Ukutshintsha ukutya kwam kwandinceda ukuba ndibuyisele ubomi bam emva kokuba ndifunyaniswe ndine-Ulcerative Colitis

Umxholo

• Ukuchongwa
• Ukufumana enye indlela
• Ukutya okusebenzayo
• Ukwabelana ngebali lam neLizwe
• Ukujonga Phambili
• Uphengululo lwe

Amashumi amabini anesibini yayingowona nyaka ubalaseleyo ebomini bam. Ndandisandul’ ukuphumelela ekholejini yaye ndandiza kutshata nesithandwa sam kwisikolo samabanga aphakamileyo. Ubomi bebusenzeka ngendlela endifuna ngayo.

Kodwa njengoko ndandilungiselela umtshato wam, ndaqala ukuqaphela into malunga nempilo yam. Ndiqale ukufumana ukungonwabi kunye nokuqaqanjelwa sisisu kodwa ndayixhoma kuxinzelelo kwaye ndacinga ukuba iza kuzisombulula.

Emva kokuba nditshatile yaye mna nomyeni wam safudukela kwikhaya lethu elitsha kunye, iimpawu zam zazisandothusa, kodwa ndajika kwelinye icala. Ke ngobunye ubusuku ndavuka ndinesifo esibuhlungu esiswini esinegazi kuwo onke amashiti-kwaye yayingelogazi lasesixekweni. Umyeni wam wandibalekisela kwi-ER kwaye ndathunyelwa ngoko nangoko kwiimvavanyo ezininzi ezahlukeneyo. Akukho namnye kubo owagqibayo. Emva kokundinika iipilisi zokuthomalalisa iintlungu, oogqirha bancomela ukuba ndibone ugqirha wamazinyo oya kulungela ukufumana ingcambu yengxaki yam.

Ukuchongwa

Kwisithuba senyanga, ndaya kwi-GI ezimbini ezahlukeneyo. oogqirha bezama ukufumana iimpendulo. Iimvavanyo ezininzi, ukutyelela kwe-ER kunye nokubonisana kamva, akukho mntu unokwazi ukuba yintoni ebangela intlungu kunye nokopha kwam. Okokugqibela, ugqirha wesithathu wandicebisa ukuba ndifumane ikholonoscopy, eyaphela iyinyathelo elifanelekileyo. Kungekudala emva koko, bafumanisa ukuba ndine-ulcerative colitis, isifo se-autoimmune esibangela ukudumba kunye nezilonda kwikholoni kunye ne-rectum.

Ndaxelelwa ukuba isigulo sam sasinganyangeki kodwa kukho iindlela ezahlukeneyo zonyango endinokukhetha kuzo ukuze ndiphile ubomi ‘obuqhelekileyo’.

Ukuqala, ndafakwa kwi-Prednisone yedosi ephezulu (i-steroid yokunceda ngokudumba) kwaye ndathunyelwa ekhaya ndinemiyalelo eliqela. Ndinolwazi oluncinci ngesifo sam kunye nendlela esinokuba buthathaka ngayo. (Eyeleleneyo: Amakhulukhulu ezongezo zifunyenwe ziqulathe iziyobisi ezifihlakeleyo, njengeViagra kunye neSteroids)

Xa ndabuyela kubomi bemihla ngemihla ndaza ndaqalisa ukusebenzisa amayeza am, kwacaca kwiiveki nje ezimbalwa ukuba ‘into eqhelekileyo’ endandinethemba layo njengomntu osandul’ ukutshata yayingeyiyo ‘eqhelekileyo’ oogqirha ababethetha ngayo.

Ndandisahlangabezana neempawu ezifanayo kwaye, ngaphezulu koko, ndaba neziphumo ebezingalindelekanga ezivela kwidosi ephezulu yePrednisone. Ndehla ngokugqithisileyo emzimbeni, ndaphelelwa ngamandla, ndaza andakwazi nokulala. Amalungu am aqala ukwenzakala kwaye neenwele zam zaqala ukuwa. Kwafika kwinqanaba apho ukuphuma ebhedini okanye ukunyuka kwizinyuko eziva ngathi akunakwenzeka. Xa ndandineminyaka engama-22 ubudala, ndaziva ngathi ndinomzimba womntu oneminyaka engama-88.

Ukufumana enye indlela

Ukusukela ngala mhla ndafunyaniswa ngayo, ndabuza oogqirha ukuba ingaba ikhona na into endinokuyenza ngokwendalo ukundinceda ndijongane neempawu zam, nokuba kukutya, ukwenza umthambo, okanye ukwenza naluphi na olunye utshintsho kwimisebenzi yam yemihla ngemihla. Yonke ingcali yandixelela ukuba amayeza kuphela kwendlela eyaziwayo yokujongana neempawu ezibangelwa sisifo sokudumba okwenziwa sisilonda sikabhobhosi. (Idibeneyo: 10 Elula, Iindlela eziphilileyo zokuDambisa uMzimba wakho)

Kodwa emva kweminyaka emibini ndingaboni naluphi na uphuculo kwaye ndijongane neziphumo ebezingalindelekanga ezivela kuzo zonke iindlela zam, bendisazi ukuba kufuneka ndifumane enye indlela.

Ndiye ndabuyela kwiqela lam loogqirha okokugqibela ukuze ndiqwalasele kwakhona iindlela zam. Ngenxa yokuba iimpawu zam zazinobundlongo-ndlongo kangakanani, kunye nendlela ekwandityhafisa ngayo, bathi ndingenza enye yezinto ezimbini: Ndingakhetha utyando kwaye ndisuswe nenxalenye yekholoni yam (inkqubo esemngciphekweni omkhulu enokuthi incede kodwa ibangele ukuba kuvele uqhaqho. uthotho lwezinye iingxaki zempilo) okanye ndingazama iyeza lokunyanga ukulawulwa nge-IV rhoqo kwiiveki ezintandathu. Ngelo xesha, olu nyango lwalulutsha kwaye i-inshurensi yayingayigubungeli. Ke bendijonge ukuchitha phakathi kwe- $ 5,000 kunye ne- $ 6,000 nge-infusion, engenakwenzeka kuthi ngokwezezimali.

Ngaloo mini, mna nomyeni wam sagoduka saza sakhupha zonke iincwadi kunye nophando esasiludibanise nesi sifo, sizimisele ukufumana enye indlela.

Kule minyaka imbalwa idlulileyo, bendikhe ndafunda iincwadi ezimbalwa malunga nendlela ukutya okunokudlala ngayo indima ekunciphiseni iimpawu eziza ne-ulcerative colitis. Umbono yayikukuba ngokwazisa i-gut gut esempilweni kunye nokusika ukutya okukhulisa i-gut gut bacteria, ii-flareups zaba mbalwa kwaye zaba phakathi. (Idibeneyo: 10 Ukutya okuSisiseko seProtheyini ekuSebenzisekayo ekulula ukuyetyisa)

Ngengozi, kwenzeka ukuba ndiye ecaleni kwebhinqa elalinesifo esifana nesam. Wayesebenzise ukutya okungenazinkozo ukufezekisa ukuxolelwa. Ndandinomdla kukuphumelela kwakhe, kodwa nangona kunjalo, ndandifuna ubungqina obungakumbi.

Ekubeni bekungekho uphando oluninzi olupapashiweyo malunga nokuba kutheni okanye njani utshintsho lokutya lunceda abantu abane-UC, ndaye ndagqiba ekubeni ndiye kumagumbi okuxoxa ngonyango kwi-intanethi, ukuze ndibone ukuba kukho umkhwa apha apho uluntu lunokuthi lulahlekile. (Idibeneyo: Ngaba kufuneka uthembele kwiiNkcazo ze-Intanethi kumaNqaku ezeMpilo?)

Kuyavela, kukho amakhulu abantu abaye bafumana iziphumo ezilungileyo ngokusika iinkozo kunye nokutya okucutshungulweyo ekudleni kwabo. Ndiye ndagqiba ekubeni ndizame.

Ukutya okusebenzayo

Ndinyanisile: Bendingazi kakhulu malunga nesondlo phambi kokuba ndiqale ukusika izinto ekudleni kwam. Ngenxa yokunqongophala kwezixhobo malunga ne-UC kunye nesondlo, bendingazi nokuba loluphi uhlobo lokutya ukuzama kuqala okanye ukuba mandizame ixesha elingakanani. Kwafuneka ndingene kuvavanyo oluninzi kunye nephutha ukuze ndibone ukuba yintoni enokundisebenzela. Ukungathethi, ndandingaqinisekanga nokuba ukutya kwam kuya kuba yimpendulo kwaphela.

Ukuqala, ndagqiba ekubeni ndihambe ngaphandle kwe-gluten kwaye ngokukhawuleza ndaqonda ukuba kwakungeyona impendulo. Ndagqibela ndilamba ngalo lonke ixesha kwaye ndandizifake kwinkunkuma eninzi kunakuqala. Ngelixa iimpawu zam ziphuculwe kancinci, utshintsho belungangxami njengoko bendinethemba lokuba. Ukusuka apho, ndazama iindlela ezininzi zokutya, kodwa iimpawu zam azizange zibe bhetele. (Idibeneyo: Kutheni ufanele ukuba uphinde uyiqwalasele i-Gluten-Free Diet ngaphandle kokuba uyayifuna ngokwenene)

Ekugqibeleni, emva konyaka malunga nokuzama, ndaye ndagqiba kwelokuba ndithathe izinto ukuya kwinqanaba elilandelayo kwaye ndenze ukutya okungafunekiyo, ndisike yonke into enokubangela ukudumba. Ndaqala ukusebenza nogqirha osebenza ngamayeza, owayesithi mandisike zonke iinkozo, ilactose, ideri, amandongomane, ii-nightshades kunye nokutya okugqityiweyo endikutyayo.

Ndabona eli njengelithemba lam lokugqibela ngaphambi kokuba ndibhenele kunyango lwe-IV, ke ndaya kulo ndisazi ukuba kufuneka ndinikele ngako konke. Oko kwakuthetha ukuba akukho ukukopela kwaye uzibophelela ngokwenene ukuba uza kusebenza ixesha elide.

Ndabona ukuphuculwa kweempawu zam kwiiyure ze-48-kwaye ndithetha ukuphuculwa okukhulu. Kwiintsuku nje ezimbini, iimpawu zam zazingcono ngeepesenti ezingama-75, lolona loncedo endandikhe ndalufumana emva kokuba ndifumene isifo.

Injongo yesondlo sokuphelisa kukuphinda uvelise kwakhona amaqela athile okutya kulawulo lwakho lokutya ukuze ubone ukuba yintoni ebangela ukudumba.

Emva kweenyanga ezintandathu ndisika yonke into ngaphandle kwaye ndongeza kancinci ukutya ngaphakathi, ndiye ndaqonda ukuba iinkozo kunye nobisi yayingamaqela amabini okutya abangela ukuba iimpawu zam zivuthe. Namhlanje, nditya ukutya okuziinkozo, ukutya kwePaleo-esque, kuthintela konke ukutya okucwangcisiweyo kunye nokupakishwa. Ndixolile kwaye ndiyakwazi ukugcina amayeza am ubuncinci ngelixa ndilawula isifo sam.

Ukwabelana ngebali lam neLizwe

Ukugula kwam kwathatha iminyaka emihlanu ebomini bam. Utyelelo lwesibhedlele olungacwangciswanga, iitoni zoqeshwa koogqirha, kunye nenkqubo yokufumanisa indlela enditya ngayo ibindenza buhlungu, ibuhlungu, kwaye, ngasemva, ndinokuphepha.

Emva kokubona ukuba ukutya kunganceda, ndiye ndazibona ndinqwenela ukuba umntu othile andixelele ukuba nditshintshe indlela enditya ngayo. Yiloo nto eyandiqhubela ekubeni ndiqale ukwabelana ngohambo lwam kunye neeresiphi zam ezingenazinkozo-ukuze abanye abantu kwizihlangu zam bangabinakuchitha iminyaka yobomi babo bengenathemba kwaye begula.

Namhlanje, ndipapashe iincwadi zokupheka ezine ngeyam Nxamnye Nayo Yonke Ingqolowa uthotho, zonke zijolise kubantu abaphila nezifo ezizimelayo. Impendulo ayikhange ibe yinto emfutshane ngokumangalisayo. Ndiyazi ukuba abantu abane-UC kunye ne-Crohn's Disease baya kuba nomdla kule ndlela yokutya, kodwa into eyothusayo kukuhluka kwabantu abanezifo ezahlukileyo (kubandakanya i-MS kunye ne-rheumatoid arthritis) abathi le ndlela yokutya incede kakhulu iimpawu zabo kwaye babenza bazive ngathi zezona nguqulelo zisempilweni kubo.

Ukujonga Phambili

Nangona ndibubophelele ubomi bam kwesi sithuba, ndisafunda ngakumbi ngesifo sam. Umzekelo, ngalo lonke ixesha ndinomntwana, kubakho ukubeleka emva kokubeleka, kwaye andazi ukuba kutheni utshintsho kwiihomoni ludlala indima kuloo nto. Kuye kwafuneka ndithembele kumayeza amaninzi ngelo xesha kuba ukutya kuphela akupheli. Ngumzekelo nje omnye wezinto ekungekho mntu ukuxelela ngazo xa une-UC; Kuya kufuneka uzifumanele ngokwakho. (Idibeneyo: Ngaba unokuziNika ukunganyamezelani kokutya?)

Ndikwafundile ukuba, ngelixa ukutya kunokuba luncedo kakhulu, indlela yakho yokuphila iyonke idlala indima enkulu ekulawuleni iimpawu zakho. Ndingatya ukutya okucocekileyo okuphambeneyo, kodwa ukuba ndinestres okanye ndisebenze kakhulu, ndiqala ukuziva ndigula kwakhona. Ngelishwa, akukho nzululwazi ngqo kuyo kwaye yinto nje yokubeka impilo yakho phambili kuzo zonke izinto.

Ngamawaka obungqina endiwuvileyo kuyo yonke le minyaka, inye into eqinisekileyo: Kukho uphando oluninzi ekufuneka lwenziwe malunga nokuba isisu sinxibelelene kangakanani nomzimba wonke kunye nendlela ukutya okunokudlala ngayo indima ekunciphiseni iimpawu, ngakumbi ezo zinxulumene nezifo ze-GI. Into elungileyo kukuba zininzi izibonelelo ezikhoyo phaya namhlanje kunokuba bezinjalo ukuqala kwam ukufunyanwa. Kum, ukutshintsha indlela enditya ngayo yayiyimpendulo, kwaye kwabo basandula ukufumanisa ukuba bane-UC kwaye besokola neempawu, ngokuqinisekileyo ndingakhuthaza ukuyidubula. Ekupheleni kosuku, yintoni eza kulahleka?

Uphengululo lwe