Iingcebiso zam zokuzimela ngokwakho nge-Ankylosing Spondylitis

Umxholo

• Zifundise ngale meko
• Cacisa nabahlobo kunye nosapho
• Guqula imeko-bume yakho
• Yise kude

Sibandakanya iimveliso esicinga ukuba ziluncedo kubafundi bethu. Ukuba uthenga amakhonkco kweli phepha, sinokufumana ikhomishini encinci. Nantsi inkqubo yethu.

Ukuqala kwam ukuya kugqirha ndithethe ngeempawu ezibuhlungu endandinazo, ndaxelelwa ukuba "kukucaphuka nje". Kodwa ndandisentlungwini engathethekiyo. Imisebenzi yemihla ngemihla yayinzima kakhulu, kwaye ndandiphelelwe ngumnqweno wokunxulumana. Kwaye ukwenza izinto zibe mbi ngakumbi, kwavakala ngathi akukho mntu uyiqondayo okanye uyakholelwa into endihamba nayo.

Kuthathe iminyaka ngaphambi kokuba ekugqibeleni ndimbongoze ugqirha ukuba aphinde ahlole iimpawu zam. Ngelo xesha, babesele besondele. Ndikhule ndiqaqanjelwa ngumqolo, iintlungu ezidibeneyo, ukudinwa okungapheliyo, kunye nemicimbi yokwetyisa. Ugqirha wandicebisa ukuba nditye ngcono kwaye ndizilolonge ngakumbi. Kodwa ngeli xesha, ndakhalaza. Kungekudala emva koko, kwafunyaniswa ukuba ndine-ankylosing spondylitis (AS).

Kutshanje ndibhale isincoko malunga namava am okuhlala ne-AS. Kwisiqwenga, esiza kuba yinxalenye ye-anthology ebizwa ngokuba yi "Burn It Down," ndivula malunga nomsindo endiwuva xa ndandifunyaniswa ndinesi sifo. Ndandinomsindo koogqirha ababonakala ngathi babugxotha ubuzaza beempawu zam, ndandinomsindo wokuba kufuneka ndigqibe kwisikolo samabanga aphakamileyo ndinentlungu, kwaye ndandinomsindo kubahlobo bam abangayiqondiyo.

Nangona ukuya ekufumaniseni ukuba yayiluhambo olunzima, imiceli mngeni emikhulu endijongene nayo apha endleleni yandifundisa ukubaluleka kokuzimela ngokwam kubahlobo, kusapho, koogqirha, nakowuphi na umntu ozimisele ukumamela.

Nantsi into endiyifundileyo.

Zifundise ngale meko

Ngelixa oogqirha benolwazi, kubalulekile ukuba ufunde kwimeko yakho ukuze uzive unamandla okubuza ugqirha wakho imibuzo kwaye uthathe inxaxheba kwinkqubo yokwenza izigqibo kwisicwangciso sakho sokhathalelo.

Veza kwiofisi kagqirha wakho eneenkcukacha zolwazi. Umzekelo, qala ukulandela umkhondo weempawu zakho ngokuzibhala ezincwadini zamanqaku okanye kwiNkqubo yamanqaku kwi-smartphone yakho. Buza abazali bakho ngembali yabo yezonyango, okanye ukuba kukho nantoni na kusapho ekufuneka uyazi.

Okokugqibela, lungisa uluhlu lwemibuzo oza kuyibuza ugqirha wakho. Xa uzilungiselele ngakumbi ukuqeshwa kwakho okokuqala, kokukhona ugqirha wakho eya kuba nakho ukwenza uxilongo oluchanekileyo kwaye akufumane kunyango olululo.

Nje ukuba ndenze uphando lwam kwi-AS, ndaziva ndizithembile xa ndithetha nogqirha wam. Ndiye ndazihlamba zonke iimpawu zam, ndaye ndakhankanya nokuba utata une-AS. Oko, ukongeza kwintlungu yamehlo ephindaphindayo ebendinayo (ingxaki ye-AS ebizwa ngokuba yi-uveitis), yazisa ugqirha ukuba andivavanye nge-HLA-B27-uphawu lwofuzo olunxulumene ne-AS.

Cacisa nabahlobo kunye nosapho

Kunokuba nzima ngenene kwabanye ukuba baqonde into ohamba kuyo. Intlungu yinto ekhethekileyo kwaye yeyobuqu. Amava akho ngeentlungu anokuhluka kumntu olandelayo, ngakumbi xa bengenayo i-AS.

Xa unesifo sokudumba esifana ne-AS, iimpawu zinokutshintsha yonke imihla. Ngenye imini unokuba ugcwele amandla kwaye ngokulandelayo uphelile kwaye awukwazi nokuhlamba.

Ewe, amahla ndinyuka anokubadida abantu malunga nemeko okuyo. Kananjalo baya kuphinda babuze ukuba ungagula njani xa ungaphandle ubonakala usempilweni.

Ukunceda abanye baqonde, ndiza kuyilinganisela intlungu endiyiva kwisikali ukusuka kwi-1 ukuya kwi-10. Ukuphakama kwenani, kokukhona iintlungu zigqithise. Kananjalo, ukuba ndenze izicwangciso zentlalo ekufuneka ndizirhoxisile, okanye ukuba ndifuna ukushiya umsitho kwangethuba, ndihlala ndixelela abahlobo bam ukuba kungenxa yokuba andiziva mnandi kwaye hayi kuba ndinexesha elibi. Ndibaxelela ukuba ndifuna ukuba baqhubeke bendimema, kodwa ndifuna ukuba babe bhetyebhetye ngamanye amaxesha.

Nabani na ongenalo uvelwano kwiimfuno zakho mhlawumbi ayinguye umntu omfunayo ebomini bakho.

Ewe, ukuzimela ngokwakho kunokuba nzima - ngakumbi ukuba usahlengahlengisa kwiindaba zesifo sakho. Ndiyathemba ukunceda abanye, ndiyathanda ukwabelana ngeli xwebhu malunga nemeko, iimpawu zayo, kunye nonyango lwayo. Ndiyathemba ukuba inika umbukeli ukuqonda okuhle malunga nokuba buthathaka kangakanani i-AS.

Guqula imeko-bume yakho

Ukuba ufuna ukulungelelanisa imeko-bume yakho ukuze ihambelane neemfuno zakho, yenza njalo. Emsebenzini, umzekelo, cela idesika emileyo kumphathi weofisi yakho ukuba ziyafumaneka. Ukuba akunjalo, thetha nomphathi wakho malunga nokufumana enye. Hlela izinto kwidesika yakho, ukuze ungadingi ukufikelela kude kwizinto oqhele ukuzifuna.

Xa usenza izicwangciso nabahlobo, cela ukuba indawo ibe yindawo evulekileyo ngakumbi. Ndiyazi ukuba ndihleli kwindawo enabantu abaninzi kunye neetafile ezincinci kwaye kufuneka ndinyanzelise indlela yam ebantwini ukuba ndiye kwibar okanye kwigumbi lokuhlambela kunokuzonyusa iimpawu (esinqeni sam esiqinileyo!

Yise kude

Obu bomi bobakho hayi omnye umntu. Ukuze uphile ngeyona nguqulelo ibalaseleyo kuyo, kufuneka uzithethelele. Kungathetha ukuphuma kwindawo yakho yokuthuthuzela, kodwa ngamanye amaxesha zezona zinto zibalaseleyo esinokuzenzela zona ezizezona zinzima. Kungabonakala koyikisayo ekuqaleni, kodwa nje ukuba ufumane ukuxhoma, ukuzimela ngokwakho kuya kuba yenye yezona zinto zixhobisayo owakha wazenza.

ULisa Marie Basile yimbongi, umbhali we “Light Light for Dark Times,” kunye nomhleli osungula iMagazini yeLuna Luna. Ubhala malunga nokuba sempilweni, ukubuyela kwimeko yesiqhelo, usizi, isigulo esinganyangekiyo kunye nokuphila ngenjongo. Umsebenzi wakhe unokufumaneka kwiThe New York Times kunye neMagazini yeSabat, nakwiNdatshana, iHealthline, kunye nokunye. Unokufumaneka kwi-sisamariebasile.com, nakwi-Instagram nakwi-Twitter.