo. Ngapha koko, bazalwa benama-2 eepawundi umahluko, kodwa kusathatha iinyanga ukuba oogqirha bakaKora baqonde ukuba unestroke.

Ngelixa kunzima ukuxelela ukuba umntwana ukhe wanestroke esesibelekweni, iimpawu zinokubonisa emva koko.

"Ukuba besingenalo iwele lakhe ukuba athelekise izinto ezibalulekileyo, ngendingakhange ndibone ukuba izinto zilibaziseke kangakanani na," ucacisa uMegan.

Kuphela kuxa uKora wayefumana i-MRI kwiinyanga ezili-14, ngenxa yokulibaziseka kwakhe kuphuhliso, apho oogqirha bakuqondayo okwenzekileyo.

Amanqanaba ophuhliso Nangona ukwazi iimpawu zokubetha kwabantwana kubalulekile, kubalulekile ukuba wazi apho umntwana wakho kufuneka abe khona kwiindawo zabo zokuphuhlisa. Inokukunceda ukuba ujonge ukulibaziseka, okunokukwenza uqaphele ukubetha kunye nezinye iimeko ezinokuncedwa ekuchongeni kwangaphambili.

Ukuhlaselwa sisifo sokubethwa kwabantwana kunesiphumo esihlala sihleli ebantwaneni nakwiintsapho zabo

Ukuza kuthi ga kubantwana abaye bahlaselwa sistroke kuya kubakho iingxaki zokuthimba, ukusilela kwemithambo-luvo, okanye imiba yokufunda kunye neyophuhliso. Ukulandela ukubetha kwakhe, uKora wafunyaniswa ukuba unesifo sokukhubazeka kwengqondo, isifo sokuwa, kunye nokulibaziseka kolwimi.

Okwangoku, uphantsi konyango lwe-neurologist kunye ne-neurosurgeon yokulawula isifo sokuwa.

Ngokubhekisele kubuzali nomtshato, uMegan ucacisa ukuba bobabini baziva besiba nzima kuba "zininzi izinto ezichaphazelekayo."

UKora usoloko etyelelwa ngugqirha, kwaye uMegan uthi uhlala efumana iminxeba esuka kwisikolo sabantwana abasaqalayo okanye ekugcinweni kwemini ukuba uKora akaphilanga.

Unyango kunye nolunye unyango lunokunceda ekufikeleleni kumanqwanqwa okuqonda kunye nawokwenyama

Ngelixa abantwana abaninzi abaye bafumana imiceli mngeni kumava okuhlaselwa si-stroke kokubini ngokuqonda nangokomzimba, unyango kunye nolunye unyango lunokubanceda ukuba bafikelele kumanqwanqwa kwaye bajongane nale mingeni.

UTerri uthi, “Oogqirha basixelele ukuba ngenxa yendawo akonzakala kuyo, singaba nethamsanqa ukuba angakwazi ukuqhuba intetho nolwimi. Wayengayi kuhamba kwaye wayeza kulibaziseka kakhulu. Ndicinga ukuba akukho mntu uxelele uKasey. ”

UKasey okwangoku usesikolweni esiphakamileyo kwaye uqhuba umkhondo kwinqanaba lesizwe.

Ngeli xesha, uKora, ngoku oneminyaka emi-4 ubudala, ebehamba enganqumami ukusukela kwiminyaka emibini.

"Uhlala encumile ebusweni bakhe kwaye akazange nakanye avumele nayiphi na [yeemeko zakhe] ukuba imnqande ekuzameni ukugcina," utshilo uMegan.

Ukuqonda ukuba inkxaso ikhona kubalulekile

Bobabini uTerri noMegan bayavuma ukuba kubalulekile ukwenza iqela lokuxhasa umntwana kunye nosapho lwabo. Oku kubandakanya ukujonga kumalungu osapho, abahlobo, abantu osebenza nabo, abantu ekuhlaleni abantwana, kunye neengcali zempilo.

Ekugqibeleni uMegan ufumene indawo yokuhlala entle kwaye unabasebenzi abancedisayo ekuncedeni xa kufuneka njalo. Bobabini uTerri noMegan bafumene induduzo kunye nenkxaso kumaqela abantwana i-Hemiplegia and Stroke Association (CHASA) kuFacebook.

UTerri uthi: "Emva kokuba ndidibene ne-CHASA, ndafumana iimpendulo ezininzi kunye nosapho olutsha."

Uluntu lwe-CHASA lunika amaqela akwi-intanethi nakubantu abaxhasa abazali abasinde kwistroke sabantwana. Unokufumana ulwazi oluthe kratya malunga nokubetha kwabantwana kunye nenkxaso evela:

• Umbutho wentliziyo yaseMelika
• Umanyano lwaMazwe ngaMazwe lweStroke sabantwana
• Umbutho weNkxaso yabantwana eStroke

UJamie Elmer ngumhleli wekopi ovela eSouth California. Unothando lwamagama kunye nokwazisa ngempilo yengqondo kwaye uhlala efuna iindlela zokudibanisa ezi zimbini. Ukwayithanda kakhulu i-P's ezintathu: injana, imiqamelo kunye neetapile. Mfumane kwi-Instagram.