Ndizama njani izixhobo zokuHamba eziTshintshe indlela endizijonga ngayo nge-MS

Umxholo

• Umgca wezantsi

Ihlobo phakathi konyaka wam omncinci kunye nonyaka ophakamileyo wekholeji, mna nomama sagqiba ekubeni sibhalisele inkampu yokuqina komzimba. Iiklasi zaziqhutywa ntsasa nganye ngentsimbi yesi-5 kusasa Ngenye intsuku ngelixa ndibaleka, ndandingaziva iinyawo zam. Kwezi veki zilandelayo, izinto zaba mbi, kwaye ndayazi ukuba lixesha lokuba ndibonane nogqirha.

Ndindwendwele oogqirha abaliqela abandinika iingcebiso eziphikisanayo. Kwiiveki ezimbalwa kamva, ndazifumana ndisesibhedlele ukuze ndifumane olunye uluvo.

Oogqirha bandixelele ukuba ndine-multiple sclerosis (MS), isifo sesistim se-nervous system esiphazamisa ukuhamba kolwazi ngaphakathi kwengqondo naphakathi kwengqondo nomzimba.

Ngelo xesha, ndandingazi ukuba yintoni i-MS. Andizange ndiyazi into enokuyenza emzimbeni wam.

Kodwa bendisazi ukuba andinakuze ndivumele imeko yam ukuba indichaze.

Kwimihla yeentsuku, isifo endingazange ndazi nto ngaso saba yinto ekugxilwe kuyo ngokupheleleyo kunye neziko lobomi bosapho lwam. Umama nodadewethu baqala ukuchitha iiyure kwikhompyuter yonke imihla, befunda inqaku ngalinye kunye nezixhobo abanokuzifumana. Sasifunda njengokuba sihamba, kwaye ulwazi lwaluninzi kakhulu.

Ngamanye amaxesha ndandiziva ngathi ndikwi-roller coaster. Izinto zazihamba ngokukhawuleza. Ndandisoyika kwaye ndingazi ukuba ndilindele ntoni emva koko. Bendikhwele andikhethanga kuhamba, andiqinisekanga ukuba izondithatha indise phi.

Into esikhawuleze sayifumana kukuba i-MS ifana namanzi. Ingathatha iimilo ezininzi kunye neefom, uninzi lweentshukumo, kwaye kunzima ukuziqulatha okanye ukuqikelela. Into endinokuyenza kukuyifaka ngaphakathi kwaye ndilungiselele nantoni na.

Ndaziva ndibuhlungu, ndothukile, ndididekile, ndinomsindo, kodwa ndandisazi ukuba akukho sizathu sokukhalaza. Ewe, usapho lwam belungayi kundivumela nokuba kunjalo. Sinemotto ethi: "I-MS yi-BS."

Ndandisazi ukuba ndiza kulwa nesi sifo. Ndayazi ukuba ndinomkhosi wokuxhasa emva kwam. Bendisazi ukuba bazakubakhona yonke inyathelo lendlela.

Ngo-2009, umama wam wafumana umnxeba owatshintsha ubomi bethu. Umntu othile kuMbutho weSizwe we-MS waye wafunda malunga nokufunyaniswa kwam kwaye wabuza ukuba bangasixhasa njani kwaye njani.

Kwiintsuku ezimbalwa kamva, ndamenywa ukuba ndidibane nomntu owayesebenza nabantu abadala abasandula ukufunyanwa. Uye weza endlini yam saphuma sayokwenza I ice cream. Wayemamela kakuhle xa ndithetha ngoxilongo lwam. Emva kokuba ndimxelele ibali lam, wabelana ngamathuba, iminyhadala, kunye nezixhobo umbutho ekufuneka ubonelele ngazo.

Ukuva ngomsebenzi wabo kunye namawaka abantu ababancedayo kwandenza ndaziva ndililolo. Kwakuthuthuzela ukwazi ukuba kukho abanye abantu kunye neentsapho phaya zilwa umlo endandiwuye. Ndivakalelwa ngathi ndimi ethubeni lokuyenza, kunye. Ndazi kwangoko ukuba ndifuna ukuzibandakanya.

Kungekudala, usapho lwam laqala ukuthatha inxaxheba kwiminyhadala efana ne-MS Walk kunye ne-Challenge MS, inyusa imali yophando kwaye ibuyisela kumbutho owawusinika okungaka.

Ngokusebenza nzima nangakumbi nangakumbi ukonwaba, iqela lethu - eligama lingu "MS yi-BS" -linyuse ngaphezulu kwe- $ 100,000 kule minyaka idlulileyo.

Ndifumene indawo yabantu abandiqondayo. Yayiyeyona “qela” likhulu nelona lihle endakha ndalijoyina.

Kungekudala, ukusebenza noMbutho we-MS kuye kwancipha ekuphumeni kunye nokuthanda ngakumbi kum. Njengomnxibelelanisi ophambili, bendisazi ukuba ndingasebenzisa izakhono zam ukunceda abanye. Ekugqibeleni, ndangena kumbutho okwethutyana, ndithetha nabanye abantu abancinci abasandula ukufumanisa ukuba bane-MS.

Njengokuba ndizama ukunceda abanye ngokwabelana ngamabali am kunye namava, ndiye ndafumanisa ukuba andinceda nangakumbi. Ukwazi ukusebenzisa ilizwi lam ukunceda uluntu lwaseMS kwandinika imbeko kunye nenjongo ngakumbi kunokuba bendikhe ndacinga njalo.

Okona kwenzeka kwimisitho endiye ndaya kuyo, kokukhona ndifunda ngakumbi ngendlela abanye abahlangabezana ngayo nesi sifo kunye nokuzilawula iimpawu zabo. Ukusuka kwezi ziganeko, ndifumene into ebendingazukuyifumana naphi na: ingcebiso yam evela kwabanye abalwa idabi elinye.

Nangona kunjalo, amandla am okuhamba aqhubeka esiba mandundu. Kulapho ndaqala khona ukuva ngesixhobo esincinci sombane abantu ababizwa ngokuba "ngabenzi bemimangaliso."

Ngaphandle kwemingeni endandiqhubeka nayo, ukuva ngoloyiso lwabanye abantu kwandinika ithemba lokuqhubeka ndisilwa.

Ngo-2012, iyeza endandilithatha ukunceda ukulawula iimpawu zam laqala ukuchaphazela ithambo lam, kwaye ukuhamba kwam kwaqhubeka kusiba mandundu. Ndiqale ukufumana "ukuhla kweenyawo," ingxaki yomlenze wokutsala edla ngokuza ne-MS.

Nangona ndizamile ukuhlala ndinethemba, ndaqala ukuyamkela into yokuba ndiza kufuna isitulo esinamavili.

Ugqirha wam wandilungiselela isihlangu esenziwe ngomqolo esenzelwe ukubamba unyawo lwam phezulu ukuze ndingakhubeki kuwo. Endaweni yoko, yemba emlenzeni wam kwaye yabangela phantse ukungonwabi kunokuba yayincedile.

Ndeva okuninzi malunga "nomlingo" isixhobo esibizwa ngokuba yiBioness L300Go. Yikhofu encinci oyinxibayo kwimilenze yakho ukuyivuselela kwaye incede ekubuyiseni izihlunu zakho. Ndiyayifuna le nto, ndacinga, kodwa andinakukwazi ukuyifumana ngelo xesha.

Kwiinyanga ezimbalwa kamva, ndacelwa ukuba ndinike intetho yokuvula neyokuvala kwi-MS Achievers enkulu yokunyusa ingxowa-mali ye-MS Society.

Ndithethile ngohambo lwam lwe-MS, izihlobo ezintle endiye ndadibana nazo xa ndandisebenza nombutho, nangabo bonke abantu abanokuncediswa yiminikelo, nokuba ngophando olunzulu okanye ngokunceda abantu bafumane itekhnoloji, njengeL300Go.

Ukulandela umsitho, ndafumana umnxeba ovela kumongameli we-MS Society. Umntu othile kumsitho wandiva ndithetha kwaye wabuza ukuba bangandithengela i-L300Go.

Kwaye yayingenguye nje nabani na, kodwa umdlali webhola weRedskins uRyan Kerrigan. Ndonganyelwe ngumbulelo kunye nemincili.

Xa ekugqibeleni ndaphinda ndambona, malunga nonyaka kamva, kwakunzima ukubeka into awayeyinike yona. Ngeli xesha, ikhafu emlenzeni wam yayithetha lukhulu ngakumbi kunayo nayiphi na into exakayo okanye isixhobo sonyawo lweenyawo.

Ibilulwandiso lomzimba wam - isipho esitshintshe ubomi bam kwaye sindivulele ithuba lokuqhubeka ndinceda abanye.

Ukusukela ngala mhla ndifumana okokuqala iBioness L300Go, okanye "ikhompyuter yam encinci" njengoko ndiyibiza njalo, ndaqala ndaziva ndomelele kwaye ndizithembile. Ndiphinde ndabuya nengqondo yesiqhelo ndingazi nokuba ndilahlekile. Le yayiyinto engekho elinye iyeza okanye isixhobo esibe nako ukundinika sona.

Enkosi kwesi sixhobo, ndizibona njengomntu oqhelekileyo kwakhona. Andilawulwa sisifo sam. Iminyaka, intshukumo kunye nokuhamba yayingumsebenzi ongaphezulu komvuzo.

Ngoku, ukuhamba ebomini akusengokwasemzimbeni kwaye umsebenzi wengqondo. Akukho mfuneko yokuba ndizixelele "Phakamisa unyawo lwakho, thatha inyathelo," kuba i-L300Go yam indenzela loo nto.

Andizange ndikuqonde ukubaluleka kokuhamba de ndiqale ukuphulukana nako. Ngoku, onke amanyathelo asisipho, kwaye ndizimisele ukuqhubela phambili.

Umgca wezantsi

Nangona uhambo lwam lusekude ukuphela, into endiyifundileyo okoko ndafunyaniswa ukuba ibalulekile: Ungoyisa nantoni na ephoswa bubomi nosapho kunye noluntu oluxhasayo.

Nokuba ungaziva ulilolo kangakanani, bakhona abanye apho bokukuphakamisa kwaye baqhubeke uqhubele phambili. Baninzi abantu ababalaseleyo emhlabeni abafuna ukukunceda apha endleleni.

I-MS inokuziva inesithukuthezi, kodwa kukho inkxaso eninzi phaya. Nabani na ofunda le nto, nokuba unayo i-MS okanye awunayo, into endiyifundileyo kwesi sifo kukuba ungaze unikezele, kuba "ingqondo yomelele yomelele ngokomzimba" kwaye "i-MS yi-BS."

UAlexis Franklin ungummeli onesigulana ovela eArlington, VA owafunyaniswa ene-MS eneminyaka engama-21 ukusukela ngoko, yena nosapho lwakhe bancedisile ekukhuliseni amawaka eedola kuphando lwe-MS kwaye uhambe indawo enkulu-ye-DC ethetha nabanye abancinci abasandula ukufumanisa ukuba baselula. abantu malunga namava akhe esi sifo. Ungumama onothando womxube we-chihuahua, uMinnie, kwaye uyakonwabela ukubukela ibhola yeRedskins, ukupheka kunye nokukhonkxa ngexesha lakhe lasimahla.