Ukubaleka kuncede eli bhinqa ukuba liJamelane emva kokuba eChongiwe ngesi sifo seMisipha esiNqabileyo

Umxholo

• Uphengululo lwe

Isakhono sokuhamba yinto oyithathayo ngokungakhathali, kwaye akukho mntu uyazi ukuba ngaphezulu kwembaleki uSara Hosey. Umntu oneminyaka engama-32 ubudala wase-Irving, TX, usandula ukufumanisa ukuba une-myasthenia gravis (MG), isifo esingaqhelekanga kakhulu semithambo-luvo esibonakaliswa bubuthathaka kunye nokudinwa okukhawulezileyo kwezihlunu ozilawulayo kuwo wonke umzimba.

U-Hosey usebenze okoko ebesekholejini, ethatha inxaxheba kwi-5Ks nakwisiqingatha semarathons. Ukubaleka kwaba yinxalenye yobomi bakhe, yaye akazange acinge kabini ngokubopha intambo nanini na efuna. Ngaba ngumhla woxinzelelo emsebenzini? Akukho nto ukubaleka ngokukhawuleza ibingakwazi ukunyanga. Ngaba unengxaki yokulala? Ixesha elide liyakunceda ukumdina. (Nazi izizathu ezili-11 ezixhaswa sisayensi ezisebenzayo zilungile kuwe.)

Ngenye imini ngehlobo lonyaka ophelileyo, ngokungalindelekanga waqala ukutyibilika ngelixa wayedla nosapho. "Bendiziva ndidiniwe kwezi veki zimbalwa zidlulileyo, kodwa ndiyikrwele nje ukuze ndisebenze koxinzelelo," utshilo uHosey. "Emva koko ngobunye ubusuku ndandingakwazi ukuhlafuna ukutya kwam kwaye ndaqala ukuwathambisa amagama am. Oko kwenzeka kathathu ngaphezulu kweeveki ezimbini phambi kokuba ndigqibe kwelokuba ndiye esibhedlele."

Emva kokwenza uluhlu lweemvavanyo, kubandakanywa i-CT kunye ne-MRI, oogqirha abazange bakwazi ukuqonda ukuba yintoni engalunganga. “Ndaziva ndingento yanto kwaye ndingalawuleki, ndiye ndaguqukela kwinto enye ebisoloko indigcina: ukubaleka,” utshilo.

Ugqibe ekubeni abhalise kwaye aqalise uqeqesho kwi-United Airlines New York City Half Marathon, umdyarho wakhe wesine kuloo mgama. Ndifuna nje ukuziva ngathi ndinamandla entweni, kwaye ndiyazi ukubaleka kungandinceda ndenze lonto, utshilo uHosey. (Ngaba ubusazi ukuba "umgijimi ophakamileyo" ngokwenene yinto yokwenyani, engqinwe ngokwesayensi?)

Kwiinyanga ezilithoba ezalandelayo, iimpawu zakhe zaqhubeka, nto leyo eyenza uqeqesho lwaba nzima kunangaphambili. Umzimba wam awuzange uve ngathi ndakha unyamezelo, utshilo uHosey. "Ndihlala ndisebenzisa i-Hal Higdon Novice 1 ukuqeqesha kwaye ndenzele le nto. Kodwa izihlunu zam azizange zibe ngcono njengoko zaziqhele ukwenza. Andizange ndikwazi ukwenza iikhilomitha ngexesha loqeqesho lokuqhuba ngaphambi kokuba ndiyeke. ngaba lonke uqeqesho luye lwaqhuba (ngaphandle nje abambalwa) kwaye ukunyamezela kwam akuzange kuphuculwe."

Ngeli xesha, oogqirha babengekakwazi ukuphawula ukuba yintoni ingxaki yakhe. “Ndenze uphando oluninzi ngokwam, ndafumana iMG kwi-Intanethi,” utshilo uHosey. "Ndizibonile iimpawu ezininzi kwaye ndaye ndagqiba kwelokuba ndibuze ugqirha wam uvavanyo oluthile lwegazi lokugula." (Eyeleleneyo: uPhendlo olutsha lweMpilo lukaGoogle luyakukunceda ufumane ulwazi oluchanekileyo lwezonyango kwi-Intanethi)

Kwaze, ngoFebruwari walo nyaka, kwiiveki nje ezimbalwa ngaphambi kokuba abaleke isiqingatha sembaleki, oogqirha bazingqina izikrokro zakhe. UHosey wayenayo, eneneni, iMG-isifo esingekabinalo unyango. Uthi: “Ngokunyaniseka, oko kwaba luncedo. "Ndandingasahlali ngokuthandabuza kwaye ndisoyika kakhulu."

Oogqirha bamxelela ukuba ngenxa yempilo yakhe entle emzimbeni, esi sifo asizange simchaphazele ngokukhawuleza njengoko besiya kuba nako kumntu ongekho sempilweni. Sekunjalo, "Ndandingaqinisekanga ukuba oku kuxilongwa kuthetha ntoni kwikamva, ngoko ndandizimisele ukuqhubeka noqeqesho lwam kwaye ndenze isiqingatha kungakhathaliseki ukuba yintoni," utsho. (Ndisayinelwe nje ugqatso kwaye andinalo nofifi lokuba ndingaqala ngaphi? Esi sicwangciso soqeqesho kumgama omde kufuneka sincede.)

UHosey usigcinile isithembiso awasenzayo kuye kwaye walugqiba umdyarho wesiqingatha se-NYC kule mpelaveki iphelileyo. “Yayiyeyona ndlela inzima endakha ndayenza,” utshilo uHosey. "Emva kokuba ndivuthuza, imiphunga yam yayibuhlungu kwaye ngokwenene ndawela umgca wokugqibela ndaza ndakhala. Kwakubonakala ngathi kufezekiso olukhulu njengoko umzimba wam wawusebenza ngokuchasene nam. Zonke iingxaki ezijongene noogqirha ababehlala bechaza amayeza angalunganga kwaphuma nje. . Ndandizidla yaye ndixolile kuba ndilufezile usukelo lwam kodwa zonke iimvakalelo endandizibambe zaphuma nazo.

Ngokuxilongwa ngasemva kwakhe, imibuzo emininzi isalindile kuHosey. Esi sifo siya kuyichaphazela njani intshukumo yakhe ixesha elide? Okwangoku, inye into eqinisekileyo: ukubaleka ngakumbi."Mhlawumbi ndiza kuhla ndiye kwi-5Ks, kodwa ndiza kuqhubeka nokuhamba kangangoko ndinako," utshilo. "Kulula kakhulu ukuyithatha kancinci into onokuyenza de uphulukane nayo, emva koko unokuyixabisa ngokupheleleyo."

U-Hosey unethemba lokuba ngokwabelana ngebali lakhe, angaphakamisa ulwazi malunga ne-MG kwaye akhuthaze abantu ukuba bahlale bekhuthele kwaye baqhubeke nokuhamba kuba "ngekhe wazi ukuba kwenzeka ntoni."

Uphengululo lwe