Isikhokelo seNgxoxo ngoGqirha: Uluvavanya njani unyango lwakho lwe-MS

Umxholo

• Ndingazi njani ukuba unyango lwam luyasebenza?
• Zithini iingozi ezinxulumene nonyango lwam lwangoku?
• Kufuneka ndenze ntoni xa ndingacingi ukuba unyango lwam luyasebenza?
• Ndingenza ntoni ukunciphisa iimpawu zam?
• Zeziphi ezona ndlela zibalaseleyo zokuhlangabezana nokubuyela umva?
• Ithini imbono yam yexesha elide?
• Ukuthatha

Ukuba usandula ukufumanisa ukuba unesifo sokuphindaphindeka kwamalungu omzimba (RRMS) okanye ukuba utshintshe unyango lwe-MS kunyaka ophelileyo, unokuba nemibuzo malunga nokuba ungalindela ntoni.

Ityala ngalinye le-MS lahlukile, kwaye iindlela zonyango zisebenza ngaphezulu okanye kancinci kubantu abahlukeneyo. Ngenxa yoko, ukunyanga i-MS kunokuziva njengenkqubo yokulinga kunye nempazamo. Ifuna unxibelelwano olusondeleyo phakathi kwakho nogqirha wakho.

Ngexesha lokuqala kwenqanaba lonyango olutsha, jonga iimpawu zakho kufutshane kwaye udibane nogqirha wakho rhoqo ukuze uxoxe ngenkqubela yakho. Kuyanceda ukugcina incwadi yemibuzo onokuba unayo kwaye uzise nawe kuyo yonke ingqesho. Unokufuna ukubhala phantsi iimpendulo zikagqirha wakho ukuze zisetyenziswe kwixesha elizayo.

Ukuba awuqinisekanga malunga nento omele uyibuze, esi sikhokelo sengxoxo silandelayo sinokusebenza njengeplani.

Ndingazi njani ukuba unyango lwam luyasebenza?

Uqwalaselo oluphambili kukuba ukubakho rhoqo kunye nobukrakra bokubuyela kwakho kwakhona kuyehlile ukusukela oko waqalisa unyango. Ngokusekwe kwimbali yakho yokuphinda ubuye kunye neempawu zakho zangoku, ugqirha wakho kufuneka akwazi ukukunika umbono ongcono wokuba unyango lwakho olutsha lubonakala lusebenza ngokufanelekileyo.

Nangona ungaziva ngathi iimpawu zakho zitshintshile, kubalulekile ukuba ukhumbule ukuba enye yeenjongo eziphambili zonyango lwe-MS kukuthintela ukuqala kweempawu ezintsha.

Zithini iingozi ezinxulumene nonyango lwam lwangoku?

Ugqirha wakho angathetha nawe ngayo nayiphi na ingozi onokuba nayo unyango lwangoku, ngoku nakwixesha elizayo. Amayeza athile e-MS anokunyusa amathuba okuba uphuhlise imicimbi yezempilo enje nge-stroke, i-migraines, okanye uxinzelelo. Unokuhlala ubuza ugqirha wakho malunga nokuba izibonelelo zonyango lwakho zingaphezulu kweengozi.

Unokufunda ngakumbi malunga naziphi na iziphumo ebezingalindelekanga ezinokubangelwa lunyango lwakho, kunye nento onokuyenza ukunceda ukuzinciphisa. Ukuba ekugqibeleni uceba ukuba nabantwana, buza ugqirha wakho malunga neengozi ezinokubangelwa ngamayeza akho e-MS ngexesha lokukhulelwa. Banokucebisa utshintsho kwisicwangciso sakho sonyango.

Kufuneka ndenze ntoni xa ndingacingi ukuba unyango lwam luyasebenza?

Ukuba awucingi ukuba unyango lwakho lusebenze kakuhle okanye uqaphele ukuba iimpawu zakho ziye zanda, thetha nogqirha wakho kwangoko.

Amanye amayeza e-MS kufuneka ayekiswe ngamanye amaxesha ukuze umzimba wakho ubuyele kwakhona, kodwa ungenzi naluphi na utshintsho kwirejimeni yonyango ngaphandle kokubonisana nogqirha wakho kuqala.

Qinisekisa ukuba ulawula unyango lwakho ngokuchanekileyo, kwaye ujonge ugqirha wakho ukuqinisekisa ukuba amayeza akho e-MS awachaphazeleka nakweyiphi na ikhawuntareni okanye amayeza amiselweyo onokuwathatha.

Ukuba ugqirha wakho uyavuma ukuba isicwangciso sakho sonyango asisebenzi njengoko kulindelwe, thatha ixesha lokuxoxa ngokulungileyo kunye nokubi kokulandela iindlela ezintsha.

Ndingenza ntoni ukunciphisa iimpawu zam?

Unyango luyafumaneka ukujongana neempawu ezithile ze-MS. Umzekelo, ii-steroids ngamanye amaxesha zisetyenziswa okwexeshana ukunciphisa ukudumba. Ugqirha wakho unokubonelela ngeendlela ezinokukunceda ujongane ngcono nangayo nayiphi na into ekhoyo ngoku.

Kukho izinto ezininzi onokuzenza ekhaya ukunceda ukuphucula imeko yakho yempilo-ntle.

Uxinzelelo yenye yezona zinto zinkulu zangaphandle ezinokunyusa iimpawu ze-MS. Zama ukulawula amanqanaba akho oxinzelelo ngokwenza umthambo njengokuphefumla okunzulu kunye nokuphumla kwezihlunu okuqhubekayo. Ukuzifumana kwishedyuli yokulala engaguqukiyo yeeyure ezisixhenxe ukuya kwezisibhozo ngobusuku kunokunciphisa uxinzelelo kwaye ikunike amandla ngakumbi kulo lonke usuku lwakho.

Nangona i-MS inokuthintela ukuhamba kwakho, yenza umzamo wokuhlala usebenza kangangoko unakho. Imisebenzi yeempembelelo eziphantsi njengokuhamba, ukuqubha, kunye negadi kunceda ukuphucula amandla akho. Sebenza nogqirha wakho ukuphuhlisa isicwangciso somzimba esilungiselelwe amandla kunye neemfuno zakho.

Zeziphi ezona ndlela zibalaseleyo zokuhlangabezana nokubuyela umva?

Ukufumana ukuphinda ubuye, ngamanye amaxesha ekubhekiswa kuko njengokuhlaselwa, yenye yezona zinto zinzima malunga nokuhlala ne-MS. Thetha nogqirha wakho malunga neendlela kunye neendlela ezinokukunceda ulawule kwaye uphinde uchache kuhlaselo. Iinkonzo zenkxaso-ezinje nge-physiotherapy, unyango lomsebenzi, kunye nokuthuthwa ukuya nokubuya esibhedlele-zinokwenza umahluko omkhulu.

Ukuphinda ubuye kakhulu ngamanye amaxesha kunyangwa ngedosi ephezulu yenaliti ye-steroid, ethathwe ngaphezulu kweentsuku ezintathu ukuya kwezintlanu. Nangona unyango lwe-steroid lunokunciphisa ixesha lokuphinda ubuye, aluboniswanga ukuba luchaphazele ukuqhubela phambili kwe-MS.

Ithini imbono yam yexesha elide?

Kuba zonke iimeko ze-MS zahlukile, kunzima ukwazi ngokuthe ngqo ukuba imeko yakho iza kuhamba njani ekuhambeni kwexesha.

Ukuba indlela yakho yangoku yonyango ibonakala ikuvumela ukuba ulawule ngokufanelekileyo iimpawu zakho, kunokwenzeka ukuba ungaqhubeka kwirejimeni efanayo iminyaka ngaphandle kotshintsho olukhulu. Nangona kunjalo, kunokwenzeka ukuba iimpawu ezintsha zivuke, kwimeko apho wena kunye nogqirha wakho unokufuna ukuphinda uhlolisise ukhetho lwakho lonyango.

Ukuthatha

Khumbula ukuba akukho mibuzo isileyo xa isiza ekuxoxeni nge-MS. Ukuba awuqinisekanga ngento enxulumene nemeko yakho okanye engacacanga malunga nemiba yonyango lwakho, musa ukoyika ukubuza ugqirha wakho.

Ukufumana unyango olufanelekileyo lwe-MS yinkqubo. Unxibelelwano oluvulekileyo nogqirha wakho linyathelo elibalulekileyo ekufumaneni ukuba yeyiphi eyona nto isebenzayo kuwe.