Izinto ezi-6 endizifundileyo kunyaka wam wokuqala nge-MS

Umxholo

• 1. I-MS ayilotyala lomntu
• 2. Ndomelele kunokuba ndandicinga
• 3. Kwelinye icala, ukunyibilika kulungile
• 4. Wonke umntu yingcali
• 5. Ukubaluleka kwesizwe
• 6. Ayisiyiyo yonke into emalunga ne-MS
• Yise kude

Kwiminyaka elishumi elinesixhenxe eyadlulayo, kwafunyaniswa ukuba ndine-multiple sclerosis (MS). Okona kuninzi, ndiziva ngathi ndilungile ukuba ne-MS. Ngumsebenzi onzima kwaye intlawulo ilousy, kodwa ndilawula into ekufuneka ilawulwe. Ndiyaqhubeka nayo, kwaye ndabelana ngamava am kwibhlog yam, Ukutsiba emoyeni.

Bendihlala ndingumphathi onje nge-MS, nangona. Ukuqala kwam ukufunyaniswa, ndandisoyika. Ndandiqala nje ebomini, kwaye ukuxilongwa kwam kwavakala ngathi ikamva lam lonke lilahliwe.

Unyaka wokuqala emva kokuxilongwa kunokuba yenye yezona zinzima ebomini bakho. Ndafunda okuninzi ngeli xesha, nawe ke uza kwenjenjalo.

Nazi izinto ezintandathu endizifundileyo kunyaka wokuqala emva kokuchongwa kwam.

1. I-MS ayilotyala lomntu

Yindalo yomntu ukufuna ukuqonda ukuba kutheni izinto zisenzeka. Asinakukunceda.

Uphawu lwam lokuqala lwe-MS yayikukuhlaba iintlungu zamehlo ezafunyanwa kamva njenge-optic neuritis. Kuvele iveki emva kokuba ndichithe ubusuku baseHalloween ndisela iwayini kakhulu kunye nezintombi zam, ndiphosa abanye, kwaye ndenza imibhiyozo engahlawulwayo.

Ixesha elide, bendiziqinisekisa ukuba iwayini ebomvu kunye needemon bezimeme ngandlela thile i-MS ebomini bam. Asazi kakuhle ukuba yintoni ebangela i-MS, kodwa kukhuselekile ukuthi ayibobugqwirha.

Khange ufumane i-MS ekuhlaleni kude kube sebusuku okanye ungabethi umthambo ngokwaneleyo. Awukhange ufumane i-MS kuba ulibale ukufloss okanye utya ilekese kwisidlo sakusasa. I-MS ayisosiphumo sayo nayiphi na imikhwa emibi ozibetha kuyo. I-MS yenzeka kwaye ayilotyala lakho.

2. Ndomelele kunokuba ndandicinga

Unyango lokuqala endandilunikiwe yayilinaliti-inaliti ekufanele ndiyinike yona. Ingcinga yam yayikukuba hayi, iphindaphindwe. Andizange ndicinge ukuba ndingakwazi ukumelana nenaliti yonke imihla, ndingasathethi ke ndizinike ngokwam.

Umama wam wandinika iinaliti zam kwinyanga yokuqala. Kodwa ngenye imini, ndaye ndagqiba kwelokuba ndifuna inkululeko yam.

Ukudubula i-auto-injector emlenzeni wam okokuqala kwakoyikisa, kodwa ndiyenzile. Kwaye kwixesha elizayo xa ndiyenzile, kwakulula. Inaliti zam zaqhubeka zilula, de ukuzinika inaliti ekugqibeleni kwaba yinto enkulu.

3. Kwelinye icala, ukunyibilika kulungile

Nangona ndandifumanisa ukuba ndingenza izinto ezinzima, ndiza kuzifumana ndidibene kwigumbi lokuhlambela, ndilila. Ndibeka uxinzelelo oluninzi kum ukubeka ubuso obukhaliphile kwabanye, kodwa kuyinto eqhelekileyo ukukhupha.

Kuphilile ukuba buhlungu ngento ohamba kuyo. Kodwa ukuba uyasokola, licebo elihle ukucela uncedo. Thetha nogqirha wakho ukufumana iingcebiso kubaqeqeshi bezempilo yengqondo abanokukunceda.

4. Wonke umntu yingcali

Emva kokuchongwa kwam, ngesiquphe kwabonakala ngathi wonke umntu ongajonganga nto afunde ukuba ndine-MS wayenento ayithethayo. Babeza kundixelela ngomphathi kamama wabo ongumhlobo osenyongweni owayene-MS, kodwa waphiliswa ngokutya okungummangaliso, isongezo esingaqhelekanga, okanye utshintsho lwendlela yokuphila.

Iingcebiso ezingacelwanga rhoqo bezicwangciswe kakuhle, kodwa azaziswanga. Khumbula, izigqibo zakho zonyango ziphakathi kwakho nogqirha wakho. Ukuba kuvakala kufanelekile ukuba kuyinyani, mhlawumbi kunjalo.

5. Ukubaluleka kwesizwe

Emva kokuxilongwa, ndafikelela kubantu ababedlula kwezi ntlobo ndandinazo ngelo xesha. Oku kwakungaphambi kokuba kube lula ukufumana amaqela kwi-intanethi, kodwa ndakwazi ukunxibelelana nabanye abafana nam nge-National MS Society nangabahlobo. Ndenze ubudlelwane kunye nabasetyhini abancinci abane-MS ababekwinqanaba elifanayo lobomi njengam, ndizama ukuqonda izinto ezinjengokuthandana nokuqala amakhondo.

Kwiminyaka elishumi elinesixhenxe kamva, ndisahleli naba bafazi. Ndiyazi ukuba ndingabatsalela umnxeba okanye ndibathumele umyalezo nangaliphi na ixesha xa ndifuna ukukhupha okanye ukwabelana ngolwazi, kwaye baya kuyifumana ngendlela ekungekho mntu unokuyenza. Ukubonwa kubaluleke kakhulu, kwaye ngokuncedana, unokuzinceda.

6. Ayisiyiyo yonke into emalunga ne-MS

Kukho iintsuku xa ndiziva ngathi andikaze ndicinge nge-MS. Ngezi ntsuku, kufuneka ndizikhumbuze ukuba ndingaphezulu kokuxilongwa kwam - ngendlela engaphezulu.

Ukuziqhelanisa nendlela eqhelekileyo yesiqhelo kunye nendlela entsha ocinga ukuba ubomi bakho buza kujongeka ngayo kunokuba nzima, kodwa usenguye. I-MS yingxaki ekufuneka ujongane nayo, ke jonga i-MS yakho. Kodwa soloko ukhumbula ukuba awuyiyo i-MS yakho.

Yise kude

Kunyaka wam wokuqala kunye ne-MS, ndafunda okuninzi malunga nokuba kuthetha ntoni ukuhlala nesifo esinganyangekiyo. Ndifunde okuninzi ngam. Ndomelele kunokuba ndandicinga ukuba kunokwenzeka. Kwiminyaka ukusukela ekufumanekeni kwam, ndiye ndafunda ukuba i-MS ingenza ubomi bube nzima, kodwa ubomi obunzima abunyanzelekanga ukuba bubomi obubuhlungu.

U-Ardra Shephard ngoyena mntu unebhlog yaseCanada enegalelo emva kwebhlogi ephumelele ibhaso yokuThutha eMoyeni- isikhohlakali esingahloniphiyo ngobomi bakhe nge-multiple sclerosis. U-Ardra ngumcebisi weskripthi kumdlalo kamabonakude we-AMI malunga nokuthandana kunye nokukhubazeka, "Kukho into ekufuneka uyazi," kwaye ibonakalisiwe kwiSickboy Podcast. I-Ardra inegalelo kwi-msconnection.org, iMandla, i-xojane, i-Yahoo Lifestyle, kunye nabanye. Kwi-2019, wayesisithethi esiphambili kwi-MS Foundation yeCayman Islands.Mlandele ku-Instagram, kuFacebook, okanye kwi-hashtag #babeswithmobilityaids ukuba uphefumlelwe ngabantu abasebenza ukutshintsha umbono wokuba kujongeka njani ukuhlala nokukhubazeka.